دورية أكاديمية
International Consensus on Standard Outcome Measures for Neurodevelopmental Disorders: A Consensus Statement.
| العنوان: | International Consensus on Standard Outcome Measures for Neurodevelopmental Disorders: A Consensus Statement. |
|---|---|
| المؤلفون: | Mulraney M; Department of Paediatrics, University of Melbourne, Parkville, Australia., de Silva U; International Consortium of Health Outcome Measures, Boston, Massachusetts., Joseph A; International Consortium of Health Outcome Measures, Boston, Massachusetts., Sousa Fialho MDL; International Consortium of Health Outcome Measures, Boston, Massachusetts., Dutia I; School of Allied Health, Australian Catholic University, Brisbane, Australia.; School of Human Movement and Nutrition Sciences, The University of Queensland, Brisbane, Australia., Munro N; Faculty of Medicine and Health, The University of Sydney, New South Wales, Australia., Payne JM; Murdoch Children's Research Institute, Melbourne, Australia., Banaschewski T; Child and Adolescent Psychiatry and Psychotherapy, Central Institute of Mental Health, Medical Faculty Mannheim, University of Heidelberg, Mannheim, Germany., de Lima CB; Institute for Evidence Based Healthcare at University of Lisbon School and Medicine, Lisbon, Portugal., Bellgrove MA; Turner Institute for Brain and Mental Health and School of Psychological Sciences, Monash University, Melbourne, Australia., Chamberlain SR; Department of Psychiatry, Faculty of Medicine, University of Southampton, Southampton, UK.; Department of Neuroscience and Physiology, Norton College of Medicine at SUNY Upstate Medical University, Syracuse, New York., Chan P; Department of Psychiatry, Queen Mary Hospital, Hong Kong., Chong I; May Institute Inc, Randolph, Massachusetts., Clink A; Dundee & Angus ADHD Support Group, Dundee, UK., Cortese S; Centre for Innovation in Mental Health, School of Psychology, Faculty of Environmental and Life Sciences, University of Southampton, Southampton, UK.; Tees, Esk, and Wear Valleys NHS Foundation Trust, Middlesbrough, UK.; Hassenfeld Children's Hospital at NYU Langone, New York University Child Study Center, New York City, New York.; Department of Precision and Regenerative Medicine and Ionian Area, University of Studies of Bari Aldo Moro, Bari, Italy., Daly E; Department of Forensic and Neurodevelopmental Sciences, King's College London, London, UK., Faraone SV; Department of Neuroscience and Physiology, Norton College of Medicine at SUNY Upstate Medical University, Syracuse, New York.; Department of Psychiatry and Behavioral Sciences, Norton College of Medicine at SUNY Upstate Medical University, Syracuse, New York., Gladstone M; Department of Women and Children's Health, Institute of Life Course and Medical Sciences, University of Liverpool, Liverpool, UK., Guastella AJ; Brain and Mind Centre, Children's Hospital Westmead Clinical School, Faculty of Medicine and Health, University of Sydney, New South Wales, Australia., Järvdike J; WeMind Suomi, Helsinki, Finland., Kaleem S; Department of Pediatrics and Child Health, Aga Khan University Hospital, Karachi, Pakistan., Lovell MG; Tees, Esk, and Wear Valleys NHS Foundation Trust, Middlesbrough, UK.; Royal College of Psychiatrists, London, UK., Meller T; Northern Beaches Child and Family Health Service, Sydney, Australia., Nagy P; Division of Neurodevelopmental Disorders, Bethesda Children's Hospital, Budapest, Hungary., Newcorn JH; Department of Psychiatry, Icahn School of Medicine at Mount Sinai, New York, New York., Polanczyk GV; Department of Psychiatry, Faculdade de Medicina, Universidade de São Paulo, São Paulo, Brazil., Simonoff E; Department of Child and Adolescent Psychiatry, King's College London, London, UK., Szatmari P; Centre for Addiction and Mental Health University of Toronto, Toronto, Ontario, Canada., Tehan C; The Royal Children's Hospital, Melbourne, Australia., Walsh K; Division of Neuropsychology, Children's National Hospital and The George Washington University School of Medicine, Washington, DC., Wamithi S; Department of Paediatrics, Child & Adolescent Health, Aga Khan University Medical College, Nairobi, Kenya., Coghill D; Department of Paediatrics, University of Melbourne, Parkville, Australia. |
| المصدر: | JAMA network open [JAMA Netw Open] 2024 Jun 03; Vol. 7 (6), pp. e2416760. Date of Electronic Publication: 2024 Jun 03. |
| نوع المنشور: | Journal Article |
| اللغة: | English |
| بيانات الدورية: | Publisher: American Medical Association Country of Publication: United States NLM ID: 101729235 Publication Model: Electronic Cited Medium: Internet ISSN: 2574-3805 (Electronic) Linking ISSN: 25743805 NLM ISO Abbreviation: JAMA Netw Open Subsets: MEDLINE |
| أسماء مطبوعة: | Original Publication: Chicago, IL : American Medical Association, [2018]- |
| مواضيع طبية MeSH: | Neurodevelopmental Disorders*/diagnosis , Consensus* , Outcome Assessment, Health Care*, Humans ; Child ; Adolescent ; Delphi Technique ; Attention Deficit Disorder with Hyperactivity/diagnosis ; Female |
| مستخلص: | Importance: The use of evidence-based standardized outcome measures is increasingly recognized as key to guiding clinical decision-making in mental health. Implementation of these measures into clinical practice has been hampered by lack of clarity on what to measure and how to do this in a reliable and standardized way. Objective: To develop a core set of outcome measures for specific neurodevelopmental disorders (NDDs), such as attention-deficit/hyperactivity disorder (ADHD), communication disorders, specific learning disorders, and motor disorders, that may be used across a range of geographic and cultural settings. Evidence Review: An international working group composed of clinical and research experts and service users (n = 27) was convened to develop a standard core set of accessible, valid, and reliable outcome measures for children and adolescents with NDDs. The working group participated in 9 video conference calls and 8 surveys between March 1, 2021, and June 30, 2022. A modified Delphi approach defined the scope, outcomes, included measures, case-mix variables, and measurement time points. After development, the NDD set was distributed to professionals and service users for open review, feedback, and external validation. Findings: The final set recommends measuring 12 outcomes across 3 key domains: (1) core symptoms related to the diagnosis; (2) impact, functioning, and quality of life; and (3) common coexisting problems. The following 14 measures should be administered at least every 6 months to monitor these outcomes: ADHD Rating Scale 5, Vanderbilt ADHD Diagnostic Rating Scale, or Swanson, Nolan, and Pelham Rating Scale IV; Affective Reactivity Index; Children's Communication Checklist 2; Colorado Learning Disabilities Questionnaire; Children's Sleep Habits Questionnaire; Developmental-Disability Children's Global Assessment Scale; Developmental Coordination Disorder Questionnaire; Family Strain Index; Intelligibility in Context Scale; Vineland Adaptive Behavior Scale or Repetitive Behavior Scale-Revised and Social Responsiveness Scale; Revised Child Anxiety and Depression Scales; and Yale Global Tic Severity Scale. The external review survey was completed by 32 professionals and 40 service users. The NDD set items were endorsed by more than 70% of professionals and service users in the open review survey. Conclusions and Relevance: The NDD set covers outcomes of most concern to patients and caregivers. Use of the NDD set has the potential to improve clinical practice and research. |
| تواريخ الأحداث: | Date Created: 20240613 Date Completed: 20240613 Latest Revision: 20240613 |
| رمز التحديث: | 20240613 |
| DOI: | 10.1001/jamanetworkopen.2024.16760 |
| PMID: | 38869906 |
| قاعدة البيانات: | MEDLINE |
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