المؤلفون: Hunter JM; Department of Ageing and Chronic Disease, University of Liverpool, Liverpool, UK. Electronic address: bja@liverpool.ac.uk., Norman J; Department of Anaesthesia and Critical Care, University of Southampton, Southampton, UK.

المصدر: British journal of anaesthesia [Br J Anaesth] 2023 Sep; Vol. 131 (3), pp. 421-423. Date of Electronic Publication: 2023 Jul 17.

نوع المنشور: Editorial; Comment

بيانات الدورية: Publisher: Elsevier Country of Publication: England NLM ID: 0372541 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1471-6771 (Electronic) Linking ISSN: 00070912 NLM ISO Abbreviation: Br J Anaesth Subsets: MEDLINE

مواضيع طبية MeSH: Anesthesiology*/history , Publishing*/history, United Kingdom ; Journal Impact Factor

مستخلص: Shaw and colleagues, who are medical historians, have published a detailed review of the social history of the British Journal of Anaesthesia (BJA) to celebrate its first 100 years. In this editorial, we note some additional contributions and financial details that are relevant to the development of the BJA into the international high-impact journal it is today.
(Copyright © 2023 British Journal of Anaesthesia. Published by Elsevier Ltd. All rights reserved.)

المؤلفون: Silverberg JI; Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA. Electronic address: JonathanISilverberg@gmail.com., Gelfand JM; University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, USA., Margolis DJ; University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, USA., Boguniewicz M; National Jewish Health and University of Colorado School of Medicine, Denver, Colorado, USA., Fonacier L; NYU Winthrop Hospital, Mineola, New York, USA., Grayson MH; Nationwide Children's Hospital-The Ohio State University College of Medicine, Columbus, Ohio, USA., Ong PY; Children's Hospital Los Angeles, University of Southern California, Keck School of Medicine, Los Angeles, California, USA., Chiesa Fuxench ZC; University of Pennsylvania Perelman School of Medicine, Philadelphia, Pennsylvania, USA., Simpson EL; Oregon Health & Science University, Portland, Oregon, USA.

المصدر: The Journal of investigative dermatology [J Invest Dermatol] 2019 Oct; Vol. 139 (10), pp. 2090-2097.e3. Date of Electronic Publication: 2019 Apr 19.

نوع المنشور: Comparative Study; Journal Article; Research Support, Non-U.S. Gov't; Validation Study

بيانات الدورية: Publisher: Elsevier Country of Publication: United States NLM ID: 0426720 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1523-1747 (Electronic) Linking ISSN: 0022202X NLM ISO Abbreviation: J Invest Dermatol Subsets: MEDLINE

مواضيع طبية MeSH: Quality of Life* , Sickness Impact Profile*, Dermatitis, Atopic/*diagnosis , Dermatitis, Atopic/*psychology, Adult ; Age Factors ; Cross-Sectional Studies ; Dermatitis, Atopic/drug therapy ; Dermatologic Agents/therapeutic use ; Female ; Humans ; Male ; Middle Aged ; Reference Values ; Risk Assessment ; Severity of Illness Index ; Sex Factors ; Statistics, Nonparametric ; United Kingdom

مستخلص: Quality-of-life assessments are not standardized in atopic dermatitis (AD). We sought to determine the validity of the Short Form (SF)-12, a generic quality-of-life assessment, in AD and compare its measurement properties with the Dermatology Life Quality Index (DLQI). A cross-sectional, population-based study of 3,495 adults was performed, including 602 adults who met the modified United Kingdom Working Party Criteria for AD. The SF-12 mental component score and the SF-Six Dimension (SF-6D) had a strong correlation with each other and moderate inverse correlations with the Patient-Oriented Eczema Measure, the Patient-Oriented Scoring Atopic Dermatitis, the Patient-Oriented Scoring Atopic Dermatitis-itch, the Patient-Oriented Scoring Atopic Dermatitis-sleep, and the Numerical Rating Scale of pain (Pearson correlations, P < 0.0001 for all). The SF-12 mental component score and the SF-6D showed good discriminant validity as judged by the analysis of variance and receiver operating curves. The SF-12 physical component score had weak correlations with AD severity assessments and poor discriminant validity. The DLQI had better convergent and discriminant validity than the SF-12. The SF-12 and the DLQI showed good internal consistency (Cronbach alpha, 0.89 and 0.94, respectively). Differential item functioning was found for items in the SF-12 and the DLQI. Floor effects were observed for the DLQI but not for the SF-12 mental component score, the SF-12 physical component score, and the SF-6D. Severity thresholds were selected. In conclusion, the SF-12 mental component score and the SF-6D showed good validity in AD but inferior construct validity compared with the DLQI.
(Copyright © 2019 The Authors. Published by Elsevier Inc. All rights reserved.)

المؤلفون: Milton K; Norwich Medical School, University of East Anglia, Norwich Research Park, Norwich, Norfolk, NR4 7TJ, UK. Electronic address: k.milton@uea.ac.uk., Chau J; Sydney School of Public Health and Charles Perkins Centre, University of Sydney, Sydney, 2050, New South Wales, Australia., McGill B; Sydney School of Public Health and Charles Perkins Centre, University of Sydney, Sydney, 2050, New South Wales, Australia., Bauman A; Sydney School of Public Health and Charles Perkins Centre, University of Sydney, Sydney, 2050, New South Wales, Australia.

المصدر: Public health [Public Health] 2018 Oct; Vol. 163, pp. 87-94. Date of Electronic Publication: 2018 Aug 11.

نوع المنشور: Journal Article; Systematic Review

بيانات الدورية: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 0376507 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1476-5616 (Electronic) Linking ISSN: 00333506 NLM ISO Abbreviation: Public Health Subsets: MEDLINE

مواضيع طبية MeSH: Exercise* , Journal Impact Factor* , Journalism, Medical* , Periodicals as Topic*, Mass Media/*statistics & numerical data, Humans ; United Kingdom

مستخلص: Objectives: The media is a substantial vehicle for conveying public health messages to the public. This study examined the extent to which the publication of special issues in a high-impact medical journal in 2012 and 2016 generated media interest in physical activity and health in the UK and explored the main issues that were reported.
Study Design: This is a systematic narrative review of print media.
Methods: Relevant print news articles were identified by searching Factiva and Google News. The timeframe of each search was 2 weeks, using the publication date of each special issue as the anchor point. Overall, 20 articles were included in the analysis for 2012 and 37 articles for 2016.
Results: The news media coverage was encouraging for the profile of physical activity and health. In 2012 and 2016, common themes included the benefits of physical activity and the risks of being inactive, comparisons between mortality rates from physical inactivity and smoking and the recommended volume of physical activity to benefit health.
Conclusions: The profile given to an issue through prestigious scientific publication is one of the levers for community attention and policy change. Efforts are needed to further use the media for improving policy, practice and public awareness, which are antecedents to population health change.
(Copyright © 2018 The Royal Society for Public Health. Published by Elsevier Ltd. All rights reserved.)

المؤلفون: Lamu AN; Department of Community Medicine, University of Tromsø, Tromsø, Norway. Electronic address: admassu.n.lamu@uit.no., Gamst-Klaussen T; Department of Community Medicine, University of Tromsø, Tromsø, Norway., Olsen JA; Department of Community Medicine, University of Tromsø, Tromsø, Norway; Centre for Health Economics, Monash University, Clayton, VIC 3800, Australia.

المصدر: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research [Value Health] 2017 Mar; Vol. 20 (3), pp. 451-457. Date of Electronic Publication: 2016 Nov 23.

نوع المنشور: Comparative Study; Journal Article; Validation Study

بيانات الدورية: Publisher: Elsevier Country of Publication: United States NLM ID: 100883818 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1524-4733 (Electronic) Linking ISSN: 10983015 NLM ISO Abbreviation: Value Health Subsets: MEDLINE

مواضيع طبية MeSH: Quality of Life* , Sickness Impact Profile*, Surveys and Questionnaires/*standards, Australia ; Canada ; Germany ; Health Status ; Health Status Indicators ; Humans ; Norway ; Organisation for Economic Co-Operation and Development ; Psychometrics ; Regression Analysis ; Reproducibility of Results ; United Kingdom ; United States ; Visual Analog Scale

مستخلص: Background: Most patient-reported outcome measures apply a simple summary score to assess health-related quality of life, whereby equal weight is normally assigned to each item. In the generic preference-based instruments, utility weighting is essential whereby health state values are estimated through preference elicitation and complex algorithms.
Objectives: To examine the extent to which preference-weighted value sets differ from unweighted values in the five-level EuroQol five-dimensional questionnaire and the 15D instrument, on the basis of a comprehensive data set from six member countries of the Organisation for Economic Co-operation and Development, each with a representative healthy sample and seven disease groups (N = 7933).
Methods: Construct validities were examined. The level of agreement between preference-weighted and unweighted values was also assessed using intraclass correlation coefficient (ICC), Bland-Altman plots, and reduced major axis regression.
Results: The performances of preference-weighted and unweighted measures were comparable with regard to convergent and known-group validities for each instrument. Although unweighted values in the five-level EuroQol five-dimensional questionnaire differ considerably from the preference-weighted values at the individual level, the discrepancy is minimal at the group level with a mean difference of 0.023. The ICC (0.96) and the Bland-Altman plot also suggest strong overall agreement. For the 15D, both the ICC (0.99) and the Bland-Altman plot revealed almost perfect agreement, with a negligible mean difference of -0.001. Results from the reduced major axis regression also showed small bias.
Conclusions: Overall, preference weighting has minimal effect if the unweighted values are anchored on the same scale as the preference-weighted value sets.
(Copyright © 2017 International Society for Pharmacoeconomics and Outcomes Research (ISPOR). Published by Elsevier Inc. All rights reserved.)

المؤلفون: Tadić V; Medical Research Council Centre of Epidemiology for Child Health, Centre for Paediatric Epidemiology and Biostatistics, University College London Institute of Child Health, London, United Kingdom; Ulverscroft Vision Research Group, London, United Kingdom., Cooper A; Department of Psychology, Goldsmiths, University of London, London, United Kingdom., Cumberland P; Medical Research Council Centre of Epidemiology for Child Health, Centre for Paediatric Epidemiology and Biostatistics, University College London Institute of Child Health, London, United Kingdom; Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom., Lewando-Hundt G; Warwick Medical School, University of Warwick, Coventry, United Kingdom., Rahi JS; Medical Research Council Centre of Epidemiology for Child Health, Centre for Paediatric Epidemiology and Biostatistics, University College London Institute of Child Health, London, United Kingdom; National Institute for Health Research Biomedical Research Centre at Moorfields Eye Hospital NHS Foundation Trust and University College London Institute of Ophthalmology, London, United Kingdom; Great Ormond Street Hospital for Children NHS Foundation Trust, London, United Kingdom; Ulverscroft Vision Research Group, London, United Kingdom. Electronic address: j.rahi@ucl.ac.uk.

مؤلفون مشاركون: Vision-related Quality of Life Group

المصدر: Ophthalmology [Ophthalmology] 2013 Dec; Vol. 120 (12), pp. 2725-2732. Date of Electronic Publication: 2013 Oct 10.

نوع المنشور: Journal Article; Multicenter Study; Research Support, Non-U.S. Gov't; Validation Study

بيانات الدورية: Publisher: Elsevier Country of Publication: United States NLM ID: 7802443 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1549-4713 (Electronic) Linking ISSN: 01616420 NLM ISO Abbreviation: Ophthalmology Subsets: MEDLINE

مواضيع طبية MeSH: Disability Evaluation* , Sickness Impact Profile* , Surveys and Questionnaires* , Visually Impaired Persons*, Blindness/*physiopathology , Vision, Low/*physiopathology , Visual Acuity/*physiology, Activities of Daily Living ; Adolescent ; Child ; Female ; Humans ; Male ; Psychometrics ; Quality of Life ; Self Report ; United Kingdom

مستخلص: Objective: To develop a novel age-appropriate measure of functional vision (FV) for self-reporting by visually impaired (VI) children and young people.
Design: Questionnaire development.
Participants: A representative patient sample of VI children and young people aged 10 to 15 years, visual acuity of the logarithm of the minimum angle of resolution (logMAR) worse than 0.48, and a school-based (nonrandom) expert group sample of VI students aged 12 to 17 years.
Methods: A total of 32 qualitative semistructured interviews supplemented by narrative feedback from 15 eligible VI children and young people were used to generate draft instrument items. Seventeen VI students were consulted individually on item relevance and comprehensibility, instrument instructions, format, and administration methods. The resulting draft instrument was piloted with 101 VI children and young people comprising a nationally representative sample, drawn from 21 hospitals in the United Kingdom. Initial item reduction was informed by presence of missing data and individual item response pattern. Exploratory factor analysis (FA) and parallel analysis (PA), and Rasch analysis (RA) were applied to test the instrument's psychometric properties.
Main Outcome Measures: Psychometric indices and validity assessment of the Functional Vision Questionnaire for Children and Young People (FVQ_CYP).
Results: A total of 712 qualitative statements became a 56-item draft scale, capturing the level of difficulty in performing vision-dependent activities. After piloting, items were removed iteratively as follows: 11 for high percentage of missing data, 4 for skewness, and 1 for inadequate item infit and outfit values in RA, 3 having shown differential item functioning across age groups and 1 across gender in RA. The remaining 36 items showed item fit values within acceptable limits, good measurement precision and targeting, and ordered response categories. The reduced scale has a clear unidimensional structure, with all items having a high factor loading on the single factor in FA and PA. The summary scores correlated significantly with visual acuity.
Conclusions: We have developed a novel, psychometrically robust self-report questionnaire for children and young people-the FVQ_CYP-that captures the functional impact of visual disability from their perspective. The 36-item, 4-point unidimensional scale has potential as a complementary adjunct to objective clinical assessments in routine pediatric ophthalmology practice and in research.
(Copyright © 2013 American Academy of Ophthalmology. Published by Elsevier Inc. All rights reserved.)

المؤلفون: Meads DM; Galen Research, Enterprise House, Manchester Science Park, Lloyd Street North Manchester, UK., McKenna SP, Bonney MA, Bloch MT

المصدر: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research [Value Health] 2009 Mar-Apr; Vol. 12 (2), pp. 397-400. Date of Electronic Publication: 2008 Sep 09.

نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't; Validation Study

بيانات الدورية: Publisher: Elsevier Country of Publication: United States NLM ID: 100883818 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1524-4733 (Electronic) Linking ISSN: 10983015 NLM ISO Abbreviation: Value Health Subsets: MEDLINE

مواضيع طبية MeSH: Quality of Life* , Severity of Illness Index* , Sickness Impact Profile* , Surveys and Questionnaires*, Herpes Genitalis/*psychology, 2-Aminopurine/analogs & derivatives ; 2-Aminopurine/therapeutic use ; Adaptation, Psychological ; Adult ; Aged ; Antiviral Agents/therapeutic use ; Australia ; Famciclovir ; Female ; Herpes Genitalis/diagnosis ; Herpes Genitalis/drug therapy ; Humans ; Male ; Middle Aged ; Psychometrics ; Quality-Adjusted Life Years ; Recurrence ; Reproducibility of Results ; Statistics as Topic ; Statistics, Nonparametric ; Stress, Psychological ; United Kingdom ; Young Adult

مستخلص: Objective: The Herpes Outbreak Impact Questionnaire (HOIQ) and Herpes Symptom Checklist (HSC) are patient-completed questionnaires for assessing genital herpes outbreaks. This report describes the validation of paper-and-pencil versions of the scales and responsiveness assessments in an Australian clinical trial.
Methods: Acceptability of the language of the original UK versions was tested with Australians. The HOIQ and HSC were then field-tested with patients. The new versions were validated using patients' daily responses to the questionnaires in a famciclovir study.
Results: The HOIQ and HSC were readily adapted into Australian English and were acceptable to patients. Psychometric sample: N = 151; 81 (54%) male; mean age 39.9 +/- 11.6 years; mean outbreaks 5.1 +/- 3.0 per year. Internal consistency was good (alphas at outbreak 1 ranged 0.84-0.90 HOIQ and 0.73-0.87 HSC). Rasch analysis showed item stability over time. Correlations between HOIQ and HSC ranged from 0.46 to 0.60. Both scales distinguished outbreak healing presence or absence at day 6 (P = 0.001), and the HOIQ scale distinguished between symptom severity groups (P < 0.001). Scale scores declined significantly over study duration, exhibiting large effect sizes.
Conclusions: The paper-and-pencil HOIQ and HSC were reliable, valid, and responsive in a clinical trial setting. These instruments are recommended for use in clinical studies.

المؤلفون: Leslie SJ, Rysdale J, Lee AJ, Eteiba H, Starkey IR, Pell J, Denvir MA

المصدر: International journal of cardiology [Int J Cardiol] 2007 Nov 15; Vol. 122 (2), pp. 168-9. Date of Electronic Publication: 2007 Jan 16.

نوع المنشور: Letter

بيانات الدورية: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 8200291 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1874-1754 (Electronic) Linking ISSN: 01675273 NLM ISO Abbreviation: Int J Cardiol Subsets: MEDLINE

مواضيع طبية MeSH: Angioplasty, Balloon, Coronary*/adverse effects , Angioplasty, Balloon, Coronary*/economics , Outcome Assessment, Health Care* , Quality of Life* , Sickness Impact Profile* , Surveys and Questionnaires*, Unemployment/*statistics & numerical data, Adult ; Chest Pain/etiology ; Dyspnea/etiology ; Employment ; Female ; Humans ; Male ; Middle Aged ; Poverty Areas ; Socioeconomic Factors ; Unemployment/psychology ; United Kingdom

مستخلص: This prospective observational study aimed to assess the impact of employment status and deprivation on quality of life 12 months after percutaneous coronary intervention (PCI). Patients completed a questionnaire at baseline and at 1 year follow-up including a health utility score (EQ-5D), symptoms and employment status. Deprivation was assessed using the Carstairs' deprivation category based on area postcodes. The majority (79.6%) of patients of working age returned to work within 12 months. Unemployment was associated with a lower quality of life (QoL) at baseline (0.49 (0.32) vs 0.61 (0.27), p=0.002) and less improvement in QoL 1 year after PCI (0.15 (0.37) vs 0.26 (0.31), p<0.012). Furthermore, unemployed patients had significantly less improvement in chest pain score (p=0.002) and breathlessness (p<0.001). Unemployed patients from the most deprived areas had lowest QoL at follow-up and least improvement in QoL at 1 year. Unemployment and deprivation are associated with poorer outcomes following PCI.

المؤلفون: Bushnell DM; Health Research Associates, Inc., Mountlake Terrace, WA 98043, USA. bushnell@hrainc.net, Martin ML, Ricci JF, Bracco A

المصدر: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research [Value Health] 2006 Mar-Apr; Vol. 9 (2), pp. 90-7.

نوع المنشور: Journal Article; Multicenter Study; Research Support, Non-U.S. Gov't; Validation Study

بيانات الدورية: Publisher: Elsevier Country of Publication: United States NLM ID: 100883818 Publication Model: Print Cited Medium: Print ISSN: 1098-3015 (Print) Linking ISSN: 10983015 NLM ISO Abbreviation: Value Health Subsets: MEDLINE

مواضيع طبية MeSH: Quality of Life* , Sickness Impact Profile* , Surveys and Questionnaires*, Irritable Bowel Syndrome/*physiopathology , Patient Satisfaction/*statistics & numerical data , Psychometrics/*instrumentation, Adult ; Cost-Benefit Analysis ; Female ; Germany ; Health Status ; Humans ; Irritable Bowel Syndrome/psychology ; Irritable Bowel Syndrome/rehabilitation ; Male ; Middle Aged ; Pain Measurement ; Patient Satisfaction/economics ; Reproducibility of Results ; Spain ; United Kingdom

مستخلص: Objective: The EQ-5D is a standardized, nondisease-specific instrument for evaluating patients' preference-based valuations of health-related quality of life (HRQoL). This study's purpose was to determine the psychometric properties of EQ-5D in patients with irritable bowel syndrome (IBS).
Methods: Data from four European IBS studies were assessed: UK (n = 161 and n = 297), Spain (n = 503), and Germany (n = 100). The EQ-5D is a five-item health state descriptive system used to develop health states (EQ-5D(INDEX)) and a visual analog scale (VAS) (0-100 from worst to best imaginable health state, EQ-5D(VAS)). Measures used with the EQ-5D included the SF-36, Irritable Bowel Syndrome--Quality of Life (IBS-QOL), and both subjective and clinical global assessments of IBS. Convergent validity was assessed using SF-36 and IBS-QOL data, discriminant validity using global ratings of IBS severity, and responsiveness by subjective and physician assessment of condition.
Results: Moderate-to-high associations (r >or= 0.33) were seen between the EQ-5D(VAS) and the SF-36 and IBS-QOL subscales. Mean response scores to EQ-5D(INDEX) dimensions and the EQ-5D(VAS) score were significantly better for control patients than for patients with IBS (all P < 0.01). The EQ-5D(VAS) was able to discriminate between levels of pain severity (quartiles, P < 0.001; mild/moderate/severe, P < 0.05) and general health severity (mild/moderate/severe, P < 0.001). The EQ-5D(VAS) and the EQ-5D(INDEX) were responsive in patients using both a self-perceived (Subject's Global Assessment) and physician-rated (Clinic Global Assessment) improvement.
Conclusions: The EQ-5D performs well in comparison to general and disease-specific outcomes. It is a valid and responsive measure that can be used to generate preference-based valuations of HRQoL in patients with IBS and useful for comparisons in clinical and cost-effectiveness studies.

المؤلفون: Currie CJ; Cardiff Research Consortium, University Hospital of Wales, Heath Park, Cardiff, UK. curriec@cardiff.ac.uk, McEwan P, Peters JR, Patel TC, Dixon S

المصدر: Value in health : the journal of the International Society for Pharmacoeconomics and Outcomes Research [Value Health] 2005 Sep-Oct; Vol. 8 (5), pp. 581-90.

نوع المنشور: Comparative Study; Evaluation Study; Journal Article; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Elsevier Country of Publication: United States NLM ID: 100883818 Publication Model: Print Cited Medium: Print ISSN: 1098-3015 (Print) Linking ISSN: 10983015 NLM ISO Abbreviation: Value Health Subsets: MEDLINE

مواضيع طبية MeSH: Databases, Factual* , Outcome and Process Assessment, Health Care* , Quality of Life* , Sickness Impact Profile* , Technology Assessment, Biomedical*, Adult ; Aged ; Diabetes Mellitus ; Female ; Health Surveys ; Hospital Records ; Humans ; Male ; Medical Record Linkage ; Middle Aged ; State Medicine ; United Kingdom

مستخلص: Objectives: Health technology assessment requires data covering many different facets of treatment. A new resource, the Health Outcomes Data Repository (HODaR), is described and evaluated for its use in the pharmaceutical research and development process.
Methods: Data were collated for subjects treated at Cardiff and Vale National Health Service (NHS) Hospitals Trust, United Kingdom. Inpatients are surveyed 6 weeks postdischarge by postal survey, whilst outpatients are handed a survey pack when they attend. Survey data cover sociodemographics, resource use, production losses, and quality of life. Electronic hospital data are available for all responders, and linked with survey returns. Sample characteristics, coverage of disease areas, and a more detailed description of data values for diabetes are described.
Results: Survey responses relating to 16,188 admissions and 4476 outpatient attendances were available relating to around 2000 different diagnoses. Over 5000 pharmacy items and 400,000 biochemistry test results were available. Analysis of utility data showed a broad coverage of diseases. For patients with diabetes the pattern of EQ-5D scores across subgroups is not clear. Health service resource use showed a linear relationship with respect to number of comorbidities.
Conclusions: HODaR represents a new approach to accessing patient data, and gathers both routine and survey-based data. Although linking survey data to routine hospital systems is a complex task, which produces some limitations, it can produce health outcomes data at relatively low cost. Its performance within the pharmaceutical research and development process needs to be further evaluated in order to assess its most appropriate role.

المؤلفون: Asadi-Lari M; Ministry of Health and Medical Education, Iran. msxma@nottingham.ac.uk, Packham C, Gray D

المصدر: Public health [Public Health] 2005 Jul; Vol. 119 (7), pp. 590-8.

نوع المنشور: Journal Article; Validation Study

بيانات الدورية: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 0376507 Publication Model: Print Cited Medium: Print ISSN: 0033-3506 (Print) Linking ISSN: 00333506 NLM ISO Abbreviation: Public Health Subsets: MEDLINE

مواضيع طبية MeSH: Needs Assessment* , Sickness Impact Profile* , Surveys and Questionnaires*, Coronary Artery Disease/*physiopathology , Myocardial Infarction/*physiopathology , Psychometrics/*instrumentation, Coronary Artery Disease/diagnosis ; Health Status ; Humans ; Myocardial Infarction/diagnosis ; Quality of Life ; Self Disclosure ; Syndrome ; United Kingdom

مستخلص: Background and Objectives: Assessing health needs is pivotal in healthcare systems, ensuring that services are appropriate for a population's genuine needs. In the absence of an appropriate investigational tool, a comprehensive process of questionnaire development was undertaken to evaluate and validate a specific health needs assessment tool for cardiac patients (Nottingham Health Needs Assessment; NHNA). Its psychometric properties were investigated in a survey of patients admitted with acute coronary syndromes.
Method: Two hundred and forty-two consecutive patients admitted to an acute cardiac unit with symptoms suggestive of acute myocardial infarction completed a postal questionnaire about health needs and quality-of-life, using generic (Short Form 12 and EuroQol-5D) and specific (Seattle Angina Questionnaire) health-related quality-of-life instruments.
Results: Forty-six items were assigned to five domains of health-related needs according to principal component analysis, with high internal consistency (0.83-0.89). Each domain in the NHNA questionnaire correlated highly with its quality-of-life counterpart, indicating relatively high concurrent validity.
Conclusion: The NHNA questionnaire has acceptable psychometric features, with satisfactory construct validity as determined by quality-of-life analysis. This health needs assessment instrument appears to be a reliable means of identifying patients' needs, which is an important landmark for directing health services.