المؤلفون: Cornwall KM; Department of Neurology, University of Utah School of Medicine, Salt Lake City, UT, USA., Butterfield RJ; Department of Neurology, University of Utah School of Medicine, Salt Lake City, UT, USA.; Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, UT, USA., Hernandez A; Department of Neurology, University of Utah School of Medicine, Salt Lake City, UT, USA., Heatwole C; Department of Neurology, University of Rochester Medical Center School of Medicine and Dentistry, Rochester, NY, USA., Johnson NE; Department of Neurology, University of Utah School of Medicine, Salt Lake City, UT, USA.; Department of Pediatrics, University of Utah School of Medicine, Salt Lake City, UT, USA.

المصدر: Journal of neuromuscular diseases [J Neuromuscul Dis] 2018; Vol. 5 (2), pp. 251-255.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101649948 Publication Model: Print Cited Medium: Print ISSN: 2214-3599 (Print) NLM ISO Abbreviation: J Neuromuscul Dis Subsets: MEDLINE

مواضيع طبية MeSH: Health Status* , Mental Health* , Quality of Life* , Social Participation*, Contracture/*physiopathology , Muscular Dystrophies/*congenital , Sclerosis/*physiopathology, Adolescent ; Adult ; Child ; Child, Preschool ; Contracture/psychology ; Female ; Humans ; Male ; Middle Aged ; Muscular Dystrophies/physiopathology ; Muscular Dystrophies/psychology ; Parents ; Qualitative Research ; Role ; Sclerosis/psychology ; Young Adult

SCR Disease Name: Bethlem myopathy; Muscular dystrophy congenital, merosin negative; Scleroatonic muscular dystrophy

المؤلفون: Van Heugten C; School for Mental Health and Neuroscience, Maastricht University Medical Center, Maastricht, The Netherlands.; Department of Neuropsychology and Psychopharmacology, Maastricht University, Maastricht, The Netherlands., Meuleman S; Merem Rehabilitation Center De Trappenberg, Almere, The Netherlands., Hellebrekers D; School for Mental Health and Neuroscience, Maastricht University Medical Center, Maastricht, The Netherlands., Kruitwagen-van Reenen E; Center of Excellence in Rehabilitation Medicine, Brain Center Rudolf Magnus, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands., Visser-Meily J; Center of Excellence in Rehabilitation Medicine, Brain Center Rudolf Magnus, University Medical Center Utrecht, and De Hoogstraat Rehabilitation, Utrecht, The Netherlands.

المصدر: Journal of neuromuscular diseases [J Neuromuscul Dis] 2018; Vol. 5 (2), pp. 205-214.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101649948 Publication Model: Print Cited Medium: Print ISSN: 2214-3599 (Print) NLM ISO Abbreviation: J Neuromuscul Dis Subsets: MEDLINE

مواضيع طبية MeSH: Activities of Daily Living* , Apathy* , Family* , Personal Satisfaction*, Fatigue/*psychology , Myotonic Dystrophy/*psychology , Social Participation/*psychology, Adult ; Age Factors ; Aged ; Cross-Sectional Studies ; Emotions ; Fatigue/physiopathology ; Female ; Household Work ; Humans ; Male ; Middle Aged ; Multivariate Analysis ; Myotonic Dystrophy/physiopathology ; Netherlands ; Sports

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المؤلفون: Johanna M A Visser-Meily, Caroline M. van Heugten, Susan Meuleman, Esther T. Kruitwagen-van Reenen, Danique M. J. Hellebrekers

المساهمون: Section Neuropsychology, Psychiatrie & Neuropsychologie, RS: MHeNs - R1 - Cognitive Neuropsychiatry and Clinical Neuroscience, RS: FPN NPPP I, Promovendi MHN, Klinische Neurowetenschappen

المصدر: Journal of neuromuscular diseases, 5(2), 205-214. I O S Press

مصطلحات موضوعية: Adult, Male, 030506 rehabilitation, Activities of daily living, Neuromuscular disease, medicine.medical_treatment, Apathy, Emotions, Personal Satisfaction, Disease, 03 medical and health sciences, 0302 clinical medicine, Activities of Daily Living, Journal Article, medicine, Humans, Myotonic Dystrophy, Family, Fatigue, Aged, Netherlands, Rehabilitation, business.industry, Age Factors, Neuropsychology, Middle Aged, Social Participation, medicine.disease, Social engagement, Household Work, Cross-Sectional Studies, Neurology, Housekeeping, Multivariate Analysis, Female, Neurology (clinical), medicine.symptom, 0305 other medical science, business, 030217 neurology & neurosurgery, Sports, Clinical psychology

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b5c92dc59eaa68e6ed5b090485f284d7
https://doi.org/10.3233/jnd-170246

المؤلفون: Chad Heatwole, Kylie M. Cornwall, Russell J. Butterfield, Nicholas E. Johnson, Antonio Hernandez

المصدر: J Neuromuscul Dis

مصطلحات موضوعية: Adult, Male, Parents, Contracture, Adolescent, Ullrich congenital muscular dystrophy, Health Status, Muscular Dystrophies, Article, Young Adult, 03 medical and health sciences, 0302 clinical medicine, Quality of life (healthcare), medicine, Humans, 030212 general & internal medicine, Social determinants of health, Muscular dystrophy, Child, Qualitative Research, Health related quality of life, Sclerosis, business.industry, Patient-centered outcomes, Role, Bethlem myopathy, Middle Aged, Social Participation, medicine.disease, Mental Health, Neurology, Child, Preschool, Quality of Life, Congenital muscular dystrophy, Female, Neurology (clinical), business, 030217 neurology & neurosurgery, Clinical psychology

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::cf6c24068ec81c70e4230b28c0621fae
https://doi.org/10.3233/jnd-170252