دورية أكاديمية
Balancing on life's ladder: A meta‐ethnography of the existential experiences of siblings of children with complex care needs.
| العنوان: | Balancing on life's ladder: A meta‐ethnography of the existential experiences of siblings of children with complex care needs. |
|---|---|
| المؤلفون: | Nygård, Carina, Clancy, Anne, Kitzmüller, Gabriele |
| المصدر: | Journal of Advanced Nursing (John Wiley & Sons, Inc.); Jul2024, Vol. 80 Issue 7, p2629-2646, 18p |
| مصطلحات موضوعية: | SIBLINGS, PEDIATRIC nursing, NURSES, POLICY sciences, CHILDREN with disabilities, SECONDARY care (Medicine), OCCUPATIONAL roles, CHRONIC diseases in children, CHILD health services, PRIMARY health care, HEALTH policy, ETHNOLOGY, EMOTIONS, PSYCHOLOGICAL adaptation, EXPERIENCE, SYSTEMATIC reviews, CHRONIC diseases, PEDIATRICS, QUALITY of life, NURSING practice, FAMILY-centered care, MEDICAL needs assessment, PSYCHOSOCIAL factors, WELL-being |
| مستخلص: | Aim: To synthesize and interpret existing qualitative research on the existential experiences of siblings of children with complex care needs. Design: Noblit and Hare's interpretive meta‐ethnography. Methods: The study has been registered in the international prospective register for systematic reviews (PROSPERO). Noblit and Hare's 7‐step procedure was followed and reciprocal translation was performed to analyse the data and develop a line of argument synthesis. Data Sources: A comprehensive systematic literature search of five databases, along with extensive manual searches, was completed in November 2022. The final sample comprised 18 studies published between 2010 and 2022. Results: A line of argument, expressed through an overarching metaphor, "balancing on life's ladder", illustrates the core findings of siblings' fluctuating experiences of existential well‐being, and encapsulates four third‐order themes: the emotional turmoil of siblings, interrupted family life, siblings strive to be themselves and siblings struggle to cope. Conclusion: Growing up with a sibling with complex care needs made children feel invisible, lonely and struggling to find the courage to cope. By adopting a lifeworld approach, nurses can become aware of healthy siblings' unmet needs. Future research is needed on how nurses can contribute to siblings' existential well‐being, in primary – and secondary health care settings. Implications: The study provides insight into siblings' existential experiences and factors improving their well‐being, enabling nurses to provide a more optimized lifeworld‐led clinical practice. Impact: Healthcare, nursing education and practice should be informed by the knowledge of existential issues. Nurses are well‐positioned to work alongside families to provide family‐centered care. Our findings have implications for health policies tailored to the needs of children with chronically ill siblings. Reporting Method: This review adheres to the Equator and improving reporting of meta‐ethnography (eMERGe) guidelines. Patient or Public Contribution: No patient or public contribution, because the data comprised previously published studies. [ABSTRACT FROM AUTHOR] |
| Copyright of Journal of Advanced Nursing (John Wiley & Sons, Inc.) is the property of John Wiley & Sons, Inc. and its content may not be copied or emailed to multiple sites or posted to a listserv without the copyright holder's express written permission. However, users may print, download, or email articles for individual use. This abstract may be abridged. No warranty is given about the accuracy of the copy. Users should refer to the original published version of the material for the full abstract. (Copyright applies to all Abstracts.) | |
| قاعدة البيانات: | Complementary Index |
Full Text Finder كن أول من يترك تعليقا!