دورية أكاديمية
أعرض في EDS

Research Priorities to Increase Confidence in and Acceptance of Health Preference Research: What Questions Should be Prioritized Now?

التفاصيل البيبلوغرافية
العنوان: Research Priorities to Increase Confidence in and Acceptance of Health Preference Research: What Questions Should be Prioritized Now?
المؤلفون: DiSantostefano RL; Janssen Research & Development LLC, 1125 Trenton Harbourton Rd, Titusville, NJ, 08560, USA. rdisanto@ITS.JNJ.com., Smith IP; Janssen Research & Development LLC, 1125 Trenton Harbourton Rd, Titusville, NJ, 08560, USA.; Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands., Falahee M; Rheumatology Research Group, Institute of Inflammation and Ageing, College of Medical and Dental Sciences, University of Birmingham, Birmingham, UK., Jiménez-Moreno AC; Patient-Centered Research, Evidera, London, UK., Oliveri S; Applied Research Division for Cognitive and Psychological Science, Istituto Europeo di Oncologia, IEO IRCCS, Milan, Italy., Veldwijk J; Erasmus School of Health Policy & Management, Erasmus University Rotterdam, Rotterdam, The Netherlands.; Erasmus Choice Modelling Centre, Erasmus University Rotterdam, Rotterdam, The Netherlands., de Wit GA; Julius Center for Health Sciences and Primary Care, University Medical Center Utrecht, Utrecht University, Utrecht, The Netherlands., Janssen EM; Janssen Research & Development LLC, 1125 Trenton Harbourton Rd, Titusville, NJ, 08560, USA., Berlin C; Novartis Pharma AG, Basel, Switzerland., Groothuis-Oudshoorn CGM; Health Technology and Services Research, Techmed Centre, University of Twente, Enschede, The Netherlands.
المصدر: The patient [Patient] 2024 Mar; Vol. 17 (2), pp. 179-190. Date of Electronic Publication: 2023 Dec 16.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Adis, Springer International Country of Publication: New Zealand NLM ID: 101309314 Publication Model: Print-Electronic Cited Medium: Internet ISSN: 1178-1661 (Electronic) Linking ISSN: 11781653 NLM ISO Abbreviation: Patient Subsets: MEDLINE
أسماء مطبوعة: Publication: Auckland : Adis, Springer International
Original Publication: Chester, UK : Wolters Kluwer Health/Adis
مواضيع طبية MeSH: Health Services* , Research Design*, Humans ; Surveys and Questionnaires ; Research Personnel
مستخلص: Background and Objective: There has been an increase in the study and use of stated-preference methods to inform medicine development decisions. The objective of this study was to identify prioritized topics and questions relating to health preferences based on the perspective of members of the preference research community.
Methods: Preference research stakeholders from industry, academia, consultancy, health technology assessment/regulatory, and patient organizations were recruited using professional networks and preference-targeted e-mail listservs and surveyed about their perspectives on 19 topics and questions for future studies that would increase acceptance of preference methods and their results by decision makers. The online survey consisted of an initial importance prioritization task, a best-worst scaling case 1 instrument, and open-ended questions. Rating counts were used for analysis. The best-worst scaling used a balanced incomplete block design.
Results: One hundred and one participants responded to the survey invitation with 66 completing the best-worst scaling. The most important research topics related to the synthesis of preferences across studies, transferability across populations or related diseases, and method topics including comparison of methods and non-discrete choice experiment methods. Prioritization differences were found between respondents whose primary affiliation was academia versus other stakeholders. Academic researchers prioritized methodological/less studied topics; other stakeholders prioritized applied research topics relating to consistency of practice.
Conclusions: As the field of health preference research grows, there is a need to revisit and communicate previous work on preference selection and study design to ensure that new stakeholders are aware of this work and to update these works where necessary. These findings might encourage discussion and alignment among different stakeholders who might hold different research priorities. Research on the application of previous preference research to new contexts will also help increase the acceptance of health preference information by decision makers.
(© 2023. The Author(s).)
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معلومات مُعتمدة: 115966 Innovative Medicines Initiative
تواريخ الأحداث: Date Created: 20231216 Date Completed: 20240226 Latest Revision: 20240227
رمز التحديث: 20240227
مُعرف محوري في PubMed: PMC10894084
DOI: 10.1007/s40271-023-00650-x
PMID: 38103109
قاعدة البيانات: MEDLINE
الوصف
تدمد:1178-1661
DOI:10.1007/s40271-023-00650-x