دورية أكاديمية

Dealing with complicity in fieldwork: Reflections on studying genetic research in Pakistan.

التفاصيل البيبلوغرافية
العنوان: Dealing with complicity in fieldwork: Reflections on studying genetic research in Pakistan.
المؤلفون: Sheikh ZA; Centre for Advanced Studies in Biomedical Innovation Law, Faculty of Law, University of Copenhagen, Copenhagen, Denmark.; Centre for Medical Science and Technology Studies, Section for Health Services Research, Department of Public Health, University of Copenhagen, Copenhagen, Denmark.
المصدر: Sociology of health & illness [Sociol Health Illn] 2022 Dec; Vol. 44 Suppl 1, pp. 41-56. Date of Electronic Publication: 2022 Mar 24.
نوع المنشور: Journal Article; Research Support, Non-U.S. Gov't
اللغة: English
بيانات الدورية: Publisher: Blackwell Publishing Country of Publication: England NLM ID: 8205036 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1467-9566 (Electronic) Linking ISSN: 01419889 NLM ISO Abbreviation: Sociol Health Illn Subsets: MEDLINE
أسماء مطبوعة: Publication: <2003->: Oxford ; Malden, MA : Blackwell Publishing
Original Publication: Henley-on-Thames ; Boston, Mass. : Routledge & Kegan Paul,
مواضيع طبية MeSH: Complicity* , Anthropology, Cultural*, Humans ; Female ; Pakistan ; Genetic Research ; Research Personnel
مستخلص: Health-related ethnography undertaken in a context marked by social inequalities and colonial legacies requires critical attention to power imbalances in the fieldwork. In this paper, I draw on my own experiences from studying genetic research in Pakistan. As a Danish-born female researcher with roots in Pakistan, I have followed genetic researchers and families dealing with genetic conditions in Pakistan. Through examples I unearth how encounters in the field were shaped by complicities of being in-between the Danish and the Pakistani, of studying and doing international research at the same time, and of my inaction towards suffering families. I base my analysis on the notion that complicity manifests in a generative, and unavoidable, engagement with both complex structures of inequality and interlocutors. We can never fully understand the specificities or consequences of complicity-whether moral or epistemic-when entering, engaging with or representing our fields. However, by staying constructively with the tensions, instead of attempting to move beyond the discomfort that they might create, we can learn how to deal with the consequences and in that, build further the value of ethnographic activity.
(© 2022 The Authors. Sociology of Health & Illness published by John Wiley & Sons Ltd on behalf of Foundation for SHIL (SHIL).)
References: Sociol Health Illn. 2022 Dec;44 Suppl 1:41-56. (PMID: 35322443)
J Empir Res Hum Res Ethics. 2019 Feb;14(1):3-14. (PMID: 29998790)
Soc Sci Med. 2019 May;228:103-110. (PMID: 30904814)
BMC Med Ethics. 2012 Jun 22;13:13. (PMID: 22726531)
Curr Sociol. 2015 Sep;63(5):763-778. (PMID: 27182072)
Soc Sci Med. 2013 Dec;98:361-70. (PMID: 24210881)
Med Health Care Philos. 2018 Jun;21(2):169-179. (PMID: 28875227)
Med Anthropol. 2015;34(1):84-97. (PMID: 24810652)
Sociol Health Illn. 2006 Sep;28(6):713-31. (PMID: 17184414)
Afr J AIDS Res. 2018 Nov 23;:1-2. (PMID: 30466370)
Soc Sci Med. 2008 Sep;67(5):696-707. (PMID: 18455854)
فهرسة مساهمة: Keywords: Pakistan; complicity; constructive complicity; ethnography; fieldwork; knowledge politics; methodology; power inequality
تواريخ الأحداث: Date Created: 20220324 Date Completed: 20221216 Latest Revision: 20230411
رمز التحديث: 20230411
مُعرف محوري في PubMed: PMC10078743
DOI: 10.1111/1467-9566.13464
PMID: 35322443
قاعدة البيانات: MEDLINE
الوصف
تدمد:1467-9566
DOI:10.1111/1467-9566.13464