المؤلفون: J. W. Hoefnagels, K. Fischer, R. A. T. Bos, M. H. E. Driessens, S. L. A. Meijer, R. E. G. Schutgens, L. H. Schrijvers

المصدر: Pilot and Feasibility Studies, Vol 6, Iss 1, Pp 1-11 (2020)

مصطلحات موضوعية: Lifelong treatment, Illness acceptance, Adherence, Acceptance and commitment therapy, Self-management, Congenital disease, Medicine (General), R5-920

وصف الملف: electronic resource

Relation: https://doaj.org/toc/2055-5784

URL الوصول: https://doaj.org/article/7e7bdf3324974ceaa0e320ce3ffbca30

المؤلفون: Reg Schutgens, Johanna Wilhelmina Hoefnagels, L. H. Schrijvers, Krista Fischer, Marijke C. Kars

المصدر: Patient Preference and Adherence. 14:163-171

مصطلحات موضوعية: medicine.medical_specialty, Parental support, Self-management, business.industry, Health Policy, 05 social sciences, Medicine (miscellaneous), Focus group, humanities, 0506 political science, 03 medical and health sciences, 0302 clinical medicine, Family medicine, 050602 political science & public administration, Medicine, 030212 general & internal medicine, Young adult, business, Pharmacology, Toxicology and Pharmaceutics (miscellaneous), Social Sciences (miscellaneous), Qualitative research

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::9d7da35193140a16923bbc71e00c2ce0
https://doi.org/10.2147/ppa.s232393

المؤلفون: Krista Fischer, Mariette H. E. Driessens, Johanna Wilhelmina Hoefnagels, L. H. Schrijvers, Ruud A. T. Bos

المصدر: Haemophilia

مصطلحات موضوعية: Adult, medicine.medical_specialty, haemophilia, 030204 cardiovascular system & hematology, Hemophilia A, Haemophilia, Affect (psychology), Acceptance and commitment therapy, Illness perceptions, 03 medical and health sciences, 0302 clinical medicine, Quality of life, Intervention (counseling), medicine, Humans, adherence, Acceptance and Commitment Therapy, Clinical Haemophilia, intervention, Genetics (clinical), Aged, business.industry, Original Articles, Hematology, General Medicine, Middle Aged, medicine.disease, Tailored Intervention, illness acceptance, Bodily pain, quality of life, Physical therapy, Original Article, business, 030215 immunology

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::f61e2ae8336db6ef3a434163cd1bbb20
https://doi.org/10.1111/hae.14320

المؤلفون: Krista Fischer, Johanna Wilhelmina Hoefnagels, L. H. Schrijvers, Samantha C. Gouw, Olav Versloot, Frank W.G. Leebeek, Janjaap van der Net

المساهمون: Paediatric Haematology, Amsterdam Reproduction & Development (AR&D), Hematology

المصدر: Haemophilia, 27(3), e402-e405. Wiley-Blackwell
Haemophilia, 27(3), e402-e405. Wiley-Blackwell Publishing Ltd

مصطلحات موضوعية: medicine.medical_specialty, Haemophilia, business.industry, Physical activity, physical activity, Hematology, General Medicine, Hemophilia A, medicine.disease, Hemophilia B, compliance, Family medicine, medicine, Humans, adherence, business, sport, Genetics (clinical), Sports

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c1405ecd41abf947f2647a703e84869c
https://pure.amc.nl/en/publications/sports-participation-is-not-associated-with-adherence-to-prophylaxis-in-dutch-patients-with-haemophilia(7fa57988-5ac6-47d2-a1c0-1ca47b36d83a).html

المؤلفون: Krista Fischer, M. H. E. Driessens, R. Bos, L. H. Schrijvers, Roger E. G. Schutgens, S. L. A. Meijer, Johanna Wilhelmina Hoefnagels

المصدر: Pilot and Feasibility Studies
Pilot and Feasibility Studies, Vol 6, Iss 1, Pp 1-11 (2020)

مصطلحات موضوعية: medicine.medical_specialty, Population, Psychological intervention, Medicine (miscellaneous), 030204 cardiovascular system & hematology, Haemophilia, Acceptance and commitment therapy, 03 medical and health sciences, 0302 clinical medicine, Illness acceptance, Quality of life, Informed consent, Intervention (counseling), Self-management, Medicine, 030212 general & internal medicine, Patient participation, education, lcsh:R5-920, Congenital disease, education.field_of_study, business.industry, Research, medicine.disease, Adherence, Physical therapy, lcsh:Medicine (General), business, Lifelong treatment

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9a08347680f740b11cfd7d1ee7db2d71
https://doi.org/10.1186/s40814-020-00723-w

المؤلفون: Johanna Wilhelmina Hoefnagels, L. H. Schrijvers, Krista Fischer

المصدر: Haemophilia. 26

مصطلحات موضوعية: Pediatrics, medicine.medical_specialty, Adolescent, business.industry, Drop (liquid), Humans, Medicine, Hemorrhage, Hematology, General Medicine, Child, business, Genetics (clinical)

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::c8c77bd77470a8d9d243b52626940071
https://doi.org/10.1111/hae.14051

المؤلفون: L. H. Schrijvers, Krista Fischer, M. Beijlevelt-van der Zande, Marieke Schuurmans, M. Peters, Marjon H. Cnossen

المساهمون: Pediatrics, Surgery, Paediatric Infectious Diseases / Rheumatology / Immunology

المصدر: Haemophilia, 22(4), E311-E314. Wiley-Blackwell Publishing Ltd
Haemophilia, 22(4), e311-e314. Wiley-Blackwell

مصطلحات موضوعية: medicine.medical_specialty, Pediatrics, Hematology, Factor VIII, business.industry, Coagulants, General Medicine, 030204 cardiovascular system & hematology, Haemophilia, medicine.disease, Hemophilia A, Medication Adherence, 03 medical and health sciences, 0302 clinical medicine, Internal medicine, Hemarthrosis, medicine, Humans, business, Intensive care medicine, Genetics (clinical), 030215 immunology

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d7e67799c26090dcc4c2b2390a0758f5
https://doi.org/10.1111/hae.12935

المؤلفون: L. H. Schrijvers, Nanda Uitslager, Marieke Schuurmans, Krista Fischer

المصدر: Haemophilia. 19(3):355-361

مصطلحات موضوعية: medicine.medical_specialty, Databases, Factual, Population, Haemophilia A, Psychological intervention, MEDLINE, Strengthening the reporting of observational studies in epidemiology, Hemophilia A, Haemophilia, patient compliance, THERAPY, RECOMMENDATIONS, DISEASE, Medication Adherence, QUALITY-OF-LIFE, hemophilia, ADOLESCENTS, medicine, Humans, education, Genetics (clinical), POPULATION, education.field_of_study, Factor VIII, business.industry, Age Factors, determinants, Hematology, General Medicine, Models, Theoretical, CARE, medicine.disease, Critical appraisal, Family medicine, Physical therapy, adolescence, prophylaxis, business, chronic disease, Patient education

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::e14868ea472f4fdc51372853b864a9b2
https://doi.org/10.1111/hae.12079

المؤلفون: L. H. Schrijvers, Christine Harrington, Karin Andritschke, Petra Elfvinge, Martin Bedford, Bert Leenders

المصدر: The Journal of Haemophilia Practice. 1:24-27

مصطلحات موضوعية: 03 medical and health sciences, 0302 clinical medicine, Nursing, Multidisciplinary approach, business.industry, medicine, Pharmacy, 030204 cardiovascular system & hematology, Haemophilia, medicine.disease, business, 030215 immunology

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_________::90368be653e39a0dc23c858073a2d0f8
https://doi.org/10.17225/jhp.00008

المؤلفون: Marieke Schuurmans, Marjon H. Cnossen, Janske Lock, L. H. Schrijvers, Marlene Beijlevelt van der Zande, Marjolein Peters, Krista Fischer

المساهمون: Pediatrics, Surgery, Paediatric Infectious Diseases / Rheumatology / Immunology

المصدر: British Journal of Haematology, 174(3), 454. Wiley-Blackwell
British Journal of Haematology, 174(3), 454-460. Wiley-Blackwell Publishing Ltd
British journal of haematology, 174(3), 454-460. Wiley-Blackwell

مصطلحات موضوعية: Adult, Male, Parents, Pediatrics, medicine.medical_specialty, Evening, Adolescent, Patients, Premedication, Haemophilia A, Hemorrhage, 030204 cardiovascular system & hematology, Haemophilia, Hemophilia A, Medication Adherence, 03 medical and health sciences, Young Adult, 0302 clinical medicine, Surveys and Questionnaires, Hemarthrosis, Journal Article, Medicine, Humans, Prospective Studies, Young adult, Chronic, Hemophilia, Prospective cohort study, Child, Clotting factor, Von Willebrand, business.industry, Prophylaxis, Hematology, Middle Aged, medicine.disease, Blood Coagulation Factors, Multicenter Study, Treatment Outcome, Adherence, 030220 oncology & carcinogenesis, Child, Preschool, Female, business

وصف الملف: image/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::40f2c493aa50449971c3d5b3b8fb5cd1
https://dspace.library.uu.nl/handle/1874/343350