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المؤلفون: Gary L. McPhail, Daniel H. Grossoehme, Sian Cotton
المصدر: Journal of Health Care Chaplaincy. 19:22-32
مصطلحات موضوعية: Adult, Complementary Therapies, Male, Parents, medicine.medical_specialty, Health (social science), Adolescent, Cystic Fibrosis, media_common.quotation_subject, Faith healing, Alternative medicine, Pastoral Care, Article, Young Adult, Nursing, Professional-Family Relations, Pastoral care, Humans, Medicine, Child, Qualitative Research, media_common, Modalities, business.industry, Religious studies, Cognitive reframing, Middle Aged, Prayer, Clinical Psychology, Child, Preschool, Family medicine, Female, business, Faith Healing, Aromatherapy, Qualitative research
الوصف: Complementary and alternative medicine (CAM) use, including spiritual modalities, is common in pediatric chronic diseases. However, few users discuss CAM treatments with their child's physician. Semi-structured interviews of 25 parents of children who have cystic fibrosis (CF) were completed. Primary themes were identified by thematic analyses. Most parents (19/25) used at least one CAM modality with their child. Only two reported discussing CAM use with their child's pulmonologist. Most reported prayer as helpful (81%) and multi-faceted, including individual and group prayer; using aromatherapy or scented candles as an adjunct for relaxation; and the child's sleeping with a blessed prayer. Parents ascribed sacred significance to natural oral supplements. CAM use is relevant to the majority of participating parents of children under age 13 with CF. Chaplains can play a significant role by reframing prayer's integration into chronic disease care, co-creating rituals with pediatric patients, and mediating conversations between parents and providers.
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المؤلفون: Judith R. Ragsdale, John P. Clancy, Michael Seid, Sian Cotton, Daniel H. Grossoehme, Melenie A. Meyers, Patricia M. Joseph
المصدر: Journal of Health Care Chaplaincy. 18:110-120
مصطلحات موضوعية: Adult, Male, Religion and Psychology, Coping (psychology), Health (social science), Cystic Fibrosis, Treatment adherence, Health outcomes, Article, Grounded theory, Adaptation, Psychological, Spirituality, Humans, Qualitative Research, Motivation, Stressor, Religious studies, Cognitive reframing, Middle Aged, Clinical Psychology, Patient Compliance, Female, Psychological Theory, Psychology, Qualitative research, Clinical psychology
الوصف: Chronic illness is a significant stressor; the majority of Americans cope utilizing spirituality. Numerous studies demonstrate links between spiritual coping and health outcomes. The purpose of this study was to determine whether persons diagnosed with cystic fibrosis (CF) as adults use spirituality to cope and influence disease management. Semi-structured interviews were completed and analyzed using grounded theory. Data saturation was reached following twelve interviews (83% female); representing 100% participation of those approached and 48% of eligible adults. Persons with late-life CF diagnoses used spirituality to make meaning, understanding themselves in a collaborative partnership with their pulmonologist and God. Supporting themes were: (a) God's intervention depended on treatment adherence and (b) spiritual meaning was constructed through positively reframing their experience. The constructed meaning differed from that of adult parents of children with CF. Late-life diagnosed adults focused on personal responsibility for health. Clinical and research implications for chaplains are presented.
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المصدر: Journal of Health Care Chaplaincy. 16:95-108
مصطلحات موضوعية: Male, Parents, Religion and Psychology, Health (social science), Cystic Fibrosis, Psychological intervention, Disease, Article, Grounded theory, Treatment plan, Adaptation, Psychological, Humans, Medicine, Meaning (existential), Parent-Child Relations, Child, Patient compliance, Qualitative Research, Motivation, Treatment regimen, business.industry, Religious studies, Models, Theoretical, humanities, Clinical Psychology, Patient Compliance, Female, business, Qualitative research, Clinical psychology
الوصف: The diagnosis of a child’s life-shortening disease leads many American parents to utilize religious beliefs. Models relating religious constructs to health have been proposed. Still lacking are inductive models based on parent experience. The specific aims of this study were: 1. develop a grounded theory of parental use of religion in the year after diagnosis; 2. describe whether parents understand a relationship between their religious beliefs and their follow-through with their child’s at-home treatment regimen. Fifteen parent interviews were analyzed using grounded theory method. Parents used religion to make meaning of their child’s cystic fibrosis (CF) diagnosis. Parents imagined God as active, benevolent, and interventionist; found hope in their beliefs; felt supported by God; and related religion to their motivation to adhere to their child’s treatment plan. Religious beliefs are clinically significant in working with many parents of children recently diagnosed with CF. Interventions that improve adherence to treatment may be enhanced by including religious aspects.
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المؤلفون: Judy Ragsdale, Alexandra L. Quittner, Gary L. McPhail, Daniel H. Grossoehme, Sian Cotton, Michael Seid
المصدر: Journal of health care chaplaincy. 19(2)
مصطلحات موضوعية: Adult, Male, Parents, Health (social science), Psychotherapist, Adolescent, Cystic Fibrosis, Treatment adherence, media_common.quotation_subject, Disease, Grounded theory, Article, Faith, Young Adult, Spirituality, Medicine, Humans, Young adult, Child, Qualitative Research, media_common, business.industry, Religion and Medicine, Religious studies, Middle Aged, Prayer, humanities, Clinical Psychology, Child, Preschool, Patient Compliance, Female, business, Psychological Theory, Qualitative research
الوصف: A limited number of studies address parental faith and its relationship to their children's health. Using cystic fibrosis as a disease exemplar in which religion/spirituality have been shown to play a role and parental health behaviors (adherence to their child's daily recommended home treatments) are important, this study explored whether parents with different levels of adherence would describe use of faith differently. Twenty-five interviews were completed and analyzed using grounded theory methodology. Some parents described no relationship between faith and treatment adherence. However, of those who did, higher-adherence parents believed God empowered them to care for their child and they used prayer to change themselves, while lower-adherence parents described trusting God to care for their child and used prayer to change God. Clinical implications for chaplains' differential engagement with parents are presented.
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المؤلفون: Daniel H. Grossoehme, Michael Seid, L. Grimes, Sian Cotton, Jamie L. Wooldridge, Judy Ragsdale
المصدر: Journal of health care chaplaincy. 16(3-4)
مصطلحات موضوعية: Male, Parents, Religion and Psychology, Coping (psychology), Health (social science), Cystic Fibrosis, Religious studies, Passive coping, Infant, Health outcomes, Article, Clinical Psychology, Spiritual support, Child, Preschool, Adaptation, Psychological, Humans, Female, Parent-Child Relations, Psychology, Qualitative Research, Clinical psychology, Qualitative research
الوصف: Parents of children diagnosed with cystic fibrosis described it as "devastating." Given religion's importance to many Americans, parents may utilize religious coping. Relatively little is known about parents' use of religious coping to handle their child's illness. Interviews with 15 parents about their use of religion in the year following their child's cystic fibrosis diagnosis were coded for religious coping styles. Sixteen styles were identified. Positive religious coping styles were more frequent than negative styles (previously associated with poorer health outcomes), and occurred more frequently than in other studies. Religious coping styles used to make meaning, gain control, or seek comfort/intimacy with God were equally prevalent. The most common styles were: Pleading, Collaboration, Benevolent Religious Reappraisals, and Seeking Spiritual Support. Parents described active rather than passive coping styles. Religious coping involving religious others was rare. Clinical attention to negative religious coping may prevent it becoming chronic and negatively affecting health.
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