دورية أكاديمية
أعرض في EDS

Establishing a Cystic Fibrosis Learning Network: Interventions to promote collaboration and data-driven improvement at scale.

التفاصيل البيبلوغرافية
العنوان: Establishing a Cystic Fibrosis Learning Network: Interventions to promote collaboration and data-driven improvement at scale.
المؤلفون: Ong T; Division of Pulmonary and Sleep Medicine, Department of Pediatrics University of Washington, Seattle Children's Hospital Seattle Washington USA., Albon D; Division of Pulmonary Medicine, Department of Internal Medicine UVA Charlottesville Virginia USA., Amin RS; Division of Pulmonary and Sleep Medicine, Department of Pediatrics Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA., Bailey J; Division of Pulmonary, Allergy and Critical Care Medicine University of Alabama at Birmingham Birmingham Alabama USA., Bandla S; James M. Anderson Center for Health Systems Excellence Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA., Britto MT; James M. Anderson Center for Health Systems Excellence Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA., Flath J; Cystic Fibrosis Center, Division of Pulmonary, Allergy, Critical Care, and Sleep Medicine University of Minnesota Minneapolis Minnesota USA., Gamel B; Children's Health Pediatric Cystic Fibrosis Center Dallas UTSW Dallas Texas USA., Powers M; Pediatrics Doernbecher Children's Hospital OHSU Portland Oregon USA., Sabadosa KA; Cystic Fibrosis Foundation Bethesda Maryland USA., Saulitis AK; Adult and Pediatric Cystic Fibrosis Care Centers Rush University Medical Center Chicago Illinois USA., Thomas LK; Cystic Fibrosis Center Children's of Alabama Children's of Alabama Birmingham Alabama USA., Thurmond S; Division of Pulmonary and Sleep Medicine, Department of Pediatrics Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA., Seid M; Division of Pulmonary and Sleep Medicine, Department of Pediatrics Cincinnati Children's Hospital Medical Center Cincinnati Ohio USA.
مؤلفون مشاركون: Cystic Fibrosis Learning Network
المصدر: Learning health systems [Learn Health Syst] 2022 Dec 19; Vol. 7 (3), pp. e10354. Date of Electronic Publication: 2022 Dec 19 (Print Publication: 2023).
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Wiley, published in collaboration with the University of Michigan Country of Publication: United States NLM ID: 101708071 Publication Model: eCollection Cited Medium: Internet ISSN: 2379-6146 (Electronic) Linking ISSN: 23796146 NLM ISO Abbreviation: Learn Health Syst Subsets: PubMed not MEDLINE
أسماء مطبوعة: Original Publication: [Boston, MA] : Wiley, published in collaboration with the University of Michigan, [2017]-
مستخلص: Introduction: A learning health network is a type of learning health system in which stakeholders use network organization to improve health and health care. Building on existing resources in the cystic fibrosis (CF) community, the Cystic Fibrosis Learning Network (CFLN) was designed to improve medical outcomes and quality of life through an intentional focus on achieving reliable evidence-based chronic care delivery and creating a system for data-driven collaborative learning.
Methods: We describe the development and growth of the CFLN considering six domains of a Network Maturity Grid: system leadership; governance and policy management; quality improvement (QI); engagement and community building; data and analytics; and research. We illustrate the impact of the CFLN experience on chronic care processes and indicators of collaborative infrastructure.
Results: The CFLN represents 36 accredited care centers in the CF Foundation Care Center Network caring for over 6300 patients. Of 6779 patient clinical care visits/quarter, 77% are entered into the CF Foundation Patient Registry within 30 days, providing timely means to track outcomes. Collaborative visit planning is occurring in 93% of clinical care visits to share agenda setting with patients and families. Almost all CFLN teams (94%, n = 34) have a patient/family partner (PFP), and 74% of PFPs indicate they are actively participating, taking ownership of, or leading QI initiatives with the interdisciplinary care team. In 2022, 97% of centers reported completing 1-13 improvement cycles per month, and 82% contributed to monthly QI progress reports to share learning.
Conclusion: The CFLN is a maturing, collaborative infrastructure. CFLN centers practice at an advanced level of coproduction. The CFLN fosters interdisciplinary and PFP leadership and the performance of consistent data-driven improvement cycles. CFLN centers are positioned to respond to rapid changes in evidence-based care and advance the practice of QI and implementation science on a broader scale.
Competing Interests: Kathryn A. Sabadosa is an employee of the Cystic Fibrosis Foundation. Other authors have no conflicts of interest to disclose.
(© 2022 The Authors. Learning Health Systems published by Wiley Periodicals LLC on behalf of University of Michigan.)
التعليقات: Comment in: Learn Health Syst. 2022 Dec 20;7(3):e10356. doi: 10.1002/lrh2.10356. (PMID: 37731865)
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معلومات مُعتمدة: K12 HS026393 United States HS AHRQ HHS
فهرسة مساهمة: Keywords: coproduction; cystic fibrosis; learning networks; quality improvement
تواريخ الأحداث: Date Created: 20230714 Latest Revision: 20240921
رمز التحديث: 20240921
مُعرف محوري في PubMed: PMC10336485
DOI: 10.1002/lrh2.10354
PMID: 37448461
قاعدة البيانات: MEDLINE
الوصف
تدمد:2379-6146
DOI:10.1002/lrh2.10354