دورية أكاديمية
Support received by family members before, at and after an ill person's death.
| العنوان: | Support received by family members before, at and after an ill person's death. |
|---|---|
| المؤلفون: | O'Sullivan A; Palliative Research Centre, Department of Healthcare Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden., Alvariza A; Palliative Research Centre, Department of Healthcare Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden.; Capio Palliative Care, Dalen Hospital, Stockholm, Sweden., Öhlén J; Centre for Person-Centered Care, University of Gothenburg, Gothenburg, Sweden.; Institute of Health and Care Sciences, Sahlgrenska Academy At the University of Gothenburg, Gothenburg, Sweden.; Palliative Centre, Sahlgrenska University Hospital Västra Götaland Region, Gothenburg, Sweden., Larsdotter C; Palliative Research Centre, Department of Healthcare Sciences, Ersta Sköndal Bräcke University College, Stockholm, Sweden. cecilia.larsdotter@shh.se.; Department of Nursing Science, Sophiahemmet University, P.O. Box 5605, 114 86, Stockholm, Sweden. cecilia.larsdotter@shh.se. |
| المصدر: | BMC palliative care [BMC Palliat Care] 2021 Jun 24; Vol. 20 (1), pp. 92. Date of Electronic Publication: 2021 Jun 24. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: BioMed Central Country of Publication: England NLM ID: 101088685 Publication Model: Electronic Cited Medium: Internet ISSN: 1472-684X (Electronic) Linking ISSN: 1472684X NLM ISO Abbreviation: BMC Palliat Care Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: London : BioMed Central, [2002- |
| مواضيع طبية MeSH: | Bereavement* , Terminal Care*, Cross-Sectional Studies ; Family ; Female ; Grief ; Humans ; Infant, Newborn ; Male ; Retrospective Studies |
| مستخلص: | Background: It is widely recognised, that family members are central to care of people with advanced illness, and that support should be provided to all family members in need thereof. The aim of this study was to investigate family members' experiences of support received during the last three months of life, at the time of death and after the death of a person with advanced illness. Methods: A retrospective cross-sectional survey design was employed, using the VOICES(SF) questionnaire and multiple methods for data analyses. The sample consisted of 485 bereaved family members (aged: 20-90 years old, 70% women) of people who died in hospital between August 2016-April 2017. Results: Of the family members, 58,8% reported they had received enough help and support during the illness, whereas 30,2% had not. Family members' comments about support during the illness were mainly related to care the ill person had or had not received, rather than about support they themselves received. Of all family members, 52,8% reported having had enough support at the time of the ill person's death. Related to support at death, 14,6% reported that the imminence of death was not clear, which was described as having affected their opportunity to be with the dying person at the time of death. Of all, 25,2% had a follow-up conversation after the death, 48% did not and did not want to, and 21% had no follow-up conversation, but would have liked one. A follow-up conversation was described as helpful for the bereavement process, and disappointment was expressed when not receiving support after the death. Conclusions: Family members' experiences of support were partly related to whether the ill person's care needs were fulfilled. Healthcare staff expressing empathy and respect in the care of dying people and their family members were important for family members' experiences of support. Family members' difficulty recognising that death was imminent and the importance of healthcare staff providing them with clear information were expressed in connection with support at death. Follow-up conversations were valued by family members, especially if with a healthcare professional who was present at the time of death. |
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| فهرسة مساهمة: | Keywords: Communication; End-of-life care; Family members; Information; Palliative care; Support |
| تواريخ الأحداث: | Date Created: 20210625 Date Completed: 20211015 Latest Revision: 20211015 |
| رمز التحديث: | 20221213 |
| مُعرف محوري في PubMed: | PMC8228910 |
| DOI: | 10.1186/s12904-021-00800-8 |
| PMID: | 34167530 |
| قاعدة البيانات: | MEDLINE |
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