المؤلفون: Vuocolo B; Department of Molecular and Human Genetics, School of Health Professions, Baylor College of Medicine, Houston, Texas, USA., Gutierrez AM; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Robinson JO; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Recinos AM; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA., Desrosiers LR; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA., Majumder MA; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Bernini JC; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.; Cancer and Hematology Clinic, Vannie E. Cook Clinic, McAllen, Texas, USA., Gill J; UT MD Anderson Cancer Center, Children's Cancer Hospital, Houston, Texas, USA., Griffin T; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.; Department of Pediatric Hematology-Oncology, Children's Hospital of San Antonio, San Antonio, Texas, USA., Tomlinson GE; UT Health Science Center, Greehey Children's Cancer Research Institute and Division of Pediatric Hematology-Oncology, San Antonio, Texas, USA., Vallance K; Cook Children's Hematology and Oncology, Cook Children's Hospital, Forth Worth, Texas, USA., McGuire AL; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Parsons DW; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA., Plon SE; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA., Scollon S; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA.

المصدر: Journal of genetic counseling [J Genet Couns] 2024 Jan 15. Date of Electronic Publication: 2024 Jan 15.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Wiley Country of Publication: United States NLM ID: 9206865 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-3599 (Electronic) Linking ISSN: 10597700 NLM ISO Abbreviation: J Genet Couns Subsets: MEDLINE

المؤلفون: Hoban HG; Institute for Human Genetics, University of California, San Francisco, California, USA., Yip TA; Institute for Human Genetics, University of California, San Francisco, California, USA., Chau JC; Division of Genomic Medicine, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA., Bensen JT; Department of Epidemiology, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA., Desrosiers LR; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA., Finnila CR; HudsonAlpha Institute for Biotechnology, Huntsville, Alabama, USA., Hindorff LA; Division of Genomic Medicine, National Human Genome Research Institute, National Institutes of Health, Bethesda, Maryland, USA., Kelly NR; Division of Pediatric Genetic Medicine, Department of Pediatrics, Children's Hospital at Montefiore and the Albert Einstein College of Medicine, Bronx, New York, USA., Lynch FL; Center for Health Research, Kaiser Permanente Northwest, Portland, Oregon, USA., Rolf BA; Division of Medical Genetics, Department of Medicine, University of Washington, Seattle, Washington, USA., Smith HS; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Wasserstein MP; Division of Pediatric Genetic Medicine, Department of Pediatrics, Children's Hospital at Montefiore and the Albert Einstein College of Medicine, Bronx, New York, USA., Hassmiller Lich K; Department of Health Policy and Management, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.

المصدر: Clinical and translational science [Clin Transl Sci] 2024 Jan; Vol. 17 (1), pp. e13635. Date of Electronic Publication: 2023 Dec 08.

نوع المنشور: Journal Article; Review; Research Support, N.I.H., Extramural

بيانات الدورية: Publisher: WileyBlackwell Pub Country of Publication: United States NLM ID: 101474067 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1752-8062 (Electronic) Linking ISSN: 17528054 NLM ISO Abbreviation: Clin Transl Sci Subsets: MEDLINE

مواضيع طبية MeSH: Motivation* , Patient Care*, Humans ; Time and Motion Studies ; Genetic Testing

المؤلفون: Gutierrez AM; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Robinson JO; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Raesz-Martinez R; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA.; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA., Canfield I; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Majumder MA; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Scollon S; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA.; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA., Desrosiers LR; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA.; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA., Hsu RL; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Allen-Rhoades W; Department of Pediatric and Adolescent Medicine, Mayo Clinic, Rochester, Minnesota, USA., Parsons DW; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA.; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA., Plon SE; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA.; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA., McGuire AL; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA., Malek J; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.

المصدر: Journal of adolescent and young adult oncology [J Adolesc Young Adult Oncol] 2023 Oct; Vol. 12 (5), pp. 773-781. Date of Electronic Publication: 2023 Jan 02.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural

بيانات الدورية: Publisher: Mary Ann Liebert, Inc Country of Publication: United States NLM ID: 101543508 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 2156-535X (Electronic) Linking ISSN: 21565333 NLM ISO Abbreviation: J Adolesc Young Adult Oncol Subsets: MEDLINE

مواضيع طبية MeSH: Neoplasms*/genetics , Neoplasms*/therapy , Oncologists*, Humans ; Adolescent ; Young Adult ; Decision Making ; Patient Participation ; Genomics

المؤلفون: O'Daniel JM; Department of Genetics, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC. Electronic address: jodaniel@med.unc.edu., Ackerman S; Department of Social & Behavioral Sciences, School of Nursing, University of California San Francisco, San Francisco, CA., Desrosiers LR; Department of Pediatrics, Baylor College of Medicine, Texas Children's Cancer Center, Texas Children's Hospital, Houston, TX., Rego S; Institute for Human Genetics, University of California San Francisco, San Francisco, CA., Knight SJ; Division of Epidemiology, Department of Internal Medicine, University of Utah School of Medicine, Salt Lake City, UT., Mollison L; Department of Genetics, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC., Byfield G; Department of Genetics, School of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, NC., Anderson KP; Denver Health Ambulatory Care Services, Denver, CO., Danila MI; Division of Clinical Immunology and Rheumatology, Department of Medicine, Heersink School of Medicine, The University of Alabama at Birmingham, Birmingham, AL., Horowitz CR; Institute for Health Equity Research, Icahn School of Medicine at Mount Sinai, New York, NY., Joseph G; Department of Humanities and Social Sciences, University of California San Francisco, San Francisco, CA., Lamoure G; National Human Genome Research Institute, National Institutes of Health, Bethesda, MD., Lindberg NM; Center for Health Research Kaiser Permanente Northwest, Portland, OR., McMullen CK; Center for Health Research Kaiser Permanente Northwest, Portland, OR., Mittendorf KF; Vanderbilt Ingram Cancer Center, Vanderbilt University Medical Center, Nashville, TN., Ramos MA; Institute for Health Equity Research, Icahn School of Medicine at Mount Sinai, New York, NY., Robinson M; Bethel Gospel Assembly, New York, NY., Sillari C; National Human Genome Research Institute, National Institutes of Health, Bethesda, MD., Madden EB; National Human Genome Research Institute, National Institutes of Health, Bethesda, MD.

مؤلفون مشاركون: CSER Stakeholder and Engagement Work Group

المصدر: Genetics in medicine : official journal of the American College of Medical Genetics [Genet Med] 2022 May; Vol. 24 (5), pp. 1108-1119. Date of Electronic Publication: 2022 Feb 25.

نوع المنشور: Journal Article; Research Support, N.I.H., Intramural; Research Support, N.I.H., Extramural

بيانات الدورية: Publisher: Elsevier Country of Publication: United States NLM ID: 9815831 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1530-0366 (Electronic) Linking ISSN: 10983600 NLM ISO Abbreviation: Genet Med Subsets: MEDLINE

مواضيع طبية MeSH: Genomic Medicine* , Stakeholder Participation*, Genomics ; Humans ; Population Groups ; Research Design

المؤلفون: Desrosiers LR; Department of Pediatrics, Baylor College of Medicine, Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas., Quinn E; Division of Cancer Predisposition, St. Jude Children's Research Hospital, Memphis, Tennessee., Cramer S; Department of Pediatric Hematology/Oncology, Palmetto Health-USC Medical Group, Columbia, South Carolina., Dobek W; Department of Obstetrics and Gynecology, University of South Carolina School of Medicine, Columbia, South Carolina.

المصدر: Pediatric blood & cancer [Pediatr Blood Cancer] 2019 Oct; Vol. 66 (10), pp. e27907. Date of Electronic Publication: 2019 Jul 11.

نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: John Wiley Country of Publication: United States NLM ID: 101186624 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1545-5017 (Electronic) Linking ISSN: 15455009 NLM ISO Abbreviation: Pediatr Blood Cancer Subsets: MEDLINE

مواضيع طبية MeSH: Attitude to Health*, Genetic Counseling/*psychology , Neoplasms/*genetics , Parents/*psychology, Adult ; Female ; Genetic Predisposition to Disease ; Genetic Testing ; Humans ; Male ; Medical Oncology ; Pediatrics ; Surveys and Questionnaires