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1دورية أكاديمية
المؤلفون: Jason A. Randall, Carolyn Sutter, Lydia Raither, Stella Wang, Evan Bailey, Riccardo Perfetti, Shoshana Shendelman, Claire Burbridge
المصدر: Journal of Patient-Reported Outcomes, Vol 7, Iss 1, Pp 1-13 (2023)
مصطلحات موضوعية: Classic Galactosemia, Quality of life, Qualitative, Survey, Interviews, Patient, Public aspects of medicine, RA1-1270
وصف الملف: electronic resource
Relation: https://doaj.org/toc/2509-8020
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2دورية أكاديمية
المؤلفون: Evan Bailey, Jason Randall, Carolyn Sutter, Lydia Raither, Stella Wang, Riccardo Perfetti, Shoshana Shendelman, Claire Burbridge
المصدر: Genetics in Medicine Open, Vol 2, Iss , Pp 100924- (2024)
وصف الملف: electronic resource
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3دورية أكاديمية
المؤلفون: Jason A. Randall, Carolyn Sutter, Stella Wang, Evan Bailey, Lydia Raither, Riccardo Perfetti, Shoshana Shendelman, Claire Burbridge
المصدر: Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-10 (2022)
مصطلحات موضوعية: Classic Galactosemia, GALT deficiency, Qualitative interviews, Patient experience, Caregiver experience, Health-related quality of life, Medicine
وصف الملف: electronic resource
Relation: https://doaj.org/toc/1750-1172
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4دورية أكاديمية
المؤلفون: Eugen Mengel, Marc C. Patterson, Michael Chladek, Christina Guldberg, Christine í Dali, Tara Symonds, Lucy Lloyd-Price, Toni Mathieson, Joslyn Crowe, Claire Burbridge
المصدر: Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-14 (2021)
مصطلحات موضوعية: Niemann pick Type-C, NPC, Impacts, Illness burden, Qualitative, Medicine
وصف الملف: electronic resource
Relation: https://doaj.org/toc/1750-1172
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5دورية أكاديمية
المؤلفون: Marc C. Patterson, Lucy Lloyd-Price, Christina Guldberg, Helen Doll, Claire Burbridge, Michael Chladek, Christine íDali, Eugen Mengel, Tara Symonds
المصدر: Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-9 (2021)
مصطلحات موضوعية: Niemann-pick type C clinical severity scale, NPCCSS, ClinRO, Validation, Arimoclomol, Medicine
وصف الملف: electronic resource
Relation: https://doaj.org/toc/1750-1172
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6دورية أكاديمية
المصدر: Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-15 (2020)
مصطلحات موضوعية: Content validity, Concept elicitation, Cognitive debriefing, Chronic low back pain, PRO development, Roland Morris Disability Questionnaire (RMDQ), Public aspects of medicine, RA1-1270
وصف الملف: electronic resource
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7دورية أكاديمية
المؤلفون: Hannah Staunton, Tom Willgoss, Linda Nelsen, Claire Burbridge, Kate Sully, Diana Rofail, Rob Arbuckle
المصدر: Journal of Patient-Reported Outcomes, Vol 3, Iss 1, Pp 1-10 (2019)
مصطلحات موضوعية: Important change, Meaningful change thresholds, Responder definition, Concept elicitation, Cognitive debriefing, Exit interviews, Public aspects of medicine, RA1-1270
وصف الملف: electronic resource
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8
المؤلفون: Tara Symonds, Lucy Lloyd-Price, Christina Guldberg, Michael Chladek, Christine íDali, Marc C. Patterson, Claire Burbridge, Helen Doll, Eugen Mengel
المصدر: Orphanet Journal of Rare Diseases, Vol 16, Iss 1, Pp 1-9 (2021)
Orphanet Journal of Rare Diseasesمصطلحات موضوعية: medicine.medical_specialty, Arimoclomol, Psychometrics, lcsh:Medicine, Disease, Surveys and Questionnaires, Validation, Content validity, Criterion validity, Medicine, Humans, Pharmacology (medical), Disabled Persons, Genetics (clinical), business.industry, Research, lcsh:R, Construct validity, Reproducibility of Results, Cognition, Niemann-Pick Disease, Type C, General Medicine, Clinical trial, Convergent validity, Niemann-pick type C clinical severity scale, NPCCSS, Physical therapy, Age of onset, ClinRO, business
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9
المصدر: Journal of Patient-Reported Outcomes, Vol 4, Iss 1, Pp 1-15 (2020)
Journal of Patient-Reported Outcomesمصطلحات موضوعية: medicine.medical_specialty, Health Informatics, Sitting, Roland Morris Disability Questionnaire (RMDQ), 03 medical and health sciences, 0302 clinical medicine, Health Information Management, medicine, Back pain, Content validity, Concept elicitation, 030503 health policy & services, Debriefing, Research, lcsh:Public aspects of medicine, Cognition, lcsh:RA1-1270, humanities, Mood, Roland Morris Disability Questionnaire, 030220 oncology & carcinogenesis, PRO development, Physical therapy, Chronic low back pain, medicine.symptom, Thematic analysis, 0305 other medical science, Psychology, human activities, Cognitive debriefing
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10دورية أكاديمية
المؤلفون: Claire Burbridge, Jason A. Randall, Robert J. Sanchez, Hayes Dansky, Tara Symonds, Cynthia J. Girman, Joshua A. Strayer, Karen L. Selk, David C. Whitcomb, Erin E. Kershaw
المصدر: Springer, PharmacoEconomics - Open. 4(1):191-201