دورية أكاديمية

German Registry for Cardiac Operations and Interventions in Patients with Congenital Heart Disease: Report 2021 and 9 Years' Longitudinal Observations on Fallot and Coarctation Patients.

التفاصيل البيبلوغرافية
العنوان: German Registry for Cardiac Operations and Interventions in Patients with Congenital Heart Disease: Report 2021 and 9 Years' Longitudinal Observations on Fallot and Coarctation Patients.
المؤلفون: Dittrich S; Department of Pediatric Cardiology, Friedrich-Alexander-Universitat Erlangen-Nurnberg, Erlangen, Germany., Arenz C; Department of Pediatric Heart Surgery, University of Bonn, Bonn, Germany., Krogmann O; Clinic for Pediatric Cardiology - Congenital Heart Defects, Heart Center Duisburg, Duisburg, Germany., Tengler A; Department of Pediatric Cardiology and Intensive Care, Ludwig-Maximilians-Universitat Munich, Munich, Germany., Meyer R; BQS Institute for Quality and Patient Safety, Hamburg, Germany., Bauer U; National Register for Congenital Heart Defects, Berlin, Germany., Hofbeck M; Department of Pediatric Cardiology, Pulmology and Intensive Care, University Children's Hospital, Tübingen, Germany., Beckmann A; German Society for Thoracic and Cardiovascular Surgery, Berlin, Germany., Horke A; Division of Congenital Heart Surgery, Hannover Medical School, Hannover, Germany.
المصدر: The Thoracic and cardiovascular surgeon [Thorac Cardiovasc Surg] 2022 Dec; Vol. 70 (S 03), pp. e21-e33. Date of Electronic Publication: 2022 Sep 29.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Thieme Country of Publication: Germany NLM ID: 7903387 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1439-1902 (Electronic) Linking ISSN: 01716425 NLM ISO Abbreviation: Thorac Cardiovasc Surg Subsets: MEDLINE
أسماء مطبوعة: Original Publication: Stuttgart, Thieme.
مواضيع طبية MeSH: Cardiac Surgical Procedures*/adverse effects , Heart Defects, Congenital*/surgery, Adult ; Aortic Coarctation/surgery ; Child ; Germany ; Humans ; Infant ; Infant, Newborn ; Registries ; Treatment Outcome
مستخلص: Background: The annual report of the German Quality Assurance of Congenital Heart Disease displays a broad overview on outcome of interventional and surgical treatment with respect to patient's age and risk categorization. Particular features of the German all-comers registry are the inclusion of all interventional and surgical procedures, the possibility to record repeated treatments with distinct individual patient assignment, and to record various procedures within one case.
Methods: International Pediatric and Congenital Cardiac Code terminology for diagnoses and procedures as well as classified adverse events, also recording of demographic data, key procedural performance indicators, and key quality indicators (mortality, adverse event rates). Surgical and interventional adverse events were classified according to the Society of Thoracic Surgeons and to the Congenital Heart Disease Adjustment for Risk Method of the congenital cardiac catheterization project on outcomes. Annual analysis of all cases and additional long-term evaluation of patients after repair of Fallot and primary treatment of native coarctation of the aorta were performed.
Results: In 2020, 5,532 patients with 6,051 cases (hospital stays) with 6,986 procedures were treated in 23 German institutions. Cases dispense on 618 newborns (10.2%), 1,532 infants (25.3%), 3,077 children (50.9%), and 824 adults (13.6%). Freedom from adverse events was 94.5% in 2,795 interventional cases, 67.9% in 2,887 surgical cases, and 42.9% in 336 cases with multiple procedures (without considering the 33 hybrid interventions). In-hospital mortality was 0.5% in interventional, 1.6% in surgical, and 5.7% in cases with multiple treatments. Long-term observation of 1,632 patient after repair of Fallot depicts the impact of previous palliation in 18% of the patients on the rate of 20.8% redo cases. Differentiated analysis of 1,864 patients with native coarctation picture clear differences of patient, age, and procedure selection and outcome. The overall redo procedure rate in this patient population is high with 30.8%.
Conclusion: Improvement in quality of care requires detailed analysis of risks, performance indicators, and outcomes. The high necessity of redo procedures in patients with complex congenital heart disease underlines the imperative need of long-term observations.
Competing Interests: None declared.
(The Author(s). This is an open access article published by Thieme under the terms of the Creative Commons Attribution-NonDerivative-NonCommercial License, permitting copying and reproduction so long as the original work is given appropriate credit. Contents may not be used for commercial purposes, or adapted, remixed, transformed or built upon. (https://creativecommons.org/licenses/by-nc-nd/4.0/).)
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تواريخ الأحداث: Date Created: 20220929 Date Completed: 20221003 Latest Revision: 20221123
رمز التحديث: 20240628
مُعرف محوري في PubMed: PMC9536750
DOI: 10.1055/s-0042-1757175
PMID: 36174655
قاعدة البيانات: MEDLINE