دورية أكاديمية
Multigenerational health research using population-based linked databases: an international review.
| العنوان: | Multigenerational health research using population-based linked databases: an international review. |
|---|---|
| المؤلفون: | Hamm NC; Department of Community Health Sciences, University of Manitoba, Winnipeg, MB, CANADA, R3E 0W3., Hamad AF; Department of Community Health Sciences, University of Manitoba, Winnipeg, MB, CANADA, R3E 0W3., Wall-Wieler E; Department of Community Health Sciences, University of Manitoba, Winnipeg, MB, CANADA, R3E 0W3.; Manitoba Centre for Health Policy, University of Manitoba, Winnipeg, MB, CANADA, R3E 3P5., Roos LL; Department of Community Health Sciences, University of Manitoba, Winnipeg, MB, CANADA, R3E 0W3.; Manitoba Centre for Health Policy, University of Manitoba, Winnipeg, MB, CANADA, R3E 3P5., Plana-Ripoll O; National Centre for Register-based Research, Department of Economics and Business Economics, Aarhus University, Aarhus, DENMARK, 8210., Lix LM; Department of Community Health Sciences, University of Manitoba, Winnipeg, MB, CANADA, R3E 0W3. |
| المصدر: | International journal of population data science [Int J Popul Data Sci] 2021 Oct 07; Vol. 6 (1), pp. 1686. Date of Electronic Publication: 2021 Oct 07 (Print Publication: 2021). |
| نوع المنشور: | Journal Article; Research Support, Non-U.S. Gov't; Review |
| اللغة: | English |
| بيانات الدورية: | Publisher: Swansea University Country of Publication: Wales NLM ID: 101737740 Publication Model: eCollection Cited Medium: Internet ISSN: 2399-4908 (Electronic) Linking ISSN: 23994908 NLM ISO Abbreviation: Int J Popul Data Sci |
| أسماء مطبوعة: | Original Publication: [Swansea, Wales, United Kingdom] : Swansea University, [2017]- |
| مواضيع طبية MeSH: | Registries*, Australia ; Canada ; Databases, Factual ; Forecasting |
| مستخلص: | Family health history is a well-established risk factor for many health conditions but the systematic collection of health histories, particularly for multiple generations and multiple family members, can be challenging. Routinely-collected electronic databases in a select number of sites worldwide offer a powerful tool to conduct multigenerational health research for entire populations. At these sites, administrative and healthcare records are used to construct familial relationships and objectively-measured health histories. We review and synthesize published literature to compare the attributes of routinely-collected, linked databases for three European sites (Denmark, Norway, Sweden) and three non-European sites (Canadian province of Manitoba, Taiwan, Australian state of Western Australia) with the capability to conduct population-based multigenerational health research. Our review found that European sites primarily identified family structures using population registries, whereas non-European sites used health insurance registries (Manitoba and Taiwan) or linked data from multiple sources (Western Australia). Information on familial status was reported to be available as early as 1947 (Sweden); Taiwan had the fewest years of data available (1995 onwards). All centres reported near complete coverage of familial relationships for their population catchment regions. Challenges in working with these data include differentiating biological and legal relationships, establishing accurate familial linkages over time, and accurately identifying health conditions. This review provides important insights about the benefits and challenges of using routinely-collected, population-based linked databases for conducting population-based multigenerational health research, and identifies opportunities for future research within and across the data-intensive environments at these six sites. Competing Interests: Statement on conflicts of interest: The authors have no conflicts of interest to declare that are relevant to the content of this article. |
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| فهرسة مساهمة: | Keywords: family health history; multigenerational; observational research; population registries; record linkage; routinely-collected data |
| تواريخ الأحداث: | Date Created: 20211104 Date Completed: 20220321 Latest Revision: 20220321 |
| رمز التحديث: | 20240829 |
| مُعرف محوري في PubMed: | PMC8530190 |
| DOI: | 10.23889/ijpds.v6i1.1686 |
| PMID: | 34734126 |
| قاعدة البيانات: | MEDLINE |
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