المؤلفون: McGraw S; The Henne Group, 116 New Montgomery Street, Suite 812, San Francisco, CA, 94105, USA., Qian Y; SMA Foundation, 888 7th Ave #400, New York, NY, 10106, USA., Henne J; The Henne Group, 116 New Montgomery Street, Suite 812, San Francisco, CA, 94105, USA., Jarecki J; Cure SMA, 925 Busse Rd, Elk Grove Village, IL, 60007, USA. Jill@curesma.org., Hobby K; Cure SMA, 925 Busse Rd, Elk Grove Village, IL, 60007, USA., Yeh WS; Biogen, 225 Binney Street, Cambridge, MA, 02142, USA.

المصدر: BMC neurology [BMC Neurol] 2017 Apr 04; Vol. 17 (1), pp. 68. Date of Electronic Publication: 2017 Apr 04.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: BioMed Central Country of Publication: England NLM ID: 100968555 Publication Model: Electronic Cited Medium: Internet ISSN: 1471-2377 (Electronic) Linking ISSN: 14712377 NLM ISO Abbreviation: BMC Neurol Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures*, Activities of Daily Living/*psychology , Muscular Atrophy, Spinal/*psychology , Quality of Life/*psychology, Adolescent ; Adult ; Child ; Child, Preschool ; Female ; Health Personnel ; Humans ; Infant ; Male ; Muscular Atrophy, Spinal/therapy ; Parents ; Qualitative Research ; Young Adult

المؤلفون: Kenneth Hobby, Jill Jarecki, Sarah McGraw, Jeff Henne, Wei-Shi Yeh, Ying Qian

المصدر: BMC Neurology
BMC Neurology, Vol 17, Iss 1, Pp 1-9 (2017)

مصطلحات موضوعية: 0301 basic medicine, Adult, Male, Parents, medicine.medical_specialty, Activities of daily living, Adolescent, Health Personnel, Clinical Neurology, 030105 genetics & heredity, lcsh:RC346-429, Muscular Atrophy, Spinal, 03 medical and health sciences, Young Adult, 0302 clinical medicine, Physical medicine and rehabilitation, Quality of life, Activities of Daily Living, medicine, Humans, Respiratory function, Functional ability, Patient Reported Outcome Measures, Child, lcsh:Neurology. Diseases of the nervous system, Qualitative Research, Patient perspectives, business.industry, Meaningful change, Infant, General Medicine, Spinal muscular atrophy, medicine.disease, SMA, Focus group, Child, Preschool, Physical therapy, Quality of Life, Female, Neurology (clinical), business, Qualitative, 030217 neurology & neurosurgery, Qualitative research, Research Article

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::44cb59016a7fdd63c3c5a163b2a958c2
http://europepmc.org/articles/PMC5381033