المؤلفون: Juli Bollinger, Robert Cook-Deegan, Lena Dolman, Rachel G. Liao, Abhi Sanka

مصطلحات موضوعية: BRCA2 Protein, 0303 health sciences, Internationality, Computer science, BRCA1 Protein, Information Dissemination, Health Policy, 030305 genetics & heredity, General Medicine, Data science, Article, United States, Data sharing, 03 medical and health sciences, Issues, ethics and legal aspects, 0302 clinical medicine, Incentive, 030220 oncology & carcinogenesis, Databases, Genetic, Humans, Genetic Testing, Laboratories

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::68a47b3752ab67e19f06d6b1e0f85032
https://europepmc.org/articles/PMC6748872/

المؤلفون: Bollinger, Juli M., Abhi Sanka, Dolman, Lena, Liao, Rachel G., Cook-Deegan, Robert, Majumder, Mary A., McGuire, Amy L.

مصطلحات موضوعية: FOS: Law, FOS: Health sciences, 220106 Medical Ethics, Law

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a31174cfcdcb104ab9defdfafc9476c1

المؤلفون: Bollinger JM; Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Abhi Sanka is a Science Policy Fellow at the Science and Technology Policy Institute. He was formerly a Research Associate at the School for the Future of Innovation in Society at Arizona State University. Lena Dolman, M.S., is currently a medical student at McMaster University, Hamilton, Ontario, Canada. She was formerly a manager of Strategy and Outreach, as well as manager of the Clinical & Phenotypic Data Capture Work Stream, for the Global Alliance for Genomics and Health. Rachel G. Liao, Ph.D., is a Scientific Advisor to the Director at the Broad Institute of MIT and Harvard. She was formerly a manager for the Global Alliance for Genomics and Health, where she led the successful launch and growth of the BRCA Challenge project and its foundational product, the BRCA Exchange. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. He is a physician and molecular biologist who turned to policy and then entered academe through Georgetown, Stanford, and Duke Universities before joining ASU., Sanka A; Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Abhi Sanka is a Science Policy Fellow at the Science and Technology Policy Institute. He was formerly a Research Associate at the School for the Future of Innovation in Society at Arizona State University. Lena Dolman, M.S., is currently a medical student at McMaster University, Hamilton, Ontario, Canada. She was formerly a manager of Strategy and Outreach, as well as manager of the Clinical & Phenotypic Data Capture Work Stream, for the Global Alliance for Genomics and Health. Rachel G. Liao, Ph.D., is a Scientific Advisor to the Director at the Broad Institute of MIT and Harvard. She was formerly a manager for the Global Alliance for Genomics and Health, where she led the successful launch and growth of the BRCA Challenge project and its foundational product, the BRCA Exchange. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. He is a physician and molecular biologist who turned to policy and then entered academe through Georgetown, Stanford, and Duke Universities before joining ASU., Dolman L; Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Abhi Sanka is a Science Policy Fellow at the Science and Technology Policy Institute. He was formerly a Research Associate at the School for the Future of Innovation in Society at Arizona State University. Lena Dolman, M.S., is currently a medical student at McMaster University, Hamilton, Ontario, Canada. She was formerly a manager of Strategy and Outreach, as well as manager of the Clinical & Phenotypic Data Capture Work Stream, for the Global Alliance for Genomics and Health. Rachel G. Liao, Ph.D., is a Scientific Advisor to the Director at the Broad Institute of MIT and Harvard. She was formerly a manager for the Global Alliance for Genomics and Health, where she led the successful launch and growth of the BRCA Challenge project and its foundational product, the BRCA Exchange. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. He is a physician and molecular biologist who turned to policy and then entered academe through Georgetown, Stanford, and Duke Universities before joining ASU., Liao RG; Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Abhi Sanka is a Science Policy Fellow at the Science and Technology Policy Institute. He was formerly a Research Associate at the School for the Future of Innovation in Society at Arizona State University. Lena Dolman, M.S., is currently a medical student at McMaster University, Hamilton, Ontario, Canada. She was formerly a manager of Strategy and Outreach, as well as manager of the Clinical & Phenotypic Data Capture Work Stream, for the Global Alliance for Genomics and Health. Rachel G. Liao, Ph.D., is a Scientific Advisor to the Director at the Broad Institute of MIT and Harvard. She was formerly a manager for the Global Alliance for Genomics and Health, where she led the successful launch and growth of the BRCA Challenge project and its foundational product, the BRCA Exchange. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. He is a physician and molecular biologist who turned to policy and then entered academe through Georgetown, Stanford, and Duke Universities before joining ASU., Cook-Deegan R; Juli M. Bollinger, M.S., is a Research Associate in the Center for Medical Ethics and Health Policy at the Baylor College of Medicine and a Research Associate and Associate Faculty at the Berman Institute of Bioethics at Johns Hopkins University. Abhi Sanka is a Science Policy Fellow at the Science and Technology Policy Institute. He was formerly a Research Associate at the School for the Future of Innovation in Society at Arizona State University. Lena Dolman, M.S., is currently a medical student at McMaster University, Hamilton, Ontario, Canada. She was formerly a manager of Strategy and Outreach, as well as manager of the Clinical & Phenotypic Data Capture Work Stream, for the Global Alliance for Genomics and Health. Rachel G. Liao, Ph.D., is a Scientific Advisor to the Director at the Broad Institute of MIT and Harvard. She was formerly a manager for the Global Alliance for Genomics and Health, where she led the successful launch and growth of the BRCA Challenge project and its foundational product, the BRCA Exchange. Robert Cook-Deegan, M.D., is a Professor in the School for the Future of Innovation in Society at Arizona State University. He is a physician and molecular biologist who turned to policy and then entered academe through Georgetown, Stanford, and Duke Universities before joining ASU.

المصدر: The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics [J Law Med Ethics] 2019 Mar; Vol. 47 (1), pp. 88-96.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural

بيانات الدورية: Publisher: Cambridge University Press Country of Publication: England NLM ID: 9315583 Publication Model: Print Cited Medium: Internet ISSN: 1748-720X (Electronic) Linking ISSN: 10731105 NLM ISO Abbreviation: J Law Med Ethics

مواضيع طبية MeSH: Databases, Genetic*, BRCA1 Protein/*genetics , BRCA2 Protein/*genetics , Information Dissemination/*methods, Genetic Testing ; Humans ; Internationality ; Laboratories ; United States