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1دورية أكاديمية
المؤلفون: Piette, Y, Van den Bossche, F, Aerts, J, Aerts, N, Ajeganova, S, Badot, V, Berghen, N, Blockmans, D, Brusselle, G, Caeyers, N, De Decker, M, De Haes, P, De Cock, C, De Keyser, F, De Langhe, E, Delcroix, M, De Nutte, H, De Pauw, M, Depicker, A, De Sutter, A, De Sutter, J, Du Four, T, Frank, C, Goubau, J, Guiot, Julien, Gutermuth, J, Heeman, L, Houssiau, F, Hennes, I, Lenaerts, J, Lintermans, A, Loeys, B, Luyten, H, Maeyaert, B, Malfait, F, Moeyersoons, A, Mostmans, Y, Nijs, J, Poppe, B, Polfliet, K, Ruttens, D, Sabato, V, Schoeters, E, Slabbynck, H, Stuer, A, Tamirou, F, Thevissen, Kristof, Van Kersschaever, G, Vanneuville, B, Van Offel, J, Vanthuyne, M, Van Wabeke, J, Verbist, C, Vos, I, Westhovens, R, Wuyts, W, Yserbyt, J, Smith, V
المصدر: Acta Clinica Belgica, 79 (1), 26 - 33 (2024-02)
مصطلحات موضوعية: European reference networks, Flemish Network of rare diseases, patient pathways, rare connective tissue diseases, systemic sclerosis, Humans, Rare Diseases/complications, Rare Diseases/epidemiology, Rare Diseases/therapy, Scleroderma, Systemic/diagnosis, Scleroderma, Systemic/therapy, Connective Tissue Diseases/diagnosis, Connective Tissue Diseases/complications, Lung Diseases, Interstitial/diagnosis, Lung Diseases, Interstitial/therapy, Lung Diseases, Interstitial/complications, Scleroderma, Diffuse, General Medicine, Human health sciences, Cardiovascular & respiratory systems, Rheumatology, Sciences de la santé humaine, Systèmes cardiovasculaire & respiratoire, Rhumatologie
Relation: https://www.tandfonline.com/doi/pdf/10.1080/17843286.2023.2280737; urn:issn:1784-3286; urn:issn:2295-3337
URL الوصول: https://orbi.uliege.be/handle/2268/311069
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2Ten Years of Interventional Research in Systemic Sclerosis: A Systematic Mapping of Trial Registries
المؤلفون: Ignacio Atal, Philippe Ravaud, Michele Iudici, Aida Bafeta
المصدر: Arthritis Care and Research, Vol. 72, No 1 (2020) pp. 140-148
مصطلحات موضوعية: Adult, Male, medicine.medical_specialty, Adolescent, MEDLINE, law.invention, Young Adult, 03 medical and health sciences, 0302 clinical medicine, Rheumatology, Randomized controlled trial, law, Interquartile range, Internal medicine, Epidemiology, Humans, Medicine, Registries, Young adult, Disease management (health), Aged, Retrospective Studies, 030203 arthritis & rheumatology, Clinical Trials as Topic, Scleroderma, Systemic, business.industry, Disease Management, Retrospective cohort study, Middle Aged, Clinical trial, Scleroderma, Systemic/therapy, Female, business, Forecasting
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المؤلفون: Julia Spierings, Madelon C. Vonk, Cornelia H. M. van den Ende, Jeska K de Vries-Bouwstra, Jaap M van Laar, Hein J. Bernelot Moens, Rita Schriemer, Lian de Pundert
المصدر: Clinical Rheumatology, 38, 1007-1015
Clinical Rheumatology, 38, 4, pp. 1007-1015
Clinical Rheumatology, 38(4), 1007. Springer London
Clinical Rheumatology, 38(4), 1007-1015مصطلحات موضوعية: Male, medicine.medical_specialty, Consensus, Referral, Patient-centered care, media_common.quotation_subject, Health Personnel, Systemic/therapy, Scleroderma, 03 medical and health sciences, 0302 clinical medicine, All institutes and research themes of the Radboud University Medical Center, Rheumatology, Multidisciplinary approach, Nominal group technique, Health care, medicine, Patient-Centered Care/standards, Journal Article, Humans, 030212 general & internal medicine, Quality improvement, media_common, 030203 arthritis & rheumatology, Teamwork, Health Services Needs and Demand, Scleroderma, Systemic, Shared care, business.industry, Medical record, General Medicine, Quality Improvement, Needs assessments, Family medicine, Needs assessment, Scleroderma, Systemic/therapy, Inflammatory diseases Radboud Institute for Health Sciences [Radboudumc 5], Consensus methods, Systemic sclerosis, Female, business, Needs Assessment
وصف الملف: application/pdf; image/pdf
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المؤلفون: Vidal, C, Ruano, C, Bernardino, V, Lavado Carreira, P, Lladó, A, Santos, MC, Gruner, H, Panarra, A, Riso, N, Moraes-Fontes, MF
مصطلحات موضوعية: Europe, Survival Rate, Time Factors, Treatment Outcome, Scleroderma, Systemic/therapy, HSM IMA, Scleroderma, Systemic/mortality, Registries, HCC MED, Scleroderma, Systemic/diagnosis
URL الوصول: https://explore.openaire.eu/search/publication?articleId=od______2340::17b26b40d6fba08e33e7bf7c7a6241e4
https://hdl.handle.net/10400.17/3038 -
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المؤلفون: Nuno Riso, Vera Bernardino, Maria Francisca Moraes-Fontes, Pedro Lavado Carreira, H. Gruner, Maria Céu Santos, António Panarra, Carina Ruano, Ana Lladó, Carolina Vidal
المصدر: Repositório Científico de Acesso Aberto de Portugal (Repositórios Cientìficos)
Agência para a Sociedade do Conhecimento (UMIC)-FCT-Sociedade da Informação
instacron:RCAAP
Acta Médica Portuguesa, Vol 31, Iss 6, Pp 312-320 (2018)
Acta Médica Portuguesa; v. 31, n. 6 (2018): Junho; 312-320
Repositório Científico de Acesso Aberto de Portugal
Repositório Científico de Acesso Aberto de Portugal (RCAAP)مصطلحات موضوعية: medicine.medical_specialty, Time Factors, Databases, Factual, Scleroderma, Systemic, Severity of Illness Index, lcsh:Medicine, Bases de Dados Factuais, Esclerose Sistémica, Índice de Gravidade de Doença, Scleroderma, Systemic/mortality, Disease, Scleroderma, Internal medicine, Severity of illness, medicine, Humans, Registries, Survival rate, Aged, lcsh:R5-920, business.industry, Mortality rate, lcsh:R, Interstitial lung disease, General Medicine, Middle Aged, medicine.disease, HCC MED, Scleroderma, Systemic/diagnosis, Europe, Survival Rate, Group Affiliation, Treatment Outcome, Cohort, Scleroderma, Systemic/therapy, HSM IMA, Female, business, lcsh:Medicine (General)
وصف الملف: application/pdf
URL الوصول: https://explore.openaire.eu/search/publication?articleId=doi_dedup___::18254af20ed1e4fe7729980a57bdb338
https://pubmed.ncbi.nlm.nih.gov/30332383 -
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المؤلفون: Laffitte, Emmanuel Alexis
المصدر: Annales de Dermatologie et de Venereologie, Vol. 141 Suppl 4 (2014) pp. S616-S621
مصطلحات موضوعية: Skin Diseases/drug therapy/immunology/therapy, Antiphospholipid Syndrome/complications/immunology, Thrombophilia/etiology, Antirheumatic Agents/therapeutic use, Autoimmune Diseases/drug therapy/immunology/therapy, Skin Diseases, Transplantation, Autologous, Autoimmune Diseases, Internal Medicine, Humans, Thrombophilia, Genetic Predisposition to Disease, Celiac Disease/genetics/immunology, Autoantibodies, ddc:616, Internal Medicine/trends, Biological Products, Scleroderma, Systemic, Hematopoietic Stem Cell Transplantation, Anticoagulants, Antiphospholipid Syndrome, Combined Modality Therapy, Celiac Disease, Anticoagulants/therapeutic use, Antirheumatic Agents, Scleroderma, Systemic/therapy, Immunosuppressive Agents/therapeutic use, Biological Products/therapeutic use, Autoantibodies/immunology, Immunosuppressive Agents
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المؤلفون: Kyriakidi, M., Ioannidis, J. P.
مصطلحات موضوعية: Male, Quality Control, Time Factors, Databases, Factual, Double-Blind Method, Randomized Controlled Trials as Topic/*methods/standards, Scleroderma, Systemic/*therapy, Sample Size, Humans, Female, Middle Aged, Research Design/standards/*trends
URL الوصول: https://explore.openaire.eu/search/publication?articleId=od_____10561::732a77308bb1761ebfbcbc8c94e3274d
http://olympias.lib.uoi.gr/jspui/handle/123456789/22582
Find this article in full text from Springer Verlag.