دورية أكاديمية
أعرض في EDS

Parental Experiences With Access to Care for Obstructive Sleep-Disordered Breathing: A Qualitative Study.

التفاصيل البيبلوغرافية
العنوان: Parental Experiences With Access to Care for Obstructive Sleep-Disordered Breathing: A Qualitative Study.
المؤلفون: Pecha PP; Department of Otolaryngology-Head and Neck Surgery, Medical University of South Carolina, Charleston, South Carolina, USA., Nicholas Jungbauer W Jr; Department of Otolaryngology-Head and Neck Surgery, Medical University of South Carolina, Charleston, South Carolina, USA., Ruggiero KJ; Medical University of South Carolina College of Nursing, Charleston, South Carolina, USA., Nietert P; Department of Public Health Sciences, Medical University of South Carolina, Charleston, South Carolina, USA., Melvin CL; Department of Public Health Sciences, Medical University of South Carolina, Charleston, South Carolina, USA., Ford ME; Department of Public Health Sciences, Medical University of South Carolina, Charleston, South Carolina, USA.; Hollings Cancer Center, Charleston, South Carolina, USA.
المصدر: Otolaryngology--head and neck surgery : official journal of American Academy of Otolaryngology-Head and Neck Surgery [Otolaryngol Head Neck Surg] 2023 Nov; Vol. 169 (5), pp. 1319-1328. Date of Electronic Publication: 2023 May 10.
نوع المنشور: Journal Article; Research Support, N.I.H., Extramural; Research Support, Non-U.S. Gov't
اللغة: English
بيانات الدورية: Publisher: Wiley Country of Publication: England NLM ID: 8508176 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1097-6817 (Electronic) Linking ISSN: 01945998 NLM ISO Abbreviation: Otolaryngol Head Neck Surg Subsets: MEDLINE
أسماء مطبوعة: Publication: 2023- : [Oxford] : Wiley
Original Publication: [Rochester, Minn.] : The Academy, [c1981-
مواضيع طبية MeSH: Sleep Apnea Syndromes*/therapy , Sleep Apnea Syndromes*/surgery , Sleep Apnea, Obstructive*/diagnosis , Sleep Apnea, Obstructive*/therapy, Child ; Humans ; Parents ; Qualitative Research ; Health Services Accessibility
مستخلص: Objective: Despite evidence-based guidelines for obstructive sleep-disordered breathing (SDB), recent studies continue to highlight treatment inequities. We used qualitative research methods to examine parental facilitators and barriers to SDB treatment.
Study Design: Qualitative interviews.
Setting: Tertiary care center.
Methods: Semistructured interviews were conducted (January-April 2022) with parents of children with SDB who underwent tonsillectomies to understand the processes of SDB detection and accessing specialty care. Interviews were conducted until thematic saturation was reached and coded using NVivo software.
Results: Of the 17 parents who completed the key informant interviews, 6 (35%) were of non-Hispanic black race, and 3 (17.6%) interviews were conducted in Spanish. Parents noted that the more knowledge their primary care provider (PCP) had about SDB, the easier it was to obtain a diagnostic workup (41%). The most common barrier included difficulty obtaining a specialist (otolaryngology or sleep medicine) referral from their PCP and encountering providers who were dismissive of parent-reported symptoms related to SDB, leading them to seek a second opinion or self-refer (53%). Medicaid coverage was a strong facilitator to receipt of care (59%). Three (17.6%) parents noted alienation in the process due to racial bias or language barriers.
Conclusion: Parental interviews revealed that facilitators of SDB treatment included high clinician knowledge and perceived importance of SDB as well as Medicaid insurance which decreased financial strain. Parents also cited the attainment of referrals as a significant barrier to obtaining specialty evaluation. These findings identify potential modifiable areas to tailor future interventions for timely and equitable SDB care.
(© 2023 American Academy of Otolaryngology-Head and Neck Surgery Foundation.)
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معلومات مُعتمدة: U54 CA210962 United States CA NCI NIH HHS; U54 CA210963 United States CA NCI NIH HHS; UL1 TR001450 United States TR NCATS NIH HHS
فهرسة مساهمة: Keywords: barriers; disparities; qualitative; sleep-disordered breathing; tonsillectomy
تواريخ الأحداث: Date Created: 20230510 Date Completed: 20231026 Latest Revision: 20231112
رمز التحديث: 20240628
DOI: 10.1002/ohn.365
PMID: 37161964
قاعدة البيانات: MEDLINE
الوصف
تدمد:1097-6817
DOI:10.1002/ohn.365