دورية أكاديمية
Livelihood support for caregivers of children with developmental disabilities: findings from a scoping review and stakeholder survey.
| العنوان: | Livelihood support for caregivers of children with developmental disabilities: findings from a scoping review and stakeholder survey. |
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| المؤلفون: | Loucaides EM; Centre for Maternal, Adolescent, Reproductive and Child Health (MARCH Centre), London School of Hygiene & Tropical Medicine, London, UK., Zuurmond M; International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine, London, UK., Nemerimana M; Maternal and Child Health Programme, Partners in Health/Inshuti Mu Buzima (PIH/IMB), Kigali, Rwanda., Kirk CM; Maternal and Child Health Programme, Partners in Health/Inshuti Mu Buzima (PIH/IMB), Kigali, Rwanda., Lassman R; Kyaninga Child Development Centre, Fort Portal, Uganda., Ndayisaba A; Maternal and Child Health Programme, Partners in Health/Inshuti Mu Buzima (PIH/IMB), Kigali, Rwanda., Smythe T; International Centre for Evidence in Disability, London School of Hygiene & Tropical Medicine, London, UK.; Division of Physiotherapy, Department of Health and Rehabilitation Sciences, Stellenbosch University, Cape Town, South Africa., Baganizi E; Maternal and Child Health Programme, Partners in Health/Inshuti Mu Buzima (PIH/IMB), Kigali, Rwanda., Tann CJ; Centre for Maternal, Adolescent, Reproductive and Child Health (MARCH Centre), London School of Hygiene & Tropical Medicine, London, UK.; Social Aspects of Care Programme, MRC/UVRI & LSHTM Uganda Research Unit, Entebbe, Uganda.; Neonatal Medicine, University College London Hospitals NHS Trust, London, UK. |
| المصدر: | Disability and rehabilitation [Disabil Rehabil] 2024 Jan; Vol. 46 (2), pp. 293-308. Date of Electronic Publication: 2022 Dec 26. |
| نوع المنشور: | Review; Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: Taylor & Francis Country of Publication: England NLM ID: 9207179 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1464-5165 (Electronic) Linking ISSN: 09638288 NLM ISO Abbreviation: Disabil Rehabil Subsets: MEDLINE |
| أسماء مطبوعة: | Publication: 2015- : Abingdon, Oxford : Taylor & Francis Original Publication: London ; Washington, DC : Taylor & Francis, c1992- |
| مواضيع طبية MeSH: | Quality of Life* , Disabled Persons*/rehabilitation, Child ; Humans ; Developmental Disabilities ; Caregivers ; Self-Help Groups |
| مستخلص: | Purpose: Poverty amongst families with a child with disability adversely impacts child and family quality of life. We aimed to identify existing approaches to livelihood support for caregivers of children with developmental disabilities in low- and middle-income countries. Methods: This mixed-method study incorporated a scoping literature review and online stakeholder survey. We utilised the World Health Organization community-based rehabilitation (CBR) matrix as a guiding framework for knowledge synthesis and descriptively analysed the included articles and survey responses. Results: We included 11 peer-reviewed publications, 6 grey literature articles, and 49 survey responses from stakeholders working in 22 countries. Identified programmes reported direct and indirect strategies for livelihood support targeting multiple elements of the CBR matrix; particularly skills development, access to social protection measures, and self-employment; frequently in collaboration with specialist partners, and as one component of a wider intervention. Self-help groups were also common. No publications examined effectiveness of livelihood support approaches in mitigating poverty, with most describing observational studies at small scale. Conclusion: Whilst stakeholders describe a variety of direct and indirect approaches to livelihood support for caregivers of children with disabilities, there is a lack of published literature on content, process, and impact to inform future programme development and delivery. |
| معلومات مُعتمدة: | MR/S004971/1 United Kingdom MRC_ Medical Research Council; MR/V035274/1 United Kingdom MRC_ Medical Research Council |
| فهرسة مساهمة: | Keywords: Livelihood; caregiver; child disability; intervention; low- and middle-income countries Local Abstract: [plain-language-summary] Disability and poverty are interlinked, but little is known on approaches to livelihood support for caregivers of children with developmental disabilities in low- and middle-income countries.Stakeholders report direct and indirect strategies for livelihood support targeting multiple livelihood elements; particularly skills development, access to social protection measures and self-employment; frequently in collaboration with specialist partners, and as one component of a wider intervention.Improved reporting of livelihood targeted activities inclusive of evaluation of feasibility, acceptability and impact would support wider implementation of effective livelihood programmes for caregivers of children with disability. |
| تواريخ الأحداث: | Date Created: 20221226 Date Completed: 20240110 Latest Revision: 20240508 |
| رمز التحديث: | 20240508 |
| DOI: | 10.1080/09638288.2022.2160018 |
| PMID: | 36571438 |
| قاعدة البيانات: | MEDLINE |
PDF full text from Publisher | تدمد: | 1464-5165 |
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| DOI: | 10.1080/09638288.2022.2160018 |