التفاصيل البيبلوغرافية
| العنوان: |
Mental Health and Well-Being in Mothers of Children With Rare Genetic Syndromes Showing Chronic Challenging Behavior: A Cross-Sectional and Longitudinal Study. |
| المؤلفون: |
Adams D; Dawn Adams, Griffith University, Queensland, Australia and University of Birmingham, UK., Clarke S; Samantha Clarke, University of Birmingham, UK., Griffith G; Dawn Adams, Griffith University, Queensland, Australia and University of Birmingham, UK., Howlin P; Pat Howlin, Kings College, London, UK., Moss J; Jo Moss, University of Birmingham, UK., Petty J; Jane Petty, University of Birmingham, UK and Kings College, London, UK., Tunnicliffe P; Penny Tunnicliffe, University of Birmingham, UK; and., Oliver C; Chris Oliver, University of Birmingham, UK. |
| المصدر: |
American journal on intellectual and developmental disabilities [Am J Intellect Dev Disabil] 2018 May; Vol. 123 (3), pp. 241-253. |
| نوع المنشور: |
Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't |
| اللغة: |
English |
| بيانات الدورية: |
Publisher: American Association on Intellectual and Developmental Disabilities Country of Publication: United States NLM ID: 101492916 Publication Model: Print Cited Medium: Print ISSN: 1944-7515 (Print) Linking ISSN: 19447558 NLM ISO Abbreviation: Am J Intellect Dev Disabil Subsets: MEDLINE |
| أسماء مطبوعة: |
Original Publication: Washington, DC : American Association on Intellectual and Developmental Disabilities |
| مواضيع طبية MeSH: |
Angelman Syndrome*/physiopathology , Angelman Syndrome*/psychology , Cri-du-Chat Syndrome*/physiopathology , Cri-du-Chat Syndrome*/psychology , De Lange Syndrome*/physiopathology , De Lange Syndrome*/psychology , Mental Health* , Problem Behavior*/psychology, Anxiety/*psychology , Depression/*psychology , Mothers/*psychology , Stress, Psychological/*psychology, Activities of Daily Living ; Adolescent ; Adult ; Case-Control Studies ; Child ; Cross-Sectional Studies ; Female ; Humans ; Longitudinal Studies ; Male ; Middle Aged ; Rare Diseases ; Young Adult |
| مستخلص: |
It is well documented that mothers of children with challenging behavior (CB) experience elevated levels of stress and that this persists over time, but less is known about the experience of mothers of children with rare genetic syndromes. This article describes 2 studies, 1 cross-sectional and 1 longitudinal, comparing well-being in mothers of children with Angelman, Cornelia de Lange and Cri du Chat syndrome who have either shown chronic CB ( n = 18) or low/no CB ( n = 26) in the preceding 7 years. The presence of chronic, long-term CB increased maternal stress but not depression or anxiety, and did not influence positive well-being. Stress relating specifically to their child's genetic syndrome reduced with age, highlighting the need for further exploration in this area. |
| معلومات مُعتمدة: |
PDF-2010-03-02 United Kingdom DH_ Department of Health; PDF-2010-03-02 International NIHR |
| فهرسة مساهمة: |
Keywords: challenging behavior; intellectual disabilities; mental health; syndrome |
| تواريخ الأحداث: |
Date Created: 20180420 Date Completed: 20180712 Latest Revision: 20210109 |
| رمز التحديث: |
20231215 |
| DOI: |
10.1352/1944-7558-123.3.241 |
| PMID: |
29671635 |
| قاعدة البيانات: |
MEDLINE |
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