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المؤلفون: Elizabeth A. Hahn, Rebecca E. Ready, David Cella, Michael K. McCormack, Noelle E. Carlozzi, Stacey K. Barton, Nicholas R. Boileau
المصدر: J Huntingtons Dis
مصطلحات موضوعية: Adult, Male, 0301 basic medicine, Population, Disease, Neuropsychological Tests, Article, Social Skills, 03 medical and health sciences, Cellular and Molecular Neuroscience, symbols.namesake, 0302 clinical medicine, Huntington's disease, medicine, Humans, Diagnosis, Computer-Assisted, Longitudinal Studies, Patient Reported Outcome Measures, Social determinants of health, education, Disease burden, education.field_of_study, Role, Reproducibility of Results, Middle Aged, medicine.disease, Psychosocial Functioning, Huntington Disease, 030104 developmental biology, Bonferroni correction, Disease Progression, Quality of Life, symbols, Female, Self Report, Neurology (clinical), Analysis of variance, Construct (philosophy), Psychology, 030217 neurology & neurosurgery, Follow-Up Studies, Clinical psychology
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::d44c32470a39275eb96e07a9af26332e
https://doi.org/10.3233/jhd-190385 -
2
المؤلفون: Kelvin L. Chou, Jin Shei Lai, Nicholas R. Boileau, Joel S. Perlmutter, Stacey K. Barton, Noelle E. Carlozzi, Michael K. McCormack, Nancy R. Downing, David Cella, Rebecca E. Ready, Jane S. Paulsen
المصدر: Qual Life Res
مصطلحات موضوعية: Adult, Male, medicine.medical_specialty, Psychometrics, Disease, Neuropsychological Tests, Audiology, Article, Cognition, Quality of life, Outcome Assessment, Health Care, Cognitive Changes, medicine, Humans, Cognitive Dysfunction, Longitudinal Studies, skin and connective tissue diseases, Reliability (statistics), Public Health, Environmental and Occupational Health, Reproducibility of Results, Middle Aged, Neuro qol, Clinical trial, Global Rating, Huntington Disease, Disease Progression, Quality of Life, Female, Self Report, sense organs, Psychology
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3
المؤلفون: David Cella, Noelle E. Carlozzi, Michael K. McCormack, Nicholas R. Boileau, Rebecca E. Ready, Jennifer A. Miner, Kelvin L. Chou, Praveen Dayalu
المصدر: Mov Disord
مصطلحات موضوعية: Adult, Male, 0301 basic medicine, medicine.medical_specialty, Neurological disorder, Disease, Physical function, Speech Disorders, Article, 03 medical and health sciences, 0302 clinical medicine, Physical medicine and rehabilitation, Quality of life, Huntington's disease, Swallowing, Surveys and Questionnaires, Humans, Medicine, Patient Reported Outcome Measures, Movement Disorders, business.industry, Chorea, Middle Aged, medicine.disease, Clinical trial, Cross-Sectional Studies, Huntington Disease, Treatment Outcome, 030104 developmental biology, Neurology, Quality of Life, Female, Self Report, Neurology (clinical), medicine.symptom, business, 030217 neurology & neurosurgery
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4
المؤلفون: Jane S. Paulsen, David Cella, Nicholas R. Boileau, Martha Nance, Elizabeth A. Hahn, Michael K. McCormack, Noelle E. Carlozzi, Joel S. Perlmutter, Stacey K. Barton, Jin Shei Lai, Nancy R. Downing
المصدر: J Neurol
مصطلحات موضوعية: Adult, Male, Change over time, Attitude to Death, Psychometrics, Disease, Article, Advance Care Planning, 03 medical and health sciences, 0302 clinical medicine, Internal consistency, Humans, 030212 general & internal medicine, Meaning (existential), Reliability (statistics), Aged, Life planning, Terminal Care, Discriminant validity, Reproducibility of Results, Progressive neurodegenerative disorder, Middle Aged, humanities, Huntington Disease, Neurology, Quality of Life, Female, Neurology (clinical), Psychology, 030217 neurology & neurosurgery, Follow-Up Studies, Clinical psychology
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5
المؤلفون: Stacey K. Barton, Rebecca E. Ready, Nora E. Fritz, David Cella, Jane S. Paulsen, Jin Shei Lai, Noelle E. Carlozzi, Michael K. McCormack, Nicholas R. Boileau
المصدر: Journal of Huntington's Disease. 8:221-232
مصطلحات موضوعية: Adult, Male, 0301 basic medicine, Longitudinal study, media_common.quotation_subject, Disease, Anger, Article, Disability Evaluation, 03 medical and health sciences, Cellular and Molecular Neuroscience, 0302 clinical medicine, Quality of life, Huntington's disease, mental disorders, medicine, Humans, Longitudinal Studies, media_common, business.industry, Middle Aged, medicine.disease, Executive functions, humanities, Affect, Huntington Disease, 030104 developmental biology, Well-being, Quality of Life, Anxiety, Female, Neurology (clinical), medicine.symptom, business, 030217 neurology & neurosurgery, Clinical psychology
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::44ca658a4d0fb38e6f84a5ab7924736d
https://doi.org/10.3233/jhd-180341 -
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المؤلفون: David Cella, Stacey K. Barton, Kelvin L. Chou, Joel S. Perlmutter, Noelle E. Carlozzi, Nicholas R. Boileau, Jennifer A. Miner, Matthew W. Roché, Rebecca E. Ready, Michael K. McCormack, Jane S. Paulsen, Julie C. Stout
المصدر: Qual Life Res
مصطلحات موضوعية: Change over time, Adult, Male, media_common.quotation_subject, education, Disease, Anger, Article, 03 medical and health sciences, 0302 clinical medicine, Medicine, Humans, Patient Reported Outcome Measures, media_common, business.industry, 030503 health policy & services, Public Health, Environmental and Occupational Health, Reproducibility of Results, Neuro qol, Middle Aged, Mental health, humanities, Huntington Disease, Mental Health, Feeling, 030220 oncology & carcinogenesis, Quality of Life, Anxiety, Female, Computerized adaptive testing, medicine.symptom, 0305 other medical science, business, Clinical psychology
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::a003a6f16aa62b1ea7e62db28b732fe9
https://europepmc.org/articles/PMC7686156/ -
7
المؤلفون: Praveen Dayalu, Jane S. Paulsen, Julie C. Stout, Stephen G. Schilling, Noelle E. Carlozzi, Kelvin L. Chou, Samuel Frank, Jin Shei Lai, Michael K. McCormack, Nicholas R. Boileau, Joel S. Perlmutter
المصدر: Mov Disord
مصطلحات موضوعية: 0301 basic medicine, Adult, Male, medicine.medical_specialty, congenital, hereditary, and neonatal diseases and abnormalities, Disease, Article, 03 medical and health sciences, Dysarthria, 0302 clinical medicine, Physical medicine and rehabilitation, Huntington's disease, Rating scale, Chorea, mental disorders, medicine, Humans, Aged, Dystonia, business.industry, Middle Aged, medicine.disease, Confirmatory factor analysis, Exploratory factor analysis, nervous system diseases, Muscle Rigidity, 030104 developmental biology, Huntington Disease, Neurology, Dystonic Disorders, Female, Neurology (clinical), medicine.symptom, business, Factor Analysis, Statistical, 030217 neurology & neurosurgery, Psychomotor Performance
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4b19099e6cc8bdc129dea63d2c22f237
https://europepmc.org/articles/PMC7025393/ -
8
المؤلفون: Joel S. Perlmutter, Nicholas R. Boileau, Julie C. Stout, Martha Nance, Kelvin L. Chou, Noelle E. Carlozzi, Michael K. McCormack, Jin Shei Lai, Praveen Dayalu, Jane S. Paulsen, David Cella
المصدر: Journal of Neurology. 265:1443-1453
مصطلحات موضوعية: Adult, Male, medicine.medical_specialty, Neurology, Margin of error, Prodromal Symptoms, Disease, Severity of Illness Index, Article, Diagnostic Self Evaluation, 03 medical and health sciences, 0302 clinical medicine, Cronbach's alpha, Rating scale, Physicians, Activities of Daily Living, Humans, Medicine, Patient Reported Outcome Measures, 030212 general & internal medicine, Analysis of Variance, business.industry, Middle Aged, Clinical trial, Huntington Disease, Disease Progression, Female, Self Report, Neurology (clinical), Analysis of variance, business, 030217 neurology & neurosurgery, Kappa, Clinical psychology
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9
المؤلفون: Jin Shei Lai, David Cella, Anna L. Kratz, Christopher A. Ross, Nancy R. Downing, Julie C. Stout, Noelle E. Carlozzi, Rebecca E. Ready, Jane S. Paulsen, Michael K. McCormack, Jenna Russell, Siera Goodnight
المصدر: Quality of Life Research. 27:811-822
مصطلحات موضوعية: Adult, Male, Article, 03 medical and health sciences, 0302 clinical medicine, Quality of life, Cronbach's alpha, Humans, Patient Reported Outcome Measures, 030212 general & internal medicine, Cognitive skill, Patient-centered outcomes, Public Health, Environmental and Occupational Health, Discriminant validity, Reproducibility of Results, Cognition, Middle Aged, humanities, Huntington Disease, Convergent validity, Quality of Life, Female, Psychology, 030217 neurology & neurosurgery, Stroop effect, Clinical psychology
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10
المؤلفون: Jin Shei Lai, David Cella, Nicholas R. Boileau, Noelle E. Carlozzi, Janes S. Paulsen, Julie C. Stout, Martha Nance, Michael K. McCormack, Samuel Frank
المصدر: Journal of Huntington's Disease. 6:201-215
مصطلحات موضوعية: Adult, Male, Time Factors, Psychometrics, Severity of Illness Index, Article, 03 medical and health sciences, Cellular and Molecular Neuroscience, 0302 clinical medicine, Quality of life (healthcare), Cronbach's alpha, Huntington's disease, Rating scale, Surveys and Questionnaires, Outcome Assessment, Health Care, medicine, Humans, Patient Reported Outcome Measures, 030212 general & internal medicine, Reliability (statistics), Aged, business.industry, Discriminant validity, Reproducibility of Results, Middle Aged, medicine.disease, Huntington Disease, Quality of Life, Female, Patient-reported outcome, Neurology (clinical), business, 030217 neurology & neurosurgery, Follow-Up Studies, Clinical psychology
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::46085148b8b15e2c2e5ea1df7c266e84
https://doi.org/10.3233/jhd-170238