المؤلفون: Wysen K; Public Health-Seattle & King County, Seattle, WA, USA., Valenzuela M; Public Health-Seattle & King County, Seattle, WA, USA.; University of Washington School of Public Health, Seattle, WA, USA., Barrington WE; University of Washington School of Public Health, Seattle, WA, USA., Teferi Y; Community Health Board Coalition, Seattle, WA, USA., Evans A; Public Health-Seattle & King County, Seattle, WA, USA., Kiros B; Coalition of Immigrants, Refugees & Communities of Color, Seattle, WA, USA., Merriweather M; Urban League of Metropolitan Seattle, Seattle, WA, USA., Zuniga M; Entre Hermanos, Seattle, WA, USA.

المصدر: Public health reports (Washington, D.C. : 1974) [Public Health Rep] 2024 Jul-Aug; Vol. 139 (1_suppl), pp. 30S-36S. Date of Electronic Publication: 2024 Feb 12.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: SAGE Publications Country of Publication: United States NLM ID: 9716844 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1468-2877 (Electronic) Linking ISSN: 00333549 NLM ISO Abbreviation: Public Health Rep Subsets: MEDLINE

مواضيع طبية MeSH: COVID-19*/ethnology , COVID-19*/epidemiology , Social Responsibility* , Public Health* , Advisory Committees*, Humans ; Racism ; Pandemics ; Washington ; Social Determinants of Health/ethnology ; SARS-CoV-2 ; Health Equity

مستخلص: After a tumultuous 3 years of pandemic-, political-, and race-related unrest in the United States, the public is demanding accountability to communities of color (defined here as American Indian/Alaska Native, Asian, Black, Native Hawaiian/Pacific Islander, and Hispanic people) to rectify historic and contemporary injustices that perpetuate health inequities and threaten public health. Structural racism pervades all major societal systems and exposes people to detrimental social determinants of health. Disrupting structural racism within public health systems is essential to advancing health equity and requires organized partnerships between health departments and community leaders. As those who are most affected by structural racism, communities of color are the experts in knowing its impacts. This case study describes the King County Pandemic and Racism Community Advisory Group (PARCAG) and its use of an innovative accountability tool. The tool facilitated institutional transparency and accountability in the adoption of community recommendations. PARCAG was influential in shaping Public Health-Seattle & King County's COVID-19 and antiracism work, with 66 of 75 (88%) recommendations adopted partially or fully. For example, a fully adopted recommendation in May 2020 was to report King County COVID-19 case data by race and ethnicity, and a partially adopted recommendation was to translate COVID-19 information into additional languages. PARCAG members were recruited from a 2019 advisory board on Census 2020 and were adept at shifting to advising on COVID-19 and equitable practices and policies. Organizations that have made declarations that racism is a public health crisis should center the experiences, expertise, and leadership of communities of color in accountable ways when developing and implementing strategies to disrupt and repair the effects of structural racism and efforts to promote and protect public health.
Competing Interests: Declaration of Conflicting InterestsThe authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.

المؤلفون: Juge PA; Service de Rhumatologie, Hôpital Bichat-Claude Bernard, AP-HP, Paris, France.; INSERM UMR 1152, Université de Paris, Paris, France., Kragstrup TW; Department of Biomedicine, Aarhus University, Aarhus, Denmark.; Department of Rheumatology, Aarhus Universitetshospital, Aarhus, Denmark.; Sector for Rheumatology, Diagnostic Center, Silkeborg Regional Hospital, Silkeborg, Denmark., Perez-Garcia LF; Rheumatology, Erasmus MC, Rotterdam, The Netherlands., Frãzao-Mateus E; Portuguese League Against Rheumatic Diseases (LPCDR), Lisbon, Portugal.; EULAR Patient Research Partner Network, EULAR, Zurich, Switzerland., Makri S; Cyprus League Against Rheumatism, Nicosia, Cyprus., Boyd P; School of Pharmacy, Medical Biology Centre, Queen's University Belfast, Belfast, UK., Primdahl J; University Hospital of Southern Denmark, Danish Hospital for Rheumatic Diseases, Sønderborg, Denmark.; Department of Regional Health Research, University of Southern Denmark, Odense, Denmark.; Danish Hospital for Rheumatic Diseases, University Hospital of Southern Denmark, Sønderborg, Denmark., Ferreira RJO; Nursing Research, Innovation and Development Centre of Lisbon (CIDNUR), Higher School of Nursing of Lisbon, Lisboa, Portugal.; Health Sciences Research Unit: Nursing (UICiSA:E), Coimbra, Portugal., Vliet Vlieland TPM; Orthopaedics, Rehabilitation and Physical Therapy, J11, Leiden University Medical Center, Leiden, The Netherlands., Ndosi M; School of Health and Social Wellbeing, College of Health Science and Society, University of the West of England, Bristol, UK.; Academic Rheumatology Unit, University Hospitals Bristol and Weston NHS Foundation Trust, Bristol, UK., Kiltz U; Rheumazentrum Ruhrgebiet, Herne, Germany., Landewé R; Clinical Immunology & Rheumatology, Academic Medical Center, University of Amsterdam, Amsterdam, The Netherlands.; Rheumatology, Atrium Medical Center, Heerlen, The Netherlands., Lauper K; Division of Rheumatology, Geneva University Hospitals, Geneve, Switzerland., de Hooge M; Department of Rheumatology, University Hospital Ghent, Gent, Belgium msmdehooge@gmail.com.; Molecular Immunology and Inflammation Unit, VIB-UGent Center for Inflammation Research, Zwijnaarde, Belgium.

المصدر: RMD open [RMD Open] 2024 Jun 12; Vol. 10 (2). Date of Electronic Publication: 2024 Jun 12.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: BMJ Publishing Group Country of Publication: England NLM ID: 101662038 Publication Model: Electronic Cited Medium: Internet ISSN: 2056-5933 (Electronic) Linking ISSN: 20565933 NLM ISO Abbreviation: RMD Open Subsets: MEDLINE

مواضيع طبية MeSH: Rheumatology* , Health Personnel*/psychology , Advisory Committees*, Humans ; Female ; Surveys and Questionnaires ; Male ; Adult ; Europe ; Middle Aged

مستخلص: Objective: European Alliance of Associations for Rheumatology (EULAR) task forces (TF) requires participation of ≥2 junior members, a health professional in rheumatology (HPR) and two patient research partners for the development of recommendations or points to consider. In this study, participation of these junior and representative members was compared with the one of traditional TF members (convenor, methodologist, fellow and expert TF members).
Methods: An online survey was developed and emailed to previous EULAR TF members. The survey comprised multiple-choice, open-ended and 0-100 rating scale (fully disagree to fully agree) questions.
Results: In total, 77 responded, 48 (62%) women. In total, 46 (60%) had participated as a junior or representative TF member. Most junior/representative members reported they felt unprepared for their first TF (10/14, 71%). Compared with traditional members, junior/representative members expressed a significantly higher level of uncertainty about their roles within the TF (median score 23 (IQR 7.0-52.0) vs 7 (IQR 0.0-21.0)), and junior/representative members felt less engaged by the convenor (54% vs 71%). Primary factors that facilitated interaction within a TF were experience, expertise and preparation (54%), a supportive atmosphere (42%) and a clear role (12%).
Conclusion: Juniors, patients and HPR experience various challenges when participating in a EULAR TF. These challenges differ from and are generally less pronounced than those experienced by traditional TF members. The convenor should introduce the participants to the tasks, emphasise the value of their contributions and how to prepare accordingly for the TF meeting.
Competing Interests: Competing interests: None declared.
(© Author(s) (or their employer(s)) 2024. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ.)

المؤلفون: Kastner S; Editor-in-Chief, JNeurosci.

المصدر: The Journal of neuroscience : the official journal of the Society for Neuroscience [J Neurosci] 2024 Jun 05; Vol. 44 (23). Date of Electronic Publication: 2024 Jun 05.

نوع المنشور: Editorial

بيانات الدورية: Publisher: Society for Neuroscience Country of Publication: United States NLM ID: 8102140 Publication Model: Electronic Cited Medium: Internet ISSN: 1529-2401 (Electronic) Linking ISSN: 02706474 NLM ISO Abbreviation: J Neurosci Subsets: MEDLINE

مواضيع طبية MeSH: Neurosciences*/history , Advisory Committees*/history, Humans ; Research Personnel/history ; Periodicals as Topic/history

المؤلفون: Engler J; Institute of General Practice, Faculty of Medicine at Goethe-Universität Frankfurt am Main, Frankfurt, Germany., Engler F; Institute of General Practice, Faculty of Medicine at Goethe-Universität Frankfurt am Main, Frankfurt, Germany., Gerber M; Institute of General Practice, Faculty of Medicine at Goethe-Universität Frankfurt am Main, Frankfurt, Germany., Brosse F; Department of General Practice, Faculty of Medicine Carl Gustav Carus, Medical Clinic III, Technische Universität Dresden, Dresden, Germany., Voigt K; Department of General Practice, Faculty of Medicine Carl Gustav Carus, Medical Clinic III, Technische Universität Dresden, Dresden, Germany., Mergenthal K; Institute of General Practice, Faculty of Medicine at Goethe-Universität Frankfurt am Main, Frankfurt, Germany.

المصدر: Health expectations : an international journal of public participation in health care and health policy [Health Expect] 2024 Jun; Vol. 27 (3), pp. e14094.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Wiley Country of Publication: England NLM ID: 9815926 Publication Model: Print Cited Medium: Internet ISSN: 1369-7625 (Electronic) Linking ISSN: 13696513 NLM ISO Abbreviation: Health Expect Subsets: MEDLINE

مواضيع طبية MeSH: Advisory Committees* , Qualitative Research* , Family Practice* , Research Personnel*, Humans ; Male ; Female ; Patient Participation ; Middle Aged ; Adult

مستخلص: Introduction: Patient and public involvement is vital for high-quality research. Integrating patients' and providers' perspectives early in research enhances the feasibility and relevance of study results. Within our family practice-based research network ForN, we established a standing patient advisory board (PAB) to include patients with diverse conditions and experiences. In this paper, we aim to describe the establishment and functioning of a standing PAB in family medicine research from patients' and researchers' perspectives.
Methods: After each PAB meeting, patients and researchers were asked to name anonymously positive and challenging moments in a feedback form with open questions. Researchers were also asked to reflect on how they implemented the discussion content in their research projects. The responses from both groups were transferred to MAXQDA 2018 and analyzed separately using thematic analysis.
Results: We analyzed 40 feedback forms from patients and 14 feedback forms from researchers. The dominant theme in the patients' feedback was 'exchange': They positively emphasized the 'exciting and open discussions' and the exchange of perspectives with one another and researchers. The clarity of the researchers' presentations and the research topics were appreciated. Researchers also positively highlighted the open atmosphere of the discussions. Presenting their research to the PAB helped most researchers reflect on their research topics from patients' perspectives and implement changes. However, researchers also mentioned several barriers to the implementation of PAB members' feedback.
Conclusion: The establishment of a standing PAB in family practice research is feasible and productive both from patients' and researchers' perspectives.
Patient or Public Contribution: This study reports the evaluation of the establishment of a standing PAB in family practice research. Board members are involved in the design of studies, the co-production of interventions and information material, and the interpretation of data.
(© 2024 The Authors. Health Expectations published by John Wiley & Sons Ltd.)

المؤلفون: Nguyen A; is Assistant Professor and Core Faculty, RUSH-Esperanza Family Medicine Residency, Chicago, Illinois, USA., Flores L; is a Member of the Community Advisory Council, RUSH-Esperanza Family Medicine Residency, and Chicago Director, Partners in Health US, Chicago, Illinois, USA., Worringer E; is Assistant Professor and Core Faculty, RUSH-Esperanza Family Medicine Residency, Chicago, Illinois, USA; and., Rowland K; is Associate Professor and Vice-Chair for Education, Rush University Medical Center, Chicago, Illinois, USA.

المصدر: Journal of graduate medical education [J Grad Med Educ] 2024 Jun; Vol. 16 (3), pp. 351-352. Date of Electronic Publication: 2024 Jun 13.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Accreditation Council for Graduate Medical Education Country of Publication: United States NLM ID: 101521733 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1949-8357 (Electronic) Linking ISSN: 19498357 NLM ISO Abbreviation: J Grad Med Educ Subsets: MEDLINE

مواضيع طبية MeSH: Internship and Residency* , Family Practice*/education , Education, Medical, Graduate* , Advisory Committees*, Humans ; Program Development

المؤلفون: Gaviria-Agudelo C; Department of Pediatrics, University of South Florida Morsani College of Medicine, Tampa, Florida., Yonts AB; Department of Pediatrics, Children's National Hospital, Washington., Kimberlin DW; Department of Pediatrics, University of Alabama at Birmingham, Birmingham, Alabama., Campbell JD; Division of Infectious Diseases and Tropical Pediatrics, Department of Pediatrics, University of Maryland School of Medicine, Center for Vaccine Development and Global Health, Baltimore, Maryland., Paulsen GC; Department of Pediatrics, University of Cincinnati College of Medicine and Division of Pediatric Infectious Diseases, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio., O'Leary ST; Department of Pediatrics, University of Colorado Anschutz Medical Campus, Aurora, Colorado.

المصدر: Pediatrics [Pediatrics] 2024 Jun 01; Vol. 153 (6).

نوع المنشور: Journal Article

بيانات الدورية: Publisher: American Academy of Pediatrics Country of Publication: United States NLM ID: 0376422 Publication Model: Print Cited Medium: Internet ISSN: 1098-4275 (Electronic) Linking ISSN: 00314005 NLM ISO Abbreviation: Pediatrics Subsets: MEDLINE

مواضيع طبية MeSH: Advisory Committees* , COVID-19 Vaccines* , Meningococcal Vaccines*, Humans ; Child ; United States/epidemiology ; Respiratory Syncytial Virus Vaccines/immunology ; Respiratory Syncytial Virus Vaccines/therapeutic use ; Centers for Disease Control and Prevention, U.S. ; COVID-19/prevention & control

مستخلص: The Advisory Committee on Immunization Practices, a group of medical and public health experts that provides advice to the Centers for Disease Control and Prevention, normally meets 3 times per year to develop US vaccine recommendations. The Advisory Committee on Immunization Practices met February 28 to 29, 2024, to discuss coronavirus disease 2019 vaccines, chikungunya vaccines, diphtheria-tetanus vaccine, influenza vaccines, polio vaccines, respiratory syncytial virus vaccines, meningococcal vaccines, pneumococcal vaccines, and Vaxelis (Diphtheria, Tetanus, Pertussis, Inactivated Poliovirus, Haemophilus influenzae b Conjugate, and Hepatitis B Vaccine). This update summarizes the proceedings of these meetings, with an emphasis on topics that are most relevant to the pediatric population. Major updates for pediatric clinicians include information about changes on influenza vaccine composition, meningococcal vaccination considerations, updated guidance for children with a contraindication to pertussis-containing vaccines, and recommendations of the world's first chikungunya vaccine for certain populations.
(Copyright © 2024 by the American Academy of Pediatrics.)

المؤلفون: Lambach P; Immunizations, Vaccines and Biologicals, World Health Organization, Geneva, Switzerland., Silal S; Modelling and Simulation Hub, Africa, University of Cape Town, Cape Town, South Africa; Centre for Global Health, Nuffield Department of Medicine, Oxford University, Oxford, United Kingdom., Sbarra AN; Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, United States. Electronic address: asbarra1@jhu.edu., Koh M; Immunizations, Vaccines and Biologicals, World Health Organization, Geneva, Switzerland., Aggarwal R; Jawaharlal Institute of Postgraduate Medical Education & Research, Puducherry, India., Farooqui HH; College of Medicine, QU Health, Qatar University, Qatar., Flasche S; Centre for Global Health, Charite, Berlin, Germany., Hogan AB; School of Population Health, University of New South Wales, Sydney, Australia., Kim SY; Seoul National University, Seoul, South Korea., Leung K; School of Public Health, The University of Hong Kong, Hong Kong Special Administrative Region., Moss WJ; Johns Hopkins Bloomberg School of Public Health, Baltimore, MD, United States., Munywoki PK; Kenya Medical Research Institute, Centre for Global Health Research, Nairobi, Kenya., Portnoy A; Department of Global Health, Boston University School of Public Health, Boston, United States; Center for Health Decision Science, Harvard T.H. Chan School of Public Health, Boston, United States., Sheel M; School of Public Health, Faculty of Medicine and Health, University of Sydney, Sydney, Australia., Wang XY; Shanghai Institute of Infectious Disease and Biosecurity, Fudan University, Shanghai, China.

المصدر: Vaccine [Vaccine] 2024 May 31; Vol. 42 (15), pp. 3379-3383. Date of Electronic Publication: 2024 May 03.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Elsevier Science Country of Publication: Netherlands NLM ID: 8406899 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-2518 (Electronic) Linking ISSN: 0264410X NLM ISO Abbreviation: Vaccine Subsets: MEDLINE

مواضيع طبية MeSH: World Health Organization* , Advisory Committees* , Malaria Vaccines*/administration & dosage , Malaria Vaccines*/immunology, Humans ; Cost-Benefit Analysis ; Vaccination/methods ; Malaria/prevention & control ; Immunization/methods

مستخلص: The Immunization and Vaccine-related Implementation Research Advisory Committee (IVIR-AC) is the World Health Organization's key standing advisory body to conduct an independent review of research, particularly of transmission and economic modeling analyses that estimate the impact and value of vaccines. From 26th February-1st March 2024, at its first of two semi-annual meetings, IVIR-AC provided feedback and recommendations across four sessions; this report summarizes the proceedings and recommendations from that meeting. Session topics included modeling of the impact and cost-effectiveness of the R21/Matrix-M malaria vaccine, meta-analysis of economic evaluations of vaccines, a global analysis estimating the impact of vaccination over the last 50 years, and modeling the impact of different RTS,S malaria vaccine dose schedules in seasonal settings.
Competing Interests: Declaration of competing interest The authors declare the following financial interests/personal relationships which may be considered as potential competing interests: S. S. was supported by the World Health Organization for this work. A. N. S. was financially supported by the World Health Organization for this work, and is additionally supported by the Bill & Melinda Gates Foundation, Gavi, the Vaccine Alliance, and the National Institutes of Health. A. B. H. was supported by the Australian National Health and Medical Research Council for this work, is additionally supported by PATH, the World Health Organization, and Gavi, the Vaccine Alliance, and has received consulting fees from the Australian NSW Ministry of Health, WHO Europe and Asian Development Bank. W. J. M. is supported by the National institutes of Health. A. P. is supported by Imperial College London, the Bill & Melinda Gates Foundation, the World Health Organization, and the University of Oslo. X. W. has served as a Data Safety Monitoring Board member for several China-made COVID-19 vaccines. S. S., A. N. S., and A. B. H. report travel related support from the World Health Organization to attend previous IVIR-AC meetings. All other authors have no declarations.
(Copyright © 2024. Published by Elsevier Ltd.)

المؤلفون: Coleman BC; Department of Emergency Medicine, Yale School of Medicine, New Haven, CT, USA.; Department of Biostatistics (Health Informatics), Yale School of Public Health, New Haven, CT, USA.; Pain Research, Informatics, Multimorbidities, and Education (PRIME) Center, VA Connecticut Healthcare System, West Haven, CT, USA., Rubinstein SM; Department of Health Sciences, Faculty of Science, Amsterdam Movement Sciences Research Institute, Vrije Universiteit Amsterdam, Amsterdam, the Netherlands., Salsbury SA; Palmer Center for Chiropractic Research, Palmer College of Chiropractic, Davenport, IA, USA., Swain M; Department of Chiropractic, Macquarie University, Sydney, Australia., Brown R; World Federation of Chiropractic, Toronto, Canada., Pohlman KA; Research Center, Parker University, 2540 Walnut Hill Lane, 75229, Dallas, TX, USA. kpohlman@parker.edu.

المصدر: Chiropractic & manual therapies [Chiropr Man Therap] 2024 May 13; Vol. 32 (1), pp. 15. Date of Electronic Publication: 2024 May 13.

نوع المنشور: Journal Article; Editorial

بيانات الدورية: Publisher: BioMed Central Country of Publication: England NLM ID: 101551481 Publication Model: Electronic Cited Medium: Internet ISSN: 2045-709X (Electronic) Linking ISSN: 2045709X NLM ISO Abbreviation: Chiropr Man Therap Subsets: MEDLINE

مواضيع طبية MeSH: Patient Safety* , Chiropractic* , World Health Organization* , Advisory Committees*, Humans ; Global Health

مستخلص: Background: The Global Patient Safety Action Plan, an initiative of the World Health Organization (WHO), draws attention to patient safety as being an issue of utmost importance in healthcare. In response, the World Federation of Chiropractic (WFC) has established a Global Patient Safety Task Force to advance a patient safety culture across all facets of the chiropractic profession. This commentary aims to introduce principles and call upon the chiropractic profession to actively engage with the Global Patient Safety Action Plan beginning immediately and over the coming decade.
Main Text: This commentary addresses why the chiropractic profession should pay attention to the WHO Global Patient Safety Action Plan, and what actions the chiropractic profession should take to advance these objectives. Each strategic objective identified by WHO serves as a focal point for reflection and action. Objective 1 emphasizes the need to view each clinical interaction as a chance to improve patient safety through learning. Objective 2 urges the implementation of frameworks that dismantle systemic obstacles, minimizing human errors and strengthening patient safety procedures. Objective 3 supports the optimization of clinical process safety. Objective 4 recognizes the need for patient and family engagement. Objective 5 describes the need for integrated patient safety competencies in training programs. Objective 6 explains the need for foundational data infrastructure, ecosystem, and culture. Objective 7 emphasizes that patient safety is optimized when healthcare professionals cultivate synergy and partnerships.
Conclusions: The WFC Global Patient Safety Task Force provides a structured framework for aligning essential considerations for patient safety in chiropractic care with WHO strategic objectives. Embracing the prescribed action steps offers a roadmap for the chiropractic profession to nurture an inclusive and dedicated culture, placing patient safety at its core. This commentary advocates for a concerted effort within the chiropractic community to commit to and implement these principles for the collective advancement of patient safety.
(© 2024. The Author(s).)

المؤلفون: Ward MC; Department of Clinical Research and Leadership, School of Medicine and Health Sciences, George Washington University School of Medicine and Health Sciences, Washington, DC, USA., Delgado Setien P; The Milken Institute School of Public Health at The George Washington University, Washington, DC, USA.; George Washington University School of Medicine and Health Sciences, Washington, DC, USA., Konopasky A; Department of Medical Education, Geisel School of Medicine at Dartmouth, Hanover, NH, USA., Conserve DF; The Milken Institute School of Public Health at The George Washington University, Washington, DC, USA.

المصدر: Primary health care research & development [Prim Health Care Res Dev] 2024 May 09; Vol. 25, pp. e26. Date of Electronic Publication: 2024 May 09.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Cambridge University Press Country of Publication: England NLM ID: 100897390 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-1128 (Electronic) Linking ISSN: 14634236 NLM ISO Abbreviation: Prim Health Care Res Dev Subsets: MEDLINE

مواضيع طبية MeSH: Primary Health Care*/methods , Advisory Committees* , COVID-19*/diagnosis , HIV Infections*/diagnosis, Humans ; Mass Screening/methods ; COVID-19 Testing/methods ; SARS-CoV-2 ; Focus Groups ; Health Services Research ; Male

مستخلص: The authors report on their development of a National Advisory Board (NAB) to guide a funded project: Two in One: HIV + COVID-19 Screening and Testing Model. This project aimed to improve primary care practitioners' capacity to routinize HIV, PrEP/PEP, and COVID-19 vaccine screenings for all their patients while relying on culturally responsive communication with their minoritized patients. To approach their monumental research and education tasks, they created a NAB, drawing from the literature on advisory boards to (a) promote board member engagement and (b) progress successfully through the six stages suggested for successful advisory boards. A midpoint survey and final focus groups with NAB members indicated mixed levels of engagement, a sense of time and work being valued, and pride in the media and academic reach of the project. The authors offer considerations for others considering forming a NAB to guide primary care research and interventions.

المؤلفون: Sun F; Department of Epidemiology and Biostatistics, School of Public Health, Peking University, Beijing, China.; Key Laboratory of Epidemiology of Major Diseases, Peking University, Beijing, China., Bedenkov A; Global Evidence, BioPharmaceuticals Medical, AstraZeneca, London, UK., Liu BC; Institute of Nephrology, Zhongda Hospital, Southeast University School of Medicine, Nanjing, China., Yang J; Department of Cardiology, Beijing Hospital, Beijing, China., Xu JF; Department of Respiratory and Critical Care Medicine, Shanghai Pulmonary Hospital, Tongji University School of Medicine, Shanghai, China., Ji L; Department of Endocrinology and Metabolism, Peking University People's Hospital, Peking University Diabetes Center, Beijing, China., Zhou M; Department of Pulmonary and Critical Care Medicine, Ruijin Hospital, Shanghai Jiao Tong University School of Medicine, Shanghai, China., Zhang S; Global Evidence Powerhub China, AstraZeneca, Shanghai, China., Li X; Department of Cardiology, First Affiliated Hospital of Nanjing Medical University, Nanjing, China., Song Y; Department of Pulmonary Medicine, Zhongshan Hospital, Fudan University, Shanghai, China., Chen P; Department of Biostatistics, School of Public Health, Southern Medical University, Guangzhou, China. chenpy99@126.com.; Hainan Institute of Real-World Data, Qionghai, China. chenpy99@126.com., Moreno C; Global Evidence Powerhub China, AstraZeneca, Shanghai, China. carmen.moreno@astrazeneca.com.

المصدر: Pharmaceutical medicine [Pharmaceut Med] 2024 May; Vol. 38 (3), pp. 157-166. Date of Electronic Publication: 2024 Apr 04.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Adis, Springer International Country of Publication: New Zealand NLM ID: 101471195 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1179-1993 (Electronic) Linking ISSN: 11782595 NLM ISO Abbreviation: Pharmaceut Med Subsets: MEDLINE

مواضيع طبية MeSH: Advisory Committees*/organization & administration, China ; Humans ; Delivery of Health Care ; Stakeholder Participation ; Health Services Accessibility

مستخلص: Use of real-world data (RWD) is gaining wide attention. To bridge the gap between diverse healthcare stakeholders and to leverage the impact of Chinese real-world evidence (RWE) globally, a multi-stakeholder External Advisory Committee (EAC) and EAC meetings were initiated, aiming to elucidate the current and evolving RWD landscape in China, articulate the values of RWE in ensuring Chinese patients' equitable access to affordable medicines and solutions, and identify strategic opportunities and partnerships for expansion of RWE generation in China. Chinese and international experts who are clinicians and academic researchers were selected as EAC members based on their professional background and familiarity with RWD/RWE. Three EAC meetings were held quarterly in 2023. Various topics were presented and discussed for insights and suggestions. Nine experts from China, one from South Korea, and two from Europe were selected as EAC members and attended these meetings. Experts' presentations were summarized by theme, including the RWD landscape and RWE enablement in China, as well as global development of a patient-centric ecosystem. Experts' insights and suggestions on maximizing the RWD/RWE value to accelerate healthcare transformation in China were collected. We concluded that though data access, sharing, and quality are still challenging, RWD is developing to support evidence generation in the medicinal product lifecycle, inform clinical practice, and empower patient management in China. RWD/RWE creates value, accelerates healthcare transformation, and improves patient outcomes. Fostering a patient-centric ecosystem across healthcare stakeholders and maintaining global partnerships and collaboration are essential for unlocking the power of RWD/RWE.
(© 2024. The Author(s).)