المؤلفون: Landy DC; University of Miami Miller School of Medicine, Miami, Florida, USA., Brinich MA, Colten ME, Horn EJ, Terry SF, Sharp RR

المصدر: Genetics in medicine : official journal of the American College of Medical Genetics [Genet Med] 2012 Feb; Vol. 14 (2), pp. 223-8.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Elsevier Country of Publication: United States NLM ID: 9815831 Publication Model: Print Cited Medium: Internet ISSN: 1530-0366 (Electronic) Linking ISSN: 10983600 NLM ISO Abbreviation: Genet Med Subsets: MEDLINE

مواضيع طبية MeSH: Patient Advocacy*, Biomedical Research/*organization & administration , Data Collection/*methods , Genetics, Medical/*organization & administration, Biomedical Research/economics ; Biomedical Research/statistics & numerical data ; Financial Support ; Genetic Diseases, Inborn/diagnosis ; Humans ; Patient Education as Topic/economics ; Patient Education as Topic/organization & administration ; Patient Selection ; Research Design ; Self-Help Groups/organization & administration