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1دورية أكاديمية
المؤلفون: K. Martin, S. Geuens, J. K. Asche, R. Bodan, F. Browne, A. Downe, N. García García, G. Jaega, B. Kennedy, P. J. Mauritz, F. Pérez, K. Soon, V. Zmazek, K. M. Mayre-Chilton
المصدر: Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-21 (2019)
مصطلحات موضوعية: Epidermolysis bullosa, Psychosocial, Guideline, Recommendations, Psychological, Social, Medicine
وصف الملف: electronic resource
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المؤلفون: L.D. Hubbard, R. Fawkes, B. Faitli, M. O'Sullivan, K. M. Mayre-Chilton, Jemima E. Mellerio, M.T. Khan, L. James, Adam G. Harris, M. Fitzpatrick, L. Iacobaccio, L. Brains, T. Vlahovic, M. Wood
المصدر: British Journal of Dermatology. 182:593-604
مصطلحات موضوعية: medicine.medical_specialty, business.industry, Best practice, Australia, MEDLINE, Psychological intervention, Dermatology, Guideline, Service provider, medicine.disease, Podiatrist, 030207 dermatology & venereal diseases, 03 medical and health sciences, 0302 clinical medicine, Systematic review, Family medicine, medicine, Humans, Epidermolysis bullosa, Epidermolysis Bullosa, business
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المؤلفون: K. M. Mayre-Chilton, E I Pillay, K. Snelson, Anja Diem, M. Torres Pradilla, R. Saad, C. Knight, Danielle Greenblatt, M. Werkentoft, Jemima E. Mellerio, Dedee F. Murrell, N. Azzopardi, Zena Moore, K. Thompson, D. Patton, S. Widhiati
المصدر: The British journal of dermatology. 186(4)
مصطلحات موضوعية: medicine.medical_specialty, Pregnancy, Consensus, Obstetrics, business.industry, Aftercare, Dermatology, Guideline, medicine.disease, Epidermolysis Bullosa Dystrophica, medicine, Childbirth, Humans, Female, Epidermolysis bullosa, business, Epidermolysis Bullosa
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المؤلفون: Florencia Pérez, K. Martin, B. Kennedy, Petra J. Mauritz, Kristina Soon, J. K. Asche, G. Jaega, F. Browne, K. M. Mayre-Chilton, Rebecca Cross Bodán, S. Geuens, N. García García, V. Zmazek, A. Downe
المصدر: Orphanet Journal of Rare Diseases, Vol 14, Iss 1, Pp 1-21 (2019)
Orphanet Journal of Rare Diseasesمصطلحات موضوعية: 0301 basic medicine, medicine.medical_specialty, Coping (psychology), Evidence-based practice, IMPACT, Psychological intervention, lcsh:Medicine, Review, 030105 genetics & heredity, MAIN PROBLEMS, ADJUSTMENT, Guideline, Recommendations, PATIENT, THERAPIES, 03 medical and health sciences, 0302 clinical medicine, Social, PARENTS, Multidisciplinary approach, QUALITY-OF-LIFE, Health care, SUPPORT, Adaptation, Psychological, medicine, MANAGEMENT, Humans, Pharmacology (medical), Family, Epidermolysis bullosa, Genetics (clinical), business.industry, lcsh:R, General Medicine, Professionals, Social engagement, Family medicine, Quality of Life, Psychological, Psychology, business, Psychosocial, 030217 neurology & neurosurgery, CHRONIC PAIN
وصف الملف: Electronic
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المؤلفون: Lynne D. Hubbard, K. M. Mayre-Chilton
المصدر: Clinical Case Reports
مصطلحات موضوعية: Peak bone mass, Delayed puberty, Pediatrics, medicine.medical_specialty, Bone density, Population, Osteoporosis, Case Report, Case Reports, 030204 cardiovascular system & hematology, 03 medical and health sciences, 0302 clinical medicine, Medicine, epidermolysis bullosa, education, Bone mineral, education.field_of_study, business.industry, General Medicine, medicine.disease, osteoporosis, health maintenance, dermatology, Osteopenia, nutrition, 030220 oncology & carcinogenesis, Epidermolysis bullosa, medicine.symptom, business
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المؤلفون: L. James, Adam G. Harris, L.D. Hubbard, M. Wood, M. Fitzpatrick, L. Brains, L. Iacobaccio, M.T. Khan, T. Vlahovic, K. M. Mayre-Chilton, B. Faitli, M. O'Sullivan, Jemima E. Mellerio, R. Fawkes
المصدر: British Journal of Dermatology. 182
مصطلحات موضوعية: medicine.medical_specialty, Foot symptoms, business.industry, Australia, Psychological intervention, MEDLINE, Dermatology, Guideline, medicine.disease, Foot problems, Podiatrist, Family medicine, Humans, Medicine, Epidermolysis bullosa, Child, Epidermolysis Bullosa, business, Foot (unit), Skin
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المؤلفون: Adam G. Harris, M. Wood, K. M. Mayre-Chilton, L. James, L. Brains, T. Vlahovic, L. Iacobaccio, M. O'Sullivan, M.T. Khan, Jemima E. Mellerio, B. Faitli, L.D. Hubbard, M. Fitzpatrick, R. Fawkes
المصدر: British Journal of Dermatology. 182
مصطلحات موضوعية: Dermatology
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المؤلفون: K. M. Mayre-Chilton, Lynne D. Hubbard
المصدر: Qualitative Health Research. 25:310-319
مصطلحات موضوعية: Adult, Male, medicine.medical_specialty, Adolescent, medicine.medical_treatment, Nutritional Status, Friends, Weight Gain, Genetic Condition, Health outcomes, Interviews as Topic, Young Adult, Quality of life, Humans, Medicine, Family, Intensive care medicine, Gastrostomy, integumentary system, business.industry, Lived experience, Public Health, Environmental and Occupational Health, medicine.disease, Malnutrition, Gastrostomy tube, Quality of Life, Female, Epidermolysis bullosa, Epidermolysis Bullosa, business
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المؤلفون: B. P. Talwar, Louise M Goff, K. M. Mayre-Chilton
المصدر: Journal of Human Nutrition and Dietetics. 24:449-459
مصطلحات موضوعية: medicine.medical_specialty, Nutrition and Dietetics, Tube dependency, Rehabilitation, business.industry, medicine.medical_treatment, Head and neck cancer, MEDLINE, Medicine (miscellaneous), medicine.disease, Gastrostomy, Focus group, Quality of life (healthcare), medicine, Physical therapy, Dentures, business
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المؤلفون: K M, Mayre-Chilton, B P, Talwar, L M, Goff
المصدر: Journal of human nutrition and dietetics : the official journal of the British Dietetic Association. 24(5)
مصطلحات موضوعية: Adult, Aged, 80 and over, Gastrostomy, Male, Dietetics, Data Collection, Focus Groups, Middle Aged, Interviews as Topic, Enteral Nutrition, Caregivers, Head and Neck Neoplasms, London, Quality of Life, Humans, Female, Aged
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