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المؤلفون: Gamel B; Children's Health Cystic Fibrosis Center, The University of Texas Southwestern Medical Center, Dallas, Texas, USA., Albon D; University of Virginia School of Medicine, Charlottesville, Virginia, USA., Bandla S; Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA., Davison DW; Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA., Flath J; University of Minnesota, Minneapolis, Minnesota, USA., Sabadosa KA; Cystic Fibrosis Foundation, Bethesda, Maryland, USA., Seid M; Pulmonary Medicine and Anderson Center for Health Systems Excellence, Cincinnati Children's Hospital, Cincinnati, Ohio, USA., Silva L; Doernbecher Children's Hospital, Oregon Health & Science University, Portland, Oregon, USA., Ong T; Pediatrics, University of Washington, Seattle, Washington, USA thida.ong@seattlechildrens.org.; Pulmonary and Sleep Medicine, Seattle Children's Hospital, Seattle, WA, USA.

مؤلفون مشاركون: Cystic Fibrosis Learning Network Group

المصدر: BMJ open quality [BMJ Open Qual] 2024 Jul 27; Vol. 13 (3). Date of Electronic Publication: 2024 Jul 27.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: BMJ Publishing Group Country of Publication: England NLM ID: 101710381 Publication Model: Electronic Cited Medium: Internet ISSN: 2399-6641 (Electronic) Linking ISSN: 23996641 NLM ISO Abbreviation: BMJ Open Qual Subsets: MEDLINE

مواضيع طبية MeSH: Cystic Fibrosis*/therapy , Quality Improvement*, Humans ; Learning Health System/methods ; Learning Health System/statistics & numerical data ; Male ; Female

المؤلفون: Leslie LK; American Board of Pediatrics, Chapel Hill, North Carolina.; Tufts University School of Medicine, Boston, Massachusetts., Orr CJ; University of North Carolina School of Medicine at Chapel Hill, ChapelHill, North Carolina., Turner AL; American Board of Pediatrics, Chapel Hill, North Carolina., Mink R; The Lundquist Institute for Biomedical Innovation at Harbor-UCLA Medical Center and the David Geffen School of Medicine at UCLA, Torrance, California., Leonard MB; Stanford University School of Medicine, Palo Alto, California., Sabadosa KA; Cystic Fibrosis Foundation, Bethesda, Maryland., Vinci RJ; Boston Medical Center, Boston University Chobanian and Avedisian School of Medicine, Boston, Massachusetts.

المصدر: Pediatrics [Pediatrics] 2024 Feb 01; Vol. 153 (Suppl 2).

نوع المنشور: Journal Article

بيانات الدورية: Publisher: American Academy of Pediatrics Country of Publication: United States NLM ID: 0376422 Publication Model: Print Cited Medium: Internet ISSN: 1098-4275 (Electronic) Linking ISSN: 00314005 NLM ISO Abbreviation: Pediatrics Subsets: MEDLINE

مواضيع طبية MeSH: Diabetes Mellitus, Type 2* , Medicine*, Adult ; Humans ; Child ; Young Adult ; Child Health ; Anxiety ; Hospitals, Pediatric

المؤلفون: Groves PS; University of Iowa, IA, USA., Bunch JL; University of Iowa, IA, USA., Hanrahan KM; University of Iowa, IA, USA.; University of Iowa Hospitals and Clinics, Iowa City, IA, USA., Sabadosa KA; Cystic Fibrosis Foundation, Bethesda, MD, USA., Sharp B; University of Iowa, IA, USA.; University of Iowa Hospitals and Clinics, Iowa City, IA, USA., Williams JK; University of Iowa, IA, USA.

المصدر: Clinical nursing research [Clin Nurs Res] 2023 Jan; Vol. 32 (1), pp. 105-114. Date of Electronic Publication: 2022 Oct 17.

نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't; Research Support, N.I.H., Extramural

بيانات الدورية: Publisher: Sage Periodicals Press Country of Publication: United States NLM ID: 9208508 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1552-3799 (Electronic) Linking ISSN: 10547738 NLM ISO Abbreviation: Clin Nurs Res

مواضيع طبية MeSH: Pandemics* , COVID-19*/epidemiology, Humans ; Hospitals ; Communication ; Patients ; Patient Safety ; Qualitative Research

المؤلفون: Prickett MH; Division of Pulmonary and Critical Care, Department of Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA. Electronic address: Michelle.prickett@nm.org., Flume PA; Medical University of South Carolina, Charleston, SC, USA., Sabadosa KA; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814 USA., Tran QT; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814 USA., Marshall BC; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814 USA.

المصدر: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2023 Jan; Vol. 22 (1), pp. 9-16. Date of Electronic Publication: 2022 Jul 22.

نوع المنشور: Journal Article; Review; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 101128966 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-5010 (Electronic) Linking ISSN: 15691993 NLM ISO Abbreviation: J Cyst Fibros Subsets: MEDLINE

مواضيع طبية MeSH: Cystic Fibrosis*/therapy , COVID-19* , Telemedicine*, Adult ; Humans ; Cystic Fibrosis Transmembrane Conductance Regulator ; Pandemics

المؤلفون: Van Citters AD; The Dartmouth Institute for Health Policy and Clinical Practice Geisel School of Medicine Lebanon New Hampshire USA., Buus-Frank ME; The Dartmouth Institute for Health Policy and Clinical Practice Geisel School of Medicine Lebanon New Hampshire USA.; Department of Pediatrics Dartmouth Health Children's Lebanon New Hampshire USA., King JR; The Dartmouth Institute for Health Policy and Clinical Practice Geisel School of Medicine Lebanon New Hampshire USA., Seid M; Division of Pulmonary Medicine Cincinnati Children's Hospital Medical Center and the University of Cincinnati College of Medicine Cincinnati Ohio USA.; James M Anderson Center for Health Systems Excellence Cincinnati Children's Hospital Medical Center Cincinnati OH USA., Holthoff MM; The Dartmouth Institute for Health Policy and Clinical Practice Geisel School of Medicine Lebanon New Hampshire USA., Amin RS; Division of Pulmonary Medicine Cincinnati Children's Hospital Medical Center and the University of Cincinnati College of Medicine Cincinnati Ohio USA., Britto MT; James M Anderson Center for Health Systems Excellence Cincinnati Children's Hospital Medical Center Cincinnati OH USA., Nelson EC; The Dartmouth Institute for Health Policy and Clinical Practice Geisel School of Medicine Lebanon New Hampshire USA., Marshall BC; Cystic Fibrosis Foundation Bethesda Maryland USA., Sabadosa KA; Cystic Fibrosis Foundation Bethesda Maryland USA.

المصدر: Learning health systems [Learn Health Syst] 2022 Dec 20; Vol. 7 (3), pp. e10356. Date of Electronic Publication: 2022 Dec 20 (Print Publication: 2023).

نوع المنشور: Journal Article; Comment

بيانات الدورية: Publisher: Wiley, published in collaboration with the University of Michigan Country of Publication: United States NLM ID: 101708071 Publication Model: eCollection Cited Medium: Internet ISSN: 2379-6146 (Electronic) Linking ISSN: 23796146 NLM ISO Abbreviation: Learn Health Syst Subsets: PubMed not MEDLINE

المؤلفون: Ong T; Division of Pulmonary and Sleep Medicine, Department of Pediatrics University of Washington, Seattle Children's Hospital Seattle Washington USA., Albon D; Division of Pulmonary Medicine, Department of Internal Medicine UVA Charlottesville Virginia USA., Amin RS; Division of Pulmonary and Sleep Medicine, Department of Pediatrics Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA., Bailey J; Division of Pulmonary, Allergy and Critical Care Medicine University of Alabama at Birmingham Birmingham Alabama USA., Bandla S; James M. Anderson Center for Health Systems Excellence Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA., Britto MT; James M. Anderson Center for Health Systems Excellence Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA., Flath J; Cystic Fibrosis Center, Division of Pulmonary, Allergy, Critical Care, and Sleep Medicine University of Minnesota Minneapolis Minnesota USA., Gamel B; Children's Health Pediatric Cystic Fibrosis Center Dallas UTSW Dallas Texas USA., Powers M; Pediatrics Doernbecher Children's Hospital OHSU Portland Oregon USA., Sabadosa KA; Cystic Fibrosis Foundation Bethesda Maryland USA., Saulitis AK; Adult and Pediatric Cystic Fibrosis Care Centers Rush University Medical Center Chicago Illinois USA., Thomas LK; Cystic Fibrosis Center Children's of Alabama Children's of Alabama Birmingham Alabama USA., Thurmond S; Division of Pulmonary and Sleep Medicine, Department of Pediatrics Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA., Seid M; Division of Pulmonary and Sleep Medicine, Department of Pediatrics Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA.

مؤلفون مشاركون: Cystic Fibrosis Learning Network

المصدر: Learning health systems [Learn Health Syst] 2022 Dec 19; Vol. 7 (3), pp. e10354. Date of Electronic Publication: 2022 Dec 19 (Print Publication: 2023).

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Wiley, published in collaboration with the University of Michigan Country of Publication: United States NLM ID: 101708071 Publication Model: eCollection Cited Medium: Internet ISSN: 2379-6146 (Electronic) Linking ISSN: 23796146 NLM ISO Abbreviation: Learn Health Syst Subsets: PubMed not MEDLINE

المؤلفون: Sawicki GS; Division of Pulmonary Medicine, Boston Children's Hospital, 300 Longwood Avenue, Boston, MA 02115 United States. Electronic address: gregory.sawicki@childrens.harvard.edu., Van Citters AD; The Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine at Dartmouth, Williamson Translational Research Building, Level 5, One Medical Center Drive, Lebanon, NH 03766 United States., Dieni O; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814 United States., Sabadosa KA; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814 United States., Willis A; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814 United States., Benitez D; Keck Medical Center, University of Southern California, 1510 San Pablo Street Suite #514, Los Angeles, CA 90033 United States., Ong T; Division of Pulmonary and Sleep Medicine, Seattle Children's Hospital, M/S OC 7.720, PO Box 5371, Seattle, WA 98145 United States., Dasenbrook EC; Cleveland Clinic Respiratory Institute; 9500 Euclid Avenue; A90; Cleveland, OH 44141 United States.

المصدر: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2021 Dec; Vol. 20 Suppl 3, pp. 16-20.

نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 101128966 Publication Model: Print Cited Medium: Internet ISSN: 1873-5010 (Electronic) Linking ISSN: 15691993 NLM ISO Abbreviation: J Cyst Fibros Subsets: MEDLINE

مواضيع طبية MeSH: COVID-19*/epidemiology , COVID-19*/prevention & control , Continuity of Patient Care*/organization & administration , Continuity of Patient Care*/standards , Cystic Fibrosis*/economics , Cystic Fibrosis*/epidemiology , Cystic Fibrosis*/therapy , Health Services Accessibility*/organization & administration , Health Services Accessibility*/trends , Models, Organizational* , Telemedicine*/economics , Telemedicine*/methods, Adult ; Child ; Costs and Cost Analysis ; Health Services Needs and Demand ; Humans ; Organizational Innovation ; Personnel Staffing and Scheduling/organization & administration ; Reimbursement Mechanisms/trends ; SARS-CoV-2 ; United States/epidemiology

المؤلفون: Solomon GM; University of Alabama at Birmingham, 1900 University Blvd THT 422, Birmingham, AL 35294, United States. Electronic address: gsolomon@uabmc.edu., Bailey J; University of Alabama at Birmingham, 1900 University Blvd THT 422, Birmingham, AL 35294, United States., Lawlor J; University of Alabama at Birmingham, 1900 University Blvd THT 422, Birmingham, AL 35294, United States., Scalia P; The Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine at Dartmouth, Williamson Translational Research Building, Level 5, One Medical Center Drive, Lebanon, NH 03766, United States., Sawicki GS; Division of Pulmonary Medicine, Boston Children's Hospital, 300 Longwood Avenue, Boston, MA 02115, United States., Dowd C; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814, United States., Sabadosa KA; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814, United States., Van Citters A; The Dartmouth Institute for Health Policy & Clinical Practice, Geisel School of Medicine at Dartmouth, Williamson Translational Research Building, Level 5, One Medical Center Drive, Lebanon, NH 03766, United States.

المصدر: Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2021 Dec; Vol. 20 Suppl 3, pp. 41-46.

نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 101128966 Publication Model: Print Cited Medium: Internet ISSN: 1873-5010 (Electronic) Linking ISSN: 15691993 NLM ISO Abbreviation: J Cyst Fibros Subsets: MEDLINE

مواضيع طبية MeSH: COVID-19*/epidemiology , COVID-19*/prevention & control , Communication Barriers* , Cystic Fibrosis*/epidemiology , Cystic Fibrosis*/psychology , Cystic Fibrosis*/therapy , Telemedicine*/methods , Telemedicine*/organization & administration , Telemedicine*/standards, Consumer Behavior/*statistics & numerical data , Disease Transmission, Infectious/*prevention & control, Adult ; Child ; Family Health ; Health Services Accessibility/organization & administration ; Health Services Accessibility/trends ; Humans ; Models, Organizational ; Patient Participation/methods ; Patient Participation/psychology ; Pediatrics/methods ; Pediatrics/trends ; Quality Improvement ; Quality of Health Care/trends ; SARS-CoV-2 ; United States/epidemiology