يعرض 1 - 3 نتائج من 3 نتيجة بحث عن '"Registry Hub"', وقت الاستعلام: 0.81s تنقيح النتائج
  1. 1
    دورية أكاديمية
    EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders

    المؤلفون: Antonio Atalaia, Dagmar Wandrei, Nawel Lalout, Rachel Thompson, Adrian Tassoni, Peter A. C. ’t Hoen, Dimitrios Athanasiou, Suzie-Ann Baker, Paraskevi Sakellariou, Georgios Paliouras, Carla D’Angelo, Rita Horvath, Michelangelo Mancuso, Nadine van der Beek, Cornelia Kornblum, Janbernd Kirschner, Davide Pareyson, Guillaume Bassez, Laura Blacas, Maxime Jacoupy, Catherine Eng, François Lamy, Jean-Philippe Plançon, Jana Haberlova, Esther Brusse, Janneke G. J. Hoeijmakers, Marianne de Visser, Kristl G. Claeys, Carmen Paradas, Antonio Toscano, Vincenzo Silani, Melinda Gyenge, Evy Reviers, Dalil Hamroun, Elisabeth Vroom, Mark D. Wilkinson, Hanns Lochmuller, Teresinha Evangelista

    المصدر: Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-15 (2024)

    مصطلحات موضوعية: Registry, Registry Hub, Neuromuscular Diseases, Rare Diseases, FAIR data, Medicine

    وصف الملف: electronic resource

    Relation: https://doaj.org/toc/1750-1172

    URL الوصول: https://doaj.org/article/50645335f24240a3b4537c13391b28b5

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  2. 2
    دورية أكاديمية
    EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders

    المؤلفون: Atalaia, AntonioAff1, IDs13023024030593_cor1, Wandrei, Dagmar, Lalout, NawelAff3, Aff4, Thompson, Rachel, Tassoni, Adrian, ’t Hoen, Peter A. C., Athanasiou, Dimitrios, Baker, Suzie-Ann, Sakellariou, Paraskevi, Paliouras, Georgios, D’Angelo, Carla, Horvath, Rita, Mancuso, Michelangelo, van der Beek, Nadine, Kornblum, Cornelia, Kirschner, Janbernd, Pareyson, Davide, Bassez, Guillaume, Blacas, Laura, Jacoupy, Maxime, Eng, Catherine, Lamy, François, Plançon, Jean-Philippe, Haberlova, Jana, Brusse, Esther, Hoeijmakers, Janneke G. J., de Visser, Marianne, Claeys, Kristl G., Paradas, Carmen, Toscano, Antonio, Silani, Vincenzo, Gyenge, Melinda, Reviers, Evy, Hamroun, Dalil, Vroom, Elisabeth, Wilkinson, Mark D., Lochmuller, HannsAff5, Aff13, Evangelista, Teresinha

    المصدر: Orphanet Journal of Rare Diseases. 19(1)

    Find this article in full text from Springer Verlag. Find this article in full text from ProQuest Full Text Finder
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  3. 3
    دورية أكاديمية
    Cancer Registration in the Caribbean.

    المؤلفون: Quesnel-Crooks S, Martin DN, Hanisch R, Kohler B, Mery L, Edwards BK, Andall-Brereton G

    المصدر: Journal of registry management [J Registry Manag] 2020 Fall; Vol. 47 (3), pp. 161-169.

    نوع المنشور: Journal Article

    بيانات الدورية: Publisher: National Cancer Registrars Association, Inc Country of Publication: United States NLM ID: 9804163 Publication Model: Print Cited Medium: Print ISSN: 1945-6123 (Print) Linking ISSN: 19456131 NLM ISO Abbreviation: J Registry Manag Subsets: MEDLINE

    مواضيع طبية MeSH: Neoplasms*/epidemiology, Caribbean Region ; Humans ; Registries

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