دورية أكاديمية
Sociodemographic features of a cohort of people living with albinism in Botswana.
| العنوان: | Sociodemographic features of a cohort of people living with albinism in Botswana. |
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| المؤلفون: | Chu B; Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania., Maranga A; Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania., Mosojane KI; Ministry of Health and Wellness of Botswana, Gaborone, Botswana., Allen-Taylor L; Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania., Ralethaka M; Ministry of Health and Wellness of Botswana, Gaborone, Botswana., Ngubula JC; Ministry of Health and Wellness of Botswana, Gaborone, Botswana., Shifa JZ; University of Botswana, Gaborone, Botswana., Jereni BH; Ministry of Health and Wellness of Botswana, Gaborone, Botswana.; University of Botswana, Gaborone, Botswana., Nkomazana O; University of Botswana, Gaborone, Botswana., Williams VL; Department of Dermatology, Perelman School of Medicine, University of Pennsylvania, Philadelphia, Pennsylvania.; Ministry of Health and Wellness of Botswana, Gaborone, Botswana.; University of Botswana, Gaborone, Botswana. |
| المصدر: | JAAD international [JAAD Int] 2021 Jan 28; Vol. 2, pp. 153-163. Date of Electronic Publication: 2021 Jan 28 (Print Publication: 2021). |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Elsevier Inc Country of Publication: United States NLM ID: 101774762 Publication Model: eCollection Cited Medium: Internet ISSN: 2666-3287 (Electronic) Linking ISSN: 26663287 NLM ISO Abbreviation: JAAD Int Subsets: PubMed not MEDLINE |
| أسماء مطبوعة: | Original Publication: [New York] : Elsevier Inc., [2020]- |
| مستخلص: | Background: Oculocutaneous albinism is disproportionately prevalent in Africa; however, the medical and psychosocial characteristics of people living with albinism (PWA) in Botswana have not been studied. Objective: To characterize the demographics, health-related factors, sun-protective behaviors, and psychosocial challenges of PWA in Botswana. Methods: Overall, 50 PWA and 99 patients without albinism (non-PWA) were recruited and surveyed. Results: Higher proportions of PWA lived in rural villages compared with non-PWA (odds ratio [OR], 2.59; 95% confidence interval [CI], 1.26-5.34). PWA reported limited access to health care more frequently compared with non-PWA (OR, 2.72; 95% CI, 1.11-6.62). High proportions of PWA adopted sun-protective measures, including sunscreen, clothing, and sunlight avoidance. Despite high rates of feeling accepted by family and peers, PWA had increased odds of feeling unaccepted by their community (OR, 15.16; 95% CI, 5.25-31.81), stigmatized by society (OR, 9.37; 95% CI, 3.43-35.62), and affected by stigma in social interactions (OR, 2.21; 95% CI, 1.08-4.54) compared with non-PWA. Three-quarters of PWA had witnessed mistreatment of PWA. Limitations: Study limitations include the small sample size, convenience sampling, and a non-validated survey instrument. Conclusion: PWA faced increased medical and psychosocial challenges compared with non-PWA in Botswana. Our findings can begin to inform public health strategies aimed at promoting improved health care, education, and social inclusion for this population in Botswana and other regions in Africa. Competing Interests: Dr Williams is currently employed by Merck & Co, Inc, but the current study was conducted prior to this relationship. (© 2020 by the American Academy of Dermatology, Inc. Published by Elsevier Inc.) |
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| فهرسة مساهمة: | Keywords: CI, confidence interval; Non-PWA, patients without albinism; OCA, oculocutaneous albinism; OR, odds ratio; PMH, Princess Marina Hospital; PWA, people living with albinism; albinism; dermatology; discrimination; oculocutaneous albinism; persons or people living with albinism (PWA); skin cancer; skin cancer prevention; stigma |
| تواريخ الأحداث: | Date Created: 20210819 Latest Revision: 20220425 |
| رمز التحديث: | 20231215 |
| مُعرف محوري في PubMed: | PMC8362310 |
| DOI: | 10.1016/j.jdin.2020.12.002 |
| PMID: | 34409362 |
| قاعدة البيانات: | MEDLINE |
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Full Text Finder | تدمد: | 2666-3287 |
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| DOI: | 10.1016/j.jdin.2020.12.002 |