دورية أكاديمية
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CRUSE ® -An innovative mobile application for patient monitoring and management in chronic spontaneous urticaria.

التفاصيل البيبلوغرافية
العنوان: CRUSE ® -An innovative mobile application for patient monitoring and management in chronic spontaneous urticaria.
المؤلفون: Neisinger S; Urticaria Center of Reference and Excellence (UCARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany., Sousa Pinto B; Faculty of Medicine, MEDCIDS-Department of Community Medicine, Information and Health Decision Sciences, University of Porto, Porto, Portugal.; CINTESIS-Center for Health Technology and Services Research, University of Porto, Porto, Portugal.; RISE-Health Research Network, University of Porto, Porto, Portugal., Ramanauskaite A; Urticaria Center of Reference and Excellence (UCARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany., Bousquet J; Urticaria Center of Reference and Excellence (UCARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.; Faculty of Medicine, MEDCIDS-Department of Community Medicine, Information and Health Decision Sciences, University of Porto, Porto, Portugal., Weller K; Urticaria Center of Reference and Excellence (UCARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany., Metz M; Urticaria Center of Reference and Excellence (UCARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany., Magerl M; Urticaria Center of Reference and Excellence (UCARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany., Kocatürk E; Urticaria Center of Reference and Excellence (UCARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.; Department of Dermatology, UCARE, Koç University School of Medicine, Istanbul, Turkey., Cherrez-Ojeda I; Universidad Espíritu Santo, Respiralab Research Center, Guayaquil, Ecuador., Gimenez-Arnau AM; Department of Dermatology, UCARE, Hospital del Mar and Research Institute, Universitat Pompeu Fabra, Barcelona, Spain., Parisi CAS; Adult and Pediatric Allergy Sections of the Italian Hospital of Buenos Aires, Buenos Aires, Argentina., Altrichter S; Urticaria Center of Reference and Excellence (UCARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.; Department of Dermatology and Venerology, UCARE, Kepler University Hospital, Linz, Austria.; Faculty of Medicine, Center for Medical Research, Johannes Kepler University, Linz, Austria., Ensina LF; Division of Allergy, Clinical Immunology and Rheumatology, Department of Pediatrics, Federal University of Sao Paulo, Sao Paulo, Brazil., Bouillet L; National Reference Center for Angioedema, Internal Medicine Department, Grenoble University Hospital, Grenoble, France., Asero R; Ambulatorio di Allergologia, Clinica San Carlo, Paderno Dugnano (MI), Italy., Gonçalo M; Faculty of Medicine, Coimbra University Hospital, University of Coimbra, Coimbra, Portugal., Guillet C; Department of Dermatology, University Hospital Zurich, Zurich, Switzerland., Rutkowski K; Urticaria Clinic, St John's Institute of Dermatology, Guy's and St Thomas' Hospital, London, UK., Bernstein JA; Division of Rheumatology, Allergy and Immunology, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA., Hardin H; Ohio University Heritage College of Osteopathic Medicine, Cleveland, Ohio, USA., Godse K; Department of Dermatology, Dr D Y Patil Medical College and Hospital, Navi Mumbai, India., Brzoza Z; Division of Allergology, Department of Internal Diseases, Institute of Medical Sciences, University of Opole, Opole, Poland., Sousa JIL; Department of Allergy, UCARE, Clinica San Felipe, Lima, Peru., Thomsen SF; Department of Biomedical Sciences, Department of Dermatology, Bispebjerg Hospital, University of Copenhagen, Copenhagen, Denmark., van Doorn M; Department of Dermatology, UCARE, Erasmus MC, Rotterdam, The Netherlands., Hide M; Department of Dermatology, Hiroshima City Hiroshima Citizens Hospital, Hiroshima, Japan., Ye YM; Department of Allergy and Clinical Immunology, Ajou University School of Medicine, Suwon, Korea., Vandersee S; Dermatologie/Venerologie, Bundeswehrkrankenhaus Berlin, Akademisches Lehrkrankenhaus der Charité, Berlin, Germany., Lapiņa L; Allergic Diseases Diagnosis and Treatment Center, Riga Stradins University, Pauls Stradins Clinical University Hospital, Riga, Latvia., Peter J; ACARE Centre, Division of Allergy and Clinical Immunology, Department of Medicine, Groote Schuur Hospital, University of Cape Town, Cape Town, South Africa., Zhao Z; Department of Dermatology and Venerology, Beijing Key Laboratory of Molecular Diagnosis on Dermatoses, National Clinical Research Center for Skin and Immune Diseases, Peking University First Hospital, Beijing, China., Han L; Greater Bay Area Institute of Precision Medicine (Guangzhou), School of Life Sciences, Fudan University, Shanghai, China., Nasr I; Department of Clinical Immunology and Allergy, Royal Hospital, Muscat, Oman., Rockmann-Helmbach H; Department of Dermatology/Allergology, University Medical Centre Utrecht, Utrecht University, Utrecht, The Netherlands., Sørensen JA; Department of Biomedical Sciences, Department of Dermatology, Bispebjerg Hospital, University of Copenhagen, Copenhagen, Denmark., Kara RÖ; Department of Dermatology, Sakarya University Faculty of Medicine, Sakarya, Turkey., Kurjāne N; Allergic Diseases Diagnosis and Treatment Center, Riga Stradins University, Pauls Stradins Clinical University Hospital, Riga, Latvia., Kurchenko AI; Department of Clinical and Laboratory Immunology, Allergology and Medical Genetics, Bogomolets National Medical University, Kyiv, Ukraine., Kaidashev I; Poltava State Medical University, Poltava, Ukraine., Tsaryk V; Department of Clinical and Laboratory Immunology, Allergology and Medical Genetics, Bogomolets National Medical University, Kyiv, Ukraine., Stepanenko R; Department of Dermatology and Venereology with Cosmetology Course, Bogomolets National Medical University, Kyiv, Ukraine., Maurer M; Urticaria Center of Reference and Excellence (UCARE), Institute of Allergology, Charité - Universitätsmedizin Berlin, Corporate Member of Freie Universität Berlin and Humboldt-Universität zu Berlin, Berlin, Germany.; Fraunhofer Institute for Translational Medicine and Pharmacology ITMP, Allergology and Immunology, Berlin, Germany.
المصدر: Clinical and translational allergy [Clin Transl Allergy] 2024 Jan; Vol. 14 (1), pp. e12328.
نوع المنشور: Journal Article
اللغة: English
بيانات الدورية: Publisher: Wiley Country of Publication: England NLM ID: 101576043 Publication Model: Print Cited Medium: Print ISSN: 2045-7022 (Print) Linking ISSN: 20457022 NLM ISO Abbreviation: Clin Transl Allergy Subsets: PubMed not MEDLINE
أسماء مطبوعة: Publication: 2021- : [London] : Wiley
Original Publication: London : BioMed Central
مستخلص: Background: Chronic spontaneous urticaria (CSU) is unpredictable and can severely impair patients' quality of life. Patients with CSU need a convenient, user-friendly platform to complete patient-reported outcome measures (PROMs) on their mobile devices. CRUSE ® , the Chronic Urticaria Self Evaluation app, aims to address this unmet need.
Methods: CRUSE ® was developed by an international steering committee of urticaria specialists. Priorities for the app based on recent findings in CSU were defined to allow patients to track and record their symptoms and medication use over time and send photographs. The CRUSE ® app collects patient data such as age, sex, disease onset, triggers, medication, and CSU characteristics that can be sent securely to physicians, providing real-time insights. Additionally, CRUSE ® contains PROMs to assess disease activity and control, which are individualised to patient profiles and clinical manifestations.
Results: CRUSE ® was launched in Germany in March 2022 and is now available for free in 17 countries. It is adapted to the local language and displays a country-specific list of available urticaria medications. English and Ukrainian versions are available worldwide. From July 2022 to June 2023, 25,710 observations were documented by 2540 users; 72.7% were females, with a mean age of 39.6 years. At baseline, 93.7% and 51.3% of users had wheals and angioedema, respectively. Second-generation antihistamines were used in 74.0% of days.
Conclusions: The initial data from CRUSE ® show the wide use and utility of effectively tracking patients' disease activity and control, paving the way for personalised CSU management.
(© 2024 The Authors. Clinical and Translational Allergy published by John Wiley & Sons Ltd on behalf of European Academy of Allergy and Clinical Immunology.)
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معلومات مُعتمدة: Moxie; Celldex Therapeutics; UCARE (Urticaria Centers of Reference and Excellence); Novartis
فهرسة مساهمة: Keywords: chronic urticaria self evaluation (CRUSE®) app; digital tools; mHealth apps; patient-reported outcome measures; wheals and angioedema
تواريخ الأحداث: Date Created: 20240128 Latest Revision: 20240130
رمز التحديث: 20240130
مُعرف محوري في PubMed: PMC10764293
DOI: 10.1002/clt2.12328
PMID: 38282190
قاعدة البيانات: MEDLINE
الوصف
تدمد:2045-7022
DOI:10.1002/clt2.12328