المؤلفون: Bon SBB; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands. s.b.b.bon@prinsesmaximacentrum.nl., Wouters RHP; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Department of Psychiatry, Amsterdam University Medical Center, University of Amsterdam, Amsterdam, The Netherlands., Bakhuizen JJ; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Department of Genetics, University Medical Center Utrecht, Utrecht, The Netherlands., Jongmans MCJ; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Department of Genetics, University Medical Center Utrecht, Utrecht, The Netherlands.; Division of Child Health, UMCU-Wilhelmina's Children's Hospital, Utrecht, The Netherlands., van den Heuvel-Eibrink MM; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Division of Child Health, UMCU-Wilhelmina's Children's Hospital, Utrecht, The Netherlands., Grootenhuis MA; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Division of Child Health, UMCU-Wilhelmina's Children's Hospital, Utrecht, The Netherlands.

المصدر: European journal of human genetics : EJHG [Eur J Hum Genet] 2024 May; Vol. 32 (5), pp. 567-575. Date of Electronic Publication: 2024 Feb 27.

نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Nature Publishing Group Country of Publication: England NLM ID: 9302235 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1476-5438 (Electronic) Linking ISSN: 10184813 NLM ISO Abbreviation: Eur J Hum Genet Subsets: MEDLINE

مواضيع طبية MeSH: Neoplasms*/genetics , Neoplasms*/psychology , Genetic Predisposition to Disease*, Humans ; Adolescent ; Female ; Male ; Child ; Germ-Line Mutation ; Genetic Counseling/psychology ; Genetic Testing/methods ; Qualitative Research ; Decision Making

المؤلفون: Wouters RHP; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Department of Psychiatry, Amsterdam UMC, Amsterdam, The Netherlands., van der Horst MZ; GGNet Mental Health, Warnsveld, The Netherlands.; Department of Psychiatry, University Medical Center Utrecht, Utrecht University, Brain Center, Utrecht, The Netherlands., Aalfs CM; Department of Clinical Genetics, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands., Bralten J; Department of Human Genetics, Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Nijmegen, The Netherlands., Luykx JJ; GGNet Mental Health, Warnsveld, The Netherlands.; Department of Psychiatry, University Medical Center Utrecht, Utrecht University, Brain Center, Utrecht, The Netherlands., Zinkstok JR; Department of Psychiatry, University Medical Center Utrecht, Utrecht University, Brain Center, Utrecht, The Netherlands.; Department of Psychiatry, Radboud University Medical Center, Nijmegen, The Netherlands.; Karakter Child and Adolescent Psychiatry, University Centre Nijmegen, Nijmegen, The Netherlands.

المصدر: Psychiatric genetics [Psychiatr Genet] 2024 Apr 01; Vol. 34 (2), pp. 31-36. Date of Electronic Publication: 2024 Mar 01.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Lippincott Williams & Wilkins Country of Publication: England NLM ID: 9106748 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1473-5873 (Electronic) Linking ISSN: 09558829 NLM ISO Abbreviation: Psychiatr Genet Subsets: MEDLINE

مواضيع طبية MeSH: Mental Disorders*/genetics , Psychiatry*, Humans ; Psychiatrists ; Multifactorial Inheritance/genetics ; Patient-Centered Care

المؤلفون: Bon SBB; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Wouters RHP; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Hol JA; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands., Jongmans MCJ; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Department of Genetics, University Medical Center Utrecht, Utrecht, The Netherlands.; Division of Child Health, UMCU-Wilhelmina's Children's Hospital, Utrecht, The Netherlands., van den Heuvel-Eibrink MM; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Division of Child Health, UMCU-Wilhelmina's Children's Hospital, Utrecht, The Netherlands., Grootenhuis MA; Princess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.; Division of Child Health, UMCU-Wilhelmina's Children's Hospital, Utrecht, The Netherlands.

المصدر: Psycho-oncology [Psychooncology] 2022 Oct; Vol. 31 (10), pp. 1692-1699. Date of Electronic Publication: 2022 Aug 25.

نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Wiley Country of Publication: England NLM ID: 9214524 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1099-1611 (Electronic) Linking ISSN: 10579249 NLM ISO Abbreviation: Psychooncology Subsets: MEDLINE

مواضيع طبية MeSH: Genetic Predisposition to Disease* , Kidney Neoplasms*/genetics, Child ; Child, Preschool ; Disclosure ; Female ; Humans ; Parents/psychology ; Qualitative Research

المؤلفون: Wouters RHP; Department of Medical Humanities, Julius Center, University Medical Center Utrecht, P.O. Box 85500, 3508 GA Utrecht, The Netherlands.; Princess Maxima Center for Pediatric Oncology, P.O. Box 113, 3720 AC Utrecht, The Netherlands., van der Graaf R; Department of Medical Humanities, Julius Center, University Medical Center Utrecht, P.O. Box 85500, 3508 GA Utrecht, The Netherlands., Rigter T; Department of Clinical Genetics, Section Community Genetics and Amsterdam Public Health Research Institute, Amsterdam University Medical Center, Vrije Universiteit, P.O. Box 7057, 1007 MB Amsterdam, The Netherlands., Bunnik EM; Department of Medical Ethics, Philosophy and History of Medicine, Erasmus MC, University Medical Centre Rotterdam, P.O. Box 2040, 3000 CA Rotterdam, The Netherlands., Ploem MC; Section Health Law, Department of Social Medicine, Amsterdam University Medical Center, University of Amsterdam, P.O. Box 22660, 1100 DD Amsterdam, The Netherlands., de Wert GMWR; Department of Health, Ethics and Society, Research School CAPHRI for Public Health and Primary Care, Research School GROW for Oncology and Developmental Biology, Maastricht University, P.O. Box 616, 6200 MD Maastricht, The Netherlands., Dondorp WJ; Department of Health, Ethics and Society, Research School CAPHRI for Public Health and Primary Care, Research School GROW for Oncology and Developmental Biology, Maastricht University, P.O. Box 616, 6200 MD Maastricht, The Netherlands., Cornel MC; Department of Clinical Genetics, Section Community Genetics and Amsterdam Public Health Research Institute, Amsterdam University Medical Center, Vrije Universiteit, P.O. Box 7057, 1007 MB Amsterdam, The Netherlands., Bredenoord AL; Department of Medical Humanities, Julius Center, University Medical Center Utrecht, P.O. Box 85500, 3508 GA Utrecht, The Netherlands.

المصدر: Journal of personalized medicine [J Pers Med] 2021 Jun 10; Vol. 11 (6). Date of Electronic Publication: 2021 Jun 10.

نوع المنشور: Journal Article; Review

بيانات الدورية: Publisher: MDPI AG Country of Publication: Switzerland NLM ID: 101602269 Publication Model: Electronic Cited Medium: Print ISSN: 2075-4426 (Print) Linking ISSN: 20754426 NLM ISO Abbreviation: J Pers Med Subsets: PubMed not MEDLINE

المؤلفون: Wouters RHP; Department of Medical Humanities, Julius Center for Health Sciences and Primary Care University Medical Center Utrecht/Utrecht University Utrecht The Netherlands., van der Graaf R; Department of Medical Humanities, Julius Center for Health Sciences and Primary Care University Medical Center Utrecht/Utrecht University Utrecht The Netherlands., Voest EE; Department of Medical Oncology Netherlands Cancer Institute Amsterdam The Netherlands., Bredenoord AL; Department of Medical Humanities, Julius Center for Health Sciences and Primary Care University Medical Center Utrecht/Utrecht University Utrecht The Netherlands.

المصدر: Learning health systems [Learn Health Syst] 2020 Jan 13; Vol. 4 (3), pp. e10211. Date of Electronic Publication: 2020 Jan 13 (Print Publication: 2020).

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Wiley, published in collaboration with the University of Michigan Country of Publication: United States NLM ID: 101708071 Publication Model: eCollection Cited Medium: Internet ISSN: 2379-6146 (Electronic) Linking ISSN: 23796146 NLM ISO Abbreviation: Learn Health Syst Subsets: PubMed not MEDLINE

المؤلفون: van Wijk MP; Department of Plastic Surgery, Isala Zwolle, the Netherlands. Electronic address: ma.van.wijk@isala.nl., Wouters RHP; Department of Medical Humanities, Julius Center, University Medical Center Utrecht, the Netherlands., Bredenoord AL; Department of Medical Humanities, Julius Center, University Medical Center Utrecht, the Netherlands., Kon M; Department of Plastic Surgery, Wilhelmina Children's hospital, University Medical Center Utrecht, the Netherlands., Breugem CC; Emma Children's Hospital UMC Amsterdam.

المصدر: Journal of plastic, reconstructive & aesthetic surgery : JPRAS [J Plast Reconstr Aesthet Surg] 2019 Aug; Vol. 72 (8), pp. 1396-1402. Date of Electronic Publication: 2019 Apr 11.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Elsevier Country of Publication: Netherlands NLM ID: 101264239 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1878-0539 (Electronic) Linking ISSN: 17486815 NLM ISO Abbreviation: J Plast Reconstr Aesthet Surg Subsets: MEDLINE

مواضيع طبية MeSH: Ear Auricle/*abnormalities , Splints/*ethics, Decision Making ; Health Education ; Humans ; Infant, Newborn ; Neonatal Screening ; Parents/psychology ; Uncertainty ; World Health Organization

المؤلفون: Warreman EB; Department of Infectious Diseases, Leiden University Medical Centre, The Netherlands., Lambregts MMC; Department of Infectious Diseases, Leiden University Medical Centre, The Netherlands. Electronic address: m.m.c.lambregts@lumc.nl., Wouters RHP; Department of Medical Humanities, Utrecht University Medical Centre, The Netherlands., Visser LG; Department of Infectious Diseases, Leiden University Medical Centre, The Netherlands., Staats H; Faculty of Social and Behavioural Sciences, Leiden University, The Netherlands., van Dijk E; Faculty of Social and Behavioural Sciences, Leiden University, The Netherlands., de Boer MGJ; Department of Infectious Diseases, Leiden University Medical Centre, The Netherlands.

المصدر: Clinical microbiology and infection : the official publication of the European Society of Clinical Microbiology and Infectious Diseases [Clin Microbiol Infect] 2019 May; Vol. 25 (5), pp. 538-545. Date of Electronic Publication: 2018 Sep 27.

نوع المنشور: Journal Article; Systematic Review

بيانات الدورية: Publisher: Elsevier Country of Publication: England NLM ID: 9516420 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1469-0691 (Electronic) Linking ISSN: 1198743X NLM ISO Abbreviation: Clin Microbiol Infect

مواضيع طبية MeSH: Hospitals*, Anti-Bacterial Agents/*therapeutic use , Practice Patterns, Physicians'/*statistics & numerical data , Prescriptions/*statistics & numerical data, Developed Countries ; Humans

عنوان ترانسليتريتد: Genoombreed onderzoek in de spreekkamer.

المؤلفون: Wouters RHP; UMC Utrecht, afd. Medical Humanities, Julius Centrum.; Contact: R.H.P. Wouters (r.h.p.wouters-2@umcutrecht.nl)., Bijlsma RM; UMC Utrecht, afd. Medische Oncologie, Cancer Center., Voest EE; NKI-AvL, afd. Medische Oncologie., Bredenoord AL; UMC Utrecht, afd. Medical Humanities, Julius Centrum.

المصدر: Nederlands tijdschrift voor geneeskunde [Ned Tijdschr Geneeskd] 2018 Jun 15; Vol. 162. Date of Electronic Publication: 2018 Jun 15.

نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Vereniging NTvG Country of Publication: Netherlands NLM ID: 0400770 Publication Model: Electronic Cited Medium: Internet ISSN: 1876-8784 (Electronic) Linking ISSN: 00282162 NLM ISO Abbreviation: Ned Tijdschr Geneeskd Subsets: MEDLINE

مواضيع طبية MeSH: Genome, Human* , Incidental Findings*, General Practice/*ethics , General Practitioners/*ethics , Practice Patterns, Physicians'/*ethics , Precision Medicine/*ethics , Whole Genome Sequencing/*ethics, Decision Making ; Family ; Genomics/ethics ; Humans ; Informed Consent/ethics ; Morals ; Patient Selection/ethics ; Social Responsibility

عنوان ترانسليتريتد: Genoombreed onderzoek in de spreekkamer.

المؤلفون: Wouters RHP; UMC Utrecht, afd. Medical Humanities, Julius Centrum.; Contact: R.H.P. Wouters (r.h.p.wouters-2@umcutrecht.nl)., Bijlsma RM; UMC Utrecht, afd. Medische Oncologie, Cancer Center., Voest EE; NKI-AvL, afd. Medische Oncologie., Bredenoord AL; UMC Utrecht, afd. Medical Humanities, Julius Centrum.

المصدر: Nederlands tijdschrift voor geneeskunde [Ned Tijdschr Geneeskd] 2018 Jun 15; Vol. 162. Date of Electronic Publication: 2018 Jun 15.

نوع المنشور: Journal Article

بيانات الدورية: Publisher: Vereniging NTvG Country of Publication: Netherlands NLM ID: 0400770 Publication Model: Electronic Cited Medium: Internet ISSN: 1876-8784 (Electronic) Linking ISSN: 00282162 NLM ISO Abbreviation: Ned Tijdschr Geneeskd Subsets: MEDLINE

مواضيع طبية MeSH: Genetic Privacy/*ethics , Practice Patterns, Physicians'/*ethics, Humans ; Needs Assessment ; Precision Medicine/ethics ; Whole Genome Sequencing/ethics

المؤلفون: Bijlsma RM; Department of Medical Oncology, Cancer Center, University Medical Center Utrecht, Q05.4.300, PO Box 85500, 3508 GA, Utrecht, The Netherlands. r.m.bijlsma@umcutrecht.nl., Wessels H; Department of Corporate Communications, University Medical Center Utrecht, Utrecht, The Netherlands., Wouters RHP; Department of Medical Humanities, Julius Center, University Medical Center Utrecht, Utrecht, The Netherlands., May AM; Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht, The Netherlands., Ausems MGEM; Department of Genetics, University Medical Center Utrecht, Utrecht, The Netherlands., Voest EE; Department of Medical Oncology, Netherlands Cancer Institute Antoni van Leeuwenhoek, Amsterdam, The Netherlands., Bredenoord AL; Department of Medical Humanities, Julius Center, University Medical Center Utrecht, Utrecht, The Netherlands.

المصدر: Familial cancer [Fam Cancer] 2018 Apr; Vol. 17 (2), pp. 309-316.

نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't

بيانات الدورية: Publisher: Springer Country of Publication: Netherlands NLM ID: 100898211 Publication Model: Print Cited Medium: Internet ISSN: 1573-7292 (Electronic) Linking ISSN: 13899600 NLM ISO Abbreviation: Fam Cancer Subsets: MEDLINE

مواضيع طبية MeSH: Decision Making* , Genetic Testing* , Precision Medicine*, Neoplastic Syndromes, Hereditary/*genetics , Patient Preference/*psychology, Adaptation, Psychological ; Adult ; Aged ; Family/psychology ; Female ; High-Throughput Nucleotide Sequencing ; Humans ; Intention ; Male ; Middle Aged ; Netherlands ; Professional-Patient Relations ; Qualitative Research ; Truth Disclosure