المؤلفون: Anthony SJ; Child Health Evaluative Sciences, Research Institute, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, ON, Canada.; Transplant and Regenerative Medicine Centre, The Hospital for Sick Children, Toronto, ON, Canada.; Factor-Inwentash Faculty of Social Work, University of Toronto, Toronto, ON, Canada., Pol SJ; Child Health Evaluative Sciences, Research Institute, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, ON, Canada., Selkirk EK; Child Health Evaluative Sciences, Research Institute, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, ON, Canada., Matthiesen A; Child Health Evaluative Sciences, Research Institute, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, ON, Canada., Klaassen RJ; Comprehensive Hemophilia Care Clinic, Children's Hospital of Eastern Ontario, Ottawa, ON, Canada.; Department of Pediatrics, University of Ottawa, Ottawa, ON, Canada., Manase D; The Data Aggregation, Translation and Architecture (DATA) Team, University Health Network, Toronto, ON, Canada., Silva A; The Data Aggregation, Translation and Architecture (DATA) Team, University Health Network, Toronto, ON, Canada., Barwick M; Child Health Evaluative Sciences, Research Institute, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, ON, Canada.; Dalla Lana School of Public Health, University of Toronto, Toronto, ON, Canada.; Department of Psychiatry, University of Toronto, Toronto, ON, Canada., Stinson JN; Child Health Evaluative Sciences, Research Institute, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, ON, Canada.; Lawrence S Bloomberg Faculty of Nursing, University of Toronto, Toronto, ON, Canada., Damer A; Child Health Evaluative Sciences, Research Institute, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, ON, Canada., Ayibiowu M; Child Health Evaluative Sciences, Research Institute, Peter Gilgan Centre for Research and Learning, The Hospital for Sick Children, Toronto, ON, Canada., Dong SX; Comprehensive Hemophilia Care Clinic, Children's Hospital of Eastern Ontario, Ottawa, ON, Canada., Oreskovich S; Comprehensive Hemophilia Care Clinic, Children's Hospital of Eastern Ontario, Ottawa, ON, Canada., Brudno M; The Data Aggregation, Translation and Architecture (DATA) Team, University Health Network, Toronto, ON, Canada.; Department of Computer Science, University of Toronto, Toronto, ON, Canada.

المصدر: JMIR human factors [JMIR Hum Factors] 2024 Sep 19; Vol. 11, pp. e57984. Date of Electronic Publication: 2024 Sep 19.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: JMIR Publications Inc Country of Publication: Canada NLM ID: 101666561 Publication Model: Electronic Cited Medium: Internet ISSN: 2292-9495 (Electronic) Linking ISSN: 22929495 NLM ISO Abbreviation: JMIR Hum Factors Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures* , User-Centered Design*, Humans ; Child ; Adolescent ; Female ; Male ; Canada ; Chronic Disease/therapy ; Quality of Life ; Electronic Health Records

المؤلفون: Gibbons C; Section of Patient Centered Analytics, Division of Internal Medicine, The University of Texas MD Anderson Cancer Center, 6565, MD Anderson Blvd, Houston, TX, 77030, USA. drcgibbons@gmail.com.; Department of Symptom Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA. drcgibbons@gmail.com., Brown G; The Ronin Project Inc., San Mateo, CA, USA., Lu SC; Section of Patient Centered Analytics, Division of Internal Medicine, The University of Texas MD Anderson Cancer Center, 6565, MD Anderson Blvd, Houston, TX, 77030, USA.; Department of Symptom Research, The University of Texas MD Anderson Cancer Center, Houston, TX, USA., Elrick A; The Ronin Project Inc., San Mateo, CA, USA., Tang Y; The Ronin Project Inc., San Mateo, CA, USA., Kaufman M; The Ronin Project Inc., San Mateo, CA, USA., Williams M; The Ronin Project Inc., San Mateo, CA, USA., Xu C; Department of Bioinformatics, University of Texas, El Paso, TX, USA., Harrison C; Nuffield Department of Orthopaedics, Rheumatology and Musculoskeletal Sciences, University of Oxford, Headington, Oxford, UK., Swisher C; The Ronin Project Inc., San Mateo, CA, USA.; Ellison Institute of Transformative Medicine, Los Angeles, CA, USA.

المصدر: Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation [Qual Life Res] 2024 Sep; Vol. 33 (9), pp. 2349-2358. Date of Electronic Publication: 2024 Jul 18.

نوع المنشور: Journal Article; Validation Study

بيانات الدورية: Publisher: Springer Netherlands Country of Publication: Netherlands NLM ID: 9210257 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1573-2649 (Electronic) Linking ISSN: 09629343 NLM ISO Abbreviation: Qual Life Res Subsets: MEDLINE

مواضيع طبية MeSH: Neoplasms*/psychology , Patient Reported Outcome Measures* , Psychometrics*, Humans ; Male ; Female ; Middle Aged ; United Kingdom ; Reproducibility of Results ; Aged ; United States ; Adult ; Surveys and Questionnaires ; Symptom Assessment ; Quality of Life

المؤلفون: Holeman TA; Division of Vascular Surgery, University of Utah, School of Medicine, Salt Lake City, UT; Department of Population Health Science, University of Utah, School of Medicine, Salt Lake City, UT. Electronic address: teryn.holeman@hsc.utah.edu., Chester C; Division of Vascular Surgery, University of Utah, School of Medicine, Salt Lake City, UT., Hales JB; Division of Vascular Surgery, University of Utah, School of Medicine, Salt Lake City, UT., Zhang Y; Department of Population Health Science, University of Utah, School of Medicine, Salt Lake City, UT., Johnson CE; Division of Vascular Surgery, University of Utah, School of Medicine, Salt Lake City, UT., Brooke BS; Division of Vascular Surgery, University of Utah, School of Medicine, Salt Lake City, UT; Department of Population Health Science, University of Utah, School of Medicine, Salt Lake City, UT.

المصدر: Journal of vascular surgery [J Vasc Surg] 2024 Aug; Vol. 80 (2), pp. 466-477.e4. Date of Electronic Publication: 2024 Apr 10.

نوع المنشور: Journal Article; Comparative Study

بيانات الدورية: Publisher: Elsevier Country of Publication: United States NLM ID: 8407742 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1097-6809 (Electronic) Linking ISSN: 07415214 NLM ISO Abbreviation: J Vasc Surg Subsets: MEDLINE

مواضيع طبية MeSH: Intermittent Claudication*/therapy , Intermittent Claudication*/physiopathology , Intermittent Claudication*/diagnosis , Patient Reported Outcome Measures* , Peripheral Arterial Disease*/therapy , Peripheral Arterial Disease*/physiopathology , Peripheral Arterial Disease*/diagnosis , Recovery of Function*, Humans ; Male ; Female ; Aged ; Time Factors ; Middle Aged ; Treatment Outcome ; Retrospective Studies ; Quality of Life ; Exercise Therapy ; Cardiovascular Agents/therapeutic use ; Cardiovascular Agents/adverse effects ; Vascular Surgical Procedures/adverse effects ; Patient Satisfaction ; Ankle Brachial Index ; Functional Status

المؤلفون: Kortbeek S; Section of Pediatric Gastroenterology, Hepatology, and Nutrition, Alberta Children's Hospital, University of Calgary, Calgary, Alberta, Canada., Johara FT; Division of Gastroenterology, Hepatology, and Nutrition, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada.; Transplant and Regenerative Medicine Centre, The Hospital for Sick Children, Toronto, Ontario, Canada., Kwan K; Division of Gastroenterology, Hepatology, and Nutrition, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada.; Transplant and Regenerative Medicine Centre, The Hospital for Sick Children, Toronto, Ontario, Canada., John T; Division of Gastroenterology, Hepatology, and Nutrition, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada.; Transplant and Regenerative Medicine Centre, The Hospital for Sick Children, Toronto, Ontario, Canada., Ng VL; Division of Gastroenterology, Hepatology, and Nutrition, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada.; Transplant and Regenerative Medicine Centre, The Hospital for Sick Children, Toronto, Ontario, Canada.

المصدر: Journal of pediatric gastroenterology and nutrition [J Pediatr Gastroenterol Nutr] 2024 Jul; Vol. 79 (1), pp. 119-125. Date of Electronic Publication: 2024 May 27.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Lippincott Williams & Wilkins Country of Publication: United States NLM ID: 8211545 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1536-4801 (Electronic) Linking ISSN: 02772116 NLM ISO Abbreviation: J Pediatr Gastroenterol Nutr Subsets: MEDLINE

مواضيع طبية MeSH: Liver Transplantation*/psychology , Quality of Life* , Minimal Clinically Important Difference* , Patient Reported Outcome Measures*, Humans ; Male ; Female ; Retrospective Studies ; Child ; Surveys and Questionnaires ; Adolescent ; Child, Preschool ; Infant

المؤلفون: Griffin AC; VA Palo Alto Health Care System, Palo Alto, CA, United States.; Department of Medicine, Stanford University School of Medicine, Stanford, CA, United States., Mentch L; Department of Statistics, University of Pittsburgh, Pittsburgh, PA, United States., Lin FC; Department of Biostatistics, University of North Carolina at Chapel Hill, Chapel Hill, NC, United States., Chung AE; Department of Biostatistics and Bioinformatics, Duke University School of Medicine, Durham, NC, United States.

المصدر: Journal of medical Internet research [J Med Internet Res] 2024 Sep 24; Vol. 26, pp. e48020. Date of Electronic Publication: 2024 Sep 24.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: JMIR Publications Country of Publication: Canada NLM ID: 100959882 Publication Model: Electronic Cited Medium: Internet ISSN: 1438-8871 (Electronic) Linking ISSN: 14388871 NLM ISO Abbreviation: J Med Internet Res Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures* , Inflammatory Bowel Diseases*/psychology , Inflammatory Bowel Diseases*/physiopathology , Inflammatory Bowel Diseases*/therapy , Exercise*/psychology , Telemedicine*/statistics & numerical data, Humans ; Male ; Female ; Cross-Sectional Studies ; Cluster Analysis ; Adult ; Middle Aged ; Longitudinal Studies ; Quality of Life ; Wearable Electronic Devices ; Surveys and Questionnaires

المؤلفون: Husni ME; Department of Rheumatic and Immunologic Diseases, Cleveland Clinic, Cleveland, Ohio, USA husnie@ccf.org.; Orthopedic and Rheumatologic Institute, Cleveland Clinic Lerner College of Medicine of Case Western Reserve University, Cleveland, Ohio, USA., Mease PJ; Swedish Medical Center and Providence St. Joseph Health/University of Washington, Seattle, Washington, USA., Merola JF; Department of Dermatology, Harvard Medical School, Brigham and Women's Hospital, Boston, Massachusetts, USA.; Division of Rheumatology, Department of Medicine, Harvard Medical School, Brigham and Women's Hospital, Boston, Massachusetts, USA., Tillett W; Royal National Hospital for Rheumatic Diseases, Bath, UK.; Department of Life Sciences, Centre for Therapeutic Innovation, University of Bath, Bath, UK., Goldammer N; UCB, Monheim am Rhein, Germany., Ink B; UCB, Slough, UK., Coarse J; UCB, Morrisville, North Carolina, USA., Lambert J; UCB, Colombes, France., Taieb V; UCB, Colombes, France., Gladman DD; Schroeder Arthritis Institute, Krembil Research Institute, Toronto Western Hospital, University Health Network, University of Toronto, Toronto, Ontario, Canada.

المصدر: RMD open [RMD Open] 2024 Sep 23; Vol. 10 (3). Date of Electronic Publication: 2024 Sep 23.

نوع المنشور: Journal Article; Clinical Trial, Phase III; Randomized Controlled Trial

بيانات الدورية: Publisher: BMJ Publishing Group Country of Publication: England NLM ID: 101662038 Publication Model: Electronic Cited Medium: Internet ISSN: 2056-5933 (Electronic) Linking ISSN: 20565933 NLM ISO Abbreviation: RMD Open Subsets: MEDLINE

مواضيع طبية MeSH: Quality of Life* , Patient Reported Outcome Measures* , Arthritis, Psoriatic*/drug therapy , Antibodies, Monoclonal, Humanized*/therapeutic use , Antibodies, Monoclonal, Humanized*/administration & dosage, Humans ; Male ; Female ; Middle Aged ; Treatment Outcome ; Double-Blind Method ; Adult ; Antirheumatic Agents/therapeutic use ; Antirheumatic Agents/administration & dosage ; Severity of Illness Index ; Adalimumab/therapeutic use ; Adalimumab/administration & dosage ; Fatigue/etiology

المؤلفون: Attamimi S; Academic Unit of Oral Health Dentistry and Society, University of Sheffield, Sheffield, United Kingdom.; Department of Preventive Dentistry, College of Dentistry, University of Hail, Hail, Saudi Arabia., Marshman Z; Academic Unit of Oral Health Dentistry and Society, University of Sheffield, Sheffield, United Kingdom., Deery C; Academic Unit of Oral Health Dentistry and Society, University of Sheffield, Sheffield, United Kingdom., Radley S; Obstetrics and Gynaecology Unit, Jessop Wing, Sheffield Teaching Hospital, Sheffield, United Kingdom., Gilchrist F; Academic Unit of Oral Health Dentistry and Society, University of Sheffield, Sheffield, United Kingdom.

المصدر: JMIR formative research [JMIR Form Res] 2024 Sep 17; Vol. 8, pp. e56370. Date of Electronic Publication: 2024 Sep 17.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: JMIR Publications Country of Publication: Canada NLM ID: 101726394 Publication Model: Electronic Cited Medium: Internet ISSN: 2561-326X (Electronic) Linking ISSN: 2561326X NLM ISO Abbreviation: JMIR Form Res Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures*, Humans ; Surveys and Questionnaires

المؤلفون: Kolk MZH; Department of Cardiology, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands., Frodi DM; Department of Cardiology, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark., Langford J; Activinsights Ltd, Kimbolton, UK.; College of Life and Environmental Sciences, University of Exeter, Exeter, UK., Meskers CJ; Department of Cardiology, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands., Andersen TO; Department of Computer Science, University of Copenhagen, Copenhagen, Denmark., Jacobsen PK; Department of Cardiology, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark., Risum N; Department of Cardiology, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark., Tan HL; Department of Cardiology, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.; Netherlands Heart Institute, Utrecht, The Netherlands., Svendsen JH; Department of Cardiology, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark.; Department of Clinical Medicine, Faculty of Health and Medical Sciences, University of Copenhagen, Copenhagen, Denmark., Knops RE; Department of Cardiology, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands., Diederichsen SZ; Department of Cardiology, Copenhagen University Hospital-Rigshospitalet, Copenhagen, Denmark., Tjong FVY; Department of Cardiology, Amsterdam UMC, University of Amsterdam, Amsterdam, The Netherlands.

المصدر: European heart journal. Quality of care & clinical outcomes [Eur Heart J Qual Care Clin Outcomes] 2024 Sep 13; Vol. 10 (6), pp. 531-542.

نوع المنشور: Journal Article; Multicenter Study; Observational Study

بيانات الدورية: Publisher: Oxford University Press Country of Publication: England NLM ID: 101677796 Publication Model: Print Cited Medium: Internet ISSN: 2058-1742 (Electronic) Linking ISSN: 20581742 NLM ISO Abbreviation: Eur Heart J Qual Care Clin Outcomes Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures*, Humans ; Male ; Female ; Prospective Studies ; Middle Aged ; Aged ; Quality of Life ; Biomarkers/blood ; Defibrillators, Implantable ; Wearable Electronic Devices ; Netherlands ; Surveys and Questionnaires ; Follow-Up Studies

المؤلفون: Nikolovski J; NHMRC Clinical Trials Centre, Camperdown, New South Wales, Australia jessica.nikolovski@sydney.edu.au.; The University of Sydney Susan Wakil School of Nursing and Midwifery, Sydney, New South Wales, Australia., Morton RL; NHMRC Clinical Trials Centre, Camperdown, New South Wales, Australia., Mercieca-Bebber R; NHMRC Clinical Trials Centre, Camperdown, New South Wales, Australia., Armstrong M; NSW Agency for Clinical Innovation, St Leonards, New South Wales, Australia., Hartas G; NSW Agency for Clinical Innovation, St Leonards, New South Wales, Australia., Rossiter B; NSW Agency for Clinical Innovation, St Leonards, New South Wales, Australia., Fagan M; NSW Agency for Clinical Innovation, St Leonards, New South Wales, Australia., Tinsley M; NSW Agency for Clinical Innovation, St Leonards, New South Wales, Australia., Snyder C; Departments of Medicine, Oncology, and Health Policy & Management, Johns Hopkins School of Medicine, Baltimore, Maryland, USA., Aiyegbusi OL; Centre for Patient-Reported Outcomes Research (CPROR), University of Birmingham Institute of Applied Health Research, Birmingham, UK., Amin-Korim R; NHMRC Clinical Trials Centre, Camperdown, New South Wales, Australia., Sutherland K; Clinical Innovation and Research Division, New South Wales Office for Health and Medical Research, St Leonards, New South Wales, Australia., Rutherford C; Sydney Quality of Life Office (SQOLO), The University of Sydney Susan Wakil School of Nursing and Midwifery, Sydney, New South Wales, Australia.

المصدر: BMJ open [BMJ Open] 2024 Sep 12; Vol. 14 (9), pp. e083346. Date of Electronic Publication: 2024 Sep 12.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: BMJ Publishing Group Ltd Country of Publication: England NLM ID: 101552874 Publication Model: Electronic Cited Medium: Internet ISSN: 2044-6055 (Electronic) Linking ISSN: 20446055 NLM ISO Abbreviation: BMJ Open Subsets: MEDLINE

مواضيع طبية MeSH: Patient Reported Outcome Measures* , Qualitative Research*, Humans ; Chronic Disease ; New South Wales ; Quality of Life ; Cultural Diversity ; Research Design ; Time Factors ; Female ; Middle Aged ; Male ; Language ; Interviews as Topic

المؤلفون: Baalmann AK; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto-von-Guericke University Magdeburg, Leipziger Str. 44, Magdeburg, 39120, Germany., Nestler S; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto-von-Guericke University Magdeburg, Leipziger Str. 44, Magdeburg, 39120, Germany., Donhauser T; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto-von-Guericke University Magdeburg, Leipziger Str. 44, Magdeburg, 39120, Germany., Apfelbacher C; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto-von-Guericke University Magdeburg, Leipziger Str. 44, Magdeburg, 39120, Germany. christian.apfelbacher@med.ovgu.de., Piontek K; Institute of Social Medicine and Health Systems Research, Medical Faculty, Otto-von-Guericke University Magdeburg, Leipziger Str. 44, Magdeburg, 39120, Germany.

المصدر: Health and quality of life outcomes [Health Qual Life Outcomes] 2024 Sep 12; Vol. 22 (1), pp. 79. Date of Electronic Publication: 2024 Sep 12.

نوع المنشور: Journal Article; Systematic Review

بيانات الدورية: Publisher: BioMed Central Country of Publication: England NLM ID: 101153626 Publication Model: Electronic Cited Medium: Internet ISSN: 1477-7525 (Electronic) Linking ISSN: 14777525 NLM ISO Abbreviation: Health Qual Life Outcomes Subsets: MEDLINE

مواضيع طبية MeSH: Sinusitis*/therapy , Patient Reported Outcome Measures* , Rhinitis*/therapy , Quality of Life*, Humans ; Child ; Adult ; Acute Disease ; Surveys and Questionnaires ; Rhinosinusitis