دورية أكاديمية

Perceptions and Experiences of Informal Caregivers of Breast Cancer Patients in South India: A Qualitative Study.

التفاصيل البيبلوغرافية
العنوان: Perceptions and Experiences of Informal Caregivers of Breast Cancer Patients in South India: A Qualitative Study.
المؤلفون: Parsekar SS; Department of Community Medicine, Kasturba Medical College (KMC), Manipal Academy of Higher Education (MAHE), Manipal, India., Meijering L; Department of Demography, Faculty of Spatial Sciences, University of Groningen, Netherlands., Bailey A; International Development Studies, Department of Human Geography and Spatial Planning, Faculty of Geosciences, Utrecht University, the Netherlands.; Transdisciplinary Centre for Qualitative Methods, Prasanna School of Public Health, MAHE, Manipal, India., Nair S; Department of Community Medicine, Kasturba Medical College (KMC), Manipal Academy of Higher Education (MAHE), Manipal, India.; Centre for Community Oncology, KMC, MAHE, Manipal, India.; DYPU School of Public Health, DY Patil Deemed to be University, Nerul, Navi Mumbai, India.
المصدر: Asian Pacific journal of cancer prevention : APJCP [Asian Pac J Cancer Prev] 2023 May 01; Vol. 24 (5), pp. 1651-1658. Date of Electronic Publication: 2023 May 01.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Asian Pacific Organization for Cancer Prevention Country of Publication: Thailand NLM ID: 101130625 Publication Model: Electronic Cited Medium: Internet ISSN: 2476-762X (Electronic) Linking ISSN: 15137368 NLM ISO Abbreviation: Asian Pac J Cancer Prev Subsets: MEDLINE
أسماء مطبوعة: Original Publication: Bangkok : Asian Pacific Organization for Cancer Prevention,
مواضيع طبية MeSH: Caregivers*/psychology , Breast Neoplasms*/therapy, Humans ; Female ; Emotions ; Caregiver Burden ; Breast
مستخلص: Background: This study was conducted to explore the prevailing perceptions and experiences of caregiving burden among informal caregivers of women living with breast cancer in South India.
Methods: In-depth interviews were conducted among breast cancer care-receivers (n=35) and their informal caregivers (n=39) and a thematic analysis was used to analyze the data. Informal caregiver in the context of this study was defined as one who takes up the responsibility of an informal caregiving role, and were either self-identified or acknowledged by the care-receivers.
Results: Four main inductive themes in the domains of: emotional culpability, financial and workplace liability, psychosocial affliction, physical strain and health system demand were identified, that were associated with caregiver burden.
Conclusion: Informal caregivers form an integral part of the cancer care continuum in India. It is recommended to factor in the identified themes while developing a caregiver needs assessment model in the context of caring for breast cancer patients in the Indian setting.
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فهرسة مساهمة: Keywords: Burden of Care; Caregiving; India; breast cancer; in-depth interviews
تواريخ الأحداث: Date Created: 20230529 Date Completed: 20230531 Latest Revision: 20230915
رمز التحديث: 20240628
مُعرف محوري في PubMed: PMC10495876
DOI: 10.31557/APJCP.2023.24.5.1651
PMID: 37247285
قاعدة البيانات: MEDLINE
الوصف
تدمد:2476-762X
DOI:10.31557/APJCP.2023.24.5.1651