المؤلفون: Janson IA, Bloom EM, Hampton KC, Meier ER, Rampersad AG, Kronenberger WG

المصدر: Patient Preference and Adherence, Vol Volume 16, Pp 3229-3239 (2022)

مصطلحات موضوعية: sickle cell disease, treatment adherence, hydroxyurea, reliability, validity, scale development, Medicine (General), R5-920

وصف الملف: electronic resource

Relation: https://www.dovepress.com/development-and-validation-of-the-patientcaregiver-reported-hydroxyure-peer-reviewed-fulltext-article-PPA; https://doaj.org/toc/1177-889X

URL الوصول: https://doaj.org/article/0c46bfd65ac442db83f3dbafb36244f3

المؤلفون: de Vasconcellos JF; Department of Biology, James Madison University, Harrisonburg, VA, United States., Meier ER; Global Blood Therapeutics, South San Francisco, CA, United States., Parrow N; Department of Pediatrics, Saint Louis University School of Medicine, St Louis, MO, United States.

المصدر: Frontiers in physiology [Front Physiol] 2023 Feb 22; Vol. 14, pp. 1165315. Date of Electronic Publication: 2023 Feb 22 (Print Publication: 2023).

نوع المنشور: Editorial

بيانات الدورية: Publisher: Frontiers Research Foundation Country of Publication: Switzerland NLM ID: 101549006 Publication Model: eCollection Cited Medium: Print ISSN: 1664-042X (Print) Linking ISSN: 1664042X NLM ISO Abbreviation: Front Physiol Subsets: PubMed not MEDLINE

المؤلفون: Hulbert ML; Division of Pediatric Hematology/Oncology, Washington University in St. Louis School of Medicine, St. Louis, Missouri, USA., Manwani D; Division of Pediatric Hematology/Oncology, Children's Hospital at Montefiore/Albert Einstein College of Medicine, New York, New York, USA., Meier ER; Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana, USA., Alvarez OA; Division of Pediatric Hematology/Oncology, University of Miami School of Medicine, Miami, Florida, USA., Brown RC; Division of Pediatric Hematology/Oncology, Children's Healthcare of Atlanta/Emory University School of Medicine, Atlanta, Georgia, USA., Callaghan MU; Division of Pediatric Hematology/Oncology, Children's Hospital of Michigan, Detroit, Michigan, USA., Campbell AD; Division of Pediatric Hematology, Children's National Medical Center, Washington, District of Columbia, USA., Coates TD; Cancer and Blood Disease Institute, Department of Pediatrics, Children's Hospital Los Angeles/University of Southern California Keck School of Medicine, Los Angeles, California, USA., Frei-Jones MJ; Division of Pediatric Hematology/Oncology, University of Texas School of Medicine-San Antonio, San Antonio, Texas, USA., Hankins JS; Department of Hematology, St. Jude Children's Research Hospital, Memphis, Tennessee, USA., Heeney MM; Dana Farber/Boston Children's Cancer and Blood Disorders Center, Department of Pediatrics, Harvard Medical School, Boston, Massachusetts, USA., Hsu LL; Division of Pediatric Hematology/Oncology, University of Illinois at Chicago, Chicago, Illinois, USA., Lebensburger JD; Division of Pediatric Hematology/Oncology, University of Alabama at Birmingham, Birmingham, Alabama, USA., Quinn CT; Division of Pediatric Hematology/Oncology, Cincinnati Children's Hospital Medical Center and, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA., Shah N; Divisions of Pediatric Hematology Oncology and Hematology, Duke University School of Medicine, Durham, North Carolina, USA., Smith-Whitley K; Department of Hematology, Children's Hospital of Philadelphia, Philadelphia, Pennsylvania, USA.; Global Blood Therapeutics, San Francisco, California, USA., Thornburg C; Division of Pediatric Hematology/Oncology, Rady Children's Hospital/Department of Pediatrics, University of California San Diego School of Medicine, La Jolla, California, USA., Kanter J; Division of Hematology, University of Alabama at Birmingham, Birmingham, Alabama, USA.

المصدر: Pediatric blood & cancer [Pediatr Blood Cancer] 2023 Jan; Vol. 70 (1), pp. e29961. Date of Electronic Publication: 2022 Sep 12.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: John Wiley Country of Publication: United States NLM ID: 101186624 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1545-5017 (Electronic) Linking ISSN: 15455009 NLM ISO Abbreviation: Pediatr Blood Cancer Subsets: MEDLINE

مواضيع طبية MeSH: Anemia, Sickle Cell*/therapy, Child ; Humans ; Consensus

المؤلفون: Brown LC; Department of Community Programs, Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana., Hampton KC; Department of Community Programs, Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana., Bloom EM; Department of Community Programs, Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana., Lawson D; Department of Community Programs, Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana., Cooper SH; Pediatric Hematology, Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana., Meier ER; Pediatric Hematology, Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana.

المصدر: Pediatric blood & cancer [Pediatr Blood Cancer] 2022 Aug; Vol. 69 (8), pp. e29619. Date of Electronic Publication: 2022 Apr 20.

نوع المنشور: Journal Article; Research Support, U.S. Gov't, Non-P.H.S.

بيانات الدورية: Publisher: John Wiley Country of Publication: United States NLM ID: 101186624 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1545-5017 (Electronic) Linking ISSN: 15455009 NLM ISO Abbreviation: Pediatr Blood Cancer Subsets: MEDLINE

مواضيع طبية MeSH: Anemia, Sickle Cell*/complications , Anemia, Sickle Cell*/epidemiology , Anemia, Sickle Cell*/therapy , Stroke*/prevention & control, Adolescent ; Child ; Humans ; Indiana/epidemiology ; Retrospective Studies ; Ultrasonography, Doppler, Transcranial

المؤلفون: Bloom EM; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA., Hampton KC; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA., Blackwell K; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA., Gibson GA; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA., Roberson C; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA., Meier ER; Indiana Hemophilia and Thrombosis Center, Inc., Indianapolis, IN, USA.

المصدر: Health promotion practice [Health Promot Pract] 2022 Jul; Vol. 23 (4), pp. 560-562. Date of Electronic Publication: 2021 Jul 07.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Sage Publications Country of Publication: United States NLM ID: 100890609 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1524-8399 (Print) Linking ISSN: 15248399 NLM ISO Abbreviation: Health Promot Pract Subsets: MEDLINE

مواضيع طبية MeSH: Anemia, Sickle Cell*/therapy, Adult ; Humans ; Indiana ; Needs Assessment

المؤلفون: Dawson A; Fort Wayne Medical Education Program., Mullen K; Fort Wayne Medical Education Program., Janson IA; Indiana Hemophilia and Thrombosis Center, Indianapolis, IN., Henriksen B; Fort Wayne Medical Education Program., Duncan N; Indiana Hemophilia and Thrombosis Center, Indianapolis, IN., O'Brien D; Pediatric Hematology/Oncology, Lutheran Children's Hospital, Fort Wayne., Meier ER; Indiana Hemophilia and Thrombosis Center, Indianapolis, IN.

المصدر: Journal of pediatric hematology/oncology [J Pediatr Hematol Oncol] 2022 Mar 01; Vol. 44 (2), pp. e313-e318.

نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Lippincott Williams & Wilkins Country of Publication: United States NLM ID: 9505928 Publication Model: Print Cited Medium: Internet ISSN: 1536-3678 (Electronic) Linking ISSN: 10774114 NLM ISO Abbreviation: J Pediatr Hematol Oncol Subsets: MEDLINE

مواضيع طبية MeSH: Anemia, Sickle Cell*/complications , Anemia, Sickle Cell*/drug therapy , Hydroxyurea*/therapeutic use, Adolescent ; Family Practice ; Feasibility Studies ; Humans ; Pilot Projects ; Young Adult

المؤلفون: Early ML; Johns Hopkins University School of Medicine, Baltimore, MD, USA. mearly4@jhmi.edu.; Division of Hematology, Department of Medicine, Baltimore, MD, USA. mearly4@jhmi.edu., Strodel RJ; Johns Hopkins University School of Medicine, Baltimore, MD, USA., Lake IV; Johns Hopkins University School of Medicine, Baltimore, MD, USA., Ruddy JA; Johns Hopkins University School of Medicine, Baltimore, MD, USA., Saba JA; Johns Hopkins University School of Medicine, Baltimore, MD, USA.; Medical Scientist Training Program, Baltimore, MD, USA., Singh SM; Johns Hopkins University School of Medicine, Baltimore, MD, USA., Lanzkron S; Johns Hopkins University School of Medicine, Baltimore, MD, USA.; Division of Hematology, Department of Medicine, Baltimore, MD, USA., Mack JW; Dana-Farber Cancer Institute/Boston Children's Hospital, Boston, MA, USA., Meier ER; Indiana Hemophilia and Thrombosis Center, Indianapolis, IN, USA., Christianson MS; Johns Hopkins University School of Medicine, Baltimore, MD, USA.; Division of Reproductive Endocrinology and Infertility, Department of Gynecology and Obstetrics, Baltimore, MD, USA., Pecker LH; Johns Hopkins University School of Medicine, Baltimore, MD, USA.; Division of Hematology, Department of Medicine, Baltimore, MD, USA.

المصدر: Journal of assisted reproduction and genetics [J Assist Reprod Genet] 2022 Jan; Vol. 39 (1), pp. 183-193. Date of Electronic Publication: 2021 Nov 22.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Springer Country of Publication: Netherlands NLM ID: 9206495 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-7330 (Electronic) Linking ISSN: 10580468 NLM ISO Abbreviation: J Assist Reprod Genet Subsets: MEDLINE

مواضيع طبية MeSH: Anemia, Sickle Cell/*therapy , Patient Education as Topic/*standards, Adult ; Anemia, Sickle Cell/psychology ; Female ; Health Knowledge, Attitudes, Practice ; Humans ; Interviews as Topic/methods ; Male ; Patient Education as Topic/methods ; Patient Education as Topic/statistics & numerical data ; Surveys and Questionnaires

المؤلفون: Jacob SA; Section of Pediatric Hematology Oncology, Department of Pediatrics, Indiana University, Indianapolis, Indiana, USA.; Center for Pediatric and Adolescent Comparative Effectiveness Research, Indiana University, Indianapolis, Indiana, USA., Meier ER; Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana, USA.

المصدر: Pediatric blood & cancer [Pediatr Blood Cancer] 2021 Dec; Vol. 68 (12), pp. e29300. Date of Electronic Publication: 2021 Aug 16.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural

بيانات الدورية: Publisher: John Wiley Country of Publication: United States NLM ID: 101186624 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1545-5017 (Electronic) Linking ISSN: 15455009 NLM ISO Abbreviation: Pediatr Blood Cancer Subsets: MEDLINE

مواضيع طبية MeSH: Anemia, Sickle Cell*/psychology , Anemia, Sickle Cell*/therapy , Sickle Cell Trait*, Adolescent ; Counseling ; Humans ; Young Adult

المؤلفون: Kanter J; Division of Hematology and Oncology, University of Alabama Birmingham, Birmingham., Meier ER; Indiana Hemophilia and Thrombosis Center, Indianapolis., Hankins JS; Department of Hematology, St. Jude Children's Research Hospital, Memphis, Tennessee., Paulukonis ST; Tracking California Program, Public Health Institute, Richmond, California., Snyder AB; Georgia Health Policy Center and the Department of Public Management and Policy, Andrew Young School of Policy Studies, Georgia State University, Atlanta.

المصدر: JAMA health forum [JAMA Health Forum] 2021 Oct 01; Vol. 2 (10), pp. e213467. Date of Electronic Publication: 2021 Oct 01.

نوع المنشور: Journal Article; Review; Research Support, U.S. Gov't, P.H.S.

بيانات الدورية: Publisher: American Medical Association Country of Publication: United States NLM ID: 101769500 Publication Model: Electronic Cited Medium: Internet ISSN: 2689-0186 (Electronic) Linking ISSN: 26890186 NLM ISO Abbreviation: JAMA Health Forum Subsets: MEDLINE

مواضيع طبية MeSH: Anemia, Sickle Cell*/epidemiology , Rare Diseases*, Humans ; Population Surveillance ; Prevalence ; Registries ; United States/epidemiology

المؤلفون: Cooper SH; Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana, USA., Phipps EJ; Eskenazi Health/Indiana University Health, Indianapolis, Indiana, USA., Lawson D; Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana, USA., Meier ER; Indiana Hemophilia and Thrombosis Center, Indianapolis, Indiana, USA.

المصدر: Pediatric blood & cancer [Pediatr Blood Cancer] 2021 Sep; Vol. 68 (9), pp. e29103. Date of Electronic Publication: 2021 Jun 14.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: John Wiley Country of Publication: United States NLM ID: 101186624 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1545-5017 (Electronic) Linking ISSN: 15455009 NLM ISO Abbreviation: Pediatr Blood Cancer Subsets: MEDLINE

مواضيع طبية MeSH: Child Health Services* , Medically Uninsured* , Patient Care Management*, Hematologic Diseases/*therapy, Child ; Comprehensive Health Care ; Health Services Accessibility ; Humans