المؤلفون: Rachel Box, Catina Bernardis, Alexander Pleshkov, Nicky Jessop, Catherine Miller, Jennifer Skye, Virginia O’Brien, Matthew Veerkamp, Anna Carolina Ferreira da Rocha, Roger Cornwall

المصدر: Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-21 (2022)

مصطلحات موضوعية: Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/5a272292edc44651a20b3c4262ccf1f7

المؤلفون: Rachel Box, Catina Bernardis, Alexander Pleshkov, Nicky Jessop, Catherine Miller, Jennifer Skye, Virginia O’Brien, Matthew Veerkamp, Anna Carolina Ferreira da Rocha, Roger Cornwall

المصدر: Orphanet Journal of Rare Diseases, Vol 17, Iss 1, Pp 1-1 (2022)

مصطلحات موضوعية: Medicine

وصف الملف: electronic resource

Relation: https://doaj.org/toc/1750-1172

URL الوصول: https://doaj.org/article/61e3ff501a5043c2a83bce3c9e3a8bd0

المؤلفون: Patricia Grocott, Rachel Box, Peter Williams, Victoria Clemett, Heather Gage, Sangeeta Sooriah, Tanya Graham

المصدر: Graham, T, Sooriah, S, Box, R, Gage, H, Williams, P, Clemett, V & Grocott, P 2021, ' Participatory co-design of patient-reported outcome indicators and N-of-1 evaluation of a dressing glove for Epidermolysis bullosa ', JOURNAL OF WOUND CARE, vol. 29, no. 12, pp. 751-762 . https://doi.org/10.12968/jowc.2020.29.12.751

مصطلحات موضوعية: N of 1 trial, Co-design, medicine.medical_specialty, Nursing (miscellaneous), Hand therapy, Interviews as Topic, 030207 dermatology & venereal diseases, 03 medical and health sciences, Wound care, Blister, 0302 clinical medicine, Epidermolysis Bullosa, wound care, public and patient involvement, n-of-1 methodology, routine clinical follow up, Humans, Medicine, Patient Reported Outcome Measures, 030212 general & internal medicine, book, Qualitative Research, Muscle contracture, Wound Healing, business.industry, Reproducibility of Results, Equipment Design, Focus Groups, equipment and supplies, medicine.disease, Bandages, Dermatology, Epidermolysis Bullosa Dystrophica, Finger webbing, book.journal, Fundamentals and skills, Patient-reported outcome, Epidermolysis bullosa, Gloves, Protective, business, human activities

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::b765007d4a4eef1a50ceacdeb035d003
https://doi.org/10.12968/jowc.2020.29.12.751

المؤلفون: Sangeeta Sooriah, Silvia Giampieri, Rachel Box, Patricia Grocott, Tanya Graham

المصدر: Graham, T, Sooriah, S, Giampieri, S, Box, R & Grocott, P 2019, ' Iterative codesign and testing of a novel dressing glove for epidermolysis bullosa ', JOURNAL OF WOUND CARE, vol. 28, no. 1, pp. 5-14 . https://doi.org/10.12968/jowc.2019.28.1.5

مصطلحات موضوعية: Adult, medicine.medical_specialty, Nursing (miscellaneous), genetic structures, Hand therapy, Interviews as Topic, 030207 dermatology & venereal diseases, 03 medical and health sciences, 0302 clinical medicine, Recessive dystrophic epidermolysis bullosa, Humans, Medicine, Epidermolysis bullosa, Child, book, Wound Healing, Experience-based codesign, integumentary system, business.industry, 030208 emergency & critical care medicine, Equipment Design, Focus Groups, Medical device development, Hand, medicine.disease, Dermatology, Novel dressing glove, Epidermolysis Bullosa Dystrophica, book.journal, Fundamentals and skills, Gloves, Protective, business, human activities

وصف الملف: application/pdf

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::9f1d2f32d68f62f9b6244c437cecd16f
https://doi.org/10.12968/jowc.2019.28.1.5

المؤلفون: Gerard E. Mullin, Stephen M. Belkoff, Rachel Box

المصدر: Global Advances in Health and Medicine

مصطلحات موضوعية: maldigestion, medicine.medical_treatment, lactase, Population, Osteoporosis, Pasteurization, Lactose, law.invention, chemistry.chemical_compound, fluids and secretions, law, Environmental health, medicine, Food science, education, Dietary calcium, Original Research, education.field_of_study, business.industry, raw milk, food and beverages, Lactase, General Medicine, Raw milk, medicine.disease, chemistry, Lactose maldigestion, business

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::36725d65fc2337f515cc4d64e1a79772
https://doi.org/10.7453/gahmj.2014.041

المؤلفون: Rachel Box, Catina Bernardis

المصدر: Dermatologic Clinics. 28:335-341

مصطلحات موضوعية: Hand deformity, medicine.medical_specialty, Contracture, integumentary system, business.industry, Hand Dermatoses, Skin Transplantation, Dermatology, medicine.disease, Epidermolysis Bullosa Dystrophica, Surgery, Splints, Pseudosyndactyly, Recessive dystrophic epidermolysis bullosa, Deformity, medicine, Humans, Syndactyly, Epidermolysis bullosa, medicine.symptom, business, Muscle contracture

URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::63504d5660627b43b73aa808ccf5d296
https://doi.org/10.1016/j.det.2010.01.013

المؤلفون: Jain A; c/o Rachel Box, MS, ELS, Senior Editor, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224-2780. E-mail address: rbox1@jhmi.edu., Sponseller PD; c/o Rachel Box, MS, ELS, Senior Editor, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224-2780. E-mail address: rbox1@jhmi.edu., Newton PO; Department of Orthopedics, Rady Children's Hospital of San Diego, 3020 Children's Way MC 5062, San Diego, CA 92123., Shah SA; Nemours/Alfred I. duPont Hospital for Children, 1600 Rockland Road, Wilmington, DE 19803., Cahill PJ; Department of Orthopaedic Surgery, Shriners Hospitals for Children, Philadelphia, 3551 N. Broad Street, Philadelphia, PA 19140., Njoku DB; c/o Rachel Box, MS, ELS, Senior Editor, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224-2780. E-mail address: rbox1@jhmi.edu., Betz RR; Institute for Spine and Scoliosis, 3100 Princeton Pike, Lawrenceville, New Jersey 08648., Samdani AF; Department of Orthopaedic Surgery, Shriners Hospitals for Children, Philadelphia, 3551 N. Broad Street, Philadelphia, PA 19140., Bastrom TP; Department of Orthopedics, Rady Children's Hospital of San Diego, 3020 Children's Way MC 5062, San Diego, CA 92123., Marks MC; Department of Orthopedics, Rady Children's Hospital of San Diego, 3020 Children's Way MC 5062, San Diego, CA 92123.

مؤلفون مشاركون: Harms Study Group

المصدر: The Journal of bone and joint surgery. American volume [J Bone Joint Surg Am] 2015 Mar 18; Vol. 97 (6), pp. 507-11.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Journal of Bone and Joint Surgery Country of Publication: United States NLM ID: 0014030 Publication Model: Print Cited Medium: Internet ISSN: 1535-1386 (Electronic) Linking ISSN: 00219355 NLM ISO Abbreviation: J Bone Joint Surg Am Subsets: MEDLINE

مواضيع طبية MeSH: Blood Loss, Surgical* , Body Size* , Spinal Fusion*, Cerebral Palsy/*surgery , Kyphosis/*surgery , Scoliosis/*surgery, Adolescent ; Blood Volume ; Female ; Humans ; Male ; Retrospective Studies ; Treatment Outcome

المؤلفون: Fuhrhop SK; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224-2780. E-mail address for R. Box: rbox1@jhmi.edu., McElroy MJ; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224-2780. E-mail address for R. Box: rbox1@jhmi.edu., Dietz HC 3rd; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224-2780. E-mail address for R. Box: rbox1@jhmi.edu., MacCarrick GL; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224-2780. E-mail address for R. Box: rbox1@jhmi.edu., Sponseller PD; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224-2780. E-mail address for R. Box: rbox1@jhmi.edu.

المصدر: The Journal of bone and joint surgery. American volume [J Bone Joint Surg Am] 2015 Mar 04; Vol. 97 (5), pp. 411-9.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Journal of Bone and Joint Surgery Country of Publication: United States NLM ID: 0014030 Publication Model: Print Cited Medium: Internet ISSN: 1535-1386 (Electronic) Linking ISSN: 00219355 NLM ISO Abbreviation: J Bone Joint Surg Am Subsets: MEDLINE

مواضيع طبية MeSH: Cervical Vertebrae/*abnormalities , Cervical Vertebrae/*diagnostic imaging , Joint Instability/*diagnostic imaging , Joint Instability/*epidemiology , Loeys-Dietz Syndrome/*diagnostic imaging , Loeys-Dietz Syndrome/*epidemiology, Adolescent ; Adult ; Aged ; Cervical Vertebrae/surgery ; Child ; Child, Preschool ; Comorbidity ; Female ; Humans ; Infant ; Joint Instability/surgery ; Kyphosis/diagnostic imaging ; Kyphosis/epidemiology ; Male ; Middle Aged ; Postoperative Complications/epidemiology ; Prevalence ; Radiography ; Reoperation ; Spinal Fusion/methods ; Spinal Fusion/statistics & numerical data ; Spondylolysis/diagnostic imaging ; Spondylolysis/epidemiology ; Spondylolysis/surgery ; Young Adult

المؤلفون: Puvanesarajah V; c/o Rachel Box, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University, Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224-2780. E-mail address: rbox1@jhmi.edu., Shapiro JR; c/o Rachel Box, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University, Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224-2780. E-mail address: rbox1@jhmi.edu., Sponseller PD; c/o Rachel Box, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University, Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224-2780. E-mail address: rbox1@jhmi.edu.

المصدر: The Journal of bone and joint surgery. American volume [J Bone Joint Surg Am] 2015 Feb 18; Vol. 97 (4), pp. 318-25.

نوع المنشور: Case Reports; Clinical Trial; Journal Article

بيانات الدورية: Publisher: Journal of Bone and Joint Surgery Country of Publication: United States NLM ID: 0014030 Publication Model: Print Cited Medium: Internet ISSN: 1535-1386 (Electronic) Linking ISSN: 00219355 NLM ISO Abbreviation: J Bone Joint Surg Am Subsets: MEDLINE

مواضيع طبية MeSH: Allografts/*transplantation , Bone Transplantation/*methods , Fractures, Ununited/*etiology , Fractures, Ununited/*surgery , Osteogenesis Imperfecta/*complications , Osteogenesis Imperfecta/*surgery, Adolescent ; Adult ; Aged ; Bone Morphogenetic Protein 2/therapeutic use ; Child ; Female ; Follow-Up Studies ; Fractures, Ununited/diagnostic imaging ; Humans ; Male ; Middle Aged ; Osteogenesis Imperfecta/diagnostic imaging ; Postoperative Care/methods ; Radiography ; Recombinant Proteins/therapeutic use ; Retrospective Studies ; Transplantation, Homologous ; Treatment Outcome ; Young Adult

المؤلفون: Helenius I; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224. E-mail address for R. Box: rbox1@jhmi.edu., Crawford H; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224. E-mail address for R. Box: rbox1@jhmi.edu., Sponseller PD; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224. E-mail address for R. Box: rbox1@jhmi.edu., Odent T; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224. E-mail address for R. Box: rbox1@jhmi.edu., Bernstein RM; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224. E-mail address for R. Box: rbox1@jhmi.edu., Stans AA; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224. E-mail address for R. Box: rbox1@jhmi.edu., Hedequist D; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224. E-mail address for R. Box: rbox1@jhmi.edu., Phillips JH; c/o Rachel Box, MS, ELS, Senior Editor and Director, Editorial Services, Department of Orthopaedic Surgery, The Johns Hopkins University/Johns Hopkins Bayview Medical Center, 4940 Eastern Avenue, #A665, Baltimore, MD 21224. E-mail address for R. Box: rbox1@jhmi.edu.

المصدر: The Journal of bone and joint surgery. American volume [J Bone Joint Surg Am] 2015 Feb 04; Vol. 97 (3), pp. 232-40.

نوع المنشور: Comparative Study; Journal Article; Multicenter Study

بيانات الدورية: Publisher: Journal of Bone and Joint Surgery Country of Publication: United States NLM ID: 0014030 Publication Model: Print Cited Medium: Internet ISSN: 1535-1386 (Electronic) Linking ISSN: 00219355 NLM ISO Abbreviation: J Bone Joint Surg Am Subsets: MEDLINE

مواضيع طبية MeSH: Atlanto-Axial Joint/*surgery , Atlanto-Occipital Joint/*surgery , Bone Diseases, Developmental/*surgery , Cervical Vertebrae/*surgery , Joint Instability/*surgery , Spinal Fusion/*methods, Adolescent ; Bone Diseases, Developmental/complications ; Child ; Child, Preschool ; Female ; Humans ; Infant ; Joint Instability/etiology ; Male ; Retrospective Studies ; Spinal Fusion/instrumentation ; Treatment Outcome