المؤلفون: Carlozzi NE; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA. carlozzi@med.umich.edu.; Department of Physical Medicine & Rehabilitation, University of Michigan, North Campus Research Complex, 2800 Plymouth Road, Building NCRC B14, Room G213, Ann Arbor, MI, 48109-2800, USA. carlozzi@med.umich.edu., Boileau NR; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA., Roché MW; CHDI Management/CHDI Foundation, Princeton, NJ, USA.; Department of Psychology, New Jersey City University, Jersey City, NJ, USA., Ready RE; Psychological and Brain Sciences, University of Massachusetts, Amherst, MA, USA., Perlmutter JS; Department of Neurology, Washington University in St. Louis, St. Louis, MO, USA.; Department of Radiology, Neuroscience, Physical Therapy, and Occupational Therapy, Washington University in St. Louis, St. Louis, MO, USA., Chou KL; Department of Neurology, University of Michigan, Ann Arbor, MI, USA., Barton SK; Department of Neurology, Washington University in St. Louis, St. Louis, MO, USA., McCormack MK; Department of Pathology, Rowan University - SOM, Stratford, NJ, USA.; Department of Psychiatry, Rutgers University, RWJMS, Piscataway, NJ, USA., Stout JC; Department of Psychological Sciences, Monash University, Clayton, VIC, Australia., Cella D; Departments of Medical Social Sciences and Preventative Medicine, Northwestern University, Chicago, IL, USA., Miner JA; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA., Paulsen JS; Department of Psychiatry and Department of Neurology, Carver College of Medicine, The University of Iowa, Iowa City, IA, USA.; Department of Psychological and Brain Sciences, The University of Iowa, Iowa City, IA, USA.

المصدر: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2020 Dec; Vol. 29 (12), pp. 3419-3439. Date of Electronic Publication: 2020 Aug 19.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures*, Huntington Disease/*psychology , Mental Health/*standards , Quality of Life/*psychology, Adult ; Female ; Humans ; Male ; Middle Aged ; Reproducibility of Results

المؤلفون: Carlozzi NE; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, Michigan, USA., Boileau NR; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, Michigan, USA., Chou KL; Department of Neurology, University of Michigan, Ann Arbor, Michigan, USA., Ready RE; Department of Psychological and Brain Sciences, University of Massachusetts, Amherst, Massachusetts, USA., Cella D; Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, Illinois, USA., McCormack MK; Department of Psychiatry, Rutgers University-Robert Wood Johnson Medical School, Piscataway, New Jersey, USA.; Department of Pathology, Rowan University-SOM (School of Medicine), Stratford, New Jersey, USA., Miner JA; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, Michigan, USA., Dayalu P; Department of Neurology, University of Michigan, Ann Arbor, Michigan, USA.

المصدر: Movement disorders : official journal of the Movement Disorder Society [Mov Disord] 2020 Feb; Vol. 35 (2), pp. 326-336. Date of Electronic Publication: 2019 Nov 14.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Wiley-Liss Country of Publication: United States NLM ID: 8610688 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1531-8257 (Electronic) Linking ISSN: 08853185 NLM ISO Abbreviation: Mov Disord Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures* , Surveys and Questionnaires* , Treatment Outcome*, Huntington Disease/*therapy, Adult ; Cross-Sectional Studies ; Female ; Humans ; Huntington Disease/diagnosis ; Huntington Disease/epidemiology ; Male ; Middle Aged ; Movement Disorders/diagnosis ; Movement Disorders/therapy ; Quality of Life ; Self Report ; Speech Disorders/diagnosis ; Speech Disorders/therapy

المؤلفون: Carlozzi NE; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA., Boileau NR; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA., Hahn EA; Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA., Barton SK; Department of Neurology, Washington University School of Medicine, St. Louis, MO, USA., Cella D; Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA., McCormack MK; Department of Psychiatry, Rutgers-Robert Wood Johnson Medical School, Piscataway, NJ, USA.; Department of Pathology, Rowan School of Medicine, Stratford, NJ, USA., Ready RE; Department of Psychological and Brain Sciences, University of Massachusetts, Amherst, MA, USA.

المصدر: Journal of Huntington's disease [J Huntingtons Dis] 2020; Vol. 9 (1), pp. 83-97.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101589965 Publication Model: Print Cited Medium: Internet ISSN: 1879-6400 (Electronic) Linking ISSN: 18796397 NLM ISO Abbreviation: J Huntingtons Dis Subsets: MEDLINE

مواضيع طبية MeSH: Disease Progression* , Patient Reported Outcome Measures* , Psychosocial Functioning* , Quality of Life* , Social Skills*, Huntington Disease/*physiopathology , Huntington Disease/*psychology , Neuropsychological Tests/*standards, Adult ; Diagnosis, Computer-Assisted ; Female ; Follow-Up Studies ; Humans ; Longitudinal Studies ; Male ; Middle Aged ; Reproducibility of Results ; Role ; Self Report

المؤلفون: Carlozzi NE; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA., Goodnight S; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA., Kratz AL; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA., Stout JC; Institute of Cognitive and Clinical Neurosciences, School of Psychological Sciences, Monash University, Clayton, Victoria, Australia., McCormack MK; Department of Psychiatry, Rutgers-Robert Wood Johnson Medical School, Piscataway, NJ, USA.; Department of Pathology, Rowan-School of Medicine, Stratford, NJ, USA., Paulsen JS; Departments of Psychiatry, Neurology, and Psychology, Carver College of Medicine, The University of Iowa, Iowa City, IA, USA., Boileau NR; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA., Cella D; Departments of Medical Social Sciences and Preventative Medicine, Northwestern University, Chicago, IL, USA., Ready RE; Department of Psychological and Brain Sciences, University of Massachusetts, Amherst, MA, USA.

المصدر: Journal of Huntington's disease [J Huntingtons Dis] 2019; Vol. 8 (4), pp. 467-482.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't; Validation Study

بيانات الدورية: Publisher: IOS Press Country of Publication: Netherlands NLM ID: 101589965 Publication Model: Print Cited Medium: Internet ISSN: 1879-6400 (Electronic) Linking ISSN: 18796397 NLM ISO Abbreviation: J Huntingtons Dis Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures*, Behavioral Symptoms/*diagnosis , Huntington Disease/*psychology , Psychometrics/*standards , Quality of Life/*psychology, Adult ; Behavioral Symptoms/etiology ; Female ; Humans ; Huntington Disease/complications ; Male ; Middle Aged ; Psychometrics/instrumentation ; Reproducibility of Results ; Sensitivity and Specificity

المؤلفون: Carlozzi NE; Department of Physical Medicine & Rehabilitation., Hahn EA; Department of Medical Social Sciences and Department of Preventive Medicine, Northwestern University., Goodnight SM; Department of Physical Medicine and Rehabilitation, University of Michigan., Kratz AL; Department of Physical Medicine and Rehabilitation, University of Michigan., Paulsen JS; Department of Psychiatry, The University of Iowa., Stout JC; Institute of Cognitive and Clinical Neurosciences, School of Psychological Sciences, Monash University., Frank S; Beth Israel Deaconess Medical Center., Miner JA; Department of Physical Medicine and Rehabilitation, University of Michigan., Cella D; Department of Medical Social Sciences, Northwestern University., Gershon RC; Department of Medical Social Sciences, Department of Preventive Medicine, Northwestern University., Schilling SG; Institute for Social Research, University of Michigan., Ready RE; Department of Psychological and Brain Sciences, University of Massachusetts.

المصدر: Psychological assessment [Psychol Assess] 2018 Apr; Vol. 30 (4), pp. 450-458. Date of Electronic Publication: 2017 May 29.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: American Psychological Association Country of Publication: United States NLM ID: 8915253 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1939-134X (Electronic) Linking ISSN: 10403590 NLM ISO Abbreviation: Psychol Assess Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures* , Social Behavior*, Huntington Disease/*psychology , Quality of Life/*psychology, Adult ; Female ; Humans ; Male ; Middle Aged ; Psychometrics ; Reproducibility of Results

المؤلفون: Lai JS; Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 633 N St Clair, 19th Floor, Chicago, IL, 60611, USA. js-lai@northwestern.edu., Goodnight S; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA., Downing NR; College of Nursing, Texas A&M, Bryan, TX, USA., Ready RE; Department of Psychological and Brain Sciences, University of Massachusetts, Amherst, MA, USA., Paulsen JS; Departments of Psychiatry, Neurology, and Psychological and Brain Sciences, Carver College of Medicine, The University of Iowa, Iowa City, IA, USA., Kratz AL; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA., Stout JC; Institute of Cognitive and Clinical Neurosciences, School of Psychological Sciences, Monash University, Clayton, VIC, Australia., McCormack MK; Department of Pathology, Rowan University, Piscataway, NJ, USA., Cella D; Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, 633 N St Clair, 19th Floor, Chicago, IL, 60611, USA., Ross C; Departments of Psychiatry, Neurology, Pharmacology and Neuroscience, Johns Hopkins University, Baltimore, MD, USA., Russell J; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA., Carlozzi NE; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.

المصدر: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2018 Mar; Vol. 27 (3), pp. 811-822. Date of Electronic Publication: 2017 Dec 08.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural

بيانات الدورية: Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures*, Huntington Disease/*psychology , Quality of Life/*psychology, Adult ; Female ; Humans ; Male ; Middle Aged ; Reproducibility of Results

المؤلفون: Carlozzi NE; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, Michigan, USA., Ready RE; Department of Psychological and Brain Sciences, University of Massachusetts, Amherst, Massachusetts, USA., Frank S; Beth Israel Deaconess Medical Center, Boston, Massachusetts, USA., Cella D; Institute for Health Services Research & Policy Studies, Feinberg School of Medicine, Northwestern University, Chicago, Illinois, USA.; Department of Medical Social Sciences, Northwestern University, Chicago, Illinois, USA., Hahn EA; Department of Medical Social Sciences, Northwestern University, Chicago, Illinois, USA., Goodnight SM; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, Michigan, USA., Schilling SG; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, Michigan, USA.; Institute for Social Research, University of Michigan, Ann Arbor, Michigan, USA., Boileau NR; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, Michigan, USA., Dayalu P; Department of Neurology, University of Michigan, Ann Arbor, Michigan, USA.

المصدر: Movement disorders : official journal of the Movement Disorder Society [Mov Disord] 2017 Jul; Vol. 32 (7), pp. 1096-1102. Date of Electronic Publication: 2017 May 27.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Wiley-Liss Country of Publication: United States NLM ID: 8610688 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1531-8257 (Electronic) Linking ISSN: 08853185 NLM ISO Abbreviation: Mov Disord Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures* , Quality of Life* , Severity of Illness Index*, Huntington Disease/*physiopathology , Psychometrics/*standards, Adolescent ; Adult ; Aged ; Aged, 80 and over ; Female ; Humans ; Male ; Middle Aged ; Psychometrics/instrumentation ; Reproducibility of Results ; Young Adult