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المؤلفون: Chad Heatwole, Kylie M. Cornwall, Russell J. Butterfield, Nicholas E. Johnson, Antonio Hernandez
المصدر: J Neuromuscul Dis
مصطلحات موضوعية: Adult, Male, Parents, Contracture, Adolescent, Ullrich congenital muscular dystrophy, Health Status, Muscular Dystrophies, Article, Young Adult, 03 medical and health sciences, 0302 clinical medicine, Quality of life (healthcare), medicine, Humans, 030212 general & internal medicine, Social determinants of health, Muscular dystrophy, Child, Qualitative Research, Health related quality of life, Sclerosis, business.industry, Patient-centered outcomes, Role, Bethlem myopathy, Middle Aged, Social Participation, medicine.disease, Mental Health, Neurology, Child, Preschool, Quality of Life, Congenital muscular dystrophy, Female, Neurology (clinical), business, 030217 neurology & neurosurgery, Clinical psychology
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cf6c24068ec81c70e4230b28c0621fae
https://doi.org/10.3233/jnd-170252