دورية أكاديمية
أعرض في EDS

Living normally without being oneself: A qualitative study on the experience of living with advanced chronic kidney disease.

التفاصيل البيبلوغرافية
العنوان: Living normally without being oneself: A qualitative study on the experience of living with advanced chronic kidney disease.
المؤلفون: de la Cuesta-Benjumea C; Department of Health Psychology, University of Alicante, Alicante, Spain., Hernádez-Ibarra LE; Faculty of Nursing and Nutrition, Autonomous University of San Luis Potosí, San Luis Potosí, Mexico., Arredondo-González CP; Department of Health Sciences, San Juan de Dios Foundation, Pontifical University of Comillas, Madrid, Spain.
المصدر: PloS one [PLoS One] 2023 Dec 21; Vol. 18 (12), pp. e0295506. Date of Electronic Publication: 2023 Dec 21 (Print Publication: 2023).
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Public Library of Science Country of Publication: United States NLM ID: 101285081 Publication Model: eCollection Cited Medium: Internet ISSN: 1932-6203 (Electronic) Linking ISSN: 19326203 NLM ISO Abbreviation: PLoS One Subsets: MEDLINE
أسماء مطبوعة: Original Publication: San Francisco, CA : Public Library of Science
مواضيع طبية MeSH: Renal Insufficiency, Chronic*, Humans ; Chronic Disease ; Qualitative Research ; Decision Making ; Health Personnel
مستخلص: The aim of the study was to describe and analyze the experience of people with advanced chronic kidney disease. Chronic kidney disease is a growing public health problem that is on the increase worldwideThe experience of living with this illness is paradoxical, as it can include feelings of dependent autonomy, distant connection, abnormal normalcy, and uncertain hope. Every chronic disease involves a biographical alteration from the onset. For those who suffer it, it implies a breaking down and reconstruction of their everyday life. Despite the prevalence of the disease and the increase in the number of qualitative research studies in recent decades, there has not been much research on the experience of people with Chronic kidney disease. This is a qualitative study that began in 2018 and concluded in 2021.Twenty-one people with advanced chronic kidney disease were interviewed. They participated voluntarily with informed consent Participants were selected by purposive sampling. Data analysis was guided by grounded theory procedures using the Nvivo 12 software. This study reveals that people with advanced chronic kidney disease do not feel the same as they used to because their control over their lives is limited; because they feel their health is in a continuous state of deterioration; and because of the changes in themselves and in their relationships with others. With chronic kidney disease, their identity is continually called into question. The normal lives of these people-their biographical constructions-are precarious and are continuously being remodelled by the effects of treatment and the inexorable course of this disease. This study contributes to an understanding of the experience of people with advanced chronic kidney disease. It can contribute to helping health care professionals effectively support these patients in their efforts to lead a normal life and in making decisions about their treatment.
Competing Interests: The authors have declared that no competing interests exist.
(Copyright: © 2023 de la Cuesta-Benjumea et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.)
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تواريخ الأحداث: Date Created: 20231221 Date Completed: 20231225 Latest Revision: 20231225
رمز التحديث: 20231225
مُعرف محوري في PubMed: PMC10734919
DOI: 10.1371/journal.pone.0295506
PMID: 38128051
قاعدة البيانات: MEDLINE
الوصف
تدمد:1932-6203
DOI:10.1371/journal.pone.0295506