المؤلفون: van Vulpen, L.F.D., Eikenboom, J., Beckers, E.A.M., Hooimeijer, L., Ypma, P.F., Nieuwenhuizen, L., Coppens, M., Schols, S.E.M., Laros, B.A.P., Valk, P.R., Cnossen, M.H., Driessens, M.H.E., van der Bom, J.G., Rosendaal, F.R., Smit, C., Leebeek, F.W.G., Gouw, S.C., Hassan, S., van Balen, E.C., Reitsma, S.H., Brands, Martijn R., Haverman, Lotte, Muis, Jelmer J., Driessens, Mariëtte H.E., van der Meer, Felix J.M., Goedhart, Geertje, Meijer, Stephan, de Jong, Marianne, van der Bom, Johanna G., Cnossen, Marjon H., Fijnvandraat, Karin, Gouw, Samantha C.

المصدر: In Research and Practice in Thrombosis and Haemostasis May 2023 7(4)

المؤلفون: Kuijlaars, Isolde A.R. ^*, Teela, Lorynn, van Vulpen, Lize F.D., Timmer, Merel A., Coppens, Michiel, Gouw, Samantha C., Peters, Marjolein, Kruip, Marieke J.H.A., Cnossen, Marjon H., Muis, Jelmer J., van Hoorn, Evelien S., Haverman, Lotte, Fischer, Kathelijn

المصدر: In Research and Practice in Thrombosis and Haemostasis December 2021 5(8)

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المؤلفون: Brands MR; Department of Pediatric Hematology, Emma Children's Hospital, Amsterdam UMC location University of Amsterdam, Amsterdam, Netherlands.; Amsterdam Reproduction & Development, Public Health, Amsterdam UMC location University of Amsterdam, Amsterdam, Netherlands., Haverman L; Amsterdam Reproduction & Development, Public Health, Amsterdam UMC location University of Amsterdam, Amsterdam, Netherlands.; Child and Adolescent Psychiatry & Psychological Care, Emma Children's Hospital, Amsterdam UMC location University of Amsterdam, Amsterdam, Netherlands., Muis JJ; Amsterdam Reproduction & Development, Public Health, Amsterdam UMC location University of Amsterdam, Amsterdam, Netherlands.; Child and Adolescent Psychiatry & Psychological Care, Emma Children's Hospital, Amsterdam UMC location University of Amsterdam, Amsterdam, Netherlands., Driessens MHE; Netherlands Hemophilia Patient Society, Nijkerk, Netherlands., Meijer S; Netherlands Hemophilia Patient Society, Nijkerk, Netherlands., van der Meer FJM; HemoNED Foundation, Leiden, Netherlands.; Department of Thrombosis and Hemostasis, Leiden University Medical Center, Leiden University, Leiden, Netherlands., de Jong M; Independent patient representative, Utrecht, Netherlands., van der Bom JG; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden University, Leiden, Netherlands., Cnossen MH; Department of Pediatric Hematology and Oncology, Sophia Children's Hospital, Erasmus Medical Center, Rotterdam, Netherlands., Fijnvandraat K; Department of Pediatric Hematology, Emma Children's Hospital, Amsterdam UMC location University of Amsterdam, Amsterdam, Netherlands.; Amsterdam Reproduction & Development, Public Health, Amsterdam UMC location University of Amsterdam, Amsterdam, Netherlands.; Department of Molecular Cellular Hemostasis, Sanquin Research and Landsteiner Laboratory, Amsterdam, Netherlands., Gouw SC; Department of Pediatric Hematology, Emma Children's Hospital, Amsterdam UMC location University of Amsterdam, Amsterdam, Netherlands.; Amsterdam Reproduction & Development, Public Health, Amsterdam UMC location University of Amsterdam, Amsterdam, Netherlands.; Department of Clinical Epidemiology, Leiden University Medical Center, Leiden University, Leiden, Netherlands.

المصدر: JMIR human factors [JMIR Hum Factors] 2024 Sep 03; Vol. 11, pp. e48359. Date of Electronic Publication: 2024 Sep 03.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: JMIR Publications Inc Country of Publication: Canada NLM ID: 101666561 Publication Model: Electronic Cited Medium: Internet ISSN: 2292-9495 (Electronic) Linking ISSN: 22929495 NLM ISO Abbreviation: JMIR Hum Factors Subsets: MEDLINE

مواضيع طبية MeSH: Hemophilia A*/therapy , Health Records, Personal* , Qualitative Research* , Precision Medicine*/methods, Humans ; Male ; Adult ; Female ; Netherlands ; Middle Aged ; Adolescent ; Empowerment ; Child ; Patient Participation/psychology ; Young Adult ; Interviews as Topic