دورية أكاديمية
Prioritizing Measures That Matter Within a Person-Centered Oncology Learning Health System.
| العنوان: | Prioritizing Measures That Matter Within a Person-Centered Oncology Learning Health System. |
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| المؤلفون: | Van Citters AD; Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA., Kennedy AM; Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA.; School of Health and Welfare, Jönköping University, Jönköping, Sweden., Kirkland KB; Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA.; Section of Palliative Medicine, Department of Medicine, Dartmouth Health, Lebanon, NH, USA.; Department of Medicine, Geisel School of Medicine at Dartmouth, Hanover, NH, USA., Dragnev KH; Department of Medicine, Geisel School of Medicine at Dartmouth, Hanover, NH, USA.; Dartmouth Cancer Center, Dartmouth Health, Lebanon, NH, USA., Leach SD; Department of Medicine, Geisel School of Medicine at Dartmouth, Hanover, NH, USA.; Dartmouth Cancer Center, Dartmouth Health, Lebanon, NH, USA.; Department of Molecular and Systems Biology, Geisel School of Medicine at Dartmouth, Hanover, NH, USA., Buus-Frank ME; Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA.; Section of Neonatology, Department of Pediatrics, Dartmouth Health, Lebanon, NH, USA., Malcolm EF; Analytics Institute, Dartmouth Health, Lebanon, NH, USA., Holthoff MM; Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA., Holmes AB; Patient and Family Advisors, Dartmouth Health, Lebanon, NH, USA., Nelson EC; Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA.; Department of Community and Family Medicine, Geisel School of Medicine at Dartmouth, Hanover, NH, USA., Reeves SA; Dartmouth Health, Lebanon, NH, USA., Tosteson ANA; Geisel School of Medicine at Dartmouth, The Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, NH, USA.; Dartmouth Cancer Center, Dartmouth Health, Lebanon, NH, USA. |
| مؤلفون مشاركون: | Promise Partnership Delphi Panel |
| المصدر: | JNCI cancer spectrum [JNCI Cancer Spectr] 2022 May 02; Vol. 6 (3). |
| نوع المنشور: | Journal Article; Research Support, Non-U.S. Gov't; Research Support, N.I.H., Extramural |
| اللغة: | English |
| بيانات الدورية: | Publisher: Oxford University Press Country of Publication: England NLM ID: 101721827 Publication Model: Print Cited Medium: Internet ISSN: 2515-5091 (Electronic) Linking ISSN: 25155091 NLM ISO Abbreviation: JNCI Cancer Spectr Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: Oxford : Oxford University Press, [2017]- |
| مواضيع طبية MeSH: | Learning Health System* , Neoplasms*/therapy, Caregivers ; Humans ; Medical Oncology ; Quality of Life |
| مستخلص: | Background: Despite progress in developing learning health systems (LHS) and associated metrics of success, a gap remains in identifying measures to guide the implementation and assessment of the impact of an oncology LHS. Our aim was to identify a balanced set of measures to guide a person-centered oncology LHS. Methods: A modified Delphi process and clinical value compass framework were used to prioritize measures for tracking LHS performance. A multidisciplinary group of 77 stakeholders, including people with cancer and family members, participated in 3 rounds of online voting followed by 50-minute discussions. Participants rated metrics on perceived importance to the LHS and discussed priorities. Results: Voting was completed by 94% of participants and prioritized 22 measures within 8 domains. Patient and caregiver factors included clinical health (Eastern Cooperative Oncology Group Performance Status, survival by cancer type and stage), functional health and quality of life (Patient Reported Outcomes Measurement Information System [PROMIS] Global-10, Distress Thermometer, Modified Caregiver Strain Index), experience of care (advance care planning, collaboRATE, PROMIS Self-Efficacy Scale, access to care, experience of care, end-of-life quality measures), and cost and resource use (avoidance and delay in accessing care and medications, financial hardship, total cost of care). Contextual factors included team well-being (Well-being Index; voluntary staff turnover); learning culture (Improvement Readiness, compliance with Commission on Cancer quality of care measures); scholarly engagement and productivity (institutional commitment and support for research, academic productivity index); and diversity, equity, inclusion, and belonging (screening and follow-up for social determinants of health, inclusivity of staff and patients). Conclusions: The person-centered LHS value compass provides a balanced set of measures that oncology practices can use to monitor and evaluate improvement across multiple domains. (© The Author(s) 2022. Published by Oxford University Press.) |
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| معلومات مُعتمدة: | P30 CA023108 United States CA NCI NIH HHS |
| فهرسة مساهمة: | Investigator: A Mulley; A Barnato; A Cullinan; A Williams; A Bradley; A Tosteson; A Holmes; A Ireland; B Oliver; B Christensen; C Majewski; C Kerrigan; C Reed; C Morrow; C Siegel; D Jantzen; D Finley; E Malcolm; E Bengtson; E McGrath; E Stedina; E Flaherty; E Fisher; E Henderson; E Lansigan; E Benjamin; G Brooks; G Wasp; G Blike; I Byock; J Haines; J Alford-Teaster; J Schiffelbein; J Snide; J Leyenaar; J Chertoff; J Ivatury; J Beliveau; J Sweetenham; J Rees; J Dalphin; J Kim; K Clements; K Kirkland; K Meehan; K Dragnev; K Bowen; L Dacey; L Evans; M Govindan; M Thygeson; M Goodrich; M Chamberlin; M Stump; M Mackwood; M Wilson; M Sorensen; M Calderwood; P Barr; P Campion; R Jean-Mary; RM Hasson; S Cherala; S Kraft; S Casella; S Shields; S Wong; S Hort; S Tomlin; S Liu; S LeBlanc; S Leach; S DiStasio; S Reeves; V Reed; W Wells; W Hammond; Y Sanchez |
| تواريخ الأحداث: | Date Created: 20220623 Date Completed: 20220627 Latest Revision: 20220724 |
| رمز التحديث: | 20240829 |
| مُعرف محوري في PubMed: | PMC9219163 |
| DOI: | 10.1093/jncics/pkac037 |
| PMID: | 35736219 |
| قاعدة البيانات: | MEDLINE |
Full Text Finder | تدمد: | 2515-5091 |
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| DOI: | 10.1093/jncics/pkac037 |