المؤلفون: Tran Thi, Thu Hang, Lin, Chung-Ying^{Aff2, Aff3}, Huang, Mei-Chih^{Aff4, Aff5, IDs00431024056134_cor3}

المصدر: European Journal of Pediatrics. 183(8):3377-3388

المؤلفون: Adedeji, Adekunle^{Aff1, Aff2}, Witt, Stefanie^{Aff1, Aff2}, Innig, Florian, Quitmann, Julia^{Aff1, Aff2, IDs12020024039386_cor4}

المصدر: Endocrine: International Journal of Basic and Clinical Endocrinology. :1-27

المؤلفون: Walter E. Kaufmann, Alan K. Percy, Jeffrey L. Neul, Jenny Downs, Helen Leonard, Paige Nues, Girish D. Sharma, Theresa E. Bartolotta, Gillian S. Townend, Leopold M. G. Curfs, Orietta Mariotti, Claude Buda, Heather M. O’Leary, Lindsay M. Oberman, Vanessa Vogel-Farley, Katherine V. Barnes, Christopher U. Missling

المصدر: Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-14 (2024)

مصطلحات موضوعية: Rett syndrome, Quality of life, Intellectual disability, Caregiver, Parent-proxy report, Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/9f2f215cd3a24fd58dac55f46755ce60

المؤلفون: Joan W. Hanania, Jessica Edwards George, Christie Rizzo, Justin Manjourides, Laura Goldstein

المصدر: Journal of Patient-Reported Outcomes, Vol 8, Iss 1, Pp 1-7 (2024)

مصطلحات موضوعية: Pediatric chronic pain, Coping and adaptation, Child self-report and parent-proxy report, Child-parent agreement, Pain-related functional disability, Public aspects of medicine, RA1-1270

وصف الملف: electronic resource

Relation: https://doaj.org/toc/2509-8020

URL الوصول: https://doaj.org/article/f289870488b6403d8d4ef1679740d6a3

المؤلفون: Kaufmann, Walter E.^{Aff1, Aff2, IDs13023024033138_cor1}, Percy, Alan K., Neul, Jeffrey L., Downs, Jenny, Leonard, Helen, Nues, Paige, Sharma, Girish D., Bartolotta, Theresa E., Townend, Gillian S., Curfs, Leopold M. G., Mariotti, Orietta, Buda, Claude, O’Leary, Heather M., Oberman, Lindsay M., Vogel-Farley, Vanessa, Barnes, Katherine V., Missling, Christopher U.

المصدر: Orphanet Journal of Rare Diseases. 19(1)

المؤلفون: Hanania, Joan W.^{Aff1, Aff3, IDs41687024007740_cor1}, George, Jessica Edwards, Rizzo, Christie, Manjourides, Justin, Goldstein, Laura

المصدر: Journal of Patient-Reported Outcomes. 8(1)

المؤلفون: Sébille, Véronique^{Aff1, Aff2, Aff5, IDs12028023017055_cor1}, Dubuy, Yseulys, Feuillet, Fanny^{Aff1, Aff2}, Blanchin, Myriam, Roquilly, Antoine^{Aff3, Aff4}, Cinotti, Raphaël^{Aff1, Aff4}

المصدر: Neurocritical Care. 39(2):339-347

المؤلفون: Potashman, Michele, Pang, Menglan, Tahir, Muna^{Aff2, IDs12877022035270_cor3}, Shahraz, Saeid^{Aff2, Aff3}, Dichter, Sascha, Perneczky, Robert^{Aff5, Aff6, Aff7, Aff8, Aff9}, Nolte, Sandra^{Aff10, Aff11}

المصدر: BMC Geriatrics. 23(1)

المؤلفون: Burkitt, Chantel^Aff5, Genik, Lara^Aff6, Merbler, Alyssa^Aff7, Siden, Hal^Aff8, Oberlander, Tim F.^Aff9, Symons, Frank^Aff7

المساهمون: Eisenstat, David D., editor^Aff1, Goldowitz, Dan, editor^Aff2, Oberlander, Tim F., editor^Aff3, Yager, Jerome Y., editor^Aff4

المصدر: Neurodevelopmental Pediatrics : Genetic and Environmental Influences. :697-711

المؤلفون: Ngai, Shirley P. C.^{Aff1, IDs00431023048450_cor1}, Wong, L. Y., Poon, Vitti W. K., Poon, Candice Y. C., Yiu, Beverley P. H., Wong, Teresa P. S., Chow, C. P.

المصدر: European Journal of Pediatrics. 182(4):1719-1730