المؤلفون: Sneha Amin, Irene Sangadi, Margaret Allman-Farinelli, Sunil V. Badve, Neil Boudville, Helen Coolican, Susan Coulshed, Sheryl Foster, Mangalee Fernando, Imad Haloob, David C.H. Harris, Carmel M. Hawley, Jane Holt, Martin Howell, Karthik Kumar, David W. Johnson, Vincent W. Lee, Jun Mai, Anna Rangan, Simon D. Roger, Kamal Sud, Vicente Torres, Eswari Vilayur, Gopala K. Rangan

المصدر: Kidney Medicine, Vol 5, Iss 9, Pp 100691- (2023)

مصطلحات موضوعية: Autosomal dominant polycystic kidney disease, clinical trials, patient-centered care, participant experience, participant perspective, qualitative research, Diseases of the genitourinary system. Urology, RC870-923

وصف الملف: electronic resource

Relation: http://www.sciencedirect.com/science/article/pii/S2590059523001097; https://doaj.org/toc/2590-0595

URL الوصول: https://doaj.org/article/1b2f41da99e34970a933e06acd7ca811

المؤلفون: Armando Teixeira-Pinto, Jonathan Craig, Martin Howell, Charlotte Logeman, Benedicte Sautenet, Albert Ong, Arlene Chapman, Helen Coolican, Juliana Tze-Wah Kao, Ronald Perrone, Vincent Torres, Kevin Fowler, York Pei, Jessica Ryan, Clair Geneste, Hyunsuk Kim, Gayathri Parasivam

المصدر: BMJ Open, Vol 10, Iss 10 (2020)

مصطلحات موضوعية: Medicine

وصف الملف: electronic resource

Relation: https://bmjopen.bmj.com/content/10/10/e038005.full; https://doaj.org/toc/2044-6055

URL الوصول: https://doaj.org/article/e8d547dcad65403eb9a4e532022791fc

المؤلفون: Yeoungjee Cho, Benedicte Sautenet, Gopala Rangan, Jonathan C. Craig, Albert C. M. Ong, Arlene Chapman, Curie Ahn, Dongping Chen, Helen Coolican, Juliana Tze-Wah Kao, Ron Gansevoort, Ronald Perrone, Tess Harris, Vicente Torres, York Pei, Peter G. Kerr, Jessica Ryan, Talia Gutman, Martin Howell, Angela Ju, Karine E. Manera, Armando Teixeira-Pinto, Lorraine A. Hamiwka, Allison Tong

المصدر: Trials, Vol 18, Iss 1, Pp 1-11 (2017)

مصطلحات موضوعية: Core outcome set, Outcomes research, Patient-centred outcomes clinical trials, Chronic kidney disease, Autosomal dominant polycystic kidney disease, Medicine (General), R5-920

وصف الملف: electronic resource

Relation: http://link.springer.com/article/10.1186/s13063-017-2298-4; https://doaj.org/toc/1745-6215

URL الوصول: https://doaj.org/article/d0852e92b5124aa291128181a39abb13

المؤلفون: Annette T. Y. Wong, Alexandra Munt, Margaret Allman-Farinelli, Sunil V. Badve, Neil Boudville, Helen Coolican, Ashley N. Chandra, Susan Coulshed, Mangalee Fernando, Jared Grantham, Imad Haloob, David C. H. Harris, Carmel M. Hawley, Jane Holt, David W. Johnson, Karthik Kumar, Vincent W. Lee, Maureen Lonergan, Jun Mai, Anna Rangan, Simon D. Roger, Sayanthooran Saravanabavan, Kamal Sud, Vicente E. Torres, Eswari Vilayur, Jennifer Q. J. Zhang, Gopala K. Rangan

المصدر: Nutrients, Vol 12, Iss 11, p 3376 (2020)

مصطلحات موضوعية: autosomal dominant polycystic kidney disease, diet, sodium, salt, progression, 24-h urine, Nutrition. Foods and food supply, TX341-641

وصف الملف: electronic resource

Relation: https://www.mdpi.com/2072-6643/12/11/3376; https://doaj.org/toc/2072-6643

URL الوصول: https://doaj.org/article/1c02cd25d3c248e48addab0842cb9b06

المؤلفون: Gopala K. Rangan, Annette T.Y. Wong, Alexandra Munt, Jennifer Q.J. Zhang, Sayanthooran Saravanabavan, Sandra Louw, Margaret Allman-Farinelli, Sunil V. Badve, Neil Boudville, Jessie Chan, Helen Coolican, Susan Coulshed, Marie E. Edwards, Bradley J. Erickson, Mangalee Fernando, Sheryl Foster, Adriana V. Gregory, Imad Haloob, Carmel M. Hawley, Jane Holt, Kirsten Howard, Martin Howell, David W. Johnson, Timothy L. Kline, Karthik Kumar, Vincent W. Lee, Maureen Lonergan, Jun Mai, Philip McCloud, Elaine Pascoe, Anthony Peduto, Anna Rangan, Simon D. Roger, Julie Sherfan, Kamal Sud, Vicente E. Torres, Eswari Vilayur, David C.H. Harris

المصدر: NEJM Evidence. 1

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::6ad9f405ecdac7de55d0776e2e05e52b
https://doi.org/10.1056/evidoa2100021

المؤلفون: Camilla S. Hanson, Jonathan C. Craig, Charlotte Logeman, Aditi Sinha, Allison Dart, Allison A. Eddy, Chandana Guha, Debbie S. Gipson, Detlef Bockenhauer, Hui-Kim Yap, Jaap Groothoff, Michael Zappitelli, Nicholas J.A. Webb, Stephen I. Alexander, Susan L. Furth, Susan Samuel, Alicia Neu, Andrea K. Viecelli, Angela Ju, Ankit Sharma, Eric H. Au, Hailey Desmond, Jenny I. Shen, Karine E. Manera, Karolis Azukaitis, Louese Dunn, Simon A. Carter, Talia Gutman, Yeoungjee Cho, Amanda Walker, Anna Francis, Cheryl Sanchez-Kazi, Joshua Kausman, Meghan Pearl, Nadine Benador, Shobha Sahney, Allison Tong, Abhjit Guha, Adaobi Solarin, Adriana Platona, Alexander Hamilton, Alice Woods-Barnard, Allison Eddy, Alyssa Karathanas, Amanda Baumgart, Amelia Fielding, Amelia LePage, Amelie Bernier-Jean, Amy Kelly, Ana Teixeira, Andrea Viecelli, Andrea Matus, Andrew Narva, Angela Yee-Moon Wang, Anna Fielding, Anthony Meza, Aria Fielding, Armando Teixeira-Pinto, Arvind Bagga, Augustina Jankauskienė, Ayano Kelly, Barbara Gillespie, Benedicte Sautenet, Beth Vogt, Bethany Foster, Bradley Warady, Bradley Dixon, Braden Manns, Brenda Hemmelgarn, Brittney Bscardark, Brooklyn Romeo, Camilla Hanson, Carlos Meza, Carter Brockett, Chanel Prestidge, Charmaine Green, Christy Perkins, Claus Peter Schmitt, Craig Fielding, Craig Settee, Daniel Sumpton, Daniel Meza, Darien Karathanas, David Harris, David Wheeler, David Hooper, Debbie Gipson, Denis Geary, Dieter Haffner, Djalila Mekahli, Dorota Drozdz, Ed Romeo, Elaine Ku, Elaine Urbina, Elena Levtchenko, Elena Balovlenkov, Elisabeth Hodson, Emily Morales, Emma O'Lone, Emma Machuca, Emmah Carlton, Eric Au, Erin Olver, Estefania Morales, Fatima Mirza, Fiona Mackie, Francesca Tentori, Franz Schaefer, Gail Higgins, Georges Deschenes, Georgia Plunkett, Gerilyn Yoder, Germaine Wong, Giselle Morales, Greg Germino, Hayley Perkins, Harrison Mitchell-Smith, Helen Coolican, Hong Xu, Ifeoma Anochie, Il-Soo Ha, Ira Davis, Isaac Liu, Israel Samaniego, Jaime Machuca, James Machuca, Jasmijn Kerklaan, Jeff Brockett, Jenna Norton, Jenny Shen, Jens Goebel, Jia Rao, Jimmy Machuca, Jo Mitchell-Smith, Jo Watson, John Gill, Jonathan Craig, Joseph T. Flynn, Joshua Samuels, Justine Bacchetta, Kaleb Yoder, Karine Manera, Katherine Twombley, Kelly-Ann McMichael, Kenji Ishikura, Kennedy Romeo, Kevin Settee, Kim Linh Van, Lachlan McMichael, Lany Trinh, Larry Greenbaum, Laura Sanchez, Leo Fielding, Lesley Rees, Leslie Lippincott, Levi Mejia-Saldivar, Lidia Saldivar, Lisa Guay-Woodford, Lizett Samaniego, Lorraine Hamiwka, Lorraine Bell, Lucinda Barry, Luke Macauley, Luke Holmes, Madelynn Karathanas, Madison Mitchell-Smith, Mandy Walker, Manuel Benavides, Marcello Tonelli, Maria Ferris, Marina Vivarelli, Mark Wolfenden, Martin Howell, Martin Christian, Martin Schreiber, Marva Moxey-Mims, Mary Leonard, Matthew Karathanas, Melissa Natatmadja, Melissa Brockett, Melvin Bonilla-Felix, Meredith Atkinson, Michel Baum, Michelle Rheault, Mignon McCulloch, Mina Matsuda-Abedini, Mini Michael, Mohammad Khan, Mohammad Salih, Mycah Ann Carlton, Ngairre Plunkett, Nick Webb, Nicki Scholes-Robertson, Nicolas Larkins, Nicole Evangelidis, Nigel Yoder, Norma Meza, Paige Olver, Paiyton Carlton, Patrick Brophy, Peter Tugwell, Pierre Cochat, Rajnish Mehrotra, Raphael Wolfenden, Rasheed Gbadegesin, Raymond Benavides, Rebecca Johnson, Ricardo Morales, Richard McGee, Richard Fish, Robert Gardos, Roberto Pecoits-Filho, Rocio Vargas, Rodolfo Saldivar, Rosanna Coppo, Rukshana Shroff, Rupesh Raina, Sajeda Youssouf, Sally Crowe, Samaya Anumudu, Samuel Chan, Sarah Baldacchino, Scott Wenderfer, Sebastian Wolfenden, Selah Carlton, Shanna Sutton, Shannon Murphy, Sharon Teo, Sheyma Salih, Silas Carlton, Simon Carter, Simone Pearson, Simra Khan, Skyla Wilson, Sonia Sharma, Stephen Alexander, Stephen Marks, Stephen Cornish, Stuart Goldstein, Susan Furth, Susan Mendley, Susan Lippincott, Symone Charles, Terri Mitchell-Smith, Tess Harris, Thorsten Vetter, Tiffany Carlton, Timothy Carlton, Uwe Querfeld, Valeria Saglimbene, Virginia Charles, Wim van Biesen, Wolfgang Winkelmayer, Yenissey Machuca, Yusuf Salih, Yo Han Anh, Zachary Perkins, Zeynab Salih

المساهمون: Paediatric Nephrology, APH - Methodology, APH - Quality of Care, AGEM - Amsterdam Gastroenterology Endocrinology Metabolism, ARD - Amsterdam Reproduction and Development, Other Research

المصدر: Kidney international, 98(3), 553-565. Nature Publishing Group

مصطلحات موضوعية: 0301 basic medicine, Nephrology, medicine.medical_specialty, Consensus, Adolescent, medicine.medical_treatment, 030232 urology & nephrology, patient-centered care, outcomes, Outcome (game theory), 03 medical and health sciences, 0302 clinical medicine, Quality of life (healthcare), children, Internal medicine, Outcome Assessment, Health Care, medicine, Humans, transplant, Renal Insufficiency, Chronic, Child, Dialysis, Depression (differential diagnoses), business.industry, Australia, trials, Reproducibility of Results, medicine.disease, 030104 developmental biology, core outcomes set, Family medicine, dialysis, Consensus Workshops, business, Inclusion (education), chronic kidney disease, Kidney disease

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::dc8dfb7232dbccb0066bfcb38686304d
http://www.scopus.com/inward/record.url?scp=85088934417&partnerID=8YFLogxK

المؤلفون: Bénédicte Sautenet, Yeoungjee Cho, Talia Gutman, Gopala Rangan, Albert Ong, Arlene B. Chapman, Curie Ahn, Helen Coolican, Juliana Tze-Wah Kao, Kevin Fowler, Ron T. Gansevoort, Claire Geneste, Ronald D. Perrone, Tess Harris, Vicente E. Torres, York Pei, Jonathan C. Craig, Allison Tong, Arlene Chapman, Ron Gansevoort, Ronald Perrone, Vicente Torres, Benedicte Sautenet

المساهمون: MethodS in Patients-centered outcomes and HEalth ResEarch (SPHERE), Université de Tours (UT)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Nantes - UFR des Sciences Pharmaceutiques et Biologiques, Université de Nantes (UN)-Université de Nantes (UN), Université de Tours-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Nantes - UFR des Sciences Pharmaceutiques et Biologiques

المصدر: American Journal of Kidney Diseases
American Journal of Kidney Diseases, Elsevier, 2020, ⟨10.1053/j.ajkd.2019.12.003⟩

مصطلحات موضوعية: Nephrology, end-stage kidney disease (ESKD), [SDV]Life Sciences [q-bio], 030232 urology & nephrology, PROGRESSION, Review, Kidney Function Tests, outcomes, law.invention, 0302 clinical medicine, Randomized controlled trial, Quality of life, systematic review, law, QUALITY-OF-LIFE, Epidemiology, Outcome Assessment, Health Care, kidney volume, Polycystic kidney disease, pain, 030212 general & internal medicine, Renal Insufficiency, kidney function, Clinical Trials as Topic, patient-reported outcome (PRO), blood pressure, Autosomal dominant polycystic kidney disease (ADPKD), Organ Size, Polycystic Kidney, Autosomal Dominant, outcome heterogeneity, 3. Good health, Cardiovascular Diseases, epidemiology, CLINICAL-TRIALS, medicine.medical_specialty, Autosomal dominant polycystic kidney disease, nephrology, Infections, cyst volume, 03 medical and health sciences, cardiovascular events, Internal medicine, medicine, CKD, Humans, Patient Reported Outcome Measures, surrogate end point, hard outcome, DECLINE, business.industry, Surrogate endpoint, medicine.disease, infection, Clinical trial, VOLUME, trial design, business, patient-centered research

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::1c58dca53f3bd9636a55398e9b6a3371
https://hdl.handle.net/11370/a6dcc131-c9f1-40a8-ae4f-1dde4830c96c

المؤلفون: Yeoungjee Cho, Allison Tong, Jonathan C. Craig, Reem A. Mustafa, Arlene Chapman, Ronald D. Perrone, Curie Ahn, Kevin Fowler, Vicente Torres, Ron T. Gansevoort, Albert C.M. Ong, Helen Coolican, Juliana Tze-Wah Kao, Tess Harris, Talia Gutman, Jenny I. Shen, Andrea K. Viecelli, David W. Johnson, Eric Au, Ragada El-Damanawi, Charlotte Logeman, Angela Ju, Karine E. Manera, Michel Chonchol, Dwight Odland, David Baron, York Pei, Benedicte Sautenet, Anjay Rastogi, Ankit Sharma, Gopala Rangan, Adeera Levin, Alan Yu, Albert Ong, Aliza Thompson, Amanda Baumgart, Amelie Bernier-Jean, Amy Kelly, Andrea Viecelli, Andrew Mallett, Angela Wang, Anjay Rastog, Annie-Claire Nadeau-Fredette, Armando Teixeira-Pinto, Ayano Kelly, Barbara Gillespie, Bernard Canaud, Braden Manns, Brenda Hemmelgarn, Camilla Hanson, Carmel Hawley, Carol Pollock, Chia-Ter Chao, Claudia Rutherford, Daniel Sumpton, David Harris, David Johnson, David Wheeler, Djalila Mekahli, Donal O’Donoghue, Dorien Peters, Dorothee Oberdhan, Elena Balovlenkov, Emma O'Lone, Francesca Tentori, Frank Czerwiec, Frederic Rahbari Oskoui, Gopi Rangan, Gregory Germino, Hayne Park, Htay Htay, Hyunjin Ryu, Jenna Norton, Jenny Shen, John Gill, Juliana Kao, Kai-Uwe Eckardt, Karine Manera, Kim Linh Van, Lisa Guay-Woodford, Mahesh Krishnan, Marie Hogan, Martin Howell, Meyeon Park, Michal Mrug, Michelle Ta, Nicole Evangelidis, Peter Harris, Peter Tugwell, Pranav Garimella, Rathika Krishnasamy, Reem Mustafa, Richard McGee, Roberto Pecoits-Filho, Ron Gansevoort, Ronald Perrone, Roser Torra, Sally Crowe, Samaya Anumudu, Samuel Chan, Sarah Bernays, Shigeo Horie, Simon Carter, Suetonia Palmer, Susan Mendley, Terry Watnick, Thomas Hiemstra, Thomas Weimbs, Vivek Jha, Wim van Biesen, Wolfgang Winkelmayer, Yun Kyu Oh, David Clark, Debra McGinty-Poteet, Elizabeth King, Frances Vickers, Jean Odland, Lynore Lee, Marvin Vickers, Mary Johnston-Clark, Robin Dorsey, Zachary Baron

المساهمون: Groningen Kidney Center (GKC), Cardiovascular Centre (CVC)

المصدر: American Journal of Kidney Diseases, 77(2), 255-263. W B SAUNDERS CO-ELSEVIER INC

مصطلحات موضوعية: Nephrology, medicine.medical_specialty, Delphi Technique, 030232 urology & nephrology, Autosomal dominant polycystic kidney disease, Tolvaptan, Pain, Disease, Nephrologists, 03 medical and health sciences, 0302 clinical medicine, Stakeholder Participation, Internal medicine, Activities of Daily Living, Outcome Assessment, Health Care, medicine, Polycystic kidney disease, Humans, 030212 general & internal medicine, Renal Insufficiency, Family history, Mortality, Intensive care medicine, TOLVAPTAN, business.industry, urogenital system, Administrative Personnel, STAGE RENAL-DISEASE, Guideline, medicine.disease, Polycystic Kidney, Autosomal Dominant, TRIALS, Caregivers, Cardiovascular Diseases, GUIDELINE, Disease Progression, business, Kidney disease, medicine.drug

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::26a3cb7d2dc3d373bad1ef1a502c0f72
https://research.rug.nl/en/publications/dabb0580-6b1b-46c6-bd55-0bee15c911bf

المؤلفون: Annie Claire Nadeau-Fredette, Yeoungjee Cho, Jonathan C. Craig, Vicente E. Torres, Ron T. Gansevoort, Hyunjin Ryu, Angela Ju, Armando Teixeira-Pinto, Albert C.M. Ong, Juliana Tze Wah Kao, Karine E. Manera, Helen Coolican, Talia Gutman, York Pei, Tess Harris, Michel Chonchol, David W. Johnson, Allison Tong, Arlene B. Chapman, Reem A. Mustafa, Ronald D. Perrone, Curie Ahn, Htay Htay, Andrea K. Viecelli, Martin Howell, Charlotte Logeman, Bénédicte Sautenet, Gopala K. Rangan

المساهمون: Cardiovascular Centre (CVC), Groningen Kidney Center (GKC), MethodS in Patients-centered outcomes and HEalth ResEarch (SPHERE), Université de Tours (UT)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Nantes - UFR des Sciences Pharmaceutiques et Biologiques, Université de Nantes (UN)-Université de Nantes (UN), Université de Tours-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Nantes - UFR des Sciences Pharmaceutiques et Biologiques

المصدر: American Journal of Kidney Diseases, 76(3), 361-373. W B SAUNDERS CO-ELSEVIER INC
American Journal of Kidney Diseases
American Journal of Kidney Diseases, Elsevier, 2020, ⟨10.1053/j.ajkd.2020.01.005⟩

مصطلحات موضوعية: Male, Delphi Technique, [SDV]Life Sciences [q-bio], 030232 urology & nephrology, Delphi method, Delphi, 0302 clinical medicine, Computer literacy, 030212 general & internal medicine, Child, core outcome domains, Autosomal dominant polycystic kidney disease (ADPKD), Middle Aged, Polycystic Kidney, Autosomal Dominant, 3. Good health, Caregivers, patient priorities, Nephrology, Female, chronic pain, Adult, medicine.medical_specialty, Asia, Consensus, Adolescent, Patients, Health Personnel, Autosomal dominant polycystic kidney disease, Pain, Renal function, chronic kidney disease (CKD), patient-reported outcomes (PROs), Likert scale, Young Adult, 03 medical and health sciences, Quality of life (healthcare), quality of life (QoL), medicine, Humans, Patient Reported Outcome Measures, Aged, business.industry, Intracranial Aneurysm, medicine.disease, Self Concept, clinical trial design, Blood pressure, Socioeconomic Factors, Family medicine, Africa, Quality of Life, Kidney Failure, Chronic, business, Stress, Psychological, qualitative research, Kidney disease

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::eddec4d924e750e202e50003c823a3ec
https://research.rug.nl/en/publications/9232f32d-762a-4e78-9784-176ccd558647

المؤلفون: Kevin J. Fowler, Hyunsuk Kim, David W. Johnson, Arlene B. Chapman, Juliana Tze-Wah Kao, Clair Geneste, Helen Coolican, Yaerim Kim, Ron T. Gansevoort, Martin Howell, Peter G. Kerr, Yeoungjee Cho, Albert C.M. Ong, Charlotte Logeman, Armando Teixeira-Pinto, Angela Ju, Tess Harris, Curie Ahn, Gayathri Parasivam, Andrea K. Viecelli, Ronald D. Perrone, Karine E. Manera, Vincent Torres, Gopala K. Rangan, Talia Gutman, York Pei, Allison Tong, Jonathan C. Craig, Jessica Ryan, Bénédicte Sautenet

المساهمون: Cardiovascular Centre (CVC), Groningen Kidney Center (GKC)

المصدر: BMJ Open, 10(10):e038005. BMJ PUBLISHING GROUP
BMJ Open
BMJ Open, Vol 10, Iss 10 (2020)

مصطلحات موضوعية: Adult, medicine.medical_specialty, Adolescent, Genetic counseling, nephrology, Quality of life (healthcare), Life insurance, Republic of Korea, Medicine, Presymptomatic Testing, Humans, genetics, Psychiatry, business.industry, Australia, Paediatrics, paediatric nephrology, General Medicine, Focus Groups, Polycystic Kidney, Autosomal Dominant, Focus group, Mental health, Attitude, Caregivers, Quality of Life, Family resilience, France, business, Psychosocial, medical education & training, mental health

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::06c3df2bdc914261a2a982277d9a6bec
https://research.rug.nl/en/publications/327e5c90-581a-438a-9d2e-59f78d79d764