المؤلفون: Aherrahrou N; LISAC, Department of Computer Science, Faculty of Sciences Dhar El Mahraz, University Sidi Mohamed Ben Abdellah, B.P. 1796 - Atlas, 30003, Fez, Morocco., Tairi H; LISAC, Department of Computer Science, Faculty of Sciences Dhar El Mahraz, University Sidi Mohamed Ben Abdellah, B.P. 1796 - Atlas, 30003, Fez, Morocco., Aherrahrou Z; Institute for Cardiogenetics, Universität zu Lübeck, D-23562 Lübeck, Germany.; DZHK (German Centre for Cardiovascular Research), Partner Site Hamburg/Kiel/Lübeck, Germany.; University Heart Centre Lübeck, D-23562 Lübeck, Germany.

المصدر: Briefings in bioinformatics [Brief Bioinform] 2024 Jul 25; Vol. 25 (5).

نوع المنشور: Journal Article; Review

بيانات الدورية: Publisher: Oxford University Press Country of Publication: England NLM ID: 100912837 Publication Model: Print Cited Medium: Internet ISSN: 1477-4054 (Electronic) Linking ISSN: 14675463 NLM ISO Abbreviation: Brief Bioinform Subsets: MEDLINE

مواضيع طبية MeSH: Genome-Wide Association Study*/methods , Genetic Privacy*, Humans ; Genomics/methods ; Computer Security

المؤلفون: Malakar Y; Responsible Innovation Future Science Platform, Commonwealth Scientific and Industrial Research Organisation (CSIRO), Brisbane, Queensland, Australia. Yuwan.Malakar@csiro.au., Lacey J; Responsible Innovation Future Science Platform, Commonwealth Scientific and Industrial Research Organisation (CSIRO), Brisbane, Queensland, Australia., Twine NA; Transformational Bioinformatics, Commonwealth Scientific and Industrial Research Organisation (CSIRO), Sydney, Australia.; Applied BioSciences, Faculty of Science and Engineering, Macquarie University, Macquarie Park, Australia., McCrea R; Responsible Innovation Future Science Platform, Commonwealth Scientific and Industrial Research Organisation (CSIRO), Brisbane, Queensland, Australia., Bauer DC; Transformational Bioinformatics, Commonwealth Scientific and Industrial Research Organisation (CSIRO), Sydney, Australia.; Applied BioSciences, Faculty of Science and Engineering, Macquarie University, Macquarie Park, Australia.; Department of Biomedical Sciences, Faculty of Medicine and Health Science, Macquarie University, Macquarie Park, Australia.

المصدر: European journal of human genetics : EJHG [Eur J Hum Genet] 2024 May; Vol. 32 (5), pp. 506-512. Date of Electronic Publication: 2023 Jan 11.

نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Nature Publishing Group Country of Publication: England NLM ID: 9302235 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1476-5438 (Electronic) Linking ISSN: 10184813 NLM ISO Abbreviation: Eur J Hum Genet Subsets: MEDLINE

مواضيع طبية MeSH: Genetic Privacy*/standards , Ownership* , Information Dissemination*/ethics, Humans ; Australia ; Genomics/methods ; Male ; Female ; Attitude of Health Personnel

المؤلفون: Kukutai T; Te Ngira Institute for Population Research, University of Waikato, Hamilton, Aotearoa, New Zealand. tahu.kukutai@waikato.ac.nz.

المصدر: Science (New York, N.Y.) [Science] 2024 Apr 05; Vol. 384 (6691), pp. eado9298. Date of Electronic Publication: 2024 Apr 04.

نوع المنشور: Editorial

بيانات الدورية: Publisher: American Association for the Advancement of Science Country of Publication: United States NLM ID: 0404511 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1095-9203 (Electronic) Linking ISSN: 00368075 NLM ISO Abbreviation: Science Subsets: MEDLINE

مواضيع طبية MeSH: Human Rights*/legislation & jurisprudence , Maori People*/legislation & jurisprudence , Information Dissemination*/legislation & jurisprudence , Genetic Privacy*/legislation & jurisprudence, Artificial Intelligence ; New Zealand ; Humans

المؤلفون: Guerrini CJ; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA. Electronic address: guerrini@bcm.edu., Bash Brooks W; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA., Robinson JO; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA., Fullerton SM; Department of Bioethics and Humanities, University of Washington School of Medicine, Seattle, WA, USA., Zoorob E; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA., McGuire AL; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, TX, USA.

المصدر: Forensic science international [Forensic Sci Int] 2024 Mar; Vol. 356, pp. 111946. Date of Electronic Publication: 2024 Feb 01.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Elsevier Science Ireland Country of Publication: Ireland NLM ID: 7902034 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1872-6283 (Electronic) Linking ISSN: 03790738 NLM ISO Abbreviation: Forensic Sci Int Subsets: MEDLINE

مواضيع طبية MeSH: Genetic Privacy* , Politics*, Humans ; United States ; Pedigree ; Qualitative Research ; Immunoglobulin G

المؤلفون: Prince AER; College of Law, University of Iowa, Iowa City.

المصدر: JAMA [JAMA] 2023 Dec 05; Vol. 330 (21), pp. 2049-2050.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: American Medical Association Country of Publication: United States NLM ID: 7501160 Publication Model: Print Cited Medium: Internet ISSN: 1538-3598 (Electronic) Linking ISSN: 00987484 NLM ISO Abbreviation: JAMA Subsets: MEDLINE

مواضيع طبية MeSH: Genetic Privacy*/legislation & jurisprudence , Genetic Testing*/legislation & jurisprudence, Confidentiality ; Prejudice ; Privacy ; United States

المؤلفون: Lorenzo D; Institut Borja de Bioetica, Universitat Ramon Llull, Barcelona, Spain.; EUI San Joan de Deu, Barcelona, Spain., Esquerda M; Institut Borja de Bioetica, Universitat Ramon Llull, Barcelona, Spain. mesquerda@ibb.url.edu.; Sant Joan de Deu Terres de Lleida, Lleida, Spain. mesquerda@ibb.url.edu., Bofarull M; Institut Borja de Bioetica, Universitat Ramon Llull, Barcelona, Spain., Cusi V; Institut Borja de Bioetica, Universitat Ramon Llull, Barcelona, Spain., Roig H; Institut Borja de Bioetica, Universitat Ramon Llull, Barcelona, Spain., Bertran J; Institut Borja de Bioetica, Universitat Ramon Llull, Barcelona, Spain., Carrera J; Institut Borja de Bioetica, Universitat Ramon Llull, Barcelona, Spain., Torralba F; Institut Borja de Bioetica, Universitat Ramon Llull, Barcelona, Spain., Cambra FJ; Institut Borja de Bioetica, Universitat Ramon Llull, Barcelona, Spain.; Hospital Universitari Sant Joan de Déu Barcelona, Barcelona, Spain., Vila M; Institut Borja de Bioetica, Universitat Ramon Llull, Barcelona, Spain., Garriga M; Institut Borja de Bioetica, Universitat Ramon Llull, Barcelona, Spain., Palau F; Department of Genetic Medicine and Pediatric Institut of Rare Diseases, Hospital Sant Joan de Déu, Barcelona, Spain.; Institut de Recerca Sant Joan de Déu, Barcelona, Spain.; CIBER de Enfermedades Raras, ISCIII, Madrid, Spain.; Division of Pediatrics, University of Barcelona School of Medicine and Health Sciences, Barcelona, Spain.

المصدر: European journal of human genetics : EJHG [Eur J Hum Genet] 2023 Dec; Vol. 31 (12), pp. 1393-1397. Date of Electronic Publication: 2023 Sep 13.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Nature Publishing Group Country of Publication: England NLM ID: 9302235 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1476-5438 (Electronic) Linking ISSN: 10184813 NLM ISO Abbreviation: Eur J Hum Genet Subsets: MEDLINE

مواضيع طبية MeSH: Informed Consent* , Genetic Testing* , Genetic Privacy*, Humans

عنوان ترانسليتريتد: Kan leger drive oppsøkende genetisk informasjonsvirksomhet?

المؤلفون: Fystro JR

المصدر: Tidsskrift for den Norske laegeforening : tidsskrift for praktisk medicin, ny raekke [Tidsskr Nor Laegeforen] 2024 Sep 09; Vol. 144 (10). Date of Electronic Publication: 2024 Sep 09 (Print Publication: 2024).

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Norske Laegeforening Country of Publication: Norway NLM ID: 0413423 Publication Model: Electronic-Print Cited Medium: Internet ISSN: 0807-7096 (Electronic) Linking ISSN: 00292001 NLM ISO Abbreviation: Tidsskr Nor Laegeforen Subsets: MEDLINE

مواضيع طبية MeSH: Disclosure*/ethics, Humans ; Genetic Privacy/legislation & jurisprudence ; Genetic Privacy/ethics ; Family ; Physicians/ethics ; Genetic Testing/ethics ; Genetic Testing/legislation & jurisprudence ; Norway

المؤلفون: Uberoi D; Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada., Dalpé G; Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada., Cheung K; Center for Psychedelic & Consciousness Research, Johns Hopkins University, Baltimore, Maryland., Kondrup E; Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada., Palmour N; Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada., Arawi T; Faculty of Medicine and Medical Center, American University of Beirut, Beirut, Lebanon., Arych M; Institute of Economics and Management of the NUFT, Kyiv, Ukraine., Ramiro Aviles MA; Departamento de Ciencias Jurídicas, University of Alcalá, Madrid, Spain., Ayuso C; Department of Genetics, Health Research Institute-Fundación Jiménez Díaz University Hospital, Universidad Autónoma de Madrid (IIS-FJD, UAM), Madrid, Spain.; Center for Biomedical Network Research on Rare Diseases (CIBERER), Instituto de Salud Carlos III, Madrid, Spain., Bentzen HB; Centre for Medical Ethics, University of Oslo, Oslo, Norway., Blizinsky K; The All of Us Research Program, National Institutes of Health, Bethesda, Maryland., Bombard Y; Institute of Health Policy, Management and Evaluation, University of Toronto, Toronto, Ontario, Canada.; Genomics Health Services Research Program, Li Ka Shing Knowledge Institute, Unity Health Toronto, Toronto, Ontario, Canada., Chandrasekharan S; The All of Us Research Program, National Institutes of Health, Bethesda, Maryland., Chung BHY; Hong Kong Genome Institute, University of Hong Kong, Hong Kong, China., de Paor A; School of Law and Government, Dublin City University, Dublin, Ireland., Doerr M; Sage Bionetworks, Seattle, Washington., Dove ES; School of Law, University of Edinburgh, Edinburgh, Scotland., Dupras C; Département de médecine sociale et preventive, Université de Montréal, Montreal, Quebec, Canada., Granados-Moreno P; Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada., Greenbaum D; Department of Molecular Biophysics and Biochemistry, Yale University, New Haven, Connecticut., Gunnarsdóttir HD; Centre for Legal Studies in Welfare and Market, Faculty of Law, University of Copenhagen, Copenhagen, Denmark.; Faculty of Law, University of Iceland, Reykjavík, Iceland., Haidar H; Canada Département des lettres et humanités, Université du Québec à Rimouski, Quebec., Ho CH; Institute of European and American Studies, Academia Sinica, Taiwan., Jamuar SS; SingHealth Duke-NUS Institute of Precision Medicine, Genetics service, KK Women's and Children's Hospital, Singapore., Kim H; Graduate School of International Studies, Yonsei University, South Korea., Lebret A; Centre for Advanced Studies in Bioscience Innovation Law, Faculty of Law, Copenhagen University, Copenhagen, Denmark., Macdonald A; Department of Actuarial Mathematics & Statistics, Heriot-Watt University, Edinburgh, Scotland., Minssen T; Centre for Advanced Studies in Bioscience Innovation Law, Faculty of Law, Copenhagen University, Copenhagen, Denmark., Nasir J; Department of Human Genetics & Genomics, University of Northampton, Northampton, United Kingdom., Nicol D; Centre for Law and Genetics, University of Tasmania, Tasmania, Australia., Nicolás P; Faculty of Law, University of the Basque Country, Spain., Otlowski M; Centre for Law and Genetics, University of Tasmania, Tasmania, Australia., Nair APS; National University of Advanced Legal Studies, Kochi, Kerala, India., Prince AER; College of Law, University of Iowa, Iowa City., Rothstein M; Institute for Bioethics, Health Policy and Law, University of Louisville, Louisville, Kentucky., Ryan R; Healthfox US Inc, Salo, Finland., Sillon G; Department of Human Genetics, McGill University, Montreal, Quebec, Canada., Singh KK; Faculty of Law, University of Delhi, Delhi, India., Stedman I; School of Public Policy and Administration, York University, Toronto, Ontario, Canada., Tiller J; Public Health Genomics, Monash University, Melbourne, Australia., Van Hoyweghen I; Centre for Sociological Research Centre for Sociological Research, KU Leuven, Leuven, Belgium., Zawati MH; Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada., Joly Y; Centre of Genomics and Policy, McGill University, Montreal, Quebec, Canada.

المصدر: JAMA network open [JAMA Netw Open] 2024 Sep 03; Vol. 7 (9), pp. e2435355. Date of Electronic Publication: 2024 Sep 03.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: American Medical Association Country of Publication: United States NLM ID: 101729235 Publication Model: Electronic Cited Medium: Internet ISSN: 2574-3805 (Electronic) Linking ISSN: 25743805 NLM ISO Abbreviation: JAMA Netw Open Subsets: MEDLINE

مواضيع طبية MeSH: Delphi Technique* , Consensus*, Humans ; Genetic Privacy/legislation & jurisprudence ; Health Policy/legislation & jurisprudence ; Social Discrimination/legislation & jurisprudence ; Prejudice/legislation & jurisprudence

المؤلفون: Gannon F; QIMR Berghofer Medical Research Institute, Brisbane, QLD, Australia. FGannon@qimrberghofer.edu.au.

المصدر: EMBO reports [EMBO Rep] 2024 Sep; Vol. 25 (9), pp. 3741-3742. Date of Electronic Publication: 2024 Aug 14.

نوع المنشور: Journal Article; Review

بيانات الدورية: Publisher: Wiley Blackwell Country of Publication: England NLM ID: 100963049 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1469-3178 (Electronic) Linking ISSN: 1469221X NLM ISO Abbreviation: EMBO Rep Subsets: MEDLINE

مواضيع طبية MeSH: Genetic Testing*, Humans ; Genetic Privacy/ethics

المؤلفون: Hu Y; Department of Management Science and Engineering, Stanford University, Stanford, California, USA., Wein LM; Graduate School of Business, Stanford University, Stanford, California, USA.

المصدر: Journal of forensic sciences [J Forensic Sci] 2024 Sep; Vol. 69 (5), pp. 1699-1705. Date of Electronic Publication: 2024 Jul 08.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Blackwell Pub Country of Publication: United States NLM ID: 0375370 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1556-4029 (Electronic) Linking ISSN: 00221198 NLM ISO Abbreviation: J Forensic Sci Subsets: MEDLINE

مواضيع طبية MeSH: DNA Fingerprinting*/methods , Pedigree*, Humans ; Forensic Genetics/methods ; Genetic Privacy ; Likelihood Functions