المؤلفون: Njoku, Franklin, Pugh, Norma, Brambilla, Donald, Kroner, Barbara, Shah, Nirmish, Treadwell, Marsha, Gibson, Robert, Hsu, Lewis L, Gordeuk, Victor R, Glassberg, Jeffrey, Hankins, Jane S, Kutlar, Abdullah, King, Allison A, Kanter, Julie

المصدر: American Journal of Hematology. 99(5)

مصطلحات موضوعية: Biomedical and Clinical Sciences, Clinical Sciences, Clinical Research, Lung, Prevention, Sickle Cell Disease, Rare Diseases, Hematology, Clinical Trials and Supportive Activities, 2.1 Biological and endogenous factors, 2.4 Surveillance and distribution, Aetiology, Good Health and Well Being, Humans, Hypertension, Pulmonary, Anemia, Sickle Cell, Retrospective Studies, Prospective Studies, Research Design, Adult, Cardiorespiratory Medicine and Haematology, Immunology, Cardiovascular medicine and haematology

URL الوصول: https://escholarship.org/uc/item/1t86j4w5

المؤلفون: Hankins, Jane S, Brambilla, Donald, Potter, Michael B, Kutlar, Abdullah, Gibson, Robert, King, Allison A, Baumann, Ana A, Melvin, Cathy, Gordeuk, Victor R, Hsu, Lewis L, Nwosu, Chinonyelum, Porter, Jerlym S, Alberts, Nicole M, Badawy, Sherif M, Simon, Jena, Glassberg, Jeffrey A, Lottenberg, Richard, DiMartino, Lisa, Jacobs, Sara, Fernandez, Maria E, Bosworth, Hayden B, Klesges, Lisa M, Shah, Nirmish, Hodges, Jason, Carroll, Yvonne, Klesges, Lisa, Khan, Hamda, Smeltzer, Matthew, Gurney, James, Porter, Jerlym, Alberts, Nicole, French, Reginald, Badawy, Sherif, DeBaun, Michael, Kang, Guolian, Estepp, Jeremie, Wang, Winfred, Owens, Curtis, Debon, Margaret, Osarogiagbon, Ray, Nelson, Marquita, Treadwell, Marsha, Vichinsky, Elliott, Wun, Ted, Potter, Michael, Hessler, Danielle, Hagar, Ward, Marsh, Anne, Neumayr, Lynne, Kanter, Julie, Phillips, Shannon, Adams, Robert, Mueller, Martina, Abrams, Tina, Davia, Nathalia, Tanabe, Paula, Bosworth, Hayden, Jackson, George, Johnson, Fred, Richesson, Rachel, Prvu-Bettger, Janet, King, Allison, Baumann, Ana, Calhoun, Cecilia, Snyder, Angie, Fernandez, Maria, Richardson, Lynne D, Glassberg, Jeffrey, Genes, Nicholas G, Loo, George T, Shapiro, Jason S, Souffront, Kimberly, Clesca, Cindy, Linton, Elizabeth, Ryan, Gery, Kroner, Barbara L, Hendershot, Tabitha, Battestilli, Whitney, Cox, Lisa, Preiss, Liliana, Pugh, Norma, Li, Sophie, VonLehmden, Annie, Smith, Sharon M, Tonkins, William P, Peters-Lawrence, Marlene, Boyce, Cheryl, Barfield, Whitney, Thompson, Alexis

المصدر: Blood Advances. 7(23)

مصطلحات موضوعية: Biomedical and Clinical Sciences, Clinical Sciences, Health Services, Clinical Trials and Supportive Activities, Chronic Pain, Pain Research, Hematology, Sickle Cell Disease, Clinical Research, Rare Diseases, Management of diseases and conditions, 7.1 Individual care needs, Good Health and Well Being, Adult, Female, Humans, Male, Anemia, Sickle Cell, Hydroxyurea, Medication Adherence, Pain, Telemedicine, Cardiovascular medicine and haematology

وصف الملف: application/pdf

URL الوصول: https://escholarship.org/uc/item/1pb951wm

المؤلفون: Harris, Kelly M, Preiss, Liliana, Varughese, Taniya, Bauer, Anna, Calhoun, Cecelia L, Treadwell, Marsha, Masese, Rita, Hankins, Jane S, Hussain, Faiz Ahmed, Glassberg, Jeffrey, Melvin, Cathy L, Gibson, Robert, King, Allison A

المصدر: JAMA Network Open. 6(5)

مصطلحات موضوعية: Biomedical and Clinical Sciences, Allied Health and Rehabilitation Science, Health Services and Systems, Clinical Sciences, Health Sciences, Chronic Pain, Sickle Cell Disease, Mental Health, Rare Diseases, Hematology, Behavioral and Social Science, Clinical Research, Pain Research, Clinical Trials and Supportive Activities, Mental health, Good Health and Well Being, Adult, Humans, Female, Hydroxyurea, Quality of Life, Cross-Sectional Studies, Anemia, Sickle Cell, Educational Status, Employment, Sickle Cell Disease Implementation Consortium, Biomedical and clinical sciences, Health sciences

وصف الملف: application/pdf

URL الوصول: https://escholarship.org/uc/item/0s11r7d2

المؤلفون: Baumann, Ana A, Hankins, Jane S, Hsu, Lewis L, Gibson, Robert W, Richardson, Lynne D, Treadwell, Marsha, Glassberg, Jeffrey A, Bourne, Sarah, Luo, Lingzi, Masese, Rita V, Demartino, Terri, Nocek, Judith, Taaffe, Elizabeth, Gollan, Sierra, Ruiz, Ome-Ollin, Nwosu, Chinonyelum, Qashou, Nai, James, Aimee S, Tanabe, Paula, King, Allison A

المصدر: BMC Health Services Research. 23(1)

مصطلحات موضوعية: Health Services and Systems, Health Sciences, Clinical Research, Rare Diseases, Health Services, Emergency Care, Hematology, Sickle Cell Disease, Pain Research, Health and social care services research, 8.1 Organisation and delivery of services, Good Health and Well Being, Humans, Adult, Pain Management, Electronic Health Records, Pain, Anemia, Sickle Cell, Emergency Service, Hospital, Sickle cell disease, Emergency department, Implementation science, Library and Information Studies, Nursing, Public Health and Health Services, Health Policy & Services, Health services and systems, Public health

وصف الملف: application/pdf

URL الوصول: https://escholarship.org/uc/item/4dv5447g

المؤلفون: Howell, Kristen E, Pugh, Norma, Longoria, Jennifer, Shah, Nirmish, Kutlar, Abdullah, Gordeuk, Victor R, King, Allison A, Glassberg, Jeffrey, Kayle, Mariam, Melvin, Cathy, Treadwell, Marsha, Hankins, Jane S, Porter, Jerlym S, Consortium, Sickle Cell Disease Implementation

المصدر: HemaSphere. 7(8)

وصف الملف: application/pdf

URL الوصول: https://escholarship.org/uc/item/9jg7555z

المؤلفون: Treadwell, Marsha J, Mushiana, Swapandeep, Badawy, Sherif M, Preiss, Liliana, King, Allison A, Kroner, Barbara, Chen, Yumei, Glassberg, Jeffrey, Gordeuk, Victor, Shah, Nirmish, Snyder, Angela, Wun, Theodore

المصدر: Quality of Life Research. 31(9)

مصطلحات موضوعية: Health Sciences, Mind and Body, Mental Health, Rare Diseases, Hematology, Sickle Cell Disease, Clinical Research, Behavioral and Social Science, Chronic Pain, Pain Research, Neurosciences, Adolescent, Adult, Anemia, Sickle Cell, Humans, Middle Aged, Pain, Patient Reported Outcome Measures, Quality of Life, Surveys and Questionnaires, Young Adult, Patient-reported outcome measures, Sickle cell disease, Implementation science, Models-biopsychosocial, Sickle Cell Disease Implementation Consortium, Models—biopsychosocial, Public Health and Health Services, Psychology, Health Policy & Services, Health sciences, Human society

وصف الملف: application/pdf

URL الوصول: https://escholarship.org/uc/item/5p4801hm

المؤلفون: Kroner, Barbara L, Hankins, Jane S, Pugh, Norma, Kutlar, Abdullah, King, Allison A, Shah, Nirmish R, Kanter, Julie, Glassberg, Jeffrey, Treadwell, Marsha, Gordeuk, Victor R, Consortium, for the Sickle Cell Disease Implementation

المصدر: American Journal of Hematology. 97(5)

مصطلحات موضوعية: Reproductive Medicine, Biomedical and Clinical Sciences, Pediatric, Perinatal Period - Conditions Originating in Perinatal Period, Rare Diseases, Contraception/Reproduction, Hematology, Preterm, Low Birth Weight and Health of the Newborn, Sickle Cell Disease, Pediatric Research Initiative, Infant Mortality, Clinical Research, Pain Research, Aetiology, 2.1 Biological and endogenous factors, Reproductive health and childbirth, Good Health and Well Being, Abortion, Spontaneous, Anemia, Sickle Cell, Female, Humans, Hydroxyurea, Infant, Infant, Newborn, Live Birth, Pregnancy, Pregnancy Outcome, Sickle Cell Disease Implementation Consortium, Cardiorespiratory Medicine and Haematology, Immunology, Cardiovascular medicine and haematology

وصف الملف: application/pdf

URL الوصول: https://escholarship.org/uc/item/1kq7f63g

المؤلفون: Hodges, Jason, Carroll, Yvonne, Smeltzer, Matthew, Nwosu, Chinonyelum, Gurney, James, Potter, Jerlym, Badawy, Sherif, Estepp, Jeremie, Treadwell, Marsha, Vichinsky, Elliott, Wun, Ted, Potter, Michael, Hessler, Danielle, Hagar, Ward, Marsh, Anne, Neumayr, Lynne, Melvin, Cathy, Kanter, Julie, Phillips, Shannon, Adams, Robert, Mueller, Martina, Davila, Caroline, Nirmish Shah, Sarah Bourne., Tanabe, Paula, Bosworth, Hayden, Jackson, George, Richesson, Rachel, Prvu-Bettger, Janet, Masese, Rita, DeMartino, Terri, Kutlar, Abdullah, Gibson, Robert, Snyder, Angela, Fernandez, Maria, Lyon, Matthew, Lottenberg, Richard, Lawrence, Raymona, Gollan, Sierra, Bowman, Latanya, Richardson, Lynne, Glassberg, Jeffrey, Simon, Jena, Loo, George T., Clesca, Cindy, Linton, Elizabeth, Ryan, Gery, Gordeuk, Victor, Hirschtick, Jana, Hsu, Lewis, Krishnan, Jerry, Wandersman, Abe, Colla, Joe, Erwin, Kim, Lamont, Andrea, Norell, Sarah, Saving, Kay, Nocek, Judith, King, Allison, Baumann, Ana, Calhoun, CeCe, Luo, Lingzi, James, Aimee, Abel, Regina, Varughese, Taniya, Kroner, Barbara, Rojas-Smith, Lucia, Hendershot, Tabitha, DiMartino, Lisa, Jacobs, Sara, Battestilli, Whitney, Brambilla, Don, Cox, Lisa, Preiss, Liliana, Pugh, Norma, Telfair, Joseph, Hassell, Kathryn, Thompson, Alexis, Tompkins, William, Smith, Sharon, Luksenberg, Harvey, Peters-Lawrence, Marlene, Boyce, Cheryl, Barfield, Whitney, Werner, Ellen, Siewny, Lauren, Melvin, Cathy L., Carpenter, Christopher R., Hankins, Jane S., Colla, Joseph S., Davila, Natalia, Masese, Rita V., McCuskee, Sarah, Gollan, S. Siera

المصدر: In Blood Advances May 2024

المؤلفون: Longoria, Jennifer N, Pugh, Norma L, Gordeuk, Victor, Hsu, Lewis L, Treadwell, Marsha, King, Allison A, Gibson, Robert, Kayle, Mariam, Crego, Nancy, Glassberg, Jeffrey, Melvin, Cathy L, Hankins, Jane S, Porter, Jerlym

المصدر: American Journal of Hematology. 96(11)

مصطلحات موضوعية: Biomedical and Clinical Sciences, Cardiovascular Medicine and Haematology, Behavioral and Social Science, Sickle Cell Disease, Basic Behavioral and Social Science, Mental Health, Rare Diseases, Pain Research, Pediatric, Chronic Pain, Clinical Research, Hematology, Neurosciences, 7.1 Individual care needs, Management of diseases and conditions, Mental health, Quality Education, Activities of Daily Living, Adolescent, Adult, Anemia, Sickle Cell, Antisickling Agents, Cognitive Dysfunction, Female, Humans, Hydroxyurea, Male, Medication Adherence, Middle Aged, Young Adult, Cardiorespiratory Medicine and Haematology, Immunology, Cardiovascular medicine and haematology

وصف الملف: application/pdf

URL الوصول: https://escholarship.org/uc/item/1wr2m0j9

المؤلفون: Smeltzer, Matthew P, Howell, Kristen E, Treadwell, Marsha, Preiss, Liliana, King, Allison A, Glassberg, Jeffrey A, Tanabe, Paula, Badawy, Sherif M, DiMartino, Lisa, Gibson, Robert, Kanter, Julie, Klesges, Lisa M, Hankins, Jane S

المصدر: BMJ Open. 11(11)

مصطلحات موضوعية: Health Services and Systems, Biomedical and Clinical Sciences, Clinical Sciences, Health Sciences, Sickle Cell Disease, Hematology, Pain Research, Rare Diseases, Clinical Research, Health Services, Chronic Pain, 8.1 Organisation and delivery of services, Health and social care services research, Good Health and Well Being, Anemia, Sickle Cell, Child, Cross-Sectional Studies, Evidence-Based Medicine, Health Personnel, Humans, Hydroxyurea, United States, mental health, haematology, paediatrics, Sickle Cell Disease Implementation Consortium, Public Health and Health Services, Other Medical and Health Sciences, Biomedical and clinical sciences, Health sciences, Psychology

وصف الملف: application/pdf

URL الوصول: https://escholarship.org/uc/item/2xv7c3mm