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1دورية أكاديمية
المؤلفون: Antonio Atalaia, Dagmar Wandrei, Nawel Lalout, Rachel Thompson, Adrian Tassoni, Peter A. C. ’t Hoen, Dimitrios Athanasiou, Suzie-Ann Baker, Paraskevi Sakellariou, Georgios Paliouras, Carla D’Angelo, Rita Horvath, Michelangelo Mancuso, Nadine van der Beek, Cornelia Kornblum, Janbernd Kirschner, Davide Pareyson, Guillaume Bassez, Laura Blacas, Maxime Jacoupy, Catherine Eng, François Lamy, Jean-Philippe Plançon, Jana Haberlova, Esther Brusse, Janneke G. J. Hoeijmakers, Marianne de Visser, Kristl G. Claeys, Carmen Paradas, Antonio Toscano, Vincenzo Silani, Melinda Gyenge, Evy Reviers, Dalil Hamroun, Elisabeth Vroom, Mark D. Wilkinson, Hanns Lochmuller, Teresinha Evangelista
المصدر: Orphanet Journal of Rare Diseases, Vol 19, Iss 1, Pp 1-15 (2024)
مصطلحات موضوعية: Registry, Registry Hub, Neuromuscular Diseases, Rare Diseases, FAIR data, Medicine
وصف الملف: electronic resource
Relation: https://doaj.org/toc/1750-1172
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2دورية أكاديمية
المؤلفون: Atalaia, AntonioAff1, IDs13023024030593_cor1, Wandrei, Dagmar, Lalout, NawelAff3, Aff4, Thompson, Rachel, Tassoni, Adrian, ’t Hoen, Peter A. C., Athanasiou, Dimitrios, Baker, Suzie-Ann, Sakellariou, Paraskevi, Paliouras, Georgios, D’Angelo, Carla, Horvath, Rita, Mancuso, Michelangelo, van der Beek, Nadine, Kornblum, Cornelia, Kirschner, Janbernd, Pareyson, Davide, Bassez, Guillaume, Blacas, Laura, Jacoupy, Maxime, Eng, Catherine, Lamy, François, Plançon, Jean-Philippe, Haberlova, Jana, Brusse, Esther, Hoeijmakers, Janneke G. J., de Visser, Marianne, Claeys, Kristl G., Paradas, Carmen, Toscano, Antonio, Silani, Vincenzo, Gyenge, Melinda, Reviers, Evy, Hamroun, Dalil, Vroom, Elisabeth, Wilkinson, Mark D., Lochmuller, HannsAff5, Aff13, Evangelista, Teresinha
المصدر: Orphanet Journal of Rare Diseases. 19(1)
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3دورية أكاديمية
المؤلفون: Quesnel-Crooks S, Martin DN, Hanisch R, Kohler B, Mery L, Edwards BK, Andall-Brereton G
المصدر: Journal of registry management [J Registry Manag] 2020 Fall; Vol. 47 (3), pp. 161-169.
نوع المنشور: Journal Article
بيانات الدورية: Publisher: National Cancer Registrars Association, Inc Country of Publication: United States NLM ID: 9804163 Publication Model: Print Cited Medium: Print ISSN: 1945-6123 (Print) Linking ISSN: 19456131 NLM ISO Abbreviation: J Registry Manag Subsets: MEDLINE
مواضيع طبية MeSH: Neoplasms*/epidemiology, Caribbean Region ; Humans ; Registries