المؤلفون: Cornwall KM; Department of Neurology, University of Utah School of Medicine, Salt Lake City, UT, USA., Butterfield RJ; Department of Neurology, University of Utah School of Medicine, Salt Lake City, UT, USA.; Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, UT, USA., Hernandez A; Department of Neurology, University of Utah School of Medicine, Salt Lake City, UT, USA., Heatwole C; Department of Neurology, University of Rochester Medical Center School of Medicine and Dentistry, Rochester, NY, USA., Johnson NE; Department of Neurology, University of Utah School of Medicine, Salt Lake City, UT, USA.; Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, UT, USA.

المصدر: Journal of neuromuscular diseases [J Neuromuscul Dis] 2018; Vol. 5 (2), pp. 251-255.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101649948 Publication Model: Print Cited Medium: Print ISSN: 2214-3599 (Print) NLM ISO Abbreviation: J Neuromuscul Dis Subsets: MEDLINE

مواضيع طبية MeSH: Health Status* , Mental Health* , Quality of Life* , Social Participation*, Contracture/*physiopathology , Muscular Dystrophies/*congenital , Sclerosis/*physiopathology, Adolescent ; Adult ; Child ; Child, Preschool ; Contracture/psychology ; Female ; Humans ; Male ; Middle Aged ; Muscular Dystrophies/physiopathology ; Muscular Dystrophies/psychology ; Parents ; Qualitative Research ; Role ; Sclerosis/psychology ; Young Adult

SCR Disease Name: Bethlem myopathy; Muscular dystrophy congenital, merosin negative; Scleroatonic muscular dystrophy

المؤلفون: Chad Heatwole, Kylie M. Cornwall, Russell J. Butterfield, Nicholas E. Johnson, Antonio Hernandez

المصدر: J Neuromuscul Dis

مصطلحات موضوعية: Adult, Male, Parents, Contracture, Adolescent, Ullrich congenital muscular dystrophy, Health Status, Muscular Dystrophies, Article, Young Adult, 03 medical and health sciences, 0302 clinical medicine, Quality of life (healthcare), medicine, Humans, 030212 general & internal medicine, Social determinants of health, Muscular dystrophy, Child, Qualitative Research, Health related quality of life, Sclerosis, business.industry, Patient-centered outcomes, Role, Bethlem myopathy, Middle Aged, Social Participation, medicine.disease, Mental Health, Neurology, Child, Preschool, Quality of Life, Congenital muscular dystrophy, Female, Neurology (clinical), business, 030217 neurology & neurosurgery, Clinical psychology

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cf6c24068ec81c70e4230b28c0621fae
https://doi.org/10.3233/jnd-170252