دورية أكاديمية
Validation of the Portuguese Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY) in Brazil.
| العنوان: | Validation of the Portuguese Simple Measure of Impact of Lupus Erythematosus in Youngsters (SMILEY) in Brazil. |
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| المؤلفون: | Moorthy LN; Pediatric Rheumatology, University of Medicine and Dentistry of New Jersey/Robert Wood Johnson Medical School, New Brunswick, NJ 08901, USA. lnmoorthy@mac.com, Saad-Magalhães C, Sato JO, Len CA, Vasco MB, Appenzeller S, Marini R, Oliveira SK, Rodrigues M, Sztajnbok F, Almeida RG, Jesus AA, Campos LM, Silva CA, Peterson MG, Hassett AL, Weiss E, Verma S, Dahodwala MQ, Lehman TJ |
| المصدر: | Lupus [Lupus] 2013 Feb; Vol. 22 (2), pp. 190-7. Date of Electronic Publication: 2012 Dec 20. |
| نوع المنشور: | Journal Article; Research Support, Non-U.S. Gov't; Validation Study |
| اللغة: | English |
| بيانات الدورية: | Publisher: SAGE Publications Country of Publication: England NLM ID: 9204265 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1477-0962 (Electronic) Linking ISSN: 09612033 NLM ISO Abbreviation: Lupus Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: London : SAGE Publications Original Publication: Houndmills, Basingstoke, Hampshire, UK : Scientific & Medical Division, Macmillan Press Ltd., c1991- |
| مواضيع طبية MeSH: | Quality of Life*, Lupus Erythematosus, Systemic/*diagnosis, Adolescent ; Brazil ; Child ; Child, Preschool ; Cross-Sectional Studies ; Female ; Health Status Indicators ; Humans ; Male ; Reproducibility of Results |
| مستخلص: | Background and Objective: Simple Measure of the Impact of Lupus Erythematosus in Youngsters (SMILEY) is a health-related quality of life (HRQOL) assessment tool for pediatric systemic lupus erythematosus (SLE), which has been translated into Portuguese for Brazil. We are reporting preliminary data on cross-cultural validation and reliability of SMILEY in Portuguese (Brazil). Methods: In this multi-center cross-sectional study, Brazilian children and adolescents 5-18 years of age with SLE and parents participated. Children and parents completed child and parent reports of Portuguese SMILEY and Portuguese Pediatric Quality of Life Inventory (PedsQL™) Generic and Rheumatology modules. Parents also completed the Childhood Health Assessment Questionnaire (CHAQ). Physicians completed the SLE disease activity index (SLEDAI), Physician's Global Assessment of disease activity (PGA) and Systemic Lupus Erythematosus International Collaborating Clinics ACR Damage Index (SDI). Results: 99 subjects (84 girls) were enrolled; 93 children and 97 parents filled out the SMILEY scale. Subjects found SMILEY relevant and easy to understand and completed SMILEY in 5-15 minutes. Brazilian SMILEY was found to have good psychometric properties (validity and reliability), and the child-parent agreement was moderate. Conclusion: SMILEY may eventually be used routinely as a research/clinical tool in Brazil. It may be also adapted for other Portuguese-speaking nations offering critical information regarding the effect of SLE on HRQOL for children with SLE. |
| تواريخ الأحداث: | Date Created: 20121222 Date Completed: 20130606 Latest Revision: 20191210 |
| رمز التحديث: | 20221213 |
| DOI: | 10.1177/0961203312470185 |
| PMID: | 23257403 |
| قاعدة البيانات: | MEDLINE |
Full Text Finder | تدمد: | 1477-0962 |
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| DOI: | 10.1177/0961203312470185 |