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المؤلفون: Kathy Stiller, Scott Morrow, Rebecca Chambers, Anne E Holland, Jennifer Bishop, Nathan Ward, Jennifer Corda, Jamie Wood, Margot Green, Amanda Nichols, Jenny Hauser, Andrew Shaw, Kathleen Hall, Ruth Dentice, Brenda M. Button, Jenn Bingham, Hilary Rowe, Rebecca Netluch, Tara Smith, Robyn Cobb, Danielle Shortall
المصدر: Journal of Physiotherapy, Vol 65, Iss 1, Pp 43-50 (2019)
مصطلحات موضوعية: Adult, Male, Airway clearance, medicine.medical_specialty, Clinical effectiveness, Physical Therapy, Sports Therapy and Rehabilitation, Positive expiratory pressure, Cystic fibrosis, cystic fibrosis, Young Adult, 03 medical and health sciences, 0302 clinical medicine, Surveys and Questionnaires, respiratory therapy, medicine, Humans, 030212 general & internal medicine, Uncategorized, physical therapy modalities, exercise, business.industry, lcsh:RM1-950, Australia, Outcome measures, respiratory system, medicine.disease, Combined Modality Therapy, Weight lifting, Exercise Therapy, respiratory tract diseases, Cross-Sectional Studies, lcsh:Therapeutics. Pharmacology, Physical therapy, Female, business, 030217 neurology & neurosurgery
وصف الملف: application/pdf
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::ebfd92d8e3a3943fa9df9264498cc64f
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المؤلفون: Kevin W. Southern, Carlo Castellani, Elise Lammertyn, Alan Smyth, Donald VanDevanter, Silke van Koningsbruggen-Rietschel, Jürg Barben, Amanda Bevan, Edwin Brokaar, Sarah Collins, Gary J. Connett, Thomas W.V. Daniels, Jane Davies, Dimitri Declercq, Silvia Gartner, Andrea Gramegna, Naomi Hamilton, Jenny Hauser, Nataliya Kashirskaya, Laurence Kessler, Jacqueline Lowdon, Halyna Makukh, Clémence Martin, Lisa Morrison, Dilip Nazareth, Jacquelien Noordhoek, Ciaran O'Neill, Elizabeth Owen, Helen Oxley, Karen S. Raraigh, Caroline Raynal, Karen Robinson, Jobst Roehmel, Carsten Schwarz, Isabelle Sermet, Michal Shteinberg, Ian Sinha, Constance Takawira, Peter van Mourik, Marieke Verkleij, Michael D. Waller, Alistair Duff
المساهمون: Psychiatry, Institut Català de la Salut, [Southern KW] Women and Children's Health, University of Liverpool, Liverpool, United Kingdom. [Castellani C] Cystic Fibrosis Center, IRCCS Istituto Giannina Gaslini, Genoa, Italy. [Lammertyn E] Cystic Fibrosis Europe & the Belgian Cystic Fibrosis Association, Brussels, Belgium. [Smyth A] Lifespan & Population Health, School of Medicine, University of Nottingham and the NIHR Nottingham Biomedical Research Unit, Nottingham, United Kingdom. [VanDevanter D] Case Western Reserve University School of Medicine, Cleveland, United States. [van Koningsbruggen-Rietschel S] CF Centre Cologne, Children's Hospital, Faculty of Medicine and University of Cologne, Cologne, Germany. [Gartner S] Vall d'Hebron Hospital Universitari, Barcelona, Spain, Vall d'Hebron Barcelona Hospital Campus
المصدر: Journal of Cystic Fibrosis. Elsevier
Southern, K W, Castellani, C, Lammertyn, E, Smyth, A, VanDevanter, D, van Koningsbruggen-Rietschel, S, Barben, J, Bevan, A, Brokaar, E, Collins, S, Connett, G J, Daniels, T W V, Davies, J, Declercq, D, Gartner, S, Gramegna, A, Hamilton, N, Hauser, J, Kashirskaya, N, Kessler, L, Lowdon, J, Makukh, H, Martin, C, Morrison, L, Nazareth, D, Noordhoek, J, O'Neill, C, Owen, E, Oxley, H, Raraigh, K S, Raynal, C, Robinson, K, Roehmel, J, Schwarz, C, Sermet, I, Shteinberg, M, Sinha, I, Takawira, C, van Mourik, P, Verkleij, M, Waller, M D & Duff, A 2023, ' Standards of care for CFTR variant-specific therapy (including modulators) for people with cystic fibrosis ', Journal of Cystic Fibrosis, vol. 22, no. 1, pp. 17-30 . https://doi.org/10.1016/j.jcf.2022.10.002
Scientia
Southern, K W, Castellani, C, Lammertyn, E, Smyth, A, VanDevanter, D, van Koningsbruggen-Rietschel, S, Barben, J R, Bevan, A, Brokaar, E, Collins, S, Connett, G J, Daniels, T W V, Davies, J, Declercq, D, Gartner, S, Gramegna, A, Hamilton, N, Hauser, J, Kashirskaya, N, Kessler, L, Lowdon, J, Makukh, H, Martin, C, Morrison, L, Nazareth, D, Noordhoek, J, O'Neill, C, Owen, E, Oxley, H, Raraigh, K S, Raynal, C, Robinson, K, Roehmel, J, Schwarz, C, Sermet, I, Shteinberg, M, Sinha, I, Takawira, C, van Mourik, P, Verkleij, M, Waller, M D & Duff, A 2023, ' Standards of care for CFTR variant-specific therapy (including modulators) for people with cystic fibrosis ', Journal of Cystic Fibrosis, vol. 22, no. 1, pp. 17-30 . https://doi.org/10.1016/j.jcf.2022.10.002
JOURNAL OF CYSTIC FIBROSISمصطلحات موضوعية: Pulmonary and Respiratory Medicine, Presa de decisions, Otros calificadores::Otros calificadores::/farmacoterapia [Otros calificadores], enfermedades del sistema digestivo::enfermedades pancreáticas::fibrosis quística [ENFERMEDADES], Guidelines, Other subheadings::Other subheadings::/drug therapy [Other subheadings], Behavior and Behavior Mechanisms::Psychology, Social::Group Processes::Consensus [PSYCHIATRY AND PSYCHOLOGY], conducta y mecanismos de la conducta::psicología social::procesos de grupo::consenso [PSIQUIATRÍA Y PSICOLOGÍA], CFTR modulators, Fibrosi quística - Tractament, Cystic fibrosis, Digestive System Diseases::Pancreatic Diseases::Cystic Fibrosis [DISEASES], Anomalies cromosòmiques, Pediatrics, Perinatology and Child Health, Medicine and Health Sciences, Variant-specific therapy, Pediatrics, Perinatology, and Child Health, Health Services Administration::Quality of Health Care::Quality Indicators, Health Care::Standard of Care [HEALTH CARE], CFTR, administración de los servicios de salud::calidad de la atención sanitaria::indicadores de calidad en la asistencia sanitaria::estándar asistencial [ATENCIÓN DE SALUD]
وصف الملف: application/pdf
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المؤلفون: Paul Turner, David W. Reid, Leonie Ellis, Nicole A. Micallef, Erin Roehrer, Jenny Hauser, Elizabeth Cummings, Sean Beggs
المصدر: Informatics for Health and Social Care. 38:354-365
مصطلحات موضوعية: Adult, medicine.medical_specialty, Nursing (miscellaneous), Adolescent, Cystic Fibrosis, Isolation (health care), Pilot Projects, Health Informatics, Symptom monitoring, Cystic fibrosis, Tasmania, User-Computer Interface, Young Adult, Primary outcome, Health Information Management, Patient-Centered Care, Information system, medicine, Humans, Child, Qualitative Research, Internet, Consumer Health Information, business.industry, Treatment regimen, Pilot trial, Infant, Middle Aged, medicine.disease, Self Care, Child, Preschool, Family medicine, Physical therapy, Perceived usability, business, Information Systems
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المؤلفون: Erin, Roehrer, Elizabeth, Cummings, Paul, Turner, Jenny, Hauser, Helen, Cameron-Tucker, Sean A, Beggs, Nicole A, Micallef, Claire, Wainwright, Joyce, Cheney, Mel, Jessup, Heather, Saddington, Leonie, Ellis, Haydn, Walters, David W, Reid
المصدر: Studies in health technology and informatics. 183
مصطلحات موضوعية: Adult, Self Care, Young Adult, Adolescent, Cystic Fibrosis, Humans, Patient Participation, Decision Support Systems, Clinical
URL الوصول: https://explore.openaire.eu/search/publication?articleId=pmid________::902c57fc0bd8fa6895d5da7663d4e5fb
https://pubmed.ncbi.nlm.nih.gov/23388270 -
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المؤلفون: Elizabeth, Cummings, Jenny, Hauser, Helen, Cameron-Tucker, Petya, Fitzpatrick, Melanie, Jessup, E Haydn, Walters, David, Reid, Paul, Turner
المصدر: Studies in health technology and informatics. 169
مصطلحات موضوعية: Adult, Male, Internet, Adolescent, Cystic Fibrosis, Remote Consultation, Mentors, Middle Aged, Tasmania, Telemedicine, Self Care, Quality of Life, Humans, Female, Cell Phone
URL الوصول: https://explore.openaire.eu/search/publication?articleId=pmid________::295b8fb7e1f4fd6fd06f6b978effcf44
https://pubmed.ncbi.nlm.nih.gov/21893709 -
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المؤلفون: David W. Reid, L. Joseph, Jenny Hauser, H. Saddington, Elizabeth Cummings, Claire E. Wainwright, Melanie Jessup, Paul Turner, Helen Cameron-Tucker, J. Cheney
المصدر: Journal of Cystic Fibrosis. 9:S107
مصطلحات موضوعية: Pulmonary and Respiratory Medicine, medicine.medical_specialty, business.industry, Intervention (counseling), Pediatrics, Perinatology and Child Health, medicine, Physical therapy, Pediatrics, Perinatology, and Child Health, medicine.disease, business, Cystic fibrosis
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المؤلفون: Zoe Gao, Jenny Hauser, Richard Wood-Baker, Kon Muller, David W. Reid, Robin Harle
المصدر: Europe PubMed Central
Journal of Medical Case Reports
Journal of Medical Case Reports, Vol 4, Iss 1, p 371 (2010)مصطلحات موضوعية: Medicine(all), medicine.medical_specialty, Sputum Cytology, Pathology, Lung, Lung toxicity, business.industry, lcsh:R, lcsh:Medicine, Case Report, General Medicine, medicine.disease, Dermatology, Cystic fibrosis, respiratory tract diseases, medicine.anatomical_structure, Pneumothorax, Surgical oncology, medicine, Lung bullae, Young adult, business
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::8eb3dbeb22dca3405b663d7e2a0463e9
http://europepmc.org/abstract/med/21092085
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