المؤلفون: Paola Zaratin, Sara Samadzadeh, Meral Seferoğlu, Vito Ricigliano, Jonadab dos Santos Silva, Abdulkadir Tunc, Giampaolo Brichetto, Timothy Coetzee, Anne Helme, Usman Khan, Robert McBurney, Guy Peryer, Helga Weiland, Peer Baneke, Mario Alberto Battaglia, Valerie Block, Luca Capezzuto, Loïc Carment, Paolo Angelo Cortesi, Gary Cutter, Letizia Leocani, Hans-Peter Hartung, Jan Hillert, Jeremy Hobart, Kaisa Immonen, Paul Kamudoni, Rod Middleton, Patricia Moghames, Xavier Montalban, Liesbet Peeters, Maria Pia Sormani, Susanna van Tonder, Angela White, Giancarlo Comi, Patrick Vermersch

المصدر: Frontiers in Neurology, Vol 15 (2024)

مصطلحات موضوعية: multiple sclerosis progression, patient reported outcomes, patient engagement, personalized medicine, digital health, Neurology. Diseases of the nervous system, RC346-429

وصف الملف: electronic resource

Relation: https://www.frontiersin.org/articles/10.3389/fneur.2024.1407257/full; https://doaj.org/toc/1664-2295

URL الوصول: https://doaj.org/article/71f586d1f32749e380954d0f3ed8f667

المؤلفون: Hamza Khan, Lotte Geys, Peer Baneke, Giancarlo Comi, Liesbet M. Peeters

المصدر: Scientific Data, Vol 11, Iss 1, Pp 1-11 (2024)

مصطلحات موضوعية: Science

وصف الملف: electronic resource

Relation: https://doaj.org/toc/2052-4463

URL الوصول: https://doaj.org/article/f58a07987a59440ba0202ef89d1f98a4

المؤلفون: Mayowa O. Owolabi, Matilde Leonardi, Claudio Bassetti, Joke Jaarsma, Tadeusz Hawrot, Akintomiwa I. Makanjuola, Rajinder K. Dhamija, Wuwei Feng, Volker Straub, Jennifer Camaradou, David W. Dodick, Rosita Sunna, Bindu Menon, Claire Wright, Chris Lynch, Antonella Santuccione Chadha, Maria Teresa Ferretti, Anna Dé, Coriene E. Catsman-Berrevoets, Muthoni Gichu, Cristina Tassorelli, David Oliver, Walter Paulus, Ramla K. Mohammed, Augustina Charway-Felli, Kevin Rostasy, Valery Feigin, Audrey Craven, Elizabeth Cunningham, Orla Galvin, Alexandra Heumber Perry, Ericka L. Fink, Peer Baneke, Anne Helme, Joanna Laurson-Doube, Marco T. Medina, Juan David Roa, Birgit Hogl, Allan O’Bryan, Claudia Trenkwalder, Jo Wilmshurst, Rufus O. Akinyemi, Joseph O. Yaria, David C. Good, Volker Hoemberg, Paul Boon, Samuel Wiebe, J. Helen Cross, Magali Haas, Inez Jabalpurwala, Marijeta Mojasevic, Monica DiLuca, Paola Barbarino, Stephanie Clarke, Sameer M. Zuberi, Paul Olowoyo, Ayomide Owolabi, Nelson Oyesiku, Pia C. Maly-Sundgren, Bo Norrving, Surjo R. Soekadar, Pieter A. van Doorn, Richard Lewis, Tom Solomon, Franco Servadei

المساهمون: Neurology

المصدر: Nature Reviews Neurology, 19(6), 371-383. Nature Publishing Group

مصطلحات موضوعية: Cellular and Molecular Neuroscience, SDG 3 - Good Health and Well-being, Neurology (clinical), 610 Medicine & health

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::dcd8883fc2f925348268e5c7776f23f6
https://pure.eur.nl/en/publications/5f0fb123-6e96-4348-a666-52cc3f578ad5

المؤلفون: Mayowa O Owolabi, Matilde Leonardi, Claudio Bassetti, Joke Jaarsma, Tadeusz Hawrot, Akintomiwa I Makanjuola, Rajinder Kumar Dhamija, Wuwei Feng, Volker Straub, Jennifer Camaradou, David Dodick, Rosita Sunna, Bindu Menon, Claire Wright, Chris Lynch, Anna Dé, Coriene Catsman-Berrevoets, Muthoni Gichu, Cristina Tassorelli, David Oliver, Walter Paulus, K M Ramla, Augustina Charway-Felli, Kevin Rostasy, Valery Feigin, Audrey Craven, Elizabeth Cunningham, Orla Galvin, Ericka Fink, Peer Baneke, Marco T Medina, Juan David Roa

المصدر: The Lancet Neurology. 21:960-961

مصطلحات موضوعية: Neurology, Humans, Neurology (clinical)

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::6f0e9aa9d3427d11515be86b35a7c82a
https://doi.org/10.1016/s1474-4422(22)00394-5

المؤلفون: Anne Helme, Brenda Banwell, Shanthi Viswanathan, Bernhard Hemmer, Joanna Laurson-Doube, Bassem Yamout, Nick Rijke, Peer Baneke

المصدر: Multiple Sclerosis (Houndmills, Basingstoke, England)

مصطلحات موضوعية: Future Perspectives, medicine.medical_specialty, Multiple Sclerosis, Off-Label Treatment, business.industry, Multiple sclerosis, Off-Label Use, Disease, Guideline, off-label treatment, Off-label use, medicine.disease, United States, ddc, Neurology, medicine, Humans, Disease-modifying therapies, Neurology (clinical), Intensive care medicine, business, guideline, Delivery of Health Care, access to treatment

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::028f44954068b1d75b802fdc8757a600
https://doi.org/10.1177/13524585211030207

المؤلفون: Paola Zaratin, Patrick Vermersch, Maria Pia Amato, Giampaolo Brichetto, Timothy Coetzee, Gary Cutter, Gilles Edan, Gavin Giovannoni, Emma Gray, Hans Peter Hartung, Jeremy Hobart, Anne Helme, Robert Hyde, Usman Khan, Letizia Leocani, Lorenzo Giovanni Mantovani, Robert McBurney, Xavier Montalban, Iris-Katharina Penner, Bernard M.J. Uitdehaag, Pamela Valentine, Helga Weiland, Deborah Bertorello, Mario Alberto Battaglia, Peer Baneke, Giancarlo Comi

المساهمون: Multiple Sclerosis Unit, Foundation IRCCS Neurological Institute C. Besta, Milan, Lille Inflammation Research International Center - U 995 (LIRIC), Institut Pasteur de Lille, Réseau International des Instituts Pasteur (RIIP)-Réseau International des Instituts Pasteur (RIIP)-Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Lille-Centre Hospitalier Régional Universitaire [Lille] (CHRU Lille), Università degli Studi di Firenze = University of Florence [Firenze] (UNIFI), University of Alabama at Birmingham [ Birmingham] (UAB), Service de Neurologie [CHU Rennes], CHU Pontchaillou [Rennes], Queen Mary University of London (QMUL), Heinrich Heine Universität Düsseldorf = Heinrich Heine University [Düsseldorf], The University of Sydney, Palacky University Olomouc, Medizinische Universität Wien = Medical University of Vienna, Plymouth University, Catholic University of Leuven - Katholieke Universiteit Leuven (KU Leuven), Universita Vita Salute San Raffaele = Vita-Salute San Raffaele University [Milan, Italie] (UniSR), Istituti di Ricovero e Cura a Carattere Scientifico (IRCCS), Università degli Studi di Milano-Bicocca [Milano] (UNIMIB), Universitat Autònoma de Barcelona (UAB), Amsterdam UMC - Amsterdam University Medical Center, Università degli Studi di Siena = University of Siena (UNISI), This work was supported by the Italian Multiple Sclerosis Foundation, the International Multiple Sclerosis Federation and the European Charcot Foundation., Italian Multiple Sclerosis Foundation, Lille Neurosciences & Cognition - U 1172 (LilNCog), Institut National de la Santé et de la Recherche Médicale (INSERM)-Université de Lille-Centre Hospitalier Régional Universitaire [Lille] (CHRU Lille), CHU Lille, Università degli Studi di Firenze = University of Florence (UniFI), Multiple Sclerosis International Federation [UK], Università degli Studi di Milano-Bicocca = University of Milano-Bicocca (UNIMIB), Zaratin, P, Vermersch, P, Amato, M, Brichetto, G, Coetzee, T, Cutter, G, Edan, G, Giovannoni, G, Gray, E, Hartung, H, Hobart, J, Helme, A, Hyde, R, Khan, U, Leocani, L, Mantovani, L, Mcburney, R, Montalban, X, Penner, I, Uitdehaag, B, Valentine, P, Weiland, H, Bertorello, D, Battaglia, M, Baneke, P, Comi, G, Neurology, Amsterdam Neuroscience - Neuroinfection & -inflammation

المصدر: Multiple Sclerosis and Related Disorders
Multiple Sclerosis and Related Disorders, 2022, 61, pp.103757. ⟨10.1016/j.msard.2022.103757⟩
Multiple Sclerosis and Related Disorders, 61:103757. Elsevier
Zaratin, P, Vermersch, P, Amato, M P, Brichetto, G, Coetzee, T, Cutter, G, Edan, G, Giovannoni, G, Gray, E, Hartung, H P, Hobart, J, Helme, A, Hyde, R, Khan, U, Leocani, L, Mantovani, L G, McBurney, R, Montalban, X, Penner, I-K, Uitdehaag, B M J, Valentine, P, Weiland, H, Bertorello, D, Battaglia, M A, Baneke, P, PROMS Initiative Working Groups & Comi, G 2022, ' The agenda of the global patient reported outcomes for multiple sclerosis (PROMS) initiative : Progresses and open questions ', Multiple Sclerosis and Related Disorders, vol. 61, 103757 . https://doi.org/10.1016/j.msard.2022.103757

مصطلحات موضوعية: Multiple Sclerosis, Personalized care, Health Personnel, [SDV]Life Sciences [q-bio], Patient engagement, Multiple Sclerosis progression, General Medicine, Responsible Research Innovation (RRI), Neurology, Patient Reported Outcomes (PRO), Humans, Digital Health, Neurology (clinical), Patient Reported Outcome Measures

وصف الملف: STAMPA

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::96c84257f3335fe212b23cac987b69f7
https://hal.archives-ouvertes.fr/hal-03711714

المؤلفون: Joanna Laurson-Doube, Kathleen Costello, Gavin Giovannoni, Nick Rijke, Brenda Banwell, Peer Baneke, Jennifer McDonell

المصدر: Multiple Sclerosis Journal. 26:153-158

مصطلحات موضوعية: medicine.medical_specialty, Multiple Sclerosis, business.industry, Multiple sclerosis, 030231 tropical medicine, Disease, World Health Organization, medicine.disease, Essential medicines, World health, 03 medical and health sciences, 0302 clinical medicine, Neurology, Family medicine, medicine, Humans, Immunologic Factors, Neurology (clinical), business, 030217 neurology & neurosurgery

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3f5e42a939f331e7a5566d0ac7573d7a
https://doi.org/10.1177/1352458519898340

المؤلفون: Rachel King, William M. Carroll, Anne Helme, Wolfgang Grisold, Tissa Wijeratne, Peer Baneke

المصدر: The Lancet. Neurology. 20(8)

مصطلحات موضوعية: medicine.medical_specialty, Neurology, Multiple Sclerosis, business.industry, Multiple sclerosis, MEDLINE, Brain, Patient Advocacy, medicine.disease, Patient advocacy, Health Services Accessibility, Clinical neurology, Text mining, medicine, Humans, Neurology (clinical), Neurologists, Intensive care medicine, business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::4ace6409e9d3ccfcc9d7da6232fb954d
https://pubmed.ncbi.nlm.nih.gov/31345666

المؤلفون: Anne Helme, Nicholas La Rocca, Rachel King, Bernard M. J. Uitdehaag, Wendy Kaye, Ingrid van der Mei, Mitchell T. Wallin, Ceri Angood Napier, Nick Rijke, Clare Walton, Neil Robertson, Lindsay Rechtman, Emmanuelle Leray, Peer Baneke, Ruth Ann Marrie

المساهمون: Multiple Sclerosis International Federation [UK], Recherche en Pharmaco-épidémiologie et Recours aux Soins (REPERES), Université de Rennes (UR)-École des Hautes Études en Santé Publique [EHESP] (EHESP), École des Hautes Études en Santé Publique [EHESP] (EHESP), Département Méthodes quantitatives en santé publique (METIS), University of Manitoba [Winnipeg], Cardiff University, Vrije Universiteit Medical Centre (VUMC), Vrije Universiteit Amsterdam [Amsterdam] (VU), University of Tasmania [Hobart, Australia] (UTAS), The George Washington University (GW), Biogen, Novartis, Associazione Italiana Sclerosi Multipla, Multiple Sclerosis Society, Merck, Bristol-Myers Squibb, Sanofi, National Multiple Sclerosis Society, Roche, Vanneau Trust, Université de Rennes 1 (UR1), Université de Rennes (UNIV-RENNES)-Université de Rennes (UNIV-RENNES)-École des Hautes Études en Santé Publique [EHESP] (EHESP), Neurology, Amsterdam Neuroscience - Neuroinfection & -inflammation

المصدر: Multiple Sclerosis (Houndmills, Basingstoke, England)
Multiple Sclerosis Journal
Multiple Sclerosis Journal, 2020, 26 (14), pp.1816-1821. ⟨10.1177/1352458520970841⟩
Walton, C, King, R, Rechtman, L, Kaye, W, Leray, E, Marrie, R A, Robertson, N, la Rocca, N, Uitdehaag, B, van der Mei, I, Wallin, M, Helme, A, Angood Napier, C, Rijke, N & Baneke, P 2020, ' Rising prevalence of multiple sclerosis worldwide: Insights from the Atlas of MS, third edition ', Multiple Sclerosis Journal, vol. 26, no. 14, pp. 1816-1821 . https://doi.org/10.1177/1352458520970841
Multiple Sclerosis Journal, SAGE Publications, 2020, 26 (14), pp.1816-1821. ⟨10.1177/1352458520970841⟩
Multiple Sclerosis Journal, 26(14), 1816-1821. SAGE Publications Ltd

مصطلحات موضوعية: Gerontology, Male, medicine.medical_specialty, Multiple Sclerosis, [SDV]Life Sciences [q-bio], 03 medical and health sciences, 0302 clinical medicine, Epidemiology, medicine, Prevalence, Humans, 030212 general & internal medicine, Child, Health policy, Problem Solving, Future Perspectives, business.industry, Atlas (topology), Multiple sclerosis, Health Policy, Incidence, medicine.disease, 3. Good health, Neurology, Disease risk, epidemiology, Female, Neurology (clinical), Epidemiologic data, business, 030217 neurology & neurosurgery

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::5f89d7439ba97f8f8a9a78a0c8317bb9
https://pubmed.ncbi.nlm.nih.gov/33174499

المؤلفون: Kathleen Costello, Jennifer McDonell, Joanna Laurson-Doube, Brenda Banwell, Peer Baneke, Gavin Giovannoni, Nick Rijke

المصدر: The Lancet Neurology. 19:207-208

مصطلحات موضوعية: medicine.medical_specialty, Multiple Sclerosis, Text mining, business.industry, Multiple sclerosis, Family medicine, Health care, medicine, MEDLINE, Humans, Neurology (clinical), medicine.disease, business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::3487394dc4e2a6dc696ef7e5886de2c3
https://doi.org/10.1016/s1474-4422(19)30486-7