دورية أكاديمية
Telehealth and CFTR modulators: Accelerating innovative models of cystic fibrosis care.
| العنوان: | Telehealth and CFTR modulators: Accelerating innovative models of cystic fibrosis care. |
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| المؤلفون: | Prickett MH; Division of Pulmonary and Critical Care, Department of Medicine, Feinberg School of Medicine, Northwestern University, Chicago, IL, USA. Electronic address: Michelle.prickett@nm.org., Flume PA; Medical University of South Carolina, Charleston, SC, USA., Sabadosa KA; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814 USA., Tran QT; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814 USA., Marshall BC; Cystic Fibrosis Foundation, 4550 Montgomery Avenue, Suite 1100N, Bethesda, MD 20814 USA. |
| المصدر: | Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society [J Cyst Fibros] 2023 Jan; Vol. 22 (1), pp. 9-16. Date of Electronic Publication: 2022 Jul 22. |
| نوع المنشور: | Journal Article; Review; Research Support, Non-U.S. Gov't |
| اللغة: | English |
| بيانات الدورية: | Publisher: Elsevier Country of Publication: Netherlands NLM ID: 101128966 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1873-5010 (Electronic) Linking ISSN: 15691993 NLM ISO Abbreviation: J Cyst Fibros Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: Amsterdam ; New York : Elsevier, c2002- |
| مواضيع طبية MeSH: | Cystic Fibrosis*/therapy , COVID-19* , Telemedicine*, Adult ; Humans ; Cystic Fibrosis Transmembrane Conductance Regulator ; Pandemics |
| مستخلص: | Better health and longer survival for many people with cystic fibrosis (PwCF) compels the continued evolution of the CF care model. Designed to deliver specialized care for a complex chronic condition, the model is organized around interdisciplinary healthcare teams at dedicated care centers. Introduction of CFTR modulators and the COVID-19 pandemic have catalyzed the model's evolution. Many PwCF on modulator therapies are experiencing better health and considering changes in their daily care routines. Some of the growing number of adults with CF are experiencing age-associated co-morbidities, requiring coordination with new specialists. The pandemic accelerated the use of telehealth, revealing tradeoffs from new configurations of care delivery. Herein we review the implications of these recent shifts and offer recommendations to improve the quality of care coordinated across the interdisciplinary teams and an expanding field of subspecialists, while supporting the ability of the patient to take on greater responsibility in disease management. Competing Interests: Declarations of Competing Interest None. (Copyright © 2022. Published by Elsevier B.V.) |
| فهرسة مساهمة: | Keywords: CFTR modulators; Cystic fibrosis; Telehealth |
| المشرفين على المادة: | 126880-72-6 (Cystic Fibrosis Transmembrane Conductance Regulator) 0 (CFTR protein, human) |
| تواريخ الأحداث: | Date Created: 20220725 Date Completed: 20230314 Latest Revision: 20230404 |
| رمز التحديث: | 20230405 |
| DOI: | 10.1016/j.jcf.2022.07.002 |
| PMID: | 35879227 |
| قاعدة البيانات: | MEDLINE |
Full Text via ClinicalKey 
Full Text Finder | تدمد: | 1873-5010 |
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| DOI: | 10.1016/j.jcf.2022.07.002 |