المؤلفون: Milne, Richard, Morley, Katherine I., Almarri, Mohamed A., Atutornu, Jerome, Baranova, Elena E., Bevan, Paul, Cerezo, Maria, Cong, Yali, Costa, Alessia, Feijao, Carolina, de Freitas, Cláudia, Fernow, Josepine, Goodhand, Peter, Hasan, Qurratulain, Hibino, Aiko, Houeland, Gry, Howard, Heidi C., Hussain Sheikh, Zakir, Ingvoldstad Malmgren, Charlotta, Izhevskaya, Vera L., Jędrzejak, Aleksandra, Jinhong, Cao, Kimura, Megumi, Kleiderman, Erika, Liu, Keying, Mascalzoni, Deborah, 1973, Mendes, Álvaro, Minari, Jusaku, Nicol, Dianne, Niemiec, Emilia, Patch, Christine, Prainsack, Barbara, Rivière, Marie, Robarts, Lauren, Roberts, Jonathan, Romano, Virginia, Sheerah, Haytham A., Smith, James, Soulier, Alexandra, Steed, Claire, Stefànsdóttir, Vigdis, Tandre, Cornelia, Thorogood, Adrian, Voigt, Torsten H., Wang, Nan, Yoshizawa, Go, Middleton, Anna

المصدر: Genetics in Medicine. 24(5):1120-1129

مصطلحات موضوعية: Attitudes, Data donation, Genomics, International, Return of results

وصف الملف: electronic

URL الوصول: https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-468511
https://doi.org/10.1016/j.gim.2022.01.002
https://uu.diva-portal.org/smash/get/diva2:1640721/FULLTEXT01.pdf
https://uu.diva-portal.org/smash/get/diva2:1640721/FULLTEXT02.pdf

المؤلفون: Middleton, Anna, Milne, Richard, Almarri, Mohamed A., Anwer, Shamim, Atutornu, Jerome, Baranova, Elena E., Bevan, Paul, Cerezo, Maria, Cong, Yali, Critchley, Christine, Fernow, Josepine, Goodhand, Peter, Hasan, Qurratulain, Hibino, Aiko, Houeland, Gry, Howard, Heidi C., Hussain, S. Zakir, Malmgren, Charlotta Ingvoldstad, Izhevskaya, Vera L., Jędrzejak, Aleksandra, Jinhong, Cao, Kimura, Megumi, Kleiderman, Erika, Leach, Brandi, Liu, Keying, Mascalzoni, Deborah, Mendes, Álvaro, Minari, Jusaku, Wang, Nan, Nicol, Dianne, Niemiec, Emilia, Patch, Christine, Pollard, Jack, Prainsack, Barbara, Rivière, Marie, Robarts, Lauren, Roberts, Jonathan, Romano, Virginia, Sheerah, Haytham A., Smith, James, Soulier, Alexandra, Steed, Claire, Stefànsdóttir, Vigdís, Tandre, Cornelia, Thorogood, Adrian, Voigt, Torsten H., West, Anne V., Yoshizawa, Go, Morley, Katherine I.

المصدر: American Journal of Human Genetics. 107(4):743-752

مصطلحات موضوعية: attitudes, data donation, data sharing, genomic data, genomic data sharing, global, health data, public, survey, trust, Medicin och hälsovetenskap, Medicinska och farmaceutiska grundvetenskaper, Medicinsk genetik, Medical and Health Sciences, Basic Medicine, Medical Genetics, Hälsovetenskap, Medicinsk etik, Health Sciences, Medical Ethics

URL الوصول: https://lup.lub.lu.se/record/d46c7913-3b6c-490c-b521-b259b84d1714
http://dx.doi.org/10.1016/j.ajhg.2020.08.023

المؤلفون: Milne, Richard, Morley, Katherine I., Almarri, Mohamed A., Anwer, Shamim, Atutornu, Jerome, Baranova, Elena E., Bevan, Paul, Cerezo, Maria, Cong, Yali, Costa, Alessia, Critchley, Christine, Fernow, Josepine, Goodhand, Peter, Hasan, Qurratulain, Hibino, Aiko, Houeland, Gry, Howard, Heidi C., Hussain, S. Zakir, Malmgren, Charlotta Ingvoldstad, Izhevskaya, Vera L., Jędrzejak, Aleksandra, Jinhong, Cao, Kimura, Megumi, Kleiderman, Erika, Leach, Brandi, Liu, Keying, Mascalzoni, Deborah, Mendes, Álvaro, Minari, Jusaku, Nicol, Dianne, Niemiec, Emilia, Patch, Christine, Pollard, Jack, Prainsack, Barbara, Rivière, Marie, Robarts, Lauren, Roberts, Jonathan, Romano, Virginia, Sheerah, Haytham A., Smith, James, Soulier, Alexandra, Steed, Claire, Stefànsdóttir, Vigdis, Tandre, Cornelia, Thorogood, Adrian, Voigt, Torsten H., Wang, Nan, West, Anne V., Yoshizawa, Go, Middleton, Anna

المصدر: Genome Medicine. 13(1)

مصطلحات موضوعية: Medicin och hälsovetenskap, Hälsovetenskap, Hälso- och sjukvårdsorganisation, hälsopolitik och hälsoekonomi, Medical and Health Sciences, Health Sciences, Health Care Service and Management, Health Policy and Services and Health Economy

URL الوصول: https://lup.lub.lu.se/record/81507016-89c1-4ab4-bbd2-8e6934f14c29
http://dx.doi.org/10.1186/s13073-021-00903-0

المؤلفون: Fellmann, Florence, van El, Carla G., Charron, Philippe, Michaud, Katarzyna, Howard, Heidi C., Boers, Sarah N., Clarke, Angus J., Duguet, Anne-Marie, Forzano, Francesca, Kauferstein, Silke, Kayserili, Hulya, Lucassen, Anneke, Mendes, Alvaro, Patch, Christine, Radojkovic, Dragica, Rial-Sebbag, Emmanuelle, Sheppard, Mary N., Tasse, Anne-Marie, Temel, Sehime G., Sajantila, Antti, Basso, Cristina, Wilde, Arthur A. M., Cornel, Martina C., Benjamin, Caroline, Borry, Pascal, Clarke, Angus, Cordier, Christophe, Cornel, Martina, van El, Carla, Howard, Heidi, Melegh, Bela, Perola, Markus, Peterlin, Borut, Rogowski, Wolf, Soller, Maria, Stefansdottir, Vigdis, de Wert, Guido

المصدر: European Journal of Human Genetics. 27(12):1763-1773

وصف الملف: electronic

URL الوصول: https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-398689
https://doi.org/10.1038/s41431-019-0445-y
https://uu.diva-portal.org/smash/get/diva2:1376431/FULLTEXT01.pdf

المؤلفون: Voigt, Torsten H.^Aff1, Holtz, Verena, Niemiec, Emilia, Howard, Heidi C., Middleton, Anna^{Aff3, Aff4}, Prainsack, Barbara^{Aff5, Aff6}

المصدر: European Journal of Human Genetics. 28(8):1000-1009

المؤلفون: Middleton, Anna, Milne, Richard, Thorogood, Adrian, Kleiderman, Erika, Niemiec, Emilia, Prainsack, Barbara, Farley, Lauren, Bevan, Paul, Steed, Claire, Smith, James, Vears, Danya, Atutornu, Jerome, Howard, Heidi C., Morley, Katherine I.

المصدر: In European Journal of Medical Genetics May 2019 62(5):316-323

المؤلفون: Henneman, Lidewij, Borry, Pascal, Chokoshvili, Davit, Cornel, Martina C., van El, Carla G., Forzano, Francesca, Hall, Alison, Howard, Heidi C., Janssens, Sandra, Kayserili, Hulya, Lakeman, Phillis, Lucassen, Anneke, Metcalfe, Sylvia A., Vidmar, Lovro, de Wert, Guido, Dondorp, Wybo J., Peterlin, Borut

المصدر: European Journal of Human Genetics. 24(6):E1-E12

وصف الملف: electronic

URL الوصول: https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-297766
https://uu.diva-portal.org/smash/get/diva2:943670/FULLTEXT01.pdf

المؤلفون: Cornel, Martina C.^Aff1, Howard, Heidi C., Lim, Daniel, Bonham, Vence L., Wartiovaara, Kirmo

المصدر: European Journal of Human Genetics. 27(3):484-487

المؤلفون: Carrieri, Daniele, Howard, Heidi C., Benjamin, Caroline^{Aff3, Aff4}, Clarke, Angus J., Dheensa, Sandi, Doheny, Shane, Hawkins, Naomi, Halbersma-Konings, Tanya F., Jackson, Leigh, Kayserili, Hülya, Kelly, Susan E., Lucassen, Anneke M.^{Aff6, Aff11}, Mendes, Álvaro, Rial-Sebbag, Emmanuelle, Stefánsdóttir, Vigdís, Turnpenny, Peter D., van El, Carla G., van Langen, Irene M., Cornel, Martina C., Forzano, Francesca^Aff17, On behalf of the European Society of Human Genetics

المصدر: European Journal of Human Genetics. 27(2):169-182

المؤلفون: Dondorp, Wybo, de Wert, Guido, Bombard, Yvonne, Bianchi, Diana W., Bergmann, Carsten, Borry, Pascal, Chitty, Lyn S., Fellmann, Florence, Forzano, Francesca, Hall, Alison, Henneman, Lidewij, Howard, Heidi C., Lucassen, Anneke, Ormond, Kelly, Peterlin, Borut, Radojkovic, Dragica, Rogowski, Wolf, Soller, Maria, Tibben, Aad, Tranebjaerg, Lisbeth, van El, Carla G., Cornel, Martina C.

المصدر: European Journal of Human Genetics. 23(11):1438-1450

وصف الملف: electronic

URL الوصول: https://urn.kb.se/resolve?urn=urn:nbn:se:uu:diva-266712
https://doi.org/10.1038/ejhg.2015.57
https://uu.diva-portal.org/smash/get/diva2:868585/FULLTEXT01.pdf