المؤلفون: Sally Lanar, Benoit Arnould, James Seaton, C. Acquadro, Isabelle Savre

المصدر: Orphanet Journal of Rare Diseases, Vol 15, Iss 1, Pp 1-18 (2020)
Orphanet Journal of Rare Diseases

مصطلحات موضوعية: 0301 basic medicine, medicine.medical_specialty, Orphan Drug Production, Patient-centricity, Patient engagement, lcsh:Medicine, Context (language use), Review, 030105 genetics & heredity, Orphan drug, 03 medical and health sciences, 0302 clinical medicine, Clinical trials, Patient-Centered Care, Outcome Assessment, Health Care, medicine, Humans, Orphan drugs, Pharmacology (medical), Patient Reported Outcome Measures, 030212 general & internal medicine, Intensive care medicine, Patient advocacy groups, Genetics (clinical), Pharmaceutical industry, Patient-reported outcomes, business.industry, lcsh:R, General Medicine, Labeling claims, Rare diseases, Clinical trial, Clinical research, Observational study, business, Rare disease

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::62cd479b66937a6620eee18cb096a8f5
http://link.springer.com/article/10.1186/s13023-020-01400-0

المؤلفون: Selim Aractingi, Michel Richard, Pascal Joly, F. Boucher, R.J.G. Chalmers, C. Acquadro, E. Mahé, P. Auquier, S. Le Guen

المصدر: Annales de Dermatologie et de Vénéréologie. 146:783-792

مصطلحات موضوعية: 030207 dermatology & venereal diseases, 03 medical and health sciences, 0302 clinical medicine, Dermatology

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::d7ecc3acd5fef484b762ab0d0c5eda00
https://doi.org/10.1016/j.annder.2019.08.004

المؤلفون: S McKown, Sonya Eremenco, Mona L. Martin, Caroline Anfray, Dana Weiss, Christelle Giroudet, Benjamin Arnold, C. Acquadro

المصدر: Journal of Patient-Reported Outcomes
Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-8 (2020)

مصطلحات موضوعية: Translation, Clinician-reported outcome measures, Standardized approach, lcsh:Public aspects of medicine, Applied psychology, Linguistic validation, Health Informatics, lcsh:RA1-1270, Review, Special Interest Group, Clinical outcome assessments, Outcome (game theory), Documentation, Health Information Management, Observer-reported outcome measures, Performance outcome measures, Respondent, Cognitive interview, Psychology, Adaptation (computer science)

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4d68b4f8e668fa99fb80c4aa3e71c6b0
http://europepmc.org/articles/PMC7642163

المؤلفون: Hélène Gilet, C. Acquadro, Benoit Arnould, Michael Chekroun, Jérémy Lambert

المصدر: Health and Quality of Life Outcomes, Vol 16, Iss 1, Pp 1-9 (2018)
Health and Quality of Life Outcomes

مصطلحات موضوعية: Adult, Male, medicine.medical_specialty, Risk/benefit assessment, Disease, Computer-assisted web interviewing, 030204 cardiovascular system & hematology, lcsh:Computer applications to medicine. Medical informatics, Chronic disease, 03 medical and health sciences, 0302 clinical medicine, Quality of life, Fibromyalgia, Surveys and Questionnaires, Observational study, medicine, Humans, 030212 general & internal medicine, Bipolar disorder, Depression (differential diagnoses), Aged, Health Services Needs and Demand, business.industry, Questionnaire, Research, Public Health, Environmental and Occupational Health, General Medicine, Middle Aged, Patient Acceptance of Health Care, medicine.disease, Tolerability, Regimen, Acceptance, Cross-Sectional Studies, Convenience, Physical therapy, Quality of Life, lcsh:R858-859.7, Female, business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::fe8dd4e8509ed987ad32cd09363b8027
http://link.springer.com/article/10.1186/s12955-018-0962-3

المؤلفون: Luciana Giugliani, Elaina Jurecki, Fabíola Vicente, Ana Rita Ferreira, Daniela Giovannetti, C. Acquadro, Efigênia Leite

المصدر: Journal of Inborn Errors of Metabolism and Screening, Vol 7 (2019)
Journal of Inborn Errors of Metabolism and Screening v.7 2019
Journal of Inborn Errors of Metabolism and Screening
Instituto Genética para Todos (IGPT)
instacron:IGPT
Journal of Inborn Errors of Metabolism and Screening, Volume: 7, Article number: e20180001, Published: 07 MAR 2019

مصطلحات موضوعية: medicine.medical_specialty, congenital, hereditary, and neonatal diseases and abnormalities, Translation, Medicine (General), Endocrinology, Diabetes and Metabolism, British English, phenylketonuria, Linguistic validation, Quality of life (healthcare), cross-cultural, R5-920, Brazilian Portuguese, medicine, Cross-cultural, Genetics (clinical), linguistic validation, PKU-QOL questionnaire, nutritional and metabolic diseases, Cognition, language.human_language, health-related quality of life, Food supplement, Family medicine, Pediatrics, Perinatology and Child Health, language, Psychology, Healthcare providers

وصف الملف: text/html

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::77d57cf9c281dacdc08a0e6c4cc28955
http://www.scielo.br/scielo.php?script=sci_arttext&pid=S2326-45942019000100301&tlng=en

المؤلفون: Benjamin Arnold, Sonya Eremenco, Caroline Anfray, Mona L. Martin, Donald L. Patrick, C. Acquadro, Isoqol Translation, Katrin Conway

المصدر: Health and Quality of Life Outcomes
Health and Quality of Life Outcomes, Vol 16, Iss 1, Pp 1-6 (2018)

مصطلحات موضوعية: Translation, Psychometrics, Moral rights, Clinical outcome assessments, Intellectual property, lcsh:Computer applications to medicine. Medical informatics, Berne Convention, 03 medical and health sciences, Exclusive right, 0302 clinical medicine, Copyright, Humans, Patient Reported Outcome Measures, PRO instruments, Law and economics, Plaintiff, Patient-reported outcomes, 030503 health policy & services, Ownership, Public Health, Environmental and Occupational Health, General Medicine, Special Interest Group, Object (philosophy), Identification (information), 030220 oncology & carcinogenesis, Commentary, Quality of Life, lcsh:R858-859.7, Business, 0305 other medical science

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::606f2d43548d34ffe6a77da3d4594212
https://doi.org/10.1186/s12955-018-1050-4

المؤلفون: M A, Richard, S, Aractingi, P, Joly, E, Mahé, P, Auquier, S, Le Guen, C, Acquadro, F, Boucher, R J G, Chalmers

المصدر: Annales de dermatologie et de venereologie. 146(12)

مصطلحات موضوعية: Patient Outcome Assessment, Quality of Life, Humans, Psoriasis, Translations, France, Severity of Illness Index

URL الوصول: https://explore.openaire.eu/search/publication?articleId=pmid________::47b774611b64d7dc07cfc8b73b1bc192
https://pubmed.ncbi.nlm.nih.gov/31623858

المؤلفون: C. Desvignes-Gleizes, L.L. Perrier, B. Arnould, A. Olry, C. Rodwell, A. Rath, C. Acquadro

المصدر: Value in Health. 22:S869

مصطلحات موضوعية: World Wide Web, Health Policy, Public Health, Environmental and Occupational Health, MAPI, Business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::0acef1df28d5a2b2cfc1980561cddce2
https://doi.org/10.1016/j.jval.2019.09.2476

المؤلفون: P. Bindi, V. Uzun, C. Anfray, C. Acquadro

المصدر: Validation of outcome measures and biomarkers.

مصطلحات موضوعية: business.industry, Applied psychology, Linguistic validation, language.human_language, Test (assessment), Task (project management), Health assessment, Scale (social sciences), Australian English, language, Gujarati, Medicine, Functional ability, business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::f08f178c7b859629abb49c310eead85d
https://doi.org/10.1136/annrheumdis-2018-eular.4591

المؤلفون: Amy Cunningham, C. Acquadro, Vanessa Birardi, Grégory Gagol, Elaina Jurecki

المصدر: Health and Quality of Life Outcomes

مصطلحات موضوعية: Adult, Male, 0301 basic medicine, Translation, congenital, hereditary, and neonatal diseases and abnormalities, medicine.medical_specialty, Adolescent, Psychometrics, Health-related quality of life, media_common.quotation_subject, 030105 genetics & heredity, Linguistic validation, Terminology, law.invention, 03 medical and health sciences, Quality of life (healthcare), law, Phenylketonurias, Surveys and Questionnaires, Humans, Phenylketonuria, Medicine, Translations, Psychiatry, Qualitative Research, media_common, PKU-QOL questionnaire, business.industry, Research, Public Health, Environmental and Occupational Health, nutritional and metabolic diseases, General Medicine, Middle Aged, Punctuation, United States, Spelling, Test (assessment), Quality of Life, CLARITY, Female, business, Psychosocial

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::bd6a8dd23c87223d36c102c50d164ff3
https://doi.org/10.1186/s12955-017-0620-1