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1دورية أكاديمية
المؤلفون: Arantxa Sancho-López, Belén Ruiz-Antorán, Teresa Iglesias Hernangómez, Almudena Ramírez-García, Irene Gómez-Estévez, Judith Sanabria-Cabrera, Roser Llop Rius, Consuelo Pedrós, Diana Campodonico, Silvia Jiménez-Jorge, Amelia García Luque, Lucienne Costa Frossad França, Eva Montané, Ana Aldea-Perona, Nieves Téllez Lara, Montserrat Bosch Ferrer, Consuelo Rodriguez Jiménez, Elvira Bonilla-Toyos, Julia Sabín Muñoz, Cristina Avendaño-Solá, María Rosario Blasco Quilez, on behalf of the REALHES-Study Group
المصدر: Journal of Clinical Medicine, Vol 12, Iss 20, p 6471 (2023)
مصطلحات موضوعية: multiple sclerosis, siponimod, pharmacovigilance, lymphopenia, real-world evidence, Medicine
وصف الملف: electronic resource
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2دورية أكاديميةRare disease registries: potential applications towards impact on development of new drug treatments
المؤلفون: Marijke C. Jansen-van der Weide, Charlotte M. W. Gaasterland, Kit C. B. Roes, Caridad Pontes, Roser Vives, Arantxa Sancho, Stavros Nikolakopoulos, Eric Vermeulen, Johanna H. van der Lee
المصدر: Orphanet Journal of Rare Diseases, Vol 13, Iss 1, Pp 1-11 (2018)
مصطلحات موضوعية: Rare disease, Registry, Clinical trial, Drug development, Medicine
وصف الملف: electronic resource
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المؤلفون: Andrea B. Troxel, Eva Petkova, Keith Goldfeld, Mengling Liu, Thaddeus Tarpey, Yinxiang Wu, Danni Wu, Anup Agarwal, Cristina Avendaño-Solá, Emma Bainbridge, Katherine J. Bar, Timothy Devos, Rafael F. Duarte, Arvind Gharbharan, Priscilla Y. Hsue, Gunjan Kumar, Annie F. Luetkemeyer, Geert Meyfroidt, André M. Nicola, Aparna Mukherjee, Mila B. Ortigoza, Liise-anne Pirofski, Bart J. A. Rijnders, Casper Rokx, Arantxa Sancho-Lopez, Pamela Shaw, Pablo Tebas, Hyun-Ah Yoon, Corita Grudzen, Judith Hochman, Elliott M. Antman
المساهمون: Internal Medicine, Medical Microbiology & Infectious Diseases
المصدر: JAMA network open, 5(1). American Medical Association
JAMA Network Openمصطلحات موضوعية: Male, SARS-CoV-2, Patient Selection, Research, Immunization, Passive, COVID-19, Bayes Theorem, General Medicine, Middle Aged, World Health Organization, Respiration, Artificial, Severity of Illness Index, Hospitalization, Plasma, Online Only, Treatment Outcome, Infectious Diseases, Humans, Female, Pandemics, COVID-19 Serotherapy, Aged, Original Investigation
وصف الملف: application/pdf; Electronic
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4دورية أكاديمية
المؤلفون: Hanaizi, Zahra, van Zwieten-Boot, Barbara, Calvo, Gonzalo, Lopez, Arantxa Sancho, van Dartel, Maaike, Camarero, Jorge, Abadie, Eric, Pignatti, Francesco
المصدر: In European Journal of Cancer January 2012 48(2):237-242
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المؤلفون: Antonio Gil-Nagel, Mercè Falip, Rocío Sánchez-Carpintero, María Reyes Abad-Sazatornil, José Luis Poveda, José Ángel Aibar, Elena Cardenal-Muñoz, Luis Miguel Aras, Rosa Sánchez, Arantxa Sancho-López, José Luis Trillo-Mata, María Torrejón, Alicia Gil
المصدر: Dipòsit Digital de la UB
Universidad de Barcelona
Epilepsy & behavior : E&B
r-IIS La Fe. Repositorio Institucional de Producción Científica del Instituto de Investigación Sanitaria La Fe
instnameمصطلحات موضوعية: Antiseizure medication, Multi-Criteria Decision Analysis, Quality of life, Epilepsy, Epilepsies, Myoclonic, Dravet syndrome, Rare diseases, Decision Support Techniques, Behavioral Neuroscience, Neurology, Seizures, Spain, Qualitat de vida, Fenfluramine, Quality of Life, Anticonvulsius, Humans, Anticonvulsants, Neurology (clinical), Epileptic Syndromes, Spasms, Infantile
وصف الملف: application/pdf
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المؤلفون: Inmaculada Palanca-Maresca, Belén Ruiz-Antorán, Pablo del Sol, Gustavo Adolfo Centeno-Soto, Lourdes García Murillo, María Azul Forti-Buratti María Azul Forti-Buratti, Arantxa Sancho Lopez, Laura Javaloyes, Angela Izquierdo, Luz María Solari Hertzmann, Cristina Avendaño-Solá
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::d28c60a221a7ebd4afda9777925c5473
https://doi.org/10.21203/rs.2.21668/v1 -
7Rare disease registries: potential applications towards impact on development of new drug treatments
المؤلفون: Roser Vives, Marijke C. Jansen-van der Weide, C. M. W. Gaasterland, Kit C.B. Roes, Eric Vermeulen, Arantxa Sancho, Johanna H. van der Lee, Stavros Nikolakopoulos, Caridad Pontes
المساهمون: Graduate School, AGEM - Endocrinology, metabolism and nutrition, APH - Quality of Care, ARD - Amsterdam Reproduction and Development, AGEM - Digestive immunity, APH - Methodology, AGEM - Inborn errors of metabolism, General Paediatrics
المصدر: Orphanet Journal of Rare Diseases, Vol 13, Iss 1, Pp 1-11 (2018)
Orphanet Journal of Rare Diseases
Orphanet Journal of Rare Diseases, 13(1). BioMed Central
Orphanet journal of rare diseases, 13(1):154. BioMed Centralمصطلحات موضوعية: Registry, Computer science, media_common.quotation_subject, lcsh:Medicine, Drug development, Disease, law.invention, 03 medical and health sciences, Rare Diseases, 0302 clinical medicine, Randomized controlled trial, law, Humans, Genetics(clinical), Pharmacology (medical), Quality (business), Registries, 030212 general & internal medicine, Genetics (clinical), Randomized Controlled Trials as Topic, media_common, Clinical Trials as Topic, Data collection, Research, Clinical study design, lcsh:R, General Medicine, Checklist, 3. Good health, Clinical trial, Risk analysis (engineering), Research Design, Rare disease, 030217 neurology & neurosurgery
وصف الملف: image/pdf
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المؤلفون: Zahra Hanaizi, Beatriz Flores, Arantxa Sancho-Lopez, Francesco Pignatti, Robert Hemmings, Christian Gisselbrecht, Edward Laane, Jorge Camarero, Tomas Salmonson
المصدر: The Oncologist. 20:329-334
مصطلحات موضوعية: Regulatory Issues: EMA, Cancer Research, medicine.medical_specialty, Population, Dexamethasone, Bortezomib, Internal medicine, Antineoplastic Combined Chemotherapy Protocols, medicine, Humans, media_common.cataloged_instance, European union, education, Lenalidomide, Multiple myeloma, media_common, education.field_of_study, business.industry, Pomalidomide, medicine.disease, Boronic Acids, Thalidomide, Surgery, Europe, Survival Rate, Oncology, Drug Resistance, Neoplasm, Pyrazines, Disease Progression, Neoplasm Recurrence, Local, Multiple Myeloma, business, medicine.drug
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المؤلفون: Heinz Ludwig, Jorge Camarero Jiménez, Pierre Demolis, Francesco Pignatti, Jonas Bergh, Arantxa Sancho-Lopez, Marc Martin, Edward Laane, Tomas Salmonson, Alexandre Moreau, Christian Gisselbrecht, Isabel Garcia, Kyriaki Tzogani
المصدر: Repositorio Institucional de la Consejería de Sanidad de la Comunidad de Madrid
Consejería de Sanidad de la Comunidad de Madrid
The Oncologistمصطلحات موضوعية: 0301 basic medicine, Male, Cancer Research, Dexamethasone, chemistry.chemical_compound, 0302 clinical medicine, Multiple myeloma, European Medicines Agency, Antineoplastic Combined Chemotherapy Protocols, Lenalidomide, media_common, Hazard ratio, Middle Aged, Thalidomide, Europe, Oncology, 030220 oncology & carcinogenesis, Disease Progression, Female, Oligopeptides, medicine.drug, Regulatory Issues: EMA, Adult, medicine.medical_specialty, Drug-Related Side Effects and Adverse Reactions, Context (language use), Neutropenia, Disease-Free Survival, 03 medical and health sciences, Internal medicine, medicine, media_common.cataloged_instance, Humans, European union, Intensive care medicine, Aged, business.industry, Carfilzomib, medicine.disease, 030104 developmental biology, chemistry, Neoplasm Recurrence, Local, business
وصف الملف: application/pdf
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::95139f05d8a85aa0501eaebcfe5bd713
https://hdl.handle.net/20.500.12530/42115 -
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المؤلفون: Erik Wennerberg, Gabriele Madonna, Gennaro Ciliberto, Michele Minopoli, Caroline Dutriaux, Matthew Wongchenko, Elisabetta Gambale, David F. Stroncek, Céleste Lebbé, Ani S. Balmanoukian, Gianluca Di Monta, Vincenzo Ingangi, Soldano Ferrone, Ivan Marquez-Rodas, Giuseppe Masucci, Janis M. Taube, Simona Mastroeni, Gerardo Bott, Franck Pagès, Jonathan M. Pitt, Judit Olasz, Elisabetta Panza, Paola Michelozzi, Daniil Stoyakovskiy, Stéphane Dalle, Mario Sznol, John M. Kirkwood, Keith T. Flaherty, Maria Capuano, Amalia Azzariti, Edward Cha, Peter Boasberg, Maria Godeny, Angela Gismondi, Ornella Franzese, Giusy Gentilcore, Jean-Jacques Grob, Olivier Michielin, Adina Elena Stanciu, Giuseppe Cirino, Julien Fourcade, Nelofer Syed, Giuseppe Ercolano, Caroline Robert, Ascierto Paolo Antonio, Christine K. Gause, Silviu Voinea, Adeeb Rahman, Anne Caignard, Camila Flores, Cristina Fortes, Yuya Yoshimoto, Angela Sandru, Andras Szollar, Monica Cantile, Frederic Lehmann, Maria Libera Ascierto, Sacha Gnjatic, Marco Tucci, Rosa Russo, Giuseppina Liguori, Valeria De Biasio, David Ross Kaufman, Mary Ruisi, Ewa Kalinka-Warzocha, Phillip Wong, Rosaria Falcon, Vincenzo Faiola, Nicole Richie, Lars Ny, Miri Blank, Paola De Cicco, Anna Passarelli, Jean-François Baurain, Guido Kroemer, Claudio Jommi, Francesca Capone, Maria Teresa Fierro, Tracee L. McMiller, Lev V. Demidov, Alessandro Testori, Omid Hamid, Marone Ugo, Annamaria Anniciello, Andrew J. Park, Fara De Murtas, RuthAnn Gordan, Emil Farkas, David Hogg, Alessandra Di Paolo, Mark Maurer, Yangyang Wang, Mario Mandalà, Rodabe N. Amaria, Massimiliano Di Marzo, Stefania Guida, Luigi Fattore, Veronica Huber, Ludmila Danilova, Luigi Aurisicchio, Gabriella Aquino, Domenico Mallardo, Catriona M. McNeil, Stephanie Anne Kronenberg, Consiglia Carella, Theresa S. Pritchard, Katia Bifulco, Michaela Semeraro, Carlo M. Croce, David P. Enot, Laurence Zitvogel, Marcella Occelli, Benjamin Weide, Magdalena Thurin, Margherita Cerrone, Naiyer A. Rizvi, Blessing Agunwamba, Stella D'Oronzo, Sarah Jegou, Stucci Stefania, Drew M. Pardoll, Vito Michele Garrisi, Haidong Tang, Szabolcs Horvath, Hong Wang, Benjamin Brady, Antonio Doronzo, Claudia Marino, Xian He, Michael A. Davies, Hexiao Wang, Isabelle Rooney, Orsolya Csuka, Maurizio Nudo, Lance Leopold, Jeffrey S. Wasser, Sabino Strippoli, Silvia Ch Formenti, MariaLaura Foddai, Michael A. Postow, Robert H.I. Andtbacka, Paul Lorigan, Tommy Andersson, Naoko Imai, Ari VanderWalde, Mariaelena Capone, Ilsung Chang, Laura Lattanzio, Carmen Loquai, Arantxa Sancho, Christine Horak, Federica Sallusto, Timea Balatoni, Maha Ayyoub, Angela Santoni, Alessio Caggiati, Anna Lisa De Presbiteris, Henrik Schmidt, Paola Savoia, Pontus Berglund, Igor Puzanov, Aurélien Marabelle, Ana Carrizossa Anderson, Hassane M. Zarour, Maria Wolodarski, Patrick Hwu, Joel Jiang, Pio Zeppa, Jeffrey A. Sosman, Eugenio Fernandez, Susan Costantini, Marcus Ballinger, Luc Thomas, Leslie Cope, Rolf Kiessling, Christophe Borg, Francesca Platini, Florian Stratica, Tilman T. Rau, Craig L. Slingluff, Paolo A. Ascierto, Angela Ianaro, Harriet M. Kluger, Stephen Hodi, Tara C. Gangadhar, Claire Vanpouille-Box, Caroline Flament, Hearn J. Cho, Mannavola Francesco, Takahiro Yamazaki, Charles G. Drake, Jason J. Luke, Miklos Kasler, Linda Pan, Caracò Corrado, Alfonso Berrocal, Angel Rivera, Vera Hirsh, Eduardo J. Patriarca, Giovanni Di Giulio, Antonello Pessi, Helena Stabile, Helene Hardy, Tucci Marco, Ralph Venhaus, Maria Luisa Di Cecilia, Catherine A. Harwood, Jonathan Cebon, Anna Maria Anniciello, Grant A. McArthur, Carlo Baldi, Ahmad A. Tarhini, Shelley Coleman, Gil Bar-Sela, Axel Hauschild, Byoung S. Kwon, Maria Paula Roberti, Sabin Cinca, Tiziana Cocco, Valeria Sorrentino, Jeffrey Wallin, Rosa Camerlingo, Sandra Demaria, Jedd D. Wolchok, Isabel Poschke, Alessandro Lugli, Michael B. Atkins, Andrea Cavalcanti, Laura Marra, Rosamaria Pinto, Adam D. Cohen, Michele Maio, Weiyi Peng, Rosario Guarrasi, David Enot, Antoni Ribas, Oscar Alabiso, Chiara Armogida, Silvestris Franco, Jessica C. Hassel, Rita Mancini, Michele Guida, Silvia C. Formenti, Andrea P. Sponghini, Imma Maida, Alba Zappalà, Charlotte M. Proby, Alan J. Korman, Yibing Yan, Matias Chacon, Haiying Xu, Carolin Blattner, Maria-Paula Roberti, Lisa Chen, James Larkin, Ryan J. Sullivan, Madonna Gabriele, Nadege Vimond, Cosmo Di Donna, Farnaz Moradi, Manish R. Patel, Sylvie Rusakiewicz, Francesca Passarelli, Luis de la Cruz-Merino, Nicolas Jacquelot, Roberta Miceli, Viktor Umansky, Akos Savolt, David Rondonotti, Gabriella Liszkay, Jianda Yuan, Stefani Spranger, Yufan Zhao, Yehuda Shoenfeld, Todd M. Bauer, Claus Garbe, Joe-Marc Chauvin, Achim A. Jungbluth, Cristiana Lo Nigro, Alexander M. Lesokhin, Gabriella Guida, Brigitte Dréno, Cindy Sanders, Jeffrey S. Weber, Janet Maleski, Chris Cheadle, Romain Daillère, Isabella Sperduti, Michaele Maio, Claudia Felici, Parneet K. Cheema, Concetta Ragone, Johan Hansson, Klara Eles, Victoria Atkinson, Speiser Daniel, Daniel O. Koralek, Zhaojun Sun, Debora Malpicci, Elena Marra, Rickard Linnskog, Jeffrey Chou, Yang Wang, Eugenia Panaitescu, F. Stephen Hodi, Anthony J. Olszanski, Chiara Botti, Nicola Mozzillo, Anna Ferretta, Paul B. Chapman, Michaë la Semeraro, Belinda Palermo, Francesco Sabbatino, Neil H. Segal, Yago Pico de Coaña, Tseng-hui Timothy Chen, Ornella Pagliano, John B. A. G. Haanen, Huibin Yue, Emilia Caputo, Alan E. Berger, Simona De Summa, Nikoletta Lendvai, Paola Queirolo, Francesco Mannavola, Thomas F. Gajewski, Michele De Tursi, Paola Nisticò, Karen Briscoe, Karmele Mujika Eizmendi, Maria Vincenza Carrier, Passarelli Anna, Laurent Mortier, Crescenzo D'Alterio, Jorge Camarero, Licia Rivoltini, Pietro Quaglino, Davide Quaresmini, Marie Vétizou, Anna Maria Di Giacomo, Chandra Prakash Prasad, Riccardo Bono, Vichnou Poirier-Colame, David Smith, Capone Mariaelena, Giosuè Scognamiglio, Margaret K. Callahan, Vashisht Gopal Yennu Nanda, Fabiola Gilda Cordaro, George J. Netto, Madalina Bolovan, Federica Fratangelo, Josep Malvehy, Robert A. Anders, Karsten A. Pilones, Vincenzo C. Battarra, Karin Leandersson, Maria Letizia Motti, Yang Xin Fu, Tim Crook, Sarah Nataraj, Alastair M. Thompson, Franco Silvestris, Carolina Cauchi, Georgina V. Long, Holbrook E Kohrt, Giuseppe Pirozzi, Celeste Fusciello, Marco Carlo Merlano, François Aubin, Mozzillo Nicola, Giuseppe Cirin, Stefania Scala, Suzanne L. Topalian, Alexander M.M. Eggermont, Antonio Marra, Jinshui Fan, Reinhard Dummer, Federica Zito Marino, Amanda Ralabate, Matthew M. Burke, Piotr Rutkowski, Gerardo Botti, Stefano Pepe, Ivor Caro, Stefania Tommasi
مصطلحات موضوعية: 0301 basic medicine, business.industry, MEDLINE, General Medicine, medicine.disease, Bridge (interpersonal), General Biochemistry, Genetics and Molecular Biology, 03 medical and health sciences, 030104 developmental biology, 0302 clinical medicine, 030220 oncology & carcinogenesis, Medicine, Medical emergency, business
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8f1c58000d44d08849770f637264c8c3
http://hdl.handle.net/11386/4707715